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Whom to tell?
Hi everyone, I'm new here as well. 4 weeks ago a CT scan & MRI revealed a 1.9 cm mass on my upper left kidney. 2 weeks ago I had a Da Vinci laparoscopic partial nephrectomy. Biopsy revealed Stage 1 Grade 2 cancer. It all happened so fast that I am just now starting to process the cancer diagnosis (they thought it was…
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Motorcycle Cruising With One Kidney
Hey I'm just a little curious here,the last time I was on a motorcycle was the same day I found out I had cancer.with warm weather just around the corner i was just wondering if it would be a good ideal to buy a kidney belt like the ones those motocross guys wear,or am I just overly concerned here.I have had a couple of…
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target drug or chemo drug
I asked Texas_Wedge this question but I think you did not see it on the thread about nexavar side effects starting. You have alot of info and knowledge about this subject, so am passing the question by you again. Do you know the difference between a target drug(Votrient) and a chemo drug (Nexavar)? Thanks
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Newbie awaiting operation...
Hi! I had my cancer diagnosed incidentally. I had severe abdominal pain. Went to my doctor. He ordered a CT scan on9/23/11. Said I had diverticulitis so severe and he said it was infected. Gave me some antibiotics to clear it up. Told me to come back in a few days for a couple of 'things' on the CT scan - nothing to worry…
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Facebook Groups
Hey, if anyone is on facebook, here are some groups/events you can join if you'd like. I forgot that March was also Kidney Cancer Awareness month! http://www.facebook.com/events/194271967344053/ http://www.facebook.com/kidneycancerassociation http://www.facebook.com/kidneycancerassociation#!/ActionToCureKidneyCancer?sk=wall
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The Value Meal
I'm sure I'm not just imagining it, that these threads are seeing an influx of younger, intelligent and vociferous newcomers - you know who you are :-) Quite a few here are given to doing a spot or two of research and we can constitute a significant lobby if we all keep asking the medical authorities the right questions…
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open removal 5 weeks ago today
I had my left kidney removed five weeks ago today, due to the unexpected discovery of a nine cm tumor. It was completely contained! All is well in that respect. My question is..when am i going to consistently feel better? I'll think i'm doing ok, and the just get blindsided by the pain and fatigue. I'd hoped to go back to…
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Has anyone seen my waistline?
Nope, me either. LOL I'm nearly 7 months post-op. Will this beautiful, huge bulge on my side ever go away? I'm thinking no. Oh well, I'll consider it my battle scar if it doesn't. From a vanity point of view, I look a little lopsided now. I didn't plan on doing any Sports Illustrated swimsuit covers anytime soon, though,…
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An excellent 24 hours
Just have to share my happiness with my CSN friends - I had a great 24 hours this week. First, I weighed in at my weight loss program and reached my goal - 20 lbs. off since Thanksgiving - Hooray! Second, I saw my oncologist for the results of my second follow-up CT - ALL CLEAR - Super hooray! Third, I saw my GP and got…
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Sutent question
I've been on Sutent for 2 1/2 weeks - side effects have nasty - but I've been determined to get through this. My question is, has anyone experienced their blood pressure drop dangerously on this? I've had high blood pressure since I was 19 years old and on meds since then. My doctors told me to check my BP twice daily so…
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Are there any chromophobe RCC that have taken Torisel out there? Or any other chromophobe out there
I have recurrent chromophobe RCC on my liver and in my bones. I was wondering if there was anyone else on this site who has chromophobe and has taken Torisel. I just finished Sutent (two months) and it did not work for me sadly. I am hoping the Torisel works and buys me some more time.
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Home remedies
Got time for a smile? THESE REALLY WORK!! AMAZINGLY SIMPLE HOME REMEDIES: 1. AVOID CUTTING YOURSELF WHEN SLICING VEGETABLES BY GETTING SOMEONE ELSE TO HOLD THE VEGETABLES WHILE YOU CHOP. 2. AVOID ARGUMENTS WITH THE FEMALES ABOUT LIFTING THE TOILET SEAT BY USING THE SINK. 3. FOR HIGH BLOOD PRESSURE SUFFERERS ~ SIMPLY CUT…
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nexavar
Hi Can anyone tell me about their experience with Nexavar. The UPS truck is bringing mine today. I have read about side effects, and wonder what occurs most often, and ways to help control them. Thanks
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nexavar side effects starting
I was really happy, until this morning. After not being able to tolerate Votrient, made liver enzinmes go up, I started on Nexavar. So encouraged, after over 2 weeks, no side effects. However, this morning I woke up itching, and with red swollen hands with small blisters. Has anyone had this happen, and do the side effects…
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10 Days until my partial open nephrectomy- and I'm scared...
Hello- I am a 35 yr old single mom (actually an only parent, his dad is not a part of our lives). I have my open partial nephrectomy March 2nd at OSU James in Columbus, OH. Saying that I am scared is an understatment... As with most of you on here my renal mass was found by mistake on an MRI of my bulging discs in my lower…
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sleeling pills/ cold meds/ forks over knives.
I have been a insomniac most of my 28 years, seriously I never slept as a baby and now I cant sleep unless I take benadlry or ambien. I has stopped taking it right before and after surgery, but since I am at week 6 thur from surgery, and will be going back to work on Saturday I know I have to take the ambien again. Has…
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Email Open
Email Open
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Yet another newbie
As is usually the case, a tumor on my left kidney was accidentally found after a spinal MRI. It's huge: suspected 8.5 cm. I battled breast cancer 3 yrs ago, but my oncologist believes the kidney cancer is a new primary. Surgery for removal of my left kidney is Feb 27th by laparoscopy. Those of you who have been through…
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Mucinous tubular spindle RCC thats are brand
Finally got classified by Dr Reuter at MSK. Up until know we had no idea what we had. So there you have it. Unlikely we will find a soul with the same variant but I am hopeful!!
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Stiffness 6 months after surgery
Hi all, It's my first time posting but I have been reading the posts regularly and it really helps to know others are out there dealing with the same things I have to dealing with. Here's the story, I'm 31y/o male and I had a partial laproscopic right nephrectomy on Sept 1,2011. I had a 5.5cm hilar renal cell carcinoma.…
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Ionized water - Alternative Cancer Treatments?
For most of early stage kidney cancer patients, we are just told to follow 6mon or yearly scan after the surgery. I am wondering whether anyone has information on alternative cancer treatment. Many researches have shown that an acidic body has high risk of having cancer. Does anyone have experience with using ionized water?
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new member - votrient and nexavar use
Hi I would like to hear experiences from others who tried to take Votrient and could not take because of elevated liver tests. Now starting Nexavar. I have RCC. Thanks
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waiting almost over
I'm back with good news the ultrasound didn't show any problems with the liver. Now I just need surgery date for kidney and I will be on the road to cancer free. I am grateful for all the support and encouragement I have gotten from this site My prayers are with you all.
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Need info or advice please reguarding a new type of cancer post Kidney Cancer
I am a 39 yo female who at the age of 28 was diagnoised with Renal Cancer. I have a very hard time "trusting" our imaging process. I was having pain, severe back pain, blood in urine and thought I was having a kidney stone. I had had many, many of these over the years and ALL the same symptoms. After an US, MRI and 2 CT…
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feeling sick after contrast/ct scan
I had my CT scan today and my stomach has been on fire, gurgling horribly (over 7 hours now ), and I am very nauseous. This is my fifth CT scan and I have never felt like this before. I keep trying to drink more water but everything tastes like metal. Has anyone else experienced feeling ill after contrast? I had both…
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Are there blood tests that anyone have to monitor anything else beside Creatinine levels?
The only bloodwork I've been having is Creatinine, and it's mainly just before any CTs or MRIs - and it's to make sure my kidneys are going to deal with the contrast. Is there any one out there having any tests that might indicate whether something else is going on? I was looking at a lab order and it had something about…
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New member (unfortunately)
Hello, Unfortunately, I am a new member of this group. Last Thursday, I was diagnosed with RCC. It was an incidental find while looking for a reason for low blood iron. The final follow-up was a CT scan last Thursday morning. When I had a call from the Dr by noon to come in for a visit that afternoon, I knew things were…
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anyone have collecting duct carcinma kidney cancer
I feel like my husband is the only one in the world with this cancer, if you have any info at all please write back. he's 28-stage 4 - hes been on several cheemos for 2 years with slow progression. He recently tried sutnet but it failed. Please if you know anything, let us know... God Bless Laura
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advice
Hi All, What role does stress play in our health? How do you think a job change and relocation would affect us? My reason is that since my diagnosis I have been thinking about moving back to California to be near my first grandchild who was born in August. I moved to Nevada about 7 years ago while my daughter was away in…
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more waiting
Hello well I am starting to be really on edge. I went in for my ct for the kidney and to check PSA from prostate surgery, and low and behold we now have to do test for the liver saw something in ct scan that concerned them, today I did an ultrasound . Now I wait for answers. My beautiful wife is at wits end but trying to…