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5 days post op....
Well its been 5 days now and still really sore. maingas pains. Itd a lil different to get comfortable. Proplr get aggravate d that I move so muvh, afraid I will bust somethinh open',,, any suggestionsn on becoming moremcomfotable?? "Can I lay on thr side I had surgery? ? Thanks
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Well 4 weeks later I get post-op results
Recently had the DaVinci Partial done to the left lower kidney. Never actually believed that because of the stat of the 2 to 3 cm tumor usually being 70% malignant pre-op, that I would have cancer. No one in my entire family history ever had cancer. Why would I be the ultimate unlucky loser. Turns out I was for no reason.…
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Had some bad news today from a Scan
I have been having some bladder infections on and off for some time. Treatment seemed to help for a while and then it would start again. A recent test showed a multi strain bacterial infection of unknown origin. Anyway the pain had become so bad that I was sent for a pelvic scan today. The results were not good, I have a…
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Dandelion Tea helping Patients with cancer?
http://naturalsociety.com/dandelion-tea-cancer-killing-157000-research-grant/ I saw this link and thought i would share. Any input on this?
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anyone here with kindney cancer with mets to small intestine
My husband began bleeding rectally three weeks ago. It was off and on till thurs when it became much worse. We both left our jobs and headed to ER. He was admitted ASAP. We told them of his past kidney removal due to caner in 2006. He has been scanned every year without fail both lower body and lungs and has had…
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Two week update
Well, it's been two and a half weeks since my laparoscopic right nephrectomy. Follow up with the surgeon this past Wed. was really good. He told me the pathology report was good, confirmed what they were telling me all along. Surgery was successful and the little nasty guest was removed and I should be fine. I was turned…
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Scared
I am new to all this, just diagnosed with Clear Cell Renal Cell Carcinoma Grade 2. I have spent so much time reassuring my family that all be ok, when i actually i am scared to death. My tumor is a little under 3 cm on the upper lobe of my left kidney, i dont know what to think or do. i see my dr June 19th to plan for…
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Met the surgeon today... 30hrs 'till I begin Kicking Cancers **** ;)
Hello, I am new to the world of cancer and I plan to be a survivor... I was diagnosd with what they say is stage 1 renal cancer last Tueday. I am still digesting this information. I have a open planned partial nephrectomy scheduled for the 3rd of July. The tumor is in the upper central pole of the left kidney. I am…
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Just found you guys
Hi friendly, helpful, new friends out there, I decided that today was the day to look around to find information on what to expect after my RCC surgery. It looks like I found the right place. My left open partial nephrectomy is scheduled for Thursday, June 6, and I may not be prepared for the road ahead. The last time I…
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Possible kidney cancer
I had CT scan Wednesday and learned Friday that there is a soft tissue mass (1.2 x 2 cm) on my left kidney. Tried to schedule an appointment with my urologist for early this week, but he is on vacation. The earliest they could get me in was Friday, so I switched to a new urology group. Have appointment tomorrow at 10 a.m.…
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This discussion board
The activity in this discussion board seems to have dropped a bit recently. Maybe that means everyone is too busy living and they don't have time to post! I hope everyone is doing well and has a great weekend! BLKJAK
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2 Months post Lung Surgery - new nodules?
Had surgery on 4/30/13 to remove 2 nodules that were on the outside of my left lung which flaked off from the kidney. Have one "speck" of dust on the outside of the right lung that they are monitoring. So I start coughing a couple a weeks ago and go to one of those "Doc in a box" places where you just walk in to be seen. I…
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I'm alive!
I just wanted to introduce myself. I have been joking that I am not very good at "owning" my cancer but I feel like I could use some support at times and I think that it might help people to hear my story. I didn't have it that long so it still doesn't seem real to me. I visited my doctor because I had some pain and I had…
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Kidney Cancer Association Newsletter
In the event some of you do not receive this. http://e2.ma/message/6mfwe/yobsre
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Creatinine Level
My blood came back last week with high Creatinine levels while on Sutent 50 mg and Nivolumab. is 1.6 really high? They gave me 2 liters of fluid by IV and wanted to make sure I drink at least 2.5 liters of water every day. anyone have high levels and have them come back down?
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Improvement After Two Cycles of Sutent
Mike had his first set of scans after two cycles of sutent. We were hoping for at least stable but got even better - improvement! No new mets and reduction and healing in bone met, and improvement in all others. Now we can breathe again for a couple of months. Hopefully sutent will continue to cause improvement. Thank you…
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Good luck Pauley13
Hi Crystal, Wanted to wish you all the best with your op on Monday. We will all be thinking of you:) you will do just fine!! Just think about getting it overwith, all this worry will be behind you at last. You have a great holiday to look forward to, maybe a bit of pain, but stress free!! what could be better!! Djinnie x
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im back :-)
hi all well i am back and i look like a big fat italian grape!!! i missed you all xxxxxxx eims
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Need help coping - post surgery
My first post, so I'm excited to join the forum! I found out that I had a 10lb cancerous tumor on my left kidney back in February. It was completely unexpected and I had no prior symptoms. Blood in my Urine led me to get a CT Scan which revealed the tumor. 2 days later I was in a 5-hour surgery and suddenly it was all…
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No More Afinitor for now??? Back on 7.5 mg of Afinitor since last week
My husband started Afinitor 12 days ago after Votrient stopped working for him after 5 1/2 months. Well he is only 12 days in and he has a bad rash, severe back pain and his face and eyes are swollen and puffy. His Renal Oncologist took him off of Afinitor until at least next week when he goes back to Duke. I am curious if…
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So...what to expect??
So partial is less than a week away, with a million different thoughts in my head...hoping you guys can help me out with what will really happen. Your own stories about pre-op to post-op...when I wake up will i have tubes comeing out of me (i know i will have urinary cath), will i be on oxygen, will i be in alot of pain?…
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Biopsy on Wed. June 26.
Hello everyone. Its been a little bit since I last posted but I still check the site almost daily. I had a kidney mass of 2cm detected in March and suspected to be RCC and its been a roller since. I recently went to University of PA Hospital Pearlman center on June 16 and saw Dr. Guzzo. He scheduled me for surgery on July…
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Possible Mets to Adrenal????
Hey guys! Hope everyone is well. Background: radical right neph, incuding adrenal and lymph nodes. surgery 3/28/12, stage 3, grade 4 Clear Cell, 49 year old fèmale. Put on Votrient-placebo study a year ago. CT scans have been ok. In 10/12, Ct showed new spot on remaining left adrenal gland. 2/13 showed shrinkage in nodule…
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Sutent cycle
Nick is on a 4 week on, 2 week off cycle on Sutent. But some people seem to be on a 2 week on, 1 week off cycle. And others, like Nano, are doing 4 weeks on and 1 week off - what an amazing man! Is there any reason for this? And is there any medical difference between these different cycles? Is the 4/2 cycle more effective…
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Fatigue, stomach pain ?
I am almost 6 weeks postoperative. Partial via Divinci robot. I have a desk job, so have been back to work on and off for several weeks. Seems like around 2pm I sorta "run out of gas" and usually head home for some bed rest. I do keep reading the it was major surgery, to give it time, etc. In addition to walking x2 a day,…
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Appt with surgeon tomorrow....
My appt with my doctor after all the ct scans, ultrasounds, and biopsy....what questions should i ask?? i know i will forget when i walk through the doors so i am trying to put together something tonight...trying to prepare for everything...thanks in advance.
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First Pet Scan Negative!!!!
After day of worry, had my 1st PET scan today as well as a chest CT. both negative, no spreading. My case still goes before Tumor Board tomorrow and one of the surgeons is the head of the cancers centers all arond the county, im very relieved and confident right...on a "high" for first time in awhile. next scan not for 3…
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Tumor Board ?
My oncologist is presenting my case to a Tumor Board on Thursday. I believe he just wants to have my case looked at by other professionals and that this is a good thing. I am 5 weeks postoperative, with Grade 4 (with small % sarcomitoid aspect) but only a Stage 1. The surgeon said he "got it all" and it was clear cell.…
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I have to ask . . .
I am now four weeks post surgery. The first three were great, all things considered. I've been judicious about exercise . water, meds, staying in touch, and working on getting myself back together. For the past 5 days, I feel as though I have run into a depression wall. My wife tells me she misses my smile and my jovial…
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I survived my first chemo treatment!
I survived my first chemo treatment.....but..... Yesterday was a comedy of errors. I was told to be at the Kellogg Cancer Center by 8:45AM for blood workup and then chemo treatment to begin at 9:00 which is my standing appointment on every Tuesday. My husband and I arrived at 8:30 because I can't stand being late. After…