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Definition of Cancer Should Be Tightened, Scientists Say
FYI..... http://well.blogs.nytimes.com/2013/07/29/report-suggests-sweeping-changes-to-cancer-detection-and-treatment/?ref=health&_r=0
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Turning 70 and Kidney Cancer
I turn 70 this month, I am an 11 year survivor of RCC and I have nearly 1000 posts. Here are a few of my thoughts about the past, present and future. 1. 70 years from now Stages 2, 3 and 4 of Kidney Cancer will be eliminated by advanced and regular scanning procedures. 2. 70 years from now all Stage 1 tumors will be…
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Six Months on Affinitor Trial for Adjuvant Therapy
Just before my trip to Spain/Italy with my son last month, I had my second set of scans since starting the treatment. All is well. I'm glad for that. The side effects have backed off (I was mainly having some nausea and fatigue). My oncologist said there's a 3 month peak in the side effects and then it tends to taper off.…
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Cyberknife then IL-2 and the Cyberknife
Hi All, I have posted earlier too, but here is latest update: My husband who is 33 now, was diagnosed with Kidney cancer about 15 months. Lesions in brain and lungs April- left nephrectomy done May- Cyber knife for 3 lesions in brain July and October- HDIL-2 Scans after IL-2 were wonderful. in November scan showed only 3…
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Well, here I am...somewhere I never thought I'd be
Hi all. My name is Tillie and I am 3 months post radical nephrectomy (right kidney) with a diagnosis of Chromophobe carcinoma. I've been looking for someplace where I could read and learn and maybe whine a bit every once in a while. :) . Right now, I'm still anemic and tired to the bone, because my left kidney hasn't…
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New member. 4 years post nephrectomy, new nodule
Hi everyone. I'm a new member. I found out incidentally in 09 that I had an entire kidney full of a tumor. No symptoms. Had CT for years of headaches when tumor found. Removed with Davinci robot. Graded 3Tb bc it had already begun growing into my renal vein. The type is very rare and called chromophobe type. Apparently,…
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Michael and Gary......Tattoo ;-)
yaaaaaay it worked!!!!!! so what do you think???
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Hoping for some positive vibes...and reassurance?
Hi all...Just spent an hour or so looking at all of the posts. I'm really surprised by how many people there are here who offer advice and send positive thoughts to newcomers like me. I'm very happy to have found a place to go To read stories and hear from people like me. I'm a 41 year old woman, but I still feel like I'm…
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Scans
Had my first scans earlier this month since being on Votrient. 30% Shrinkage with no new growths. Now if I can just find food that tastes good. Losing weight because I am not eating nothing tastes right.
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Things we learn from scans not cancer related
I like to look at my scans. I think it is really interesting to ready the Dr.'s assessment. Of course, the initial focus is on things that are cancerous. Next, I look at my Nephrectomy scare, as it is still healing at 13 months. Then I look at other things....One thing I learned this week is I have developed scolliosis. I…
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iceman
Welcome to the 70s, iceman and I'll race you to 100! Keep on serving this community, just as you have for many years now, and you'll keep on making new friends for sure - but don't be surprised if they seem to keep getting younger! I hope you've had a great time surrounded by that large, loving Family.
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Starting 1st HDIL2 cycle today
I have passed my stress tests an been admitted for treatment :) one night of hydration , vital sign base line data, etc. First round at 0900 then it is a run to 14 or wherever my body says stop. I will post with an update next week sometime when i am rested. Thanks to everyone that has paved the way before me, encoraged me…
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Sometimes life sucks!
Good day my firends, Like many of you, I have had my share of being touched by cancer. Both my parents passed from cancer (MM for dad and lung cancer for mom). I have lost an aunt, a grandfather and multiple friends as well. I have personally dealt with kidney cancer this last year and am currently NED. Each time stepping…
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From kidney cancer to colon cancer
Last July 2012 was diagnosed with kidney cancer. Had surgery and a long recovery time due to prior healtlh issues and now July 2013 I had a colonoscopy last week and got path report and Doc phone call to tell me I have stage 1 colon cancer. I have routine colonoscopys every 3 years due to always have at least 2 polyps…
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Uh-Ohh, I Became a Test Mule Today
Hello again everybody. It certainly seems like I've become a lurker here again, but truth be known, I'm being held captive by the medical community, here in Los Angeles. (See my thread under New Kid on the Block). In a nutshell, (for the uninformed), I had left side radical Nephrectomy in July 2012, IL-2 last November, and…
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Stargate Time..??
OK, so I am boldly going where no one has gone...(or at least I think so..). SEX..? No.. sadly there is no lady in my life right now.. (THe last one split when she heard the word Cancer).. But, I am curious.. (say Currrrious).. I have a hynch some of you want to know as well.. Being on all the drugs some of us are on...…
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As Promised!!!
see i told ya it was only a little tattoo!! eims x
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Muscle Density Linked to Survival in Metastatic RCC
It is the density NOT the volume that counts. http://www.cancernetwork.com/display/article/10165/2149734
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Back to Unclassified status
Got a copy of my pathology report Size: 9cm x 8cm x 4cm Stage: pT2a Grade: IV Type: Renal cell carcinoma, unclassified. ("does not have the typical histopathologic features either of a clear cell, papillary or chromophobe subtype, nor are there sarcomatoid areas".) Necrosis over 30 - 40% of tumor. Possibly invades the…
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Waiting
Ok so here I am at Stanford. Waiting for my oncologist with the news. This is my first scan results on the Votrient. Thinking about the Tom Petty song.. The waiting is the hardest part..
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new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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Scanxiety Summer 2013, or I know something is wrong!
I know something is wrong. I am not sure what it is, but I know it. I am having pain in the chest, at times pretty severe. It has been going on for about 3 weeks. It is usually at the same time of the day, which is pretty weird. It is scaring me. And my ribs hurt. I know the scans will show something. And then I am…
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Here You Are Eims!
In keeping with Eims' request, this picture is my one and only tattoo! I got it four weeks to the day that I got my diagnosis. I was/am 66! We now need to ratchet up the pressure for Eims to show us apicture of HER tattoo, cermoniously located, she claims, on her upper left buttock! Do I hear a poll in the offing? Michael
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newbe - do I want to wait or . . .
Hi all, yeah, yet another clueless nube here. I'm going to see the surgeon (urologist) on Monday and am trying to figure a few things out before I get there. Brief history of this mess: I thought I might have a kidney stone or bladder infection or something last December and since I was about to take a 12 hour drive I…
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update Chucks 12 week scans ( Nivolumab+Ipi phase 1 trial)
Hope everyone had a wonderful 4th! Chuck had his 12 week scan Friday..small recap...Chuck was diagnosed with Kidney Cancer last July and restaged to stage 4 in November.. when lession was found on his liver and biopsied.. in Jan and Feb he underwent HDIL2 ..which at the end ended up being no sustained response..Chuck has…
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Update @ 6 weeks
Hello all. I have been away from this forum for a week or so only because I have been unable to log in or when I can get in I couldn't post. June 17 is 6 weeks post surgery for me. I am in the middle of my second week back to work. The first few days were kind of tough because of the drowsiness at the end of the shift but…
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Thyroid out, pathology in
Had thyroidectomy on 4 July - total necessary. Phone call today from surgeon who confirmed RCC. Saw oncologist today as well, doesn't want to start pazopanib until full surgical recovery. Also need a further MRI of L1 vertabrae required by radiation oncologist who is not yet convinced laminectomy necessary - surgeon is…
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Hello again, and thanks.
I'm having some issues figuring out how to use this message board. Thank you all for your warm welcome to this group--though the initiaion felt something like hazing. :(
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Surgical follow-up/Creatinine Levels
I had a follow-up appointment with my oncologist/urologist/surgeon (5 weeks post-surgery). He said that everything looks good, I'm healing well, I look healthy, blood work looks fine. He did, however, seem to be concerned that my creatinine level was at 1.4, when it had been at 1.1 immediately post-surgery. What are the…
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Questions?
Day 14 and still in alot of pain...not near the sites tho. the pain is in my left hip and little down my leg. Stinging/burning pain. Again its not near the incision sites. My incisions feel and look good. Thoughts?