Prayers please ...... Amy_Jo

Amy_Jo Member Posts: 70 Member

I had an open neph on 3/8/18. My pathology showed clear margins. Two weeks later I had another scan which found blood clots in my lung. April 15 I began having excruciating back pain, after report to the ER I was told my scan showed lesions on my spine liver and lungs. I had a pet scan and biopsy of my liver yesterday doctors are confused because my scans prior to my surgery showed no other lesions I was told I was cancer free after my surgery. I start radiation treatment for my back Monday. My oncologist is going to meet with me once my liver biospy results return to determine the plan of attack. It's so frustrating because I had began to feel better and was looking forward to living my life now I'm back to square one. Please pray for my family I am a mother of 4 ages 2,5,13,16. ImI ready to fight for my life - if any of you have any advice please share. Thank you for all your thoughts and prayers so far. I am in NC so far my treatment has been at Forsyth if anyone has suggestions I'm open. At this point my oncologist are sure if my renal cell spread or if this a different cancer. I should know more by Tuesday. 



  • steelr66
    steelr66 Member Posts: 23
    Prayers for both strength and

    Prayers for both strength and courage. 

  • Retcenturion
    Retcenturion Member Posts: 240 Member
    Hope for speedy answers

    Sorry for the new findings. Hope you get quick results for your tests.sending you positive thoughts for you and your loved ones.

  • Bryn1108
    Bryn1108 Member Posts: 97 Member
    Big hugs and prayers

    Praying hard for you.  May God give the doctors the answers needed. And you have a long,  blessed, pain free life. 

  • Canadian Sandy
    Canadian Sandy Member Posts: 784 Member
    Prayers going your way. Keep

    Prayers going your way. Keep up the faith and positive thinking Amy.

  • Cinnamongirl
    Cinnamongirl Member Posts: 199 Member
    edited April 2018 #6

    Amy Jo,  I will be praying that you find answers and peace. Being a mother of 4 myself I know you are a fighter.

    Can I ask your pathology staging? Was your cancer an aggressive grade?

    It must be frustrating and very frightening to be on such a roller coaster right now.

    Sending you love and prayers.


  • Angiebby75
    Angiebby75 Member Posts: 208 Member
    i have six children so I

    i have six children so I understand. I will keep you in my prayers. Blessing to you.

  • APny
    APny Member Posts: 1,995 Member
    No advice; you're in my

    No advice; you're in my thoughts and prayers. I'm sure your doctors will come up with a plan of treatment. Wishing you all the very best!

  • stub1969
    stub1969 Member Posts: 966 Member

    Sorry to hear about your situation, Amy.  My only advice is to hold on until your oncologist receives your biopsy and is able to make a plan for you.  If you are being cared for by an RCC specialist then he/she will know the plethera of possible routes to take...I'm sure you are in good hands.  The other piece of advice I'd give you is to become a member of smart patients.  Tell your story to the group.  There are a few of those members that are being treated in NC and can give you some pointers.  

    Wishing the best outcome for you!  


  • icemantoo
    icemantoo Member Posts: 3,361 Member
    Sending good karma

    Sending good karma




  • Steph85
    Steph85 Member Posts: 166 Member
    Sending big hugs and positive

    Sending big hugs and positive thoughts for you and your family. I'm soo sorry you have to be going through this. Wish I had advice but.. I don't . be strong,  with a Mom of 4 kids, I know you are strong!


  • foxhd
    foxhd Member Posts: 3,181 Member
    Amy, hold on

    I have seen, me included, people who went from the "We got it all" to having 20 mets in only weeks. It seems the mets were always there like seeds. The primary tumor (mother ship)  restrains them from growth at this sage. With the primary tumor re moved, the secondary tumors grow un restricted. Bam! out of control.

    There is good news. And it worked for me. The tumors exhibited that they were controlled by some chemical signal. It made me a good candidate for both immunotherapies and tki's.I've had to change drugs every so often, but I  am working on my 8th year now. It is much better than my summer 2012 life expectancy.

    And radiation has done wonders in eliminating bone met pain.

    Enter your treatments believing you can do this because so many of us have done it. Pull from our karma.

  • kutzi17
    kutzi17 Member Posts: 17
    I wish you well! Sending you

    I wish you well! Sending you prayers and positive vibes!

  • Gtngbtr58
    Gtngbtr58 Member Posts: 206 Member
    Amy Jo

    Sending good wishes your way!°

  • lobbyist0724
    lobbyist0724 Member Posts: 515 Member
    Sending you prayer for

    Sending you prayer for positive results!

  • Glidergal365
    Glidergal365 Member Posts: 93
    Sending good thoughts!!

    I hope you're doing ok. Sending hugs and positive thoughts <3 

  • MelBlessed
    MelBlessed Member Posts: 71 Member

    for you and your family.  You can fight it!!

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    Amy Jo we're here for YOU!

    Amy Jo we're here for YOU! Know that we'll be along side you if you want while you fight this battle.

    I have heard of amazing work using your own DNA, I want to say that identifies and creates an exact treatment for you as an individual.

    and the one for liver is:


    Sending you HEALING HUGS of HOPE and CARE!


  • jazzgirl
    jazzgirl Member Posts: 240 Member
    More hugs and prayers

    Amy Jo may you have peace and less pain this night.  Praying for you and your family every day.  

  • foroughsh
    foroughsh Member Posts: 779 Member
    Praying for you and your

    Praying for you and your family 

    May you have a long cancer free life after treatment


  • JoeyZ
    JoeyZ Member Posts: 210 Member
    More good wishes....Hope you

    More good wishes....Hope you are doing ok.