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Happy World Kidney Day
CSN friends - Today is World Kidney Day http://www.worldkidneyday.org/ We probably know more about kidneys and kidney function than your average bear, so here's to us!
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Cancer back (3rd time) need advise on dialysis
Right kidney removed 2006, Cryoablation on Left 2010, now 2, 1 cm spots again. One right in center of the kidney which is causing a lot of concern. Was told today would check again in June then decide what to do. I may have to have the kidney removed which means dialysis which scares the crap out of me. Does anyone have…
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question on diagnosis
My husband had flank pain and frank blood in his urine. Has now had a CT scan with contrast and the urologist told him he has a large mass on his left kidney and will have to have all or part of his kidney removed. He referred him to a urologic oncologist for surgery and that appointment is tomorrow. At what point is…
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Everything is happening so quickly
My 67 year old mom was diagnose with stage 4 kidney cancer yesterday.Unfortunately it has all readily spread to her boned ans traces in the lungs. They say the mass is about 12 1/2cm. Previous to the news my mom was in no discomfort. Monday she goes in to remove the mass and the main source.From there the oncologist will…
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Family History?
I had my 6 month results today and my tests were all clear! While I am happy about that and I plan to live my life like I'm cancer free, my urologist has concerns for a higher recurrence rate for me due to the fact that I am fairly young to have kidney cancer and I have a family history. My paternal grandfather died of…
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Released from Hospital Yesterday
Well, it’s out. One kidney less. My road to recovery is a rough one. I’ve had surgeries before, but never on my ‘innards.’ My cousin the nurse, assures me I’m not a wuss. It’s a difficult procedure because they not only remove an organ, but they stretch others and readjust them, making recovery a bit more difficult. Also,…
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RCC and Re occurrence new member
Hi my name is Joann, I recently had my right kidney removed last August 2011. I am 43 years and was devastated to learn that I had a 10 by 14 cm tumor in my kidney. It was a stage 2 (due to the size) grade 1. My oncologist said it is 20% chance of re-occurrence and my urologist said 5-15%. As seen most post they both said…
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1st follow up scan not good
Well I got the results from my CT today. It is in several lymp nodes on the side I had the Kidney removed from. The largest being 4.6cm. I will be starting Sutent soon. I have to do a MRI of my brain Sat. Then I will start treatment after that. Wish me luck and say some prayers!
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e-mails
I don't understand all the facets of this web-site. The one thing I'd like to know is: How do I put my e-mail address out there so if someone would like to get a hold of me through a personal e-mail; they could? I'm a slow study but a willing study. Tambo
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all members
All I want to say is that I know some people are either intimated, or feel like they are breaking into a "click" of some sort on this forum. (I did). Please don't. Interact and share your perspectives. As I have recently read, only 3% of cancers are kidney cancers. We are a select group. All supportive. Pulling for each…
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wedge resection
I had a wedge resection on Feb. 16th. They took out a nodule about a half inch in size. Came home on the 19th. Pretty sore. still am. Mostly on the outside area around the incision. I get winded easily, but that's getting better. I won't see my oncologist until some time next week. Don't have and appointment,yet. However,…
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Support Hospice what a joke Douglas Macmillan
Diagnosed late with renal cell carcinoma and also what was thought to be a simple cyst was also a bosniak type 3 - 4 cancer. I had to have radical surgery cut acrosss stomach to rempove large cyst and kidney and cancerous lymph node that was last year. I went into hospital at 7.30 in morning operation at 9 out of operation…
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36 hrs since surgery feeln ok
Hi All: Im about 36 hours out of surgery and I feeling pretty good. Doc did a partial right nephrectomy with a 6-7 inch incision. The first 24 hours were really hard and they had alot of trouble controling my pain, finally Saturday morning we got it under control and I was able to get up and walk down the hall last night.…
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Whom to tell?
Hi everyone, I'm new here as well. 4 weeks ago a CT scan & MRI revealed a 1.9 cm mass on my upper left kidney. 2 weeks ago I had a Da Vinci laparoscopic partial nephrectomy. Biopsy revealed Stage 1 Grade 2 cancer. It all happened so fast that I am just now starting to process the cancer diagnosis (they thought it was…
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Motorcycle Cruising With One Kidney
Hey I'm just a little curious here,the last time I was on a motorcycle was the same day I found out I had cancer.with warm weather just around the corner i was just wondering if it would be a good ideal to buy a kidney belt like the ones those motocross guys wear,or am I just overly concerned here.I have had a couple of…
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target drug or chemo drug
I asked Texas_Wedge this question but I think you did not see it on the thread about nexavar side effects starting. You have alot of info and knowledge about this subject, so am passing the question by you again. Do you know the difference between a target drug(Votrient) and a chemo drug (Nexavar)? Thanks
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Newbie awaiting operation...
Hi! I had my cancer diagnosed incidentally. I had severe abdominal pain. Went to my doctor. He ordered a CT scan on9/23/11. Said I had diverticulitis so severe and he said it was infected. Gave me some antibiotics to clear it up. Told me to come back in a few days for a couple of 'things' on the CT scan - nothing to worry…
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Facebook Groups
Hey, if anyone is on facebook, here are some groups/events you can join if you'd like. I forgot that March was also Kidney Cancer Awareness month! http://www.facebook.com/events/194271967344053/ http://www.facebook.com/kidneycancerassociation http://www.facebook.com/kidneycancerassociation#!/ActionToCureKidneyCancer?sk=wall
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The Value Meal
I'm sure I'm not just imagining it, that these threads are seeing an influx of younger, intelligent and vociferous newcomers - you know who you are :-) Quite a few here are given to doing a spot or two of research and we can constitute a significant lobby if we all keep asking the medical authorities the right questions…
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open removal 5 weeks ago today
I had my left kidney removed five weeks ago today, due to the unexpected discovery of a nine cm tumor. It was completely contained! All is well in that respect. My question is..when am i going to consistently feel better? I'll think i'm doing ok, and the just get blindsided by the pain and fatigue. I'd hoped to go back to…
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Has anyone seen my waistline?
Nope, me either. LOL I'm nearly 7 months post-op. Will this beautiful, huge bulge on my side ever go away? I'm thinking no. Oh well, I'll consider it my battle scar if it doesn't. From a vanity point of view, I look a little lopsided now. I didn't plan on doing any Sports Illustrated swimsuit covers anytime soon, though,…
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An excellent 24 hours
Just have to share my happiness with my CSN friends - I had a great 24 hours this week. First, I weighed in at my weight loss program and reached my goal - 20 lbs. off since Thanksgiving - Hooray! Second, I saw my oncologist for the results of my second follow-up CT - ALL CLEAR - Super hooray! Third, I saw my GP and got…
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Sutent question
I've been on Sutent for 2 1/2 weeks - side effects have nasty - but I've been determined to get through this. My question is, has anyone experienced their blood pressure drop dangerously on this? I've had high blood pressure since I was 19 years old and on meds since then. My doctors told me to check my BP twice daily so…
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Are there any chromophobe RCC that have taken Torisel out there? Or any other chromophobe out there
I have recurrent chromophobe RCC on my liver and in my bones. I was wondering if there was anyone else on this site who has chromophobe and has taken Torisel. I just finished Sutent (two months) and it did not work for me sadly. I am hoping the Torisel works and buys me some more time.
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Home remedies
Got time for a smile? THESE REALLY WORK!! AMAZINGLY SIMPLE HOME REMEDIES: 1. AVOID CUTTING YOURSELF WHEN SLICING VEGETABLES BY GETTING SOMEONE ELSE TO HOLD THE VEGETABLES WHILE YOU CHOP. 2. AVOID ARGUMENTS WITH THE FEMALES ABOUT LIFTING THE TOILET SEAT BY USING THE SINK. 3. FOR HIGH BLOOD PRESSURE SUFFERERS ~ SIMPLY CUT…
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nexavar
Hi Can anyone tell me about their experience with Nexavar. The UPS truck is bringing mine today. I have read about side effects, and wonder what occurs most often, and ways to help control them. Thanks
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nexavar side effects starting
I was really happy, until this morning. After not being able to tolerate Votrient, made liver enzinmes go up, I started on Nexavar. So encouraged, after over 2 weeks, no side effects. However, this morning I woke up itching, and with red swollen hands with small blisters. Has anyone had this happen, and do the side effects…
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10 Days until my partial open nephrectomy- and I'm scared...
Hello- I am a 35 yr old single mom (actually an only parent, his dad is not a part of our lives). I have my open partial nephrectomy March 2nd at OSU James in Columbus, OH. Saying that I am scared is an understatment... As with most of you on here my renal mass was found by mistake on an MRI of my bulging discs in my lower…
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sleeling pills/ cold meds/ forks over knives.
I have been a insomniac most of my 28 years, seriously I never slept as a baby and now I cant sleep unless I take benadlry or ambien. I has stopped taking it right before and after surgery, but since I am at week 6 thur from surgery, and will be going back to work on Saturday I know I have to take the ambien again. Has…
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