-
Open partial nephrectomy tumor left lower 4.1
Hi I'm 39 yr old male .. Update : diverticulitis never cleared up so I have to get partial colectomy done( damaged area of lower intestines) removed.. And now it has to be open .. I have one of the best dr in the u.s. Dr wood.. Got lucky I guess.. He says w Open PN it will take 3 days in hospital and 4to 6 out of work ...…
-
Fresh out of the Hospital with Partial Nephrectomy
Hello, Everyone! I'm encouraged to read the posts you'll all put out there. Thank you for sharing! I'm curious if any of you have felt what I'm feeling: a week out of surgery, my tummy area feel bloated and a bit tight. I had some problems with bowel, but cleared that up with magnesium citrate. Urinating fine. What…
-
Can someone please explain....how does 'Chromophobe' differ from Clear Cell, and....
Just returned from my first surgery follow-up. I learned that my 4cm mass was chromophobe (not clear cell?), stage 1B, with a grade of 3. It's my understanding that the grade has to do with the chance of recurrence (though the PA I saw today told me not to read too much into that). I also know chromophobe is more rare than…
-
New Primary in Remaining Kidney?
My husband had scans in October when he finished his 5th cycle of Sutent - 50mg 28/14 (following a left nephrectomy mid-February, 2013). When the 12cm tumor on his kidney was discovered, they also discovered "innumerable" and "too many to count" nodules in both lungs, as well as some bone involvement. The good news is that…
-
Curing Cancer or..??
Hi All... Yesterday I was again bombarded by a well meaning fellow with "Have you checked this guy's Cancer cure..?" Of course I immediately suspicious based on the fact that I have heard zero in this here or on S.P. forums. Turns out I was correct.. another attempt to extract money for those desperite for hope.. Sadly we…
-
Newly diagnosed - and scared!
Hi Everyone! My name is Joan. I am 51 years old and a mom, and wife, and work as a secretary. I have been reading a lot of your posts and I feel like you lovely people are the ones I can tell my story/concerns to.... Back in May I began noticing a lot of discomfort in my stomach. I chalked it up to needing to…
-
Kahlahari Survivor Trip and t-shirts
Group, Almost 3 weeks ago I sent an order form to the 15 or so of you I had emails for, for t-shirts for our First Annual Kidney Cancer Survivors fun weekend in Sandusky Ohio. Unfortunately I only received a couple of orders so I have decided to try again in February. For those of you who would like to join this fun…
-
PET results
Haven't "officially" gotten the discussion with my oncologist yet, but I did finagle a copy of the PET report from last Friday. The good news is that the spot on my thyroid did not show up at all. YAY! Also, the spot on the liver did NOT glow!!! Woot! what did show up is that apparently I have bright, glowing nodules in…
-
Finished IL-2 treatments!
It's finally over. I'm home after completing my 4th round of IL-2. I'll say it again, "This has been the hardest thing I've EVER had to go through." All of my muscle has wasted away. I've lost the fluid retention and I'm nothing but wrinkles. The world of psychosis is someplace I never want to go to again. It has beat the…
-
Newbie
I was diagnosed with RCC after having every test known to man. I should be glowing brightly. I had a partial nephrectomy. There was no cancer. They told me 98-99% cancer and must have surgery. What do you think? I am lucky but having a hard time recovering from surgery. Could they have read the pathology report wrong?
-
1 year anniversary - newby
Well it's been one year since my surgery tomorrow and I'm just now finding this site! I wish I would have found it before and during this past year. I have had two great CT scans and just had a colonoscopy. The results have all come back good! I still feel some discomfort inside the incision site so I'm anxious for that to…
-
Starting Votrient this week
After so many investigations and procedures I finally get to start drug treatment. MRI done this past Saturday shows L1 lesion a little reduced in size with no spinal cord encroachment and oncologist is happy for me to go ahead with drug treatment just wants to chat with both spinal surgeon and radiation oncologist to…
-
suspicious area 2 years later
Hey guys. I had renal cell carcinoma in october of 2011. They did a radical nephrectomy and removed a 6cm mass which was totally contained. They also removed 3 lymph nodes around it and a portion of my adrenal gland. all test came back negative for the lymph nodes, renal artery, renal veins and adrenal gland. Today I had…
-
NEW HERE: HELP with understanding Radiology report
Hello all!! Went in for a liver ultrasound (liver enzymes high) and they found a solid mass on Left kidney. So I completed a MRA yesterday and picked up radiologist's report this afternoon. Being a weekend, I wanted to obtain the report to digest the "impressions" since my doctor will not get report till Monday. I am…
-
Protein in Urine . one month post op partial nephrectomy
Has anyone had problems with protein in their urine following a partial nephrectomy?
-
Home After Surgery
Recuperating from partial nephrectormy done at the Moffitt Cancer Center in Tampa Oct. 16. Was walking six hours after surgery, only 10 minutes. Almost did not have the procedure. The robot was not working a half hour before the surgery was due to start, and Dr. Sexton advised me to reschedule rather than do an open…
-
When Ned isn't Ned
So, the other week, I was at clinic getting my scan results. The urological oncologist gave good news that the scans showed no change. Yesterday, I received my scans in the mail, and read the results. From a big picture, things looked good, but there were several sub centermeter enlarged lymph nodes (in the lungs and…
-
1st scan after surgery
I had a robotic partial nephrectomy on July 5 2013. pathology showed renal cell carcinoma of the clear cell type and fuhrman grade 2. I just had my 3 month follow up with the doc today and he told me that my scan showed no signs of recurrence. (Yay!) When I got home, I read the report on the scan and it shows "a 1.2 cm…
-
Cancer Treatment Centers of America, anybody?
Hey Team, I am considering going to Cancer Treatment Centers of America. I especially like that they integrate naturopathic medicine with conventional treatments, and they seem to be a little more personable. I am starting to feel like part of an assembly line at my current cancer clinic. Are any of you being treated at…
-
nephrectomy - the usual?
Hi, I have a rare type of sarcoma which started from a tumour in my kidney and I am due to have a laparoscopic radical nephrectomy next Monday. The surgeon says it should be fairly straightforward as far as these things go. I don't post much on this board because I don't have RCC but I was hoping some of you might be able…
-
pathology report
Had my post-op pathology report today. The consultant told me my tumour was a metanephric adenoma, incredibly rare, and benign... Having been told that it was 98℅ likely to be rcc I was so surprised and thrilled, I think even the consultant was in shock. Thanks to everyone on here for your support, an invaluable help on…
-
Good News NED!
Glad to report I got my CT report today and my doctor said it looks great. I did a little happy dance. :) Thanks everyone and best wishes to all of you. Todd
-
Had my 6 months scans today!
Had my 6 months scans today, got the green light so I am good to go! Needless to say I am pretty cock-a-hoop about that!! By way of celebration we are all going out for a slap up meal and a couple of bottles of Saint Emillion to wash it down with:) Djinnie x
-
Happy Birthday Alexandra..!
So, you thought we would not find out, eh..? Well Happy Birthday dear Alex. Now I was thinking of hiding in your suitcase as you dash off for a wonderful holiday.. but that could make you sick.. or you may fall down from laughing so hard..heh.. Then I thought about getting a Chippendale guy.. but he gets sick in tight…
-
To TW
I don't believe you understand how much you've touched our lives. My sister-in-law and I have read through each and every one of your posts. We cannot thank you enough for the amount of knowledge and comfort we have gained. Your threads are like your arms reaching out to help all of us who are seeking desperately for help.…
-
New Caregiver
This is a thread I never wanted to start. My wonderful wife Alice has been diagnosed with Chronic Lymphocytic Leukema. I only hope I can be half as strong and suppotive of her as she has been for me.
-
Scans moved up 4 hours.
So instead of being at 2:45pm tomorrow, I get to start drinking that yummy stuff at 8:45am for the scans at 10:45am. I'm a little apprehensive about these, but hopefully they will turn out clear. If you can, please cross your fingers for me.
-
Happy Birthday Tex - #70!!!!!!!!!!!!!!!!!!!!******************************!!!!!!!!!!!!!!!!
TW, The occasion of hearing Happy Birthday for the 70th time is reason for celebration all by itself. And while we were waiting for you to pick up on Fox’s hint about taking us all to Bermuda, that’s not going to happen is it? So we all decided to go to Plan B and celebrate this wonderful occasion from our second home, the…
-
CyberKnife. New Hope.
If you have been told that you have an inoperable tumor(s), please look into CyberKnife, This new treatment is painless, non-invasive, no side-effects, no frame required radiation surgery that is allowing previously inoperable tumors to be treated. For more info, go to www.cksociety.org. I do not work for CyberKnife or any…
-
Thrombus clots
When I had my radical right nephrectomy in June, the surgeons removed a thrombus clot from the atrium of my heart all the way down my vena cava. Has anyone else had any experience with this and is this common? Thanks, Bettie