Here we go again (Update)

medic1971
medic1971 Member Posts: 225 Member

Well hello my friends at CSN, 

 

I wanted to give an update, I was supposed to have surgery August 7th, but had to be rescheduled to Oct 2nd, thank you COVID...

 

This past Friday Oct 2nd I had my second partial nephrectomy, this time it was my left kidney.  I spent one night in the hospital, three nights in an Airbnb, and I flew home today.  Got the path report back today as well: (Clear Cell, 2.2cm, Grade 2) so now I've had chromophobe (2015 right kidney) and Clear Cell, yeah for me!

 

I was 43 years old when I had my first RPN done at MD Anderson.  Now I am 48 years old and just had my second RPN at the same institution and same doctor.  I had two completely different experiences.  This time was a cake walk compared to last time, and the first time wasn't all that bad, but this time, cake walk... 

 

Here's what I did back in 2015 to get ready, nothing… Sat around and worried, that was it.

 

Here is what I did differently this go around, I trained like I was getting ready to go onto the battlefield.  I started exercising 5 to 6 days a week, anywhere from 45 minutes to an hour or more a day.  This included cardio, weight training, core strengthening, and mediation.  I had 12 weeks to get ready for this surgery and it paid off in spades.  Anyone reading this please consider talking to your doctor about starting a program that will get you physically and mentally ready for surgery.

 

~Medic

 

 

 

Comments

  • Deanie0916
    Deanie0916 Member Posts: 620 Member
    Medic

    Great idea! Thanks for this post!

  • daisybud
    daisybud Member Posts: 541 Member
    edited October 2020 #3
    You got this!

    Good idea! 

    I sat and worried too

    Kim

  • eug91
    eug91 Member Posts: 471 Member
    edited October 2020 #4
    wow!

    Wow - you got to be a member of both chromy and clear cell clubs. But well done, medic! Congrats on getting through! Hope you're recovering and healing up well! 

  • Allochka
    Allochka Member Posts: 1,069 Member
    Medic, good to hear that it

    Medic, good to hear that it was small and only Grade 2! You will definitely continue to be fine.

    So this is not a recurrence, but a completely different cancer? Amazing... 

    If I'm not mistaken you've had genetic testing done, haven't you? Was anything found?

    Anyway, congrats on sucessfull surgery and NED again!

     

  • stub1969
    stub1969 Member Posts: 973 Member
    Medic--thanks

    Thanks for the update.  I know we all "beat the odds" getting kidney cancer, but with you having it in both kidneys and two different types is extraordinarily rare.  I can't remember, Medic, did you have genetic testing after your first bout with it?  If not, what did your doctor say about it after this round?

    I'm glad you are doing well.  Let's hope this is the end of your RCC adventures!

    Stub 

  • medic1971
    medic1971 Member Posts: 225 Member
    edited December 2020 #7
    Allochka said:

    Medic, good to hear that it

    Medic, good to hear that it was small and only Grade 2! You will definitely continue to be fine.

    So this is not a recurrence, but a completely different cancer? Amazing... 

    If I'm not mistaken you've had genetic testing done, haven't you? Was anything found?

    Anyway, congrats on sucessfull surgery and NED again!

     

    Genetic Testing was clean...

    Thank you

  • medic1971
    medic1971 Member Posts: 225 Member
    edited December 2020 #8
    stub1969 said:

    Medic--thanks

    Thanks for the update.  I know we all "beat the odds" getting kidney cancer, but with you having it in both kidneys and two different types is extraordinarily rare.  I can't remember, Medic, did you have genetic testing after your first bout with it?  If not, what did your doctor say about it after this round?

    I'm glad you are doing well.  Let's hope this is the end of your RCC adventures!

    Stub 

    Thanks man

    Thanks Stub!

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    edited December 2020 #9
    I wish I had time to think about it.

    For my Neph in 2002 it was a 2 month wait.

    Last December 30 I went to the ER with a stomach ache. I was told I would die if I did not get my Gallbladder out by the end of the year. Guess what I did New Year's Eve.The Surgeon came to visit me the next year (mourning) and told me it was her worst gallbladder of the year. Mine too.

     

    icemantoo