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Question
So after my good results from my stomach biopsy. I asked my oncologist when would my next follow up visit up be. She said Labs only no scans and that will not be until January. My last scan in May was the questionable one but proven clear ( endometriosis ) not metastis by CT guided biopsy. Is that typical. I know I read…
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Micro bubbles sonogram
Hello everyone. I finally saw the urologist today and while I went int expecting him to schedule surgery, he wants me to have an microbubble sonogram. Had anyone had this done and did the results change anything? Doctor said that my ultrasound showed mass had separations with thin walls but the CT scan said thick walls. He…
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Chromophobe RCC
This is my first post, although I have gained a lot of useful info from everyone else's posts over the past few months. I have my 2nd scan (6 months post-op) scheduled for next Monday. My first scan was clear, and for that I am very thankful. I pray the same will be true with the next one. My question is this - does anyone…
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3cm mass found on left kidney
doctor says it's cancer ....don't know what to think
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Abunai
Hi all, This is Cathy, Abunai's wife. Dave has been on hospice since Wednesday, and has had good and not so good days. Today was an okay day, and he's been able to talk and get some thoughts across. He wanted me to tell you what is going on, and that he loves you all. He gained a lot of strength from this board and the…
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Two years since surgery
And still NED. I am thankful. Now I'll log have an annual CT scan for the next two years. I appreciatespore everyone here. Thanks for fighting together. Love to you all.
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Just a quick Thank You!
I haven't been posting here much, but do stop and peek and read through. I just wanted to thank everyone on this board again. You all helped me keep it together last fall when I was diagnosed, provided support when I had surgery in January, and were there for me to share my 6 month NED results. Thanks so much and keep…
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Biopsy results
Reviewing my situation I was one stage 1 grade 1 in Oct of 2017. Then a follow scan at 6 months radiologist thought an area in my stomach may be a metastasis. The biopsy was Friday. It went pretty well no pain or anything. Staff was very nice. The doctor took 3 samples. He told me to listen for the click sound. I stressed…
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Tolerating treatment
I hate to be a downer today, but I'm having a rough go of things right now. Started Votrient 10 days ago and have been reduced from 800 to 600. SEs are really starting to kick in. GI issues, BP, chills, fatigue, bad headaches, and just feeling generally "yucky." For those of you who are, or have been on it, how long did it…
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First-ever GLOBAL kidney cancer patient & caregiver survey from IKCC
I thought I posted it, but guess not... Please support the effort from IKCC. Thank you. ------------------------------------------------------- The IKCC (International Kidney Cancer Coalition) has just launched the first-ever GLOBAL kidney cancer patient & caregiver survey. This is a massive project that is supported by 26…
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Anlotinib: a novel multi-targeting TKI treatment
It is exciting to see more new treatments being available. Anlotinib: a novel multi-targeting tyrosine kinase inhibitor in clinical development. https://www.urotoday.com/recent-abstracts/urologic-oncology/renal-cancer/106996-anlotinib-a-novel-multi-targeting-tyrosine-kinase-inhibitor-in-clinical-development.html
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Couch Surfing?
My kids use this term when they crash at friends Dorms or apartments not the professional business. Last week we were offered free use of house for long weekend on Cape Cod with 2 other couple's. It's a 6 hour drive with sleeping for 4 beds 1 air mattress. None of us had ever been there. Before my Neph it probably was…
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Recovery Taking a Long Flight
Hi everyone. I was recently diagnosed with RCC. Had an open partial nephrectomy on Aug 15th. Have an upcoming flight to Japan from NYC stopover in China on OCT 12. First leg is 16 hours, then a quick layover, then 4 hours. Is this too much? I'm relatively young (according to the drs) 38 and healthy, active. But still on a…
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I'm back
Hi Everyone, sorry I've been missing for so long - a number of reasons, none of which excuse my absence when so many of you are so faithful in your daily postings and encouragement. I have been catching up reading posts periodically and so sorry to hear of Abunai's death and the struggles of many - also rejoice with those…
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Question post nephrectomy
I had my right kidney removed April 17, 2018 (stage 1 RCC) and have been recently having a lot of cramping and pain in the area where my kidney was. I had my 3 month check at the beginning of August and my labwork and abdominal ultrasound came back normal. Has anyone had this happen? Thanks!
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We deserve a laugh today.
Last week, we took some friends to a new restaurant, 'Steve's Place,' and noticed that the waiter who took our order carried a spoon in his shirt pocket. It seemed a little strange. When the busboy brought our water and utensils, I observed that he also had a spoon in his shirt pocket. Then I looked around and saw that all…
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Hello
So I have been away from posting a while. I have been so anxious and stressed. I just been so scared. It seems like everything twinges all over my body. I did go on a family cruise of like 20 people family members. I planned this before my last scans. I will get my biopsy next week of the possible area in my abdomen that…
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General Physical Results
Just got done with the Dr for my yearly physical. This time last year I was notified that microspoic blood was found in my urine, which lead me on a path I didn’t want to go down, but makes me thankful for each day!! This year all my lab work came back good. Losing weight has brought all my results down. GFR went from 100…
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Six Month Scan Results...Howdy Uncle NED
WHEW!!!!! Have to say I was getting concerned...it took much longer than usual to see the results, so of course, I thought there was bad news. One down....four and half years to go!
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Update on my Dad -- this disease is garbage
Dad is not doing well. He is very weak and gets out of breath by getting up and being transferred to his wheel chair. This causes breathless episodes that scare him. Last week he had two episodes of breahlessness at the oncologists office, so they sent him home with oxygen, after pulling fluid off his lungs. These…
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HAVE YOU JUST BEEN DIAGNOSED?
I'll try to keep my background short, just to get to my point. After seeking help for a kidney stone on my left kidney, I was diagnosed with a 2.9 cm kidney tumor on my right kidney in March 2013 by a Urologist with likely metastasis (due to location) and with that a diagnosis of 1-1.5 years. I was scheduled for radical…
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Surgery.
had my hernia robotically repaired yesterday. I hurt like hell, but the bump is gone! Soon, I’ll be back to being active. the surgery was actually more complicated then he thought and took twice as long. He spotted another spot that was about to pop and fixed that too. 2 for 1 sale, I guess. I hope everyone is doing well.
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Svt Supraventricular tachycardia
My husband got his third immunotherapy treatment on Monday and his heart is back to racing. Anybody having this issue. He has betablockers but then it starts racing a few hours later. Anyvo9 have suggestions.
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What to expect / Questions to ask
Good afternoon! I've spent a bit of time reading some of the topics and felt I might benfit by asking a few questions. I'm a 37 and was found (incidentally) to have a mass on my left kidney on 9/3. Follow up ultrasound showed it appeared to be solid and the docotor scheduled a CT w/ contrast. I recieved those results…
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Should I purchase a recliner?
So this is my first post! I’m 46 and I was just told I have a 3.3 cm tumour on my kidney. i have a lung ct scan tomorrow and a biopsy in a few weeks. I likely will have surgery to remove the tumour only or the entire kidney. If it‘s the entire kidney, I’m hoping that it will be done laparoscopicly. If it’s a partial it may…
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Paying for cancer treatment
Hello to everyone, I appreciate reading all the positive vibes from all on this discussion format. I am new to the Cancer word and still trying to get all the information i can while making my decisions. I am a 65 year old male who has had his kidney removed from cancer, with a prognosis of stage 3 grade 3. I was told my…
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5-year NED
I just saw Skagway's great news and wanted to also share mine!! I just got back from the oncologist's office and got an all-clear. This (a few months short of) 5-year report is a biggie to be celebrated! Stage 3 with lymphovascular invasion (that LVI reference always scared me) and here I am 5 years later with no…
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Status Quo - I'll take it
My abdominal sono, renal sono and chest x-ray were all NED last week! Bloodwork was great too. We're rotating ultrasound and x-rays with CT or MRIs to limit radiation. Doc is pleased and so am I! Next up - MRI in December. Until then, I'll keep on keeping on. Know that I'm thankful for all of you as we navigate this RCC…
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And my results are in - meeting with my doc Tuesday
So, I had my first scans since starting IPI/NIVO (CT and MR on Friday) and the results hit my patient portal early this morning. I am trying to fight off a nasty summer cold that my son shared with me, so I was conveniently awake at 3:30AM when I got the email from Mayo. Of course, I couldn't stop myself from taking a…
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Grapefruit juice?
Anybody have a bad reaction to grapefruit juice after starting immunotherapy?