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Kidney Cancer

SO AFRAID PLEASE HELP ABOUT MY 64yr old FATHER HELP ME PLEASE!!
Hello my name is Diana, my father Jesse who will be 64 July 29th, was in the Vietnam war and covered in agent orange, not sure if this means anything but up to now has been healthy and worked all his life. The worse thing he ever had was stitches or a toothache, I remember maybe 3 times in my life him having a touch of the…
Numb Thigh
My partial neph was on 5/8. A little less than 2 weeks post op I felt a burning sensation in my left thigh as I was getting dressed. The burning sensation happened several more times that day. And then my left thigh became numb the following day. I saw a neurologist today at Stanford Hospital to figure out what was going…
My brain is "unremarkable"....
Normally I'd be offended by that. But, in the context of looking for mets - I'll gladly take it. I had my first post-op brain scan on Wed. Picked up my results on Thurs. Why does reading comprehension go to zero when you're anxiously reading your first results? From hanging around here - I was actully scanning the page for…
It just doesn't end
So I was recovering great from my March partial neph and my follow up blood test on the 30th of April was just about perfect. Fast forward just 2 weeks and I feel run down, tired and draggy and my heart is racing from doing even very little. My internist does a blood test and my hemoglobin dropped from 12.8 two weeks prior…
mood changer
Not enough good news here. It's an old one I probably posted in the past, but it's time to share again. A scruffy old biker is sitting in Mcdonalds having lunch. He sees an old couple slowly walk in. The little old lady takes a seat next to him and the husband goes up to order some food. He returns and sits across from his…
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
Wisdom Needed
First of all, thank you to everyone who posts on this board. I have been a lurker on and off for a little over two years and have learned so much from all of you. I first came here when my dad was diagnosed with RCC in April of 2012. He had his kidney removed in May of 2012. I do not have the report, but I did get some…
Time for me to vent some anger and anxiety again
It seems to me, that knowing that I had cancer, however insignificant it may have been, that it would make sense to do a full complete follow up to make certain that there wasn't any other asymptomatic cancer in other parts of my body. After all the whole deal about catching kidney cancers early, before they are…
Quick Response, Please! Re: Steroids
Hi all, thoughts on steroid use for palliative care? Anyone ever been administered steroids before to alleviate pain? my husband is in the hospital for an infection in the lungs. He is at stage IV clear cell RCC. Surgery on left kidney is not an option at this point, so doctors are hoping to clear the infection and lower…
New Member- any help appreciated
I have been having pain on the right side of my abdomen with a stabbing pain that radiates to my back. I was able to see a physcian and asked if I could have a ultrasound of my entire abdomen area but the physician felt I only needed an ultrasound of my Gallbadder. So to have the ultrasound I felt I needed I had to find…
Depression and Anxiety after Cancer Diagnosis
It's been 18 months since my diagnosis and 17 months since my nephrectomy. I'm finding that I'm still having trouble with depression and anxiety. I was wondering if any long-term survivors of this damn disease could talk about how long this lasts? Does it go away? What does it take to kick it? I saw my doctor's PA today,…
Alternative treatments
Have any of you left the country for alternative, non-FDA approved treatments - Mexico, Columbia, U.K.?? Living on the US/Mexico border there are nearby options - but they all seem to be "fluff" -- ozone, hydrogen peroxide, laetrile, etc., in nature. I'm not opposed to trying such, but it would be nice to have some…
NED
2 year 6 mouth scan todays and is NED,blood test result CEA went up to 5.27 ng/ml,red blood cell low at 4.4,white blood cell low at 3.6,DR advise is not to worrier,,,,
understanding your MD
So often our doctors either don't explain things well or don't explain enough. We leave our visits dazed and confused. Scared and un-releaved.(is that a word?) Who doesn't hate this? I had a follow up today. Just blood work and a zometa infusion. No other diagnostic or prognostic indicators except a couple. First when she…
Start Votrient Again Tomorrow!
I have just had my weekly liver check, it is recovering at less than a snails pace. It seems pretty clapped out to me, with an outside possibility that it's just thinking about getting better. As there is now a very small margin my Oncologist is starting me on 200mg of Votrient tomorrow. I will continue to have my…
Follow up scans
Yesterday my husband had 2 month follow up Brain MRI and 4 month follow up Spine MRI...very happy to say that both scans came out good..no new spots in brain and swelling as compared to march MRI was very less. He had last cyber knife done in December 2013. Spot in Spine C1/C2 are was treated in last year February ( 3…
Results after Radical Nephrectomy
HI. I am a first time user. So please bare with me. Not sure if I have all the correct terms down yet! A family member has just been diagnosed with Stage T3b Grade 4 (10cm) clear cell cancer with sarcomatoid and rhabtoid features. Had RN and thrombectomy last month. They have been sent for follow up ct In 3 months. I…
Hi...
Hello everyone.... I had a cyst found by accident during an ultra sound for stones approx 4-5yrs ago. At that time it was approx 3cm and the urologist classed it as a Bosniak 2F after a C Scan He's been following via a yearly ultra sound and the latest one a week ago indicates that it has grown. The radiologist also noted…
Follow-Up Care
Hello and thank you in advance, Re: Diagnosed with stage II renal cell carcinoma in 2000, had radical nephrectomy. My physician stopped providing follow-up care for this in 2005 because he said that I had hit the five year mark and the cancer is guaranteed not to come back now. It has been two years since I have had…
NED which is good....too busy to be sick...
I got the results from my most recent scans. Once again, they were NED. I expected that, but it is good to hear it. I am now dealing with all the non-cancer things wrong with the body. And the preventive stuff I ignored while dealing with the 800 lb gorillia of metastatic sRCC. But, the met was solitary. Some of the other…
Affraid
Hello, I'm 33 years old and had a radical nephrectomy of my right kidney in January 2013. It was stage 1 clear cell renal carcenoma.. My left kidney is functioning just fine right now. I've had 2 scans since surgery which were ok! I do however have a couple nodules on my lungs which my doctor said were " nothing" but this…
waiting, waiting...
Scanxiety in effect! Had a core needle biopsy yesterday for a breast mass they've been ingoring for 2 years (and that had lit up on my PET last Oct), but my recent MRI showed growth, so Dr Evil stuck a staple gun in it yesterday (just kidding, was a special needle), and now it's off to path....and I wait most…
Care and feeding of the head...
Hi All..! Time for me to post on my latest "Care and feeding of the (my) head"... So one of my main interests or is that obsessions, is having my bike race on the IOM. I have been going almost every year to the IOM since 2000. And last weekend was crunch time.. I did 3 all nighters in a row.. needless to say Monday I was…
like father like son
There are words to describe my frustration at doctor's office this morning but they aren't suitable for social media. In fact, I'm sure I'd be banned from this site forever if I said what I am thinking. Suffice it to say, I could make a sailor blush. Today was to be my 1 year post-op with urologist. Per last visit, he said…
The latest from the AACR
Hi All..! I had not posted much here, and it is time.. I just got back from the annual AACR conference in San Diego. American Association for Cancer Research. No, I won't be typing that out again here.. I attended this conference as a Survivor / Advocate, which got me there for FREE..! There were in the range of 25,000…
It's been quite a week
Hi all! As some of you know, we have been doing some renovations in the house. For quite a while now we have had no water in the kitchen, no stove, no oven. Every inch on the main floor has junk on it. Lots of stress! Work has been insane as we are very short staffed and we are headed into super busy season. In addition,…
Scans
my husband had his 3 month scans this morning; the doctor's office called to let us know that they look good. slightly elevated creatinine (probably the coffee he drank just before) but other than that (1.3 to 1.5), no evidence of disease. the appointment is on Thursday but the news was good; now, we can leave for Hawaii…
Help reading dad's path report.
The sample is largely necrotic with only rare epithelioid cells with malignant cytologic features. Immunohistochemical staining shows focal cytokeratin CAM 5.2 staining, and negative CK7 staining. A CD10 stain is non-contributory. The morphologic features are suggestive of a renal cell carcinoma primary, but given the lack…
Rapid Heartbeat
Since my partial nephrectomy in March I’ve developed periodic rapid heartbeat. I never had this issue. I could be just sitting or resting and wham, it starts speeding. My doc examined me today and said yes, it was beating too fast and wants me to see a cardiologist, which I’m going to do. Anyone experience anything like…
Waiting and waiting.........
Hey all Had chest CT at beginning of week as a run up to op and I have been calling specialist nurse every day and results are not back. Also I have no date yet for op and no follow up appointment with urologist booked. I am stressing about all this, did you all have to wait and wait for any news? Perhaps I am being…

Kidney Cancer

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