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New Member- any help appreciated
I have been having pain on the right side of my abdomen with a stabbing pain that radiates to my back. I was able to see a physcian and asked if I could have a ultrasound of my entire abdomen area but the physician felt I only needed an ultrasound of my Gallbadder. So to have the ultrasound I felt I needed I had to find…
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Depression and Anxiety after Cancer Diagnosis
It's been 18 months since my diagnosis and 17 months since my nephrectomy. I'm finding that I'm still having trouble with depression and anxiety. I was wondering if any long-term survivors of this damn disease could talk about how long this lasts? Does it go away? What does it take to kick it? I saw my doctor's PA today,…
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Alternative treatments
Have any of you left the country for alternative, non-FDA approved treatments - Mexico, Columbia, U.K.?? Living on the US/Mexico border there are nearby options - but they all seem to be "fluff" -- ozone, hydrogen peroxide, laetrile, etc., in nature. I'm not opposed to trying such, but it would be nice to have some…
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NED
2 year 6 mouth scan todays and is NED,blood test result CEA went up to 5.27 ng/ml,red blood cell low at 4.4,white blood cell low at 3.6,DR advise is not to worrier,,,,
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understanding your MD
So often our doctors either don't explain things well or don't explain enough. We leave our visits dazed and confused. Scared and un-releaved.(is that a word?) Who doesn't hate this? I had a follow up today. Just blood work and a zometa infusion. No other diagnostic or prognostic indicators except a couple. First when she…
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Start Votrient Again Tomorrow!
I have just had my weekly liver check, it is recovering at less than a snails pace. It seems pretty clapped out to me, with an outside possibility that it's just thinking about getting better. As there is now a very small margin my Oncologist is starting me on 200mg of Votrient tomorrow. I will continue to have my…
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Follow up scans
Yesterday my husband had 2 month follow up Brain MRI and 4 month follow up Spine MRI...very happy to say that both scans came out good..no new spots in brain and swelling as compared to march MRI was very less. He had last cyber knife done in December 2013. Spot in Spine C1/C2 are was treated in last year February ( 3…
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Results after Radical Nephrectomy
HI. I am a first time user. So please bare with me. Not sure if I have all the correct terms down yet! A family member has just been diagnosed with Stage T3b Grade 4 (10cm) clear cell cancer with sarcomatoid and rhabtoid features. Had RN and thrombectomy last month. They have been sent for follow up ct In 3 months. I…
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Hi...
Hello everyone.... I had a cyst found by accident during an ultra sound for stones approx 4-5yrs ago. At that time it was approx 3cm and the urologist classed it as a Bosniak 2F after a C Scan He's been following via a yearly ultra sound and the latest one a week ago indicates that it has grown. The radiologist also noted…
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Follow-Up Care
Hello and thank you in advance, Re: Diagnosed with stage II renal cell carcinoma in 2000, had radical nephrectomy. My physician stopped providing follow-up care for this in 2005 because he said that I had hit the five year mark and the cancer is guaranteed not to come back now. It has been two years since I have had…
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NED which is good....too busy to be sick...
I got the results from my most recent scans. Once again, they were NED. I expected that, but it is good to hear it. I am now dealing with all the non-cancer things wrong with the body. And the preventive stuff I ignored while dealing with the 800 lb gorillia of metastatic sRCC. But, the met was solitary. Some of the other…
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Affraid
Hello, I'm 33 years old and had a radical nephrectomy of my right kidney in January 2013. It was stage 1 clear cell renal carcenoma.. My left kidney is functioning just fine right now. I've had 2 scans since surgery which were ok! I do however have a couple nodules on my lungs which my doctor said were " nothing" but this…
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waiting, waiting...
Scanxiety in effect! Had a core needle biopsy yesterday for a breast mass they've been ingoring for 2 years (and that had lit up on my PET last Oct), but my recent MRI showed growth, so Dr Evil stuck a staple gun in it yesterday (just kidding, was a special needle), and now it's off to path....and I wait most…
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Care and feeding of the head...
Hi All..! Time for me to post on my latest "Care and feeding of the (my) head"... So one of my main interests or is that obsessions, is having my bike race on the IOM. I have been going almost every year to the IOM since 2000. And last weekend was crunch time.. I did 3 all nighters in a row.. needless to say Monday I was…
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like father like son
There are words to describe my frustration at doctor's office this morning but they aren't suitable for social media. In fact, I'm sure I'd be banned from this site forever if I said what I am thinking. Suffice it to say, I could make a sailor blush. Today was to be my 1 year post-op with urologist. Per last visit, he said…
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The latest from the AACR
Hi All..! I had not posted much here, and it is time.. I just got back from the annual AACR conference in San Diego. American Association for Cancer Research. No, I won't be typing that out again here.. I attended this conference as a Survivor / Advocate, which got me there for FREE..! There were in the range of 25,000…
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It's been quite a week
Hi all! As some of you know, we have been doing some renovations in the house. For quite a while now we have had no water in the kitchen, no stove, no oven. Every inch on the main floor has junk on it. Lots of stress! Work has been insane as we are very short staffed and we are headed into super busy season. In addition,…
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Scans
my husband had his 3 month scans this morning; the doctor's office called to let us know that they look good. slightly elevated creatinine (probably the coffee he drank just before) but other than that (1.3 to 1.5), no evidence of disease. the appointment is on Thursday but the news was good; now, we can leave for Hawaii…
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Help reading dad's path report.
The sample is largely necrotic with only rare epithelioid cells with malignant cytologic features. Immunohistochemical staining shows focal cytokeratin CAM 5.2 staining, and negative CK7 staining. A CD10 stain is non-contributory. The morphologic features are suggestive of a renal cell carcinoma primary, but given the lack…
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Rapid Heartbeat
Since my partial nephrectomy in March I’ve developed periodic rapid heartbeat. I never had this issue. I could be just sitting or resting and wham, it starts speeding. My doc examined me today and said yes, it was beating too fast and wants me to see a cardiologist, which I’m going to do. Anyone experience anything like…
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Waiting and waiting.........
Hey all Had chest CT at beginning of week as a run up to op and I have been calling specialist nurse every day and results are not back. Also I have no date yet for op and no follow up appointment with urologist booked. I am stressing about all this, did you all have to wait and wait for any news? Perhaps I am being…
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A little late asking - but
does anyone know just how they reconstruct our kidneys after a partial?
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Adhesions, neuropathy or is it just anxiety
Its been nearly 3 months since my partial nephrectomy and I find myself experiencing more pain in my torso than I ever did before I had the nephrectomy. These pains really only started to become bothersome over the past few weeks. Right after the surgery I didn't really hurt at all for several weeks. My brother thinks its…
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Just having a hard time right now
I first want to begin and tell you that this forum and you people lift my spirits all the time. I have some good laughs reading your stories and jokes. I appreciate you all. I have had pneumonia all of april into last week. My lungs are weak ,I have COPD, asthma, and I am seen every 3 months by my lung doc and my lung…
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Travel Insurance
Hi All... OK, just set up my summer travel... And I wanted to get the travel insurance. I know this has been brought up before... But, so I was reading the insurance policy info and the policy is available for people with pre-existing medical conditions. So, I called the 800 number.. The regular policy for my trip is like…
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2ND CT Scan-Prelim Results
This CT Scan compared to the first which is now 16 weeks old. right Lung- One nodule gone all others at or slightly smaller lymph nodes- same size or slightly smaller No new growth I guess the CT Scan now goes to a "specialist" who will actually measures out everything and gives me a final % but no new growth, no…
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Please help...lymphatic system involvement
Hi, I'm hoping someone can provide me with any information they know about involvement of kidney cancer with lungs/lymphatic system. My sister was diagnosed with Stage IV RCC about 2 years ago. At that time it was our understanding it was just in her lungs and liver. She started on Votrient and had an excellent response…
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Genetics
I was wondering if any of your kids have had kidney cancer. I have been told by some drs its not hereditary and some say it can be.
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On the lighter note
Within two months following my surgery my hair turned white. I am not talkin grey here --I am talkin Santa Claus terrirtory. It was amazing just how many people remembered that TV show " Twin Peaks" from 20 years ago and gave me a hard time. This annoys me because while I may have been overweight I had a pretty good head…
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Bloodwork done, 6 month post op scans one week: UPDATE: NED
UPDATE: My husband ended up getting verbal scan results over the phone Friday afternoon. Our planned weekend of "distraction" at Disneyland while we waited for results turned into a celebration of NED. 6 months down. I'll take it! It has been 6 months since my husbands radical nephrectomy for his T3a 7.5 cm chromophobe…