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SWELLING AND WEIGHT GAIN
Good Day Everyone, It has been only two weeks and three days since my Radical Kidney Nephrectomy and I have been walking continuously since coming out of recovery room at the Hospital (as soon as I got to My Hospital room I got up and walked one lap around the whole 4th floor and continued every 2 hours until I left) .…
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Never bragging
Just so thankful to my Heavenly Father my 6 month scan was NED. Praying hard for you all.
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Scans on Friday-1 year
Tomorrow is a year to the day that the Doc told me I had a kidney stone and small mass in my left Kidney. Friday is my secondad set of 6 month scans. I have been having a little rib pain on both sides,not sure if it's just from working hard or anxiety or both or the Big C is back to get me!! Overall feel pretty good…
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4.5 years NED
Hello, folks, Boy, life has a way of being “life,” doesn’t it? But that’s one of the things that makes this group so special. Each and every survivor reading this can say the same thing. Life is precious. And sometimes, something happens to bring that into focus.
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Results
Chest: 1. No evidence of metastatic disease within the chest. Abdomen: 1. Postsurgical changes from partial left nephrectomy. Next on 2. No evidence of malignancy in the abdomen or pelvis. 3. Hepatic steatosis. 4. 1.4 cm cyst in the right kidney. Signed By: Brown MD, Benjamin Narrative EXAM: CT-ABDOMEN & PELVIS W CONT,…
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Finally results are in
This year I am 5 years out from my neph and had my follow up with doctor today. I was extra stressed today as I had my CT scan a month ago so the waiting was agonizing. I had also a one hour wait to see the doc which didn't help either. Long story short it is NED - yay!!. However I don't get off that easy as he was…
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Experience with blood clots / need for coumadin / monitor Vit. K after K. cancer surgery?
Are there folks here with these experiences? - a blood clots after kidney cancer surgery b blood thinner treatments after cancer surgery to prevent blood clots c taking injections of daily Lovenox as blood thinner? because perhaps the pills don't work with all K cancer? d my wrinkle is that up to now (age 66) have never…
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testing cysts
Has anyone heard of a new method to diagnose cysts as benign or cancerous? I am not sure if its available yet but I believe you are injected with something and based on its interaction with the cyst it can diagnose if cyst is malignant or benign. Thank you
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Clear cell renal carcinoma metastasized to lung
I am new to this forum. I am 29 and was diagnosed with clear cell renal carcinoma at 27. I had a total right nephrectomy. Then found out a few months later it metastasized to lungs/lymph nodes. (Stage lV) I have done Sutent with mixed results opdivo with mixed results and recently went to the NIH in D.C for immunotherapy…
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NEW here cysts and mass getting Davinci
hi I’m new and have read many of the heart wrenching stories on here. CT in early 2017 found 2 cysts and a mass, incidental findings. Several doctors later and more CTs, ultrasound and MRI, finally sent to a urologist surgeon. We did CT and repeated 6 months later. I have one small fatty cyst upper pole, another mid, and…
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Ct scan today
very nervous about my first CT scan after my partial....getting ready to go the hospital now lots of thoughts about about what happened and what could happen.... i have some pain in the right side of my hip that comes and goes... besides that I finally recovered my energy and I feel better. The problem is that I feel…
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First Scans Monday
Have my first scans on Monday since my surgery 6 months ago. Starting to get that scanxiety that everyone speaks of. Going to keep myself busy over the weekend and not think about it. Just really hoping things look good. Haven't had a scan since they found my RCC. Wish me luck! :)
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Rough day today
I am about 2 months post op after a radical nephrectomy to remove my left kidney and the nearly 14cm tumor. At the time there were no signs of metastasis, clear margins, lymph nodes clear, etc. The pathology came back as an agressive type of uRCC but the surgeon and urology team was pretty confident they caught it in time.…
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Should I be worried
Hi I am new here and have an appt Monday for some "leasions"/cyst they found during a CT in the ER for abdominal pain. I was seen in the ER in July becuase I started having back and side/front abdominal pain. I thought it was kidney stone as I am prone to them, but pain started in the front when it is normally in the back.…
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RCC Pathology Report
Greetings Everyone! I am new to the group and would like to share my story. Diagnosed with RCC(2 tumors) one tumor was Clear Cell Renal Cell Carcinoma and the second was Epithelioid Angiomyliopomas. I had Right Robotic Assist Partial Nephrectomy in Oct 2017. The Dr. said everything went well and he got all the cancer.…
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Should I be worried?
on January 30/18 had an ultrasound done on my abdomen. Results came back with right renel pelvic fullness and was due to a physiologic(not sure what that means) blood work is was fine and urinalysis was good. I had another follow ultrasound in June 2018 with blood work and urinalysis. All came back good. my ultrasound…
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Late Night With NED
My official visit to review my results is not until Wednesday, but my chest x-ray and ultrasound scans popped up on my patient portal a few minutes ago. No evidence of metastatic disease and unremarkable. NEMDU is kind of hard to pronounce, so we will call NEMBU NED. NED is welcome in my world any time of the day or night.…
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New diagnosis, lots of questions
Hi, I was diagnosed with Lupus in June and through the bloodwork, it was found that there was a lesion on the liver. An Ultrasound and MRI revealed that the liver lesion wasn't an issue, but they found a tumor on the kidney that is a problem. They belive it is RCC and measures 3.4cm by 3cm. My gastro is referring me to a…
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Tumor flare or progression after votrient or TKI inhibitor
Hi all! I'm actually a stage IV sarcoma patient, but had a quick question as votrient is commonly used in RCC. Has anyone been taken off votrient or another TKI...or had a break...and progressed, then were put back on votrient and regressed? I figured I'd ask here as it seems folks on this board are more responsive and…
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Uncle NED showed up today
I am so happy to say that I had my one year checkup today and EVERYTHING LOOKED GREAT! I AM OVER THE MOON!
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Done with surgery ...
I just had my kidney tumor removed via a partial nephrectomy last week (8/1). Now the waiting for the pathology results.... Been in terrible pain since the surgery, specially in the back. That's making it very difficult to move around or get up from a lying position. Is that normal? And how soon does it get better then?…
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Checkmate 214 - Nivolumab / Ipilimumab
Hi- I'm in Brisbane Australia. This is a great site with alot of info on offer. I'm currently 4 mths into the Checkmate 214 trial. Previously diagnosed March 2015 with Stage 4 RCC. - Mass on left kidney, with some extension into diaphragm. Numerous mets on both lungs up to 19mm. Surgeon says cannot recommend op until lungs…
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New Treatment Option
Hello Everyone, While I usually hang out with the wonderful warrior ladies on the uterine cancer board because of Mrs. Red‘s prior serous cancer bout (she’s NED now thank the Lord), I also look at this board a lot too because my sister bravely fought renal cell cancer for 10 years until the end. I saw a new treatment for…
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Fatigue
5 months after my partial nephrectomy... I have spent my last month visiting ER and my doctor... symptons: episodes of very low energy, sometimes at the point that I can barely walk... headaches and multiple body aches... and my anxiety growing... I can barely be in a meeting without feel myself out of breath and with no…
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Nephrectomy
I get a big pain 3 years after I had a full left nephrectomy
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pain on Votrient
Hi everyone. My husband has stage IV kidney cancer...had his left kidney removed 5 years ago and was "cured" ....then it popped up in his lungs and on his scalp by his five year check. We did high dose IL II....horrible treatment and didn't do a thing. In fact, he now has three lesions on his liver, one on his thyroid, one…
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RCC at 28 years
Hi everyone, My 28 year old wife has been diagnosed in December 2017 with a big kidney tumour (12cm/5inches). This happend after she experienced some pain on the right side of her abdomen (found out later it was gallblader issue), made an MRI and we were shocked about the presence of this tumour. She didn't experience any…
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Genetic tests are in...
And it's all negative.... Not that I wanted it to be postiive for anything (they tested for 64 things based on personal and family history). But I was hoping for some answers, especially since my younger sister also has a kidney lesion. The geneticist thinks it may be something they don't have a test for yet so she wants…
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Waiting in secret
I am a new member to the board, but I have not received a diagnosis yet. I was diagnosed with my first kidney stone 10 days before my wedding. I had complained about pain in my side for months leading up to my wedding, but my GP at the time told me that I must have pulled a muscle or some other silly conclusion. It was…
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Urine testing
I've had higher (+2) leukocyte esterase and wbc (10-20) with urine tests the last several times. I did have one cultured and no bacteria in urine. Nobody seems concerned when I ask. Although, when I look it up I see can mean infection which I don't have or could be sign of kidney or bladder cancer. Anyone have any…