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Back in Action
To all cancer survivors: I have been able to occasionally check the board and appreciate all of the support for my first round of HDIL2. If you are curious about details, just read Fox's play by play, it is all true. (thanks Fox, hope all is well as can be expected in round 2). All I can add is a quote from JG, "what a…
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Do I or Don't I..?
OK, this is a bit of a difficult subject.. but I have a hunch I m not alone on this one... So here I am a single guy... and of course I would like to start dating again. I am also on a specialized dating site... So, the question is... when should I tell "her" about RCC..?? This was brought up on that dating site by a gal…
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Now what....
My 26 year old husband has a 6cm mass on his lower right kidney. We have three little boys. we were told its 90percent sure cancerous. He had a kidney stone last week and that's how the mass was found, he's got a contrast scan scheduled for Wednesday and then a meeting with the urologist to see about surgery options.…
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HDIL2 after Sutent
Hi All, my oncologist recently sent me to University of Miami for a consultation for HD Interlukin 2. The Medical Oncologist there said he would not put me on HDIL2 because I have previously been on Sutent and a recent study showed a greater chance of cardiac complications. I have been off Sutent for over a year, I dont…
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Moffitt visit
Met with Dr. Wade Sexton at Moffitt Cancer Center today. He is recommending partial removal of kidney. This process started because I was having a burning pain in my right groin after doing a couple of miles on treadmill. I was fairly certain I had a hernia. But ultrasound, CT scan and two doctors said no. The scan,…
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can't breathe today (Xp11.2 translocation renal cell carcinoma)
I posted before inquiring about xp11.2 translocation RCC. My 9-year-old boy was dx with this rare cancer. His left kidney was removed in April with other tumors in lymph nodes in tummy. He was on Sutent (12.5mg) for 2 months (4 weeks on, 2 weeks off). He has tumors in chest, stomach and neck now, all in lymph nodes. Today…
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What are the odds?
I had stage 1 grade 3 clear cell kidney cancer in May of 2013. Had a partial nephrectomy. All was good. I had a ultrasound in May of this year. They found a very small mass- 5x5x9 mm. The report came back possible Angiomylonoma. My urologist told me there was no way to tell that this was not cancerous, but it is way to…
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Post surgery scan 6 months later
Hello, just curious as I have a 5 month wait for my first checkup after that DaVinci T1a episode. Does anyone know if something new can even develop in only 6 months time, large enough to be seen on an ultrascan. It would have to be super aggresive and from what I read on the web my almost 3cm mass took around 3 yrs to…
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Gout & kidney cancer
The past week my big toe has been swollen, red, extremely painful. It seems to be gout, but I'm pretty a-typical for a gout patient. So what's up with that? I learned that gout is due to too much uric acid in the blood stream. The kidney's job is to filter it out! Gee, you think there's something wrong with my kidney? : )
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My first exposure to "scanxiety"
I must say that "scanxiety" surprised me in regards to severity. I was doing OK keeping my mind occupied, but I am having some interesting symptoms. For the past three nights I have had some pretty nasty nightmares that I cannot get away from. Normally I will have an occasional bad dream but I can force myself to wake up…
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For Texas_Wedge database
Here is what my path report says. I think you have all the rest of my info: Tumor site: middle Tumor size: greatest dimension: 6.7 cm, additional dimensions: 4.2 x 4.1. Cm Tumor focal it's: Unifocal Macroscopic extent of tumor: tumor limited to kidney; tumor extension unto renal sinus Histologic Type: Chromophobe renal…
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Its not exactly the re-invention of the wheel, but . . .
I wasn't sure if anyone was aware of this link for Clinical Trials: http://www.fhcrc.org/en/treatment/clinical-trials/list.74.html It lists about 15 underway, all came up under the heading Renal Cell, adults and pediatric. May be something for someone here! Michael
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Question of the Day!!
guys, ok im not freaking out but i was wondering how long it may be til you felt symptoms of something else or could it just be all in the mind? when i had my initial ct scan and they told me about the kidney he just said the good news is that is is no where else!! would anything have shown up then if it was there even if…
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'Scanxiety' countdown......
Scans and bloodwork in a few weks, wish I could frickin' relax.
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John's (one putt) latest scan (Nivolumab/Votrient Trial)
Received the preliminary results of John's (one putt) scan performed on Wednesday (7/24). For those of you unfamiliar, John is 16+ months into the Nivolumab/Votrient trial at Hopkins. His last RECIST report noted 58% reduction in tumor burden. The RECIST report for this latest scan will follow in the next week but the…
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Back home-update
Hi everyone! tonight is my first night home after surgery. The whole thing seems like it went by so quickly..although, boring nights in the hospital were a little slow. Here's what I Have observed.: 1) although Mass General is a wonderful hospiial, I'm very glad to be home. I think it's easy to fall into "patient…
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Definition of Cancer Should Be Tightened, Scientists Say
FYI..... http://well.blogs.nytimes.com/2013/07/29/report-suggests-sweeping-changes-to-cancer-detection-and-treatment/?ref=health&_r=0
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Turning 70 and Kidney Cancer
I turn 70 this month, I am an 11 year survivor of RCC and I have nearly 1000 posts. Here are a few of my thoughts about the past, present and future. 1. 70 years from now Stages 2, 3 and 4 of Kidney Cancer will be eliminated by advanced and regular scanning procedures. 2. 70 years from now all Stage 1 tumors will be…
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Six Months on Affinitor Trial for Adjuvant Therapy
Just before my trip to Spain/Italy with my son last month, I had my second set of scans since starting the treatment. All is well. I'm glad for that. The side effects have backed off (I was mainly having some nausea and fatigue). My oncologist said there's a 3 month peak in the side effects and then it tends to taper off.…
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Cyberknife then IL-2 and the Cyberknife
Hi All, I have posted earlier too, but here is latest update: My husband who is 33 now, was diagnosed with Kidney cancer about 15 months. Lesions in brain and lungs April- left nephrectomy done May- Cyber knife for 3 lesions in brain July and October- HDIL-2 Scans after IL-2 were wonderful. in November scan showed only 3…
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Well, here I am...somewhere I never thought I'd be
Hi all. My name is Tillie and I am 3 months post radical nephrectomy (right kidney) with a diagnosis of Chromophobe carcinoma. I've been looking for someplace where I could read and learn and maybe whine a bit every once in a while. :) . Right now, I'm still anemic and tired to the bone, because my left kidney hasn't…
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New member. 4 years post nephrectomy, new nodule
Hi everyone. I'm a new member. I found out incidentally in 09 that I had an entire kidney full of a tumor. No symptoms. Had CT for years of headaches when tumor found. Removed with Davinci robot. Graded 3Tb bc it had already begun growing into my renal vein. The type is very rare and called chromophobe type. Apparently,…
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Michael and Gary......Tattoo ;-)
yaaaaaay it worked!!!!!! so what do you think???
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Hoping for some positive vibes...and reassurance?
Hi all...Just spent an hour or so looking at all of the posts. I'm really surprised by how many people there are here who offer advice and send positive thoughts to newcomers like me. I'm very happy to have found a place to go To read stories and hear from people like me. I'm a 41 year old woman, but I still feel like I'm…
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Scans
Had my first scans earlier this month since being on Votrient. 30% Shrinkage with no new growths. Now if I can just find food that tastes good. Losing weight because I am not eating nothing tastes right.
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Things we learn from scans not cancer related
I like to look at my scans. I think it is really interesting to ready the Dr.'s assessment. Of course, the initial focus is on things that are cancerous. Next, I look at my Nephrectomy scare, as it is still healing at 13 months. Then I look at other things....One thing I learned this week is I have developed scolliosis. I…
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iceman
Welcome to the 70s, iceman and I'll race you to 100! Keep on serving this community, just as you have for many years now, and you'll keep on making new friends for sure - but don't be surprised if they seem to keep getting younger! I hope you've had a great time surrounded by that large, loving Family.
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Starting 1st HDIL2 cycle today
I have passed my stress tests an been admitted for treatment :) one night of hydration , vital sign base line data, etc. First round at 0900 then it is a run to 14 or wherever my body says stop. I will post with an update next week sometime when i am rested. Thanks to everyone that has paved the way before me, encoraged me…
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Sometimes life sucks!
Good day my firends, Like many of you, I have had my share of being touched by cancer. Both my parents passed from cancer (MM for dad and lung cancer for mom). I have lost an aunt, a grandfather and multiple friends as well. I have personally dealt with kidney cancer this last year and am currently NED. Each time stepping…
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From kidney cancer to colon cancer
Last July 2012 was diagnosed with kidney cancer. Had surgery and a long recovery time due to prior healtlh issues and now July 2013 I had a colonoscopy last week and got path report and Doc phone call to tell me I have stage 1 colon cancer. I have routine colonoscopys every 3 years due to always have at least 2 polyps…