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Another Newbie with a question
Hi all! I was diagnosed Jan 9th 2012 with RCC. 7.5cm Tumor on left kidney. Very similar story, went to Dr. for what I thought was food poisoning, and found out by accident on abdominal CT. I had a robotic radical Feb 6th. I am now two weeks post-op. I am doing pretty good considering everything with one exception. I have…
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Was an effected lymph node or nodes always found before mets was diagnosed?
I was wondering if an effected lymph node was discovered before a metastasis was diagnosed in anyone's experience with RCC? I do remember seeing one post where it was mentioned "the doctors at Dana Farber were puzzled" as there was no sign of impacted lymph nodes.
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THE GRAPEFRUIT EFFECT
Since I joined the forum, a few weeks ago, I've asked numerous questions. Some have met with helpful/informative/amusing answers but quite a few have been left hanging in the air. Of the latter, there is one on a topic I believe to be so important that I feel I should flag it again. In my first ever posting here, on 29th…
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Drinking, as in booze
So its been 28 days since my surgery. I am doing well I would say. Wounds are all healed up, I can do most of my normal activities. Walking around the mall and on the treadmill. Noticed I cant eat large meals cuz when I get full I get uncomfortable, like it pushes on the kidney. Anyone notice that too? After walking all…
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Has anyone had their spleen involved?
Hello all, I am two and a half weeks out from my left nephrectomy. My spleen had an infarct with a clot in it's artery, and the artery was removed, because it was feeding blood to the tumor. Has anyone else had any spleen involvement? My tumor was obviously growing out of the upper lobe, T3,N0, M0.
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Recorded workshops by Cancer Care
Many folks here are well clued-up on kidney cancer but it's a big subject and not everyone knows it all so I hope the link below will contain info. of value to at least some members here. I found it valuable. It's a one hour workshop titled "The Challenges of Coping with Cancer and Other Health Problems" with a panel of 4…
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info sharing
Got some info at our country. http://cancercaremalaysia.com/2011/09/18/kidney-cancer-a-success-story-fifteen-years-on-herbs-and-doing-great/
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scan
I have pushed up my scan and follow up appt to the 21st and 29th today and it just dawned on me that it is next week. All of my scans have always been with contrast-should this concern me? I don't have labs until my follow up with my oncologist on the 29th. I've never been told my labs have had any issues. I've had to move…
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Can I donate my Grandfather's Sutent?
My Grandfather passed away in Oct. of this last year, and I have several months supply of unopened sutent. I hate to throw it out as I know how expensive it can be. I there any way I can donate this medicine, and how would I go about doing so?
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new member / SORCE
Hi. I'd a 4.5cm tumour, incidentally discovered, removed thru robotic lap radical nephrectomy six weeks ago. Recovering very well. Path rpt: clear cell rcc; margins clear; cancer limited to kidney (pT1b); Furhman grade 3. I'm eligible to participate in a trial known as SORCE but am indecisive. I would be most grateful to…
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A question for ladies only (trust me on this, guys)
Has anyone had trouble with urinary incontinence after surgery? I realize I am getting older (43 is still young though, right!?) and had three babies, so some of this just goes with the territory. BUT, since I had my surgery in July, it really seems to be worse. Maybe the couple of days on the catheter caused a change??…
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3 year trials,
Hi its Boomersdad here (Errol)I went for my checkup Yesterday 4 weeks after Kidney and 7cm cancer removel, I thought it was a check up but reading between the lines it was more like another doctor trying to get me on a 3 year trial course of SORAFENIB But I have gone on line today to check out a lot more info on the…
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incision question
Hi All, In will be 4 weeks post op on Tuesday. I had a lap procedure so I have 3 small incisions, inch or so, and one large one. They have all healed ok but in the last day or so, one of the small ones has gotten a little tender. It feels hard underneath and around the incision and the skin looks a little bruised. Is this…
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new member
Hello I am a 32 year old mother of 4 .I had a radical left nephrectomy dec 9 2011at cancer treatment centers of America in il. Reading all of your info has helped me and my family. Thank you
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radical nephrectomy of the left kidney 11-18-2011
My wife had a radical nephrectomy of the left kidney and a blood clot removed from her vena cava 3 1/2 months ago. The clot was just about up to her liver (hepatic vein). It is stage t3b clear cell rcc with no lymph node and ivc wall invasion. We were very lucky we found it in time (accidently..she developed a cough and…
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MDX -1106
Going for second infusion tomorrow. Next week it is another pet scan and biopsy. It has become a full time job. About 14 medical visits/blood draws in about 8 weeks... Had a case manager call me a week ago. I told her I was slowing down a bit and getting tired. She said she wasn't surprised. She wanted to know if I'm still…
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Pseudoaneurysm inside kidney?
Since my partial nephrectomy the kidney has been leaking urine. See 'my emotional time of year to begin with' post for details. Now When i walk I get blood in my foley. So though not likely they have to check for a Pseudoaneurysm inside kidney. Least likely cause but would make sense, explaining why I bleed into urine upon…
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Slow Loading Page. Sometimes Never.
Is it just me or is anybody else experiencing times when you just can't get to this site? Nothing happening when you enter the http address or use your bookmark? I've noticed this problem for months and months now. It doesn't happen to any other site I visit. I've sent a couple of notes to CSN feedback but never received a…
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First Round of Follow-up Scans ~ 6 Months
Hey Everyone, My apologies for not being around for months. Seems that 2011 was one catastrophe after another here and I just didn't have a lot of computer time. Anyway, I've read through some posts and am so glad to see all the great reports on clear scans from several of you. Everyone here is in my prayers. I have my…
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Avastin Treatment
My father was recently diagnosed with Stage 4 Renal Cancer. In a short time it spread to several parts of his body. His cancer is extremely aggressive. He has only had two types of treatment that the doctor will do for him. The first one was Torisel but he had bad reactions to it. Now, the doctors are going to use avastin.…
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New (scared) member
I am 29 yrs old female and in December I was diagnosed with kidney cancer. On 1/13/2012 I had a partial Nephrectomy of my left Kidney. Along with part of my Kidney, 1 rib was removed. My recovery has been okay, I get feverish feeling, and sick to my stomach, and of course I am hurting but I am heeling well. When I went to…
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Radical Open Naphrectomy
Just found out today that I need my right kidney completely removed-- 10cm tumor and not sure yet if it is cancerous.. Glad to see others on this site sharing information leading up to and including surgery-
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1st follow up appt, best news ever!
Today I had my first follow up post surgery. The grade of the RCC was one and two. Clear margins, all of the tumor was removed from the kidney. The kidney is functioning better then it was before surgery! Before the cretin? not sure if that is the right term he used, was .60, day after surgery .69, now it is .55. We caught…
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Abdominal Bloating and Gas
David is now 5 weeks Post Op from a radical Nephrectomy, removed a 10 .5 cm clear cell rcc tumor and adrenal gland. He is still having major issues with gas and bloating. Our Urologist told him that it will be a while before his digestive tract gets back into rythm. He's been taking Ultra Gas X, He is still taking Vicodin…
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new member/open radical nephrectomy/chromophobe
Hi and happy to join this group,I am Chinese from Malaysia,40 got lovely wife and 6 year child,my story is at 19/12/2011 company call me to hospital doing a full medical checkup and incidently find out got tumour at left side kidney,I didt have any symton, go back to my history is at 30 year old my is 110kg and I starts…
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another Newbie" with incidental discovery
Hi Everyone, Wow what a wonderful source of info you all are!! Im sorry to say I am now part of the exclusive RCC group.. A little background on me... Im a 54 yrs old Registered Nurse & have had chronic back pains for years & years. Have done all the treatments in the past from chiropractors, acupuncture & epidural…
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Post surgery weirdness
Hey all, I'm at the 5 week post surgery point... Feeling pretty good, but my left insides kinda feel like a brick (heavy/weird) every now and then throughout the day. I assume this is just the healing process??? (The doc removed a 3.5 cm mass from my left kidney). I feel pretty good otherwise. The doc has cleared me to…
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Changes to diet after surgery
The doc got all the cancer out and at the follow up said live life like it never happened. He said I was doing great and since I was so young had only about a 6% chance of it coming back. I asked if advil was okay, wine, all of it and said yes. Said I didnt need to make any changes. Does everyone get this response? What…
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First follow-up - checklist of questions
Big day for me tomorrow. I've been trying to prepare my Wife for the possibility of a sobering pathology report and the ramifications therefrom. At the same time she has been trying to alert me to the probable exiguousness of information that our esteemed National Health Service is likely to vouchsafe to us. She has a…
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Big time error in my post
OOps - I dropped a decade!! In my recent newcomers post I referred to my being cancer free since 2006. No one should know better than I that the "miracle" occurred back in 1996. I am happy to say that this was the only lie I told that day and I shall endeavor to pay a bit better attention when chronicling events…