Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Yet another newbie
As is usually the case, a tumor on my left kidney was accidentally found after a spinal MRI. It's huge: suspected 8.5 cm. I battled breast cancer 3 yrs ago, but my oncologist believes the kidney cancer is a new primary. Surgery for removal of my left kidney is Feb 27th by laparoscopy. Those of you who have been through…
Mucinous tubular spindle RCC thats are brand
Finally got classified by Dr Reuter at MSK. Up until know we had no idea what we had. So there you have it. Unlikely we will find a soul with the same variant but I am hopeful!!
Stiffness 6 months after surgery
Hi all, It's my first time posting but I have been reading the posts regularly and it really helps to know others are out there dealing with the same things I have to dealing with. Here's the story, I'm 31y/o male and I had a partial laproscopic right nephrectomy on Sept 1,2011. I had a 5.5cm hilar renal cell carcinoma.…
Ionized water - Alternative Cancer Treatments?
For most of early stage kidney cancer patients, we are just told to follow 6mon or yearly scan after the surgery. I am wondering whether anyone has information on alternative cancer treatment. Many researches have shown that an acidic body has high risk of having cancer. Does anyone have experience with using ionized water?
new member - votrient and nexavar use
Hi I would like to hear experiences from others who tried to take Votrient and could not take because of elevated liver tests. Now starting Nexavar. I have RCC. Thanks
waiting almost over
I'm back with good news the ultrasound didn't show any problems with the liver. Now I just need surgery date for kidney and I will be on the road to cancer free. I am grateful for all the support and encouragement I have gotten from this site My prayers are with you all.
Need info or advice please reguarding a new type of cancer post Kidney Cancer
I am a 39 yo female who at the age of 28 was diagnoised with Renal Cancer. I have a very hard time "trusting" our imaging process. I was having pain, severe back pain, blood in urine and thought I was having a kidney stone. I had had many, many of these over the years and ALL the same symptoms. After an US, MRI and 2 CT…
feeling sick after contrast/ct scan
I had my CT scan today and my stomach has been on fire, gurgling horribly (over 7 hours now ), and I am very nauseous. This is my fifth CT scan and I have never felt like this before. I keep trying to drink more water but everything tastes like metal. Has anyone else experienced feeling ill after contrast? I had both…
Are there blood tests that anyone have to monitor anything else beside Creatinine levels?
The only bloodwork I've been having is Creatinine, and it's mainly just before any CTs or MRIs - and it's to make sure my kidneys are going to deal with the contrast. Is there any one out there having any tests that might indicate whether something else is going on? I was looking at a lab order and it had something about…
New member (unfortunately)
Hello, Unfortunately, I am a new member of this group. Last Thursday, I was diagnosed with RCC. It was an incidental find while looking for a reason for low blood iron. The final follow-up was a CT scan last Thursday morning. When I had a call from the Dr by noon to come in for a visit that afternoon, I knew things were…
anyone have collecting duct carcinma kidney cancer
I feel like my husband is the only one in the world with this cancer, if you have any info at all please write back. he's 28-stage 4 - hes been on several cheemos for 2 years with slow progression. He recently tried sutnet but it failed. Please if you know anything, let us know... God Bless Laura
advice
Hi All, What role does stress play in our health? How do you think a job change and relocation would affect us? My reason is that since my diagnosis I have been thinking about moving back to California to be near my first grandchild who was born in August. I moved to Nevada about 7 years ago while my daughter was away in…
more waiting
Hello well I am starting to be really on edge. I went in for my ct for the kidney and to check PSA from prostate surgery, and low and behold we now have to do test for the liver saw something in ct scan that concerned them, today I did an ultrasound . Now I wait for answers. My beautiful wife is at wits end but trying to…
Partial Nephrectomy with complications
On January 5 I went into the operating room for a partial nephrectomy to remove a 3cm tumor from my right kidney. During the surgery I hemoraged and ended up having an open surgery with removal of my entire kidney. I was in the hospital for 7 days. Needed 6 pints of blood and 32 staples to close. I went through a lot but I…
Counterfeit Avastin
Big story today: http://abcnews.go.com/Health/CancerPreventionAndTreatment/cancer-patients-furious-counterfeit-avastin/story?id=15629540
HAPPY VALENTINES DAY !<3 <3 <3
Hope u all had a great day. Godbless Nicole. <3
forum question
This is from a computer dummy to people smarter than me. Can someone explain the section to the left below the cancer.org in blue? Currently says, " incision question,being bad, etc. Below it are the names of GaryM, Texas wedge and cww71964. Thanks, Fox.
What about tumor necrosis
Ok here I go again,sometimes I think I am a little obsessed with researching my cancer but then again I always seem to come up with something new that while I think can be helpful in my pursuit of many years of NED.My question has to do with a condition found in 30 percent of all RCC tumors refered to as Tumor…
being bad
My first week back to work went very well despite the fact I came down with a cold last Sunday before starting back on Monday. My wife and kids have all been sick on and off the 3 weeks I was off and I avoided getting it until before I start back to work, just my luck. Good news is that my immune system worked overtime and…
Why not treat yourself to something special?
A week or two after I got the little bugger out in August, 2002 my wife said we should do something special. She booked us on a Southern Caribbean cruise the following January. We called it my survivor trip. In 11 days we are going on my 10th Annual Survivor Trip in the Southern Caribbean. Each one of us should do…
Why me
Hi if we knew the answer to this some body would be a millionaire, When I asked the surgion how old my tumors was he said it could of been a long time growing, he then said it could be as little as 4 years growth, I had been taking 1/2 an asprin every morning for the last 5 years, and I had also been taking 1000mg of…
Another Newbie with a question
Hi all! I was diagnosed Jan 9th 2012 with RCC. 7.5cm Tumor on left kidney. Very similar story, went to Dr. for what I thought was food poisoning, and found out by accident on abdominal CT. I had a robotic radical Feb 6th. I am now two weeks post-op. I am doing pretty good considering everything with one exception. I have…
Was an effected lymph node or nodes always found before mets was diagnosed?
I was wondering if an effected lymph node was discovered before a metastasis was diagnosed in anyone's experience with RCC? I do remember seeing one post where it was mentioned "the doctors at Dana Farber were puzzled" as there was no sign of impacted lymph nodes.
THE GRAPEFRUIT EFFECT
Since I joined the forum, a few weeks ago, I've asked numerous questions. Some have met with helpful/informative/amusing answers but quite a few have been left hanging in the air. Of the latter, there is one on a topic I believe to be so important that I feel I should flag it again. In my first ever posting here, on 29th…
Drinking, as in booze
So its been 28 days since my surgery. I am doing well I would say. Wounds are all healed up, I can do most of my normal activities. Walking around the mall and on the treadmill. Noticed I cant eat large meals cuz when I get full I get uncomfortable, like it pushes on the kidney. Anyone notice that too? After walking all…
Has anyone had their spleen involved?
Hello all, I am two and a half weeks out from my left nephrectomy. My spleen had an infarct with a clot in it's artery, and the artery was removed, because it was feeding blood to the tumor. Has anyone else had any spleen involvement? My tumor was obviously growing out of the upper lobe, T3,N0, M0.
Recorded workshops by Cancer Care
Many folks here are well clued-up on kidney cancer but it's a big subject and not everyone knows it all so I hope the link below will contain info. of value to at least some members here. I found it valuable. It's a one hour workshop titled "The Challenges of Coping with Cancer and Other Health Problems" with a panel of 4…
info sharing
Got some info at our country. http://cancercaremalaysia.com/2011/09/18/kidney-cancer-a-success-story-fifteen-years-on-herbs-and-doing-great/
scan
I have pushed up my scan and follow up appt to the 21st and 29th today and it just dawned on me that it is next week. All of my scans have always been with contrast-should this concern me? I don't have labs until my follow up with my oncologist on the 29th. I've never been told my labs have had any issues. I've had to move…
Can I donate my Grandfather's Sutent?
My Grandfather passed away in Oct. of this last year, and I have several months supply of unopened sutent. I hate to throw it out as I know how expensive it can be. I there any way I can donate this medicine, and how would I go about doing so?

Kidney Cancer

Discussion List

Discussion Boards