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Kidney Cancer

Rough day today
I am about 2 months post op after a radical nephrectomy to remove my left kidney and the nearly 14cm tumor. At the time there were no signs of metastasis, clear margins, lymph nodes clear, etc. The pathology came back as an agressive type of uRCC but the surgeon and urology team was pretty confident they caught it in time.…
Should I be worried
Hi I am new here and have an appt Monday for some "leasions"/cyst they found during a CT in the ER for abdominal pain. I was seen in the ER in July becuase I started having back and side/front abdominal pain. I thought it was kidney stone as I am prone to them, but pain started in the front when it is normally in the back.…
RCC Pathology Report
Greetings Everyone! I am new to the group and would like to share my story. Diagnosed with RCC(2 tumors) one tumor was Clear Cell Renal Cell Carcinoma and the second was Epithelioid Angiomyliopomas. I had Right Robotic Assist Partial Nephrectomy in Oct 2017. The Dr. said everything went well and he got all the cancer.…
Should I be worried?
on January 30/18 had an ultrasound done on my abdomen. Results came back with right renel pelvic fullness and was due to a physiologic(not sure what that means) blood work is was fine and urinalysis was good. I had another follow ultrasound in June 2018 with blood work and urinalysis. All came back good. my ultrasound…
Late Night With NED
My official visit to review my results is not until Wednesday, but my chest x-ray and ultrasound scans popped up on my patient portal a few minutes ago. No evidence of metastatic disease and unremarkable. NEMDU is kind of hard to pronounce, so we will call NEMBU NED. NED is welcome in my world any time of the day or night.…
New diagnosis, lots of questions
Hi, I was diagnosed with Lupus in June and through the bloodwork, it was found that there was a lesion on the liver. An Ultrasound and MRI revealed that the liver lesion wasn't an issue, but they found a tumor on the kidney that is a problem. They belive it is RCC and measures 3.4cm by 3cm. My gastro is referring me to a…
Tumor flare or progression after votrient or TKI inhibitor
Hi all! I'm actually a stage IV sarcoma patient, but had a quick question as votrient is commonly used in RCC. Has anyone been taken off votrient or another TKI...or had a break...and progressed, then were put back on votrient and regressed? I figured I'd ask here as it seems folks on this board are more responsive and…
Uncle NED showed up today
I am so happy to say that I had my one year checkup today and EVERYTHING LOOKED GREAT! I AM OVER THE MOON!
Done with surgery ...
I just had my kidney tumor removed via a partial nephrectomy last week (8/1). Now the waiting for the pathology results.... Been in terrible pain since the surgery, specially in the back. That's making it very difficult to move around or get up from a lying position. Is that normal? And how soon does it get better then?…
Checkmate 214 - Nivolumab / Ipilimumab
Hi- I'm in Brisbane Australia. This is a great site with alot of info on offer. I'm currently 4 mths into the Checkmate 214 trial. Previously diagnosed March 2015 with Stage 4 RCC. - Mass on left kidney, with some extension into diaphragm. Numerous mets on both lungs up to 19mm. Surgeon says cannot recommend op until lungs…
New Treatment Option
Hello Everyone, While I usually hang out with the wonderful warrior ladies on the uterine cancer board because of Mrs. Red‘s prior serous cancer bout (she’s NED now thank the Lord), I also look at this board a lot too because my sister bravely fought renal cell cancer for 10 years until the end. I saw a new treatment for…
Fatigue
5 months after my partial nephrectomy... I have spent my last month visiting ER and my doctor... symptons: episodes of very low energy, sometimes at the point that I can barely walk... headaches and multiple body aches... and my anxiety growing... I can barely be in a meeting without feel myself out of breath and with no…
Nephrectomy
I get a big pain 3 years after I had a full left nephrectomy
pain on Votrient
Hi everyone. My husband has stage IV kidney cancer...had his left kidney removed 5 years ago and was "cured" ....then it popped up in his lungs and on his scalp by his five year check. We did high dose IL II....horrible treatment and didn't do a thing. In fact, he now has three lesions on his liver, one on his thyroid, one…
RCC at 28 years
Hi everyone, My 28 year old wife has been diagnosed in December 2017 with a big kidney tumour (12cm/5inches). This happend after she experienced some pain on the right side of her abdomen (found out later it was gallblader issue), made an MRI and we were shocked about the presence of this tumour. She didn't experience any…
Genetic tests are in...
And it's all negative.... Not that I wanted it to be postiive for anything (they tested for 64 things based on personal and family history). But I was hoping for some answers, especially since my younger sister also has a kidney lesion. The geneticist thinks it may be something they don't have a test for yet so she wants…
Waiting in secret
I am a new member to the board, but I have not received a diagnosis yet. I was diagnosed with my first kidney stone 10 days before my wedding. I had complained about pain in my side for months leading up to my wedding, but my GP at the time told me that I must have pulled a muscle or some other silly conclusion. It was…
Urine testing
I've had higher (+2) leukocyte esterase and wbc (10-20) with urine tests the last several times. I did have one cultured and no bacteria in urine. Nobody seems concerned when I ask. Although, when I look it up I see can mean infection which I don't have or could be sign of kidney or bladder cancer. Anyone have any…
Got a brain met and now it is dead I hope
I ended up going to ER mid June with seizures, they did a cat scan and found a single brain met in my parietal lobe. Began on Dex methasone to keep the swelling down and with no more seizures was able to to go and have SBR in 5 gy in one sitting. Pretty amazing technology. So for now, I guess this dead tissue will live in…
Uncle Ned / Need advice
Hi, all - Uncle Ned will be having dinner with me. YAY! It's too hot to heat up the kitchen by cooking, so take-away pizza is sounding really good right now. Maybe we'll get a movie and eat in front of the TV instead of doing the dining room dinner thing. Which makes me wonder... After not drinking beer in decades, I…
Have been gone for awhile-latest CT shows a 3mm lung nodule
Have been well since I was diagnosed with RCC back in Dec 2016. I was retired, but went back to work after my Right kidney was removed Jan 2017, so I have been pretty busy. CT scan yesterday shows a 3mm lung nodule. Five months ago when I had a CT, the nodule was only 2mm. So, it has changed. I called for my results but…
Introduction and my kidney cancer story
In June of 2014, a year and a half after my first child was born, I went back to my obstetrician and asked when the troublesome uterin fibroid I had was ever going to go away as she said it would. Well, it wasn’t a fibroid, but a grapefruit sized tumor on my right kidney. A few weeks later my right kidney was removed at…
Prayers please ...... Amy_Jo
I had an open neph on 3/8/18. My pathology showed clear margins. Two weeks later I had another scan which found blood clots in my lung. April 15 I began having excruciating back pain, after report to the ER I was told my scan showed lesions on my spine liver and lungs. I had a pet scan and biopsy of my liver yesterday…
New to the board here on behalf of my father
I've been lurking and reviewing posts the last few days. I am here on behalf of my Dad and figured I'd make an introductory post. Dad had the flu in January and afterwards he had some rib pain. The NP he had been using as his defacto GP diagnosed him with broken ribs. Fast forward to March, he has his medicare physical and…
To Fozhd
Hey Fox, how have you been? I've been able to figure out that you appear to be logging in daily. But I don't see a lot of posts from you. I'm thinking you're probably in the same predicament as I am, and your comprehension isn't allowing you to get around this discussion board as easliy as you used to. My brain mets are…
Partial, Radical, Biopsy?
Hi I am writing on behalf of my wife. She is 46. She was diagnosed with a 6 cm tumor on left kidney. MRI seems to indicate RCC. No indications of spread, and stage 1B as near as can be told with MRI & CT Scan. We have seen two urologic oncologists at 2 different hospitals (both hospitals have stellar reps, one of them is…
back after 3 months and have questions
Well , I'm back on here, after 3 months, to see if anyone can shed some light on what my wife might be in for. ANY informative feedback is greatly appreciated . The oncologists, after 2 different biopsies, determined she has stage 4 Papillary Renal Cell Carcinoma (nncRCC). She has a small tumor on one kidney. With no mets…
Test before treatment
What test would you want before treatment to establish a baseline and why would you want such test? I am going to have some form of treatment for a small tumor sooner or later (probably sooner) and would like to know as much as I can before hand in order to know where I stand after. Thanks Perry
Scan Results
Just finished up at the Drs for my scan results. Uncle NED stopped by for a visit. I am so blessed and very thankful!!!! I was surprised when the Dr said he would see me in a year. I thought I would go in another 6 months then if all clear go yearly. GFR was 100 and creatinine was .9. The Dr mentioned losing 20 more lbs,…
Had to Flip a Coin
I had to flip a coin to see which forum I would make my first post. Kidney won. While battling Sepsis from a prostate biopsy in April a Bosniak 4 tumor was found on my right kidney with a Pelvic CT Scan. The good news is the tumor is < 3cm and the prostate cancer appears to be localized with all testing/results thus far.…

Kidney Cancer

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