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Renal Cell Questions
My father was diagnosed with Bilateral Kidney Cancer 9 years ago. He had a partial removal of both kidneys at that time. He recently began to have trouble with his spine. The doctors discovered that the Renal Cell Carcinoma has returned. It is in both kidneys, possibly both lungs, one rib, and on his spine. They just did…
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Stem Cell Transplant for Renal cell cancer
Does anyone have info on stem cell transplants for renal cell that have had positive results? My wife has renal cell and we are battling the choice of trying the transplant. We have talked to one person who wishes they would not have made the choice to try it. Anyone have any insight?
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new to group also
My name is Beth. My father had his right kidney removed in January and was diagnosed then, on my parents 50th anniversary. What a way to celebrate. My parents live with our family (we have 5 children at home.) About 3 weeks ago my father went on hosopice care. He hasn't eaten anything in over 3 weeks although he does drink…
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Please help to find oncologist in Boston!
Could somebody please recommend a good urologist (oncology surgeon) in Boston, MA? Diagnosis: renal cell carcinoma. Thank you in advance!
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Follow-up finally approaching
It seems like an eternity since my partial nephrectomy Feb. 22. My follew up CT scan is scheduled for July 6. Been doing ok, but recently I've had some brutal pain on my surgery side, and aching on the other side. Is this normal? I'm freaked out by all these different suvival rate statistics. Any insight?
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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Im scared for my Mom
Hi everyone, I hope you all are doing well and keeping up the fight! I hope you can give me some words of encouragement. It was just this week that they found a tumor about lemon sized on my mom's kidney and they said it metastasized to her lungs and there are small nodules on her lungs and today they just found (with a…
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Metastatic Stage 4 Renal Cell
I was diagnosed with renal cell in July 2002 with a 13cm tumor on right kidney, and two nodes in each lung - I had a radical laparoscopic nephrectomy of right kidney on August 28th, with follow-up blood work, chest xrays and CT scans in September and November - pathologist determined the RCC to be sarcomotoid type -…
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Kidney Cancer Stage IV
I have been diagnosed with Kidney Cancer Stage IV. I had a tumor removed from my spine in March,2004 and will be having my left kidney removed on May 27, 2004. I am looking for information regarding the very best Kidney Cancer Oncologists, The best Universities and Hospitals to receive treatment at, the best up-to-date…
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Interferon Side Effects
My mother will be starting interferon for her stage 4 kidney cancer at the City of Hope. Can someone give me their side effects experience with this drug? Did you receive other medications to help relieve some of the side effects and do they help?
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No surgery?
My urologist called and said, my CT SCAN reveals a benig cyst. WHAT A RELEIF! No surgery is needed. They will watch the tumor closely and I have to have another CT scan 6 months from now. Could numerous CT cans ruin my health later? Should I get the bening tumor removed?
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renal cell cancer/liver tumor
I now have tumors in my liver. large tumors. where do I go next?
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New to this group!
Hello, I'm a 48 year old male who was diagnosed on 9/3/2003 with RCC. I had surgery at Mayo on 9/12/2003 for a partial nephrectomy of my right kidney. Stage 1, Grade 3, 2.9 cm tumor. I was given a 96% chance of being alive after 15 years from cancer specifically. My cancer was caught incidentally and caused no symptoms.…
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New to the group
Hello! My name is Tracy and I just discovered this wonderful group! My son was dx in 3/02 with Wilms 1 fh at 5 1/2 months. He had his right kidney removed and had 18 weeks of chemo (actinomycin & vincristine). Since then, we've had a couple of scares including lesions on his liver (no change, so no treatment) and…
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Another new one
I had a partial nephrectomy, open, on 2/24. I'm 48. I worked hard at getting over surgery, and returned to work exactly 3 wks after. I'm still concerned about the next CT scan, but otherwise doing well.
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new problem
Hi! I'm a 52 year old who had a tumor on right kidney removed almost 5 years ago. just found lesions on left hip and have horrible pain in the right hip and pelvic.
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Anyone have bladder cancer 1st?
My father was diagnosed with bladder cancer and it was basically cleared up with treatments. Then he had a pain in his side soon after that. When they took an Xray they discovered a "growth" in his right kidney. They say he has to have his kidney out. The doctor with the 2nd opinion also says he should have his bladder out…
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IL-2 MAINTENANCE THERAPY
Have had kidney removed and 24 weeks treatment with low dose IL-2 and Interferon Alpha. Lung tumors are gone (2 clean CT scans) and am looking for information on maintenance...treatment timing, doses, etc. If you would have any info on this, please email. If you would like to talk about the disease, treatment, etc. I'd…
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looking for info/support
My wife (age 37) woke up with horrible back pain in early Sep 2003. Upon taking her to the ER, a scan revealed a large tumor (10cm) in her kidney. The doctors acted quickly and within 2 days had removed the kidney. We were told that the tumor had not spread beyond the kidney capsule (which is good) and that she would need…
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transplant for RCC
My husband had a nonmyeloablative stem cell transplant for stage 4 RCC in Nov. 03. Has anyone else out there been through this and can you tell us about your experience?
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New to site...and Kidney Cancer
A few weeks ago I was in the hospital with Diverticulosis. (Sorry if I misspelled it) While undergoing tests for that, they found my left kidney has a cyst. A common renal cyst is clear like a bubble, my dr explained, but mine is like many bubbles and he feels it is cancerous, but won't know till the kidney is removed.…
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Is a chest xray accurate for detection of spread of kidney cancer to lungs
My mother, age 67 was diagnosis with stage 1 kidney cancer in October of 2003. She had a left hand assisted radical nephretomy. After surgery she was told that the tumor (3.2 cm) was encapsulated and had not spread. I am worried because her breathing prior to diagnosis and now consists of puffing from time to time and she…
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Why don't I feel lucky?
I have had cancer twice, the latest time was a month ago. By freak chance I found that I had a golf ball size mass on my right kidney. The kidney was removed and I found that it had not spread. This is the forth organ I've had removed and the doctors say that I'm cancer free. How can I believe that? And why don't I feel…
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Don't know how to feel.
I'm a single guy, live alone, diagnosed at age 37, stage II renal cell carcinoma, right kidney, July 2000. Three days later I was in surgery for a radical nephrectomy, tumor, kidney, lymph nodes, etc. It was all handled very quickly and matter-of-factly, no emotion, no tears. I never felt sad, or mad, or any of those other…
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RCC tumor with many blood vessels
Has anyone ever heard of a better prognosis for a RCC tumor that has developed many blood vessels to sustain itself? I know I saw a post somewhere about thsi aand I am wondering if there is any truth to it?
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Help!
My father was diagnosed with a tumor in his chest area two weeks ago. On Monday of last week, his heart surgeon (he had 5 by-passes 2 years ago)removed a large lemon-sized tumor from his chest cavity. It was malignant & free floating. It had even started eating at his ribs & three were removed. The tumor was attached to…
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RCC diagnosed in 2/2003
Hi ya'll -- I turned 60 four weeks after my dx of RCC. I had been healthy and VERY active, and had never been hospitalized. I woke up one morning urinating blood, so went to the ER, where they warned me that this could be cancer, and sent me directly to the urologist who did IVP, CT, XR, blood cultures, etc. I was sent…
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What about after nephrectomy?
Seven years ago, I had my right kidney removed, and the last time I saw the doctor for that was when he removed the staples. I changed doctors about a year ago, but even the new doctor shows little interest in my remaining kidney. He did order a creatinine test after a CT scan for a fibroid, but that's all. The result was…
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progress drinking water after kidney surgery
It's been one week since surgery and my daughter-in-law's mom still cannot hold down even a little drink of water. Is this normal?- when kidney is removed.
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CAAT
Hi everyone! As a public service announcement I want to let you all know about the promising cancer treatment called Controlled Amino Acid Therapy (CAAT). I have been volunteering there for 3 years and have seen and heard of many patients responding. I have even answered the phone and spoken to oncologists requesting our…