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home from surgery
Surgery for the partial Nephromty, took out 40% of the kidney. Tumor was the size of a golf ball. Doc said it clearly looked like cancer, now we are just waiting to see the grade and severity. Since they found it so early I am really hoping it is a low grade. Surgery was 3.5 hours. Stayed in the hospital longer than normal…
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6 weeks tomorrow...
went back to work today, made three hrs and had to leave. Ribs pushing into my incision area hurt like hell. Has anyone used any braces which might isolate my ribs a bit? Maybe one of those back braces the folks at Home Depot wear??? I've had a relatively problem free recovery so far, down to Advil & Tylenol for meds. I…
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Stage IV to N.E.D.
Hi Everyone. It's been quite a while since I posted, but it's been a rough couple of months. Here's what happened: May 2011: Nephrectomy. Big, 8 or 9 cm tumor on right kidney. Also, some of my liver is gone in that the tumor had grown into the that organ. But the surgeon was confident that he got it all, so told me just to…
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CT Scans
Can you imagine the cancers that would be caught early if CT scans were used as a preventive instead of just a diagnostic tool. Maybe as part of a physical exam when a patient reaches a certain age, although, based on the membership here, kidney cancer seems to be striking us younger and younger. Even if it was done every…
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How it looks across the Pond
My cancer dx was confirmed four weeks after an interesting event near me that i would surely have gone to like a shot had the timing been the other way round. This was the first ever Kidney Cancer Patient Day in Scotland, attended by 20 patients and their friends and families to hear talks by leading experts and interact…
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Am I losing my mind?
All, I am new to this forum and am searching for some help, confirmation , validation, something. I am 12 months post surgery where I lost a kidney to RCC. This is my second time around with cancer, the first was a rare sarcoma on my leg, that was almost 7 years ago. Anyway, I've noticed that I am hyper sensitive to…
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Anxiety
So I went through the recurrence anxiety last year and I admit I walked out of the doctors office then and broke down. I never did that with the first diagnosis. I've been feeling pretty good lately, loving that I haven't been to see a doctor since the fall and then on Wednesday my knee goes. I'd like to say I was doing…
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day 6 post surgery not so good/ crying rant
So no one told me I should try to bend down to pick something up. I dropped a chip, thought if I bend slowly I would be able to get it, yeah well didnt occur to me that my legs would give out and I would fall. More so tuck and roll onto the good side of me. Ended up laying there till dad came home to help, like 20 min.…
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Disability
Just want to get your thoughts on this. My oncologist told me with stage 4 cancer I qualify for social sercurity disability. There is a part of me that would love to sit at the house. But there is a part of me that does not want to do this. I am wondering does he mean I will never be cancer free?? If I take this and the…
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pain
Is it normal after surgery, 10 days out, to have pain like a dull throb, or to feel like the kidney hits things like your ribs. Its just uncomfortable, but I was wondering if anyone else experiences this? Doc said I will feel more being so young cuz my nerves are more responsive. Though i did notice a numbness in my hip…
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sleeping
Goodmorning everyone. I am struggling with the whole sleep thing. So far sleeping on my back is so hard to fall asleep that I lay awake for hours. How long till I wait to sleep on my good side? I tried it last night but it seemed to really make my broken kidney hurt/throb. Has anyone else found that sleep is super hard? I…
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2 nd CAT scan
Hi everyone and Happy New Year to all. Tomorrow I'm going to take my second CAT scan since my surgery eight months ago. I'm ususally very confident and try to look at things on the positive side but, in the last couple of hours I've caught a small case of the What , Ifs. I still get the back pains and I am now at stage 4…
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Rcc contained
Blessings to all.I am woundering if anyone has had cancer show up any place in the body after Rcc was found contained in the kidney and removed?
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Speaking at a Relay for Life kickoff - would love your input
OK, my fellow warriors - tomorrow night I will speak at the kick-off event for our 2012 Relay for Life. In my mind, this is a chance to share OUR story and educate a few folks about kidney cancer. Anything you want me to share? I'm definitely going to encourage people to push for an ultrasound or CT if they have ongoing,…
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can happen to anyone
I have been a Miami Dolphins fan all my life, this guy was great during his time with the team. He now faces the same opponent as we do. http://www.miamiherald.com/2012/01/25/2606165/miami-dolphins-great-mark-duper.html
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Labs and Bone Scans
Hello my new friends. What can anyone tell me about their labs and scans? My chest x-ray was clear, but I am going to push for a bone scan. It looks like my renal artery is also clear, but the tumor itself has some necrosis and some calcifications, and "fingers" (YUCK). It is also touching the base of my spleen, and that…
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Sutent
Any thoughts on Doctor advising Sutent with NED. The tumor has been removed and there are no other tumors, there is swelling in the lymph system, never biopsied. Is Sutent effective as a preventative of recurrence? Jeanne
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wedge resection
In Feb. 2010 I saw a doctor for a dry cough. No relief. Two doctors later I finally had a chest x-ray. My right lung was half filled with fluid. Two days later I had my lung tapped and drained. An hour later I was in triage at my local hospital coughing up copius amounts of blood. A c-scan was taken of the lungs and cought…
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waiting
Hello everyone I am learning a lot by reading your Stories and hope we all remain cancer free. I am now 8 weeks since prostate removal. I am now waiting to schedule partial kidney. Seems like its been forever I was dx in Oct. with an enlarged prostate. Testing showed I had a spot on left kidney and my doctor says its 99%…
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A request - for any spare prayers
We're naturally, and sensibly, focused on our own predicament and this often precludes us from being able to express a broader solidarity with other sufferers. The liver cancer forum, as Jamie has testified, is a gloomier place than here and, as she shrewdly observed, is populated predominantly by caregivers. Some of them…
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Incidential Finding on CT Scan - 8.4 cm Left Kidney Tumor
I was admitted through the ER for pancreatitis (thought it was the stomach flu), and the CT scan showed a baseball-sized left kidney tumor, which they say looks like cancer (99%). The plan is to have my left kidney removed via laparoscopy in a few weeks. My concern is the wait. It is right up to the spleen. Any similar…
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Page slow to load? Sometimes never does.
Is it just me or is anybody else experiencing times when you just can't get to this site? Nothing happening when you enter the http address or use your bookmark? I've noticed this problem for months and months now. It doesn't happen to any other site I visit. I've sent a couple of notes to CSN feedback but never received a…
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Is it the size that maters more or the grade
I see a lot or at least I think a lot of emphases being put on the stage of our disease or the size of our tumors.I admit while those two factors do have a direct impact on all of our long term survivals there is another aspect of our disease which can also have an affect on our long term survival and that would be what is…
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Confused and Need Help
Hello everyone. I was diagnosed with kidney cancer Apr 2011 and finding it hard to make up my mind to get the surgery. I went to the doctor complaining of cramping, stomach bloating, nausea, etc.. A CT scan was done with and without contrast and they found a 3 cm solid mass in the center of my right kidney and a 6 cm…
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Is it safe to wait
I am a 27 year survivor of Hodgkin's lymphoma. I have just been diagnosed with renal cell cancer, that they found by mistake on a cat scan. They told me the lesion is 2cm in size. I can not get in to see the urologist until March 8th. The nurse told me I was safe to wait that this cancer was slow growing. Has anyone on…
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post surgery side effects
Hi all, I am 4 days post for hand assist left neph and the last 2 nights, one in hospital and one at home, I get chilled, then a few minutes later sweating. My temp was checked often and was normal. It was so bad last night I had to change my shirt. Could this be side effects from the anesthesia, morphine, etc., or just…
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A little confused on the RMI report before the surgery on Jan 24
This is the followup on my original post http://csn.cancer.org/node/232384 I just had the MRI done before the scheduled surgery on Jan 24. The report is somehow confused. I have fixed the report to my urologist, but am wondering anyone has similar experiences. I included partial report here: "There is again identified to…
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transpotation after the surgery
I am going to have the laparoscopic nephrectomy next week. The doctor said that I only need to stay in hospital for two days. I am wondering how painful the trip would be for about one hour highway. Do I need arrange a special patient transportation or a family vehicle is just fine? Car or SUV? Do I need special assistance…
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Great information to DOWNLOAD "WE HAVE KIDNEY CANCER"
-- http://www.kidneycancer.org/download-we-have
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Emotional time of year to begin with
So I am used to being strong and helping people do things when they are in a crisis. I have been protector, mechanic, care giver and counselor. Now i just Got a phone call that word is out I have cancer. All of the sudden I have people going to collect toys for my kids and someone is going to put a new alternator in my…