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Are there any additional popular discussion groups for kidney cancer in the US?

HeatherHa
HeatherHa CSN Member Posts: 22
in Kidney Cancer #1
Is there any other popular discussion group for kidney cancer we can join?
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Comments

  • AMichael50
    AMichael50 CSN Member Posts: 18
    #2
    Other discussion boards or chat rooms
    Try this one, it has a chat room in it. Ive never actually used it. www.kidneycancerkonnection.com
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  • jona187
    jona187 CSN Member Posts: 71
    #3
    AMichael50 said:

    Other discussion boards or chat rooms
    Try this one, it has a chat room in it. Ive never actually used it. www.kidneycancerkonnection.com

    this is probably the most
    this is probably the most active

    i went to kidneycancer.org and its not as active.
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  • Jamie1.3cm
    Jamie1.3cm CSN Member Posts: 188
    #4
    jona187 said:

    this is probably the most
    this is probably the most active

    i went to kidneycancer.org and its not as active.

    other groups
    I know what you mean. This isn't the most user-friendly system, but at least people are here.
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  • jona187
    jona187 CSN Member Posts: 71
    #5
    Jamie1.3cm said:

    other groups
    I know what you mean. This isn't the most user-friendly system, but at least people are here.

    I think this group is the
    I think this group is the most responsive I have been on and that's why I keep coming back :)
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  • VeryAnxious
    VeryAnxious CSN Member Posts: 67
    #6
    jona187 said:

    I think this group is the
    I think this group is the most responsive I have been on and that's why I keep coming back :)

    I agree with you one hundred
    I agree with you one hundred percent. They are also very empathetic and just a great group of people. Unfortunate we all had to meet this way!
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  • monique53
    monique53 CSN Member Posts: 19
    #7
    jona187 said:

    I think this group is the
    I think this group is the most responsive I have been on and that's why I keep coming back :)

    kidney removed
    How are things going for your wif?.I'm back to work.I'm been walking on a cement floor for 3 days now.I'm in pain.I hope this is normal .its only been 7 weeks
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  • Peggyz
    Peggyz CSN Member Posts: 10
    #8
    jona187 said:

    I think this group is the
    I think this group is the most responsive I have been on and that's why I keep coming back :)

    online support group
    I am new to this group, and am very grateful to find it. However, I have had tremendous support, emotional and medical/technical through www.ACOR.org, which has a monitored email LIST SERV for kidney cancer. There are many active parties, many with great expertise, which has been a blessing to me.

    I would add them to my list of support groups, and with that you can recieve even more education, recommendations, such as you are fnding here.
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  • datwood
    datwood CSN Member Posts: 3
    #9
    Peggyz said:

    online support group
    I am new to this group, and am very grateful to find it. However, I have had tremendous support, emotional and medical/technical through www.ACOR.org, which has a monitored email LIST SERV for kidney cancer. There are many active parties, many with great expertise, which has been a blessing to me.

    I would add them to my list of support groups, and with that you can recieve even more education, recommendations, such as you are fnding here.

    Another online support group
    Go to ACOR.org, click on the kidney cancer link, sign in and you will receive emails daily from people all around the world and their caregivers with discussions on RCC. It is the best thing I have found and the information I have learned on there is absolutely incredible. It is such a blessing!
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