Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Nobel Prize given to two scientists whose research led to ipi and nivo
This is so amazing. I am so thankful for the research and hard work from these two men as well as the countless scientists, doctors, healthcare professionals, and fellow cancer survivors whose contributions led to the creation of the immunotherapy drugs that are literally saving my life. If I could hug these guys I would.…
Hope
I read this post (link below) the other day and it is just too good not to share with you all. I know that many of us Stage IV survivors are on the immunotherapy treatment mentioned in this article (IPI/NIVO). This story gives me hope that the scientists and doctors are closer to a cure than we may realize. Keep fighting…
Follow Up CT
I just had a follow up CT for severe pain throughout my entire right side (I had nephrectomy on R side in April 2018) and it came back normal My Dr. is wanting to put me on Gabepentin to see if that helps as even my skin is sensitive..... I will have a follow up ultrasound in 6-10 weeks for a large cyst that they found on…
PENDING TO SURGERY
hello every one, my name is jorge I'm 43 years old, I had I disconfort for about a month in the left flank of my abdomen i went to ultrasound and I find out I have a RRC ON my left kidney , i work in the medical field as a radilogy tegnologyst I'm squedule for robotic surgery next month on august 15 but I have to confese…
Greetings
Hi friends. 59 year old male. Last year (2017), had a couple of weird fainting spells. August of 2017 pee'd a 50 cent piece sized blood clot. Immediately went to GP and he set up appointment with urologist. Scope of bladder was clean - set up for CT. CT showed 10 cm tumor on right kidney. Operated on Halloween 2017,…
Chat groups for kidney cancer
If you are a Facebook user, these groups for the various types of kidney cancer may be of interest. https://www.facebook.com/groups/clearcellkidneycancer/ https://www.facebook.com/groups/UnclassifiedRCC/ https://www.facebook.com/groups/papillarykidneycancer/ https://www.facebook.com/groups/translocationRCC/…
It's Flu Shot Season
Just a reminder to all. If your Oncologist thinks it's safe for you to get yours, do so ASAP, as it takes 2 weeks for it to be effective. The "old wives tale" about getting a flue shot and coming down with the flue is just that, a tale. The person had already been exposed; or contracted another variant of what was out…
Red patches on bladder and elevated creatinine
After having blood in urine and ruling out urinary tract infection, had a cystoscope showing multiple red patches on bladder wall. Also lab showed creatinine of 3.5. Scheduled for cystoscope with general anesthesia Monday for biopsies. After a clear CT scan in May this is quite unsettling. Doctor says may or may not be…
It's so anticlimactic...
I read messages from Fox and news about Dave. Then I go in for my 12 year check up and get to come out with good news. To say my road has been easy is just plain, not true. But somehouw, I have come out of the tunnel with another NED. I say 12 years, but the little sh*t popped up at years 11 and 10; and I have had a few…
Update on Newly Diagnosed
Hello, Back on 8/13 I was diagnosed with a 2 cm mass suspicious of RCC: Incidental find. Chest and abdomen CT were both clean other than the proverbial isolated 3mm pulmonary nodule that was labeled to be inflammation worthy of observation but not associated with the kidney cancer. After consults with multiple surgeons and…
Question for male patients
when i found out i had kidney cancer my urologist said i had enlarged prostrate which he said was common for men my age(65). He said that with the enlarged prostate and the fact i would only have one kidney left after my surgery, i would need to take flomax and finasteride for rest of my life to be sure i didn't have…
Question
So after my good results from my stomach biopsy. I asked my oncologist when would my next follow up visit up be. She said Labs only no scans and that will not be until January. My last scan in May was the questionable one but proven clear ( endometriosis ) not metastis by CT guided biopsy. Is that typical. I know I read…
Micro bubbles sonogram
Hello everyone. I finally saw the urologist today and while I went int expecting him to schedule surgery, he wants me to have an microbubble sonogram. Had anyone had this done and did the results change anything? Doctor said that my ultrasound showed mass had separations with thin walls but the CT scan said thick walls. He…
Chromophobe RCC
This is my first post, although I have gained a lot of useful info from everyone else's posts over the past few months. I have my 2nd scan (6 months post-op) scheduled for next Monday. My first scan was clear, and for that I am very thankful. I pray the same will be true with the next one. My question is this - does anyone…
3cm mass found on left kidney
doctor says it's cancer ....don't know what to think
Abunai
Hi all, This is Cathy, Abunai's wife. Dave has been on hospice since Wednesday, and has had good and not so good days. Today was an okay day, and he's been able to talk and get some thoughts across. He wanted me to tell you what is going on, and that he loves you all. He gained a lot of strength from this board and the…
Two years since surgery
And still NED. I am thankful. Now I'll log have an annual CT scan for the next two years. I appreciatespore everyone here. Thanks for fighting together. Love to you all.
Just a quick Thank You!
I haven't been posting here much, but do stop and peek and read through. I just wanted to thank everyone on this board again. You all helped me keep it together last fall when I was diagnosed, provided support when I had surgery in January, and were there for me to share my 6 month NED results. Thanks so much and keep…
Biopsy results
Reviewing my situation I was one stage 1 grade 1 in Oct of 2017. Then a follow scan at 6 months radiologist thought an area in my stomach may be a metastasis. The biopsy was Friday. It went pretty well no pain or anything. Staff was very nice. The doctor took 3 samples. He told me to listen for the click sound. I stressed…
Tolerating treatment
I hate to be a downer today, but I'm having a rough go of things right now. Started Votrient 10 days ago and have been reduced from 800 to 600. SEs are really starting to kick in. GI issues, BP, chills, fatigue, bad headaches, and just feeling generally "yucky." For those of you who are, or have been on it, how long did it…
First-ever GLOBAL kidney cancer patient & caregiver survey from IKCC
I thought I posted it, but guess not... Please support the effort from IKCC. Thank you. ------------------------------------------------------- The IKCC (International Kidney Cancer Coalition) has just launched the first-ever GLOBAL kidney cancer patient & caregiver survey. This is a massive project that is supported by 26…
Anlotinib: a novel multi-targeting TKI treatment
It is exciting to see more new treatments being available. Anlotinib: a novel multi-targeting tyrosine kinase inhibitor in clinical development. https://www.urotoday.com/recent-abstracts/urologic-oncology/renal-cancer/106996-anlotinib-a-novel-multi-targeting-tyrosine-kinase-inhibitor-in-clinical-development.html
Couch Surfing?
My kids use this term when they crash at friends Dorms or apartments not the professional business. Last week we were offered free use of house for long weekend on Cape Cod with 2 other couple's. It's a 6 hour drive with sleeping for 4 beds 1 air mattress. None of us had ever been there. Before my Neph it probably was…
Recovery Taking a Long Flight
Hi everyone. I was recently diagnosed with RCC. Had an open partial nephrectomy on Aug 15th. Have an upcoming flight to Japan from NYC stopover in China on OCT 12. First leg is 16 hours, then a quick layover, then 4 hours. Is this too much? I'm relatively young (according to the drs) 38 and healthy, active. But still on a…
I'm back
Hi Everyone, sorry I've been missing for so long - a number of reasons, none of which excuse my absence when so many of you are so faithful in your daily postings and encouragement. I have been catching up reading posts periodically and so sorry to hear of Abunai's death and the struggles of many - also rejoice with those…
Question post nephrectomy
I had my right kidney removed April 17, 2018 (stage 1 RCC) and have been recently having a lot of cramping and pain in the area where my kidney was. I had my 3 month check at the beginning of August and my labwork and abdominal ultrasound came back normal. Has anyone had this happen? Thanks!
We deserve a laugh today.
Last week, we took some friends to a new restaurant, 'Steve's Place,' and noticed that the waiter who took our order carried a spoon in his shirt pocket. It seemed a little strange. When the busboy brought our water and utensils, I observed that he also had a spoon in his shirt pocket. Then I looked around and saw that all…
Hello
So I have been away from posting a while. I have been so anxious and stressed. I just been so scared. It seems like everything twinges all over my body. I did go on a family cruise of like 20 people family members. I planned this before my last scans. I will get my biopsy next week of the possible area in my abdomen that…
General Physical Results
Just got done with the Dr for my yearly physical. This time last year I was notified that microspoic blood was found in my urine, which lead me on a path I didn’t want to go down, but makes me thankful for each day!! This year all my lab work came back good. Losing weight has brought all my results down. GFR went from 100…
Six Month Scan Results...Howdy Uncle NED
WHEW!!!!! Have to say I was getting concerned...it took much longer than usual to see the results, so of course, I thought there was bad news. One down....four and half years to go!

Kidney Cancer

Discussion List

Discussion Boards