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CT Scan Results tomorrow
I had my first folllow up CT scan on March 27th and tomorrow I go for my results. (My path report of the 13 cm tumor was Stage PT3aM0N0 Grade 2). I am feeling optimistic that this will show up NED. (But I am also curious if anyone out there ever got a NON-NED report after their first follow up scan?) That being said....is…
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Scammer using Private Messages
To all, I just got a Private Message from some scammer using the name Gazza144 trying to sell some drug from Austrailia. I have reported it to CSN. Icemantoo
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Nivolumab Scan Results-New Met
I had a scan on Thursday and it was my first "bad" scan since starting on Nivolumab in Feb. 2013. There is a new 6mm met in the lower lobe of my right lung. Everything else remained clear. When we looked back at previous January scan, it was actually there at 3-4 mm and was viewed as a blood vessel. In the back of my mind,…
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Statin Use
Hi all Anyone have any input on the effect of statins on the solitary kidney. A little background, I had a radical nephrectomy of left kidney on May 1st last year. November check up all was well and kidney function was great. Couple of months ago primary care insisted on low dose statin for moderately high cholesterol,…
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MRI of the Spine!
Hi Everyone, I have been doing really well. Had Brain MRI and everything was good. No sign of left over cancer and nothing new going on in there, which I was very grateful about. Mentioned some back pain to the Doc, and he was extremely concerned. So I am scheduled for a full spine MRI on this Saturday, the 22 and getting…
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Newbie Post: Mets when kidney tumors are small?
Hi! I've been lurking on this board for a while (as I wait and wait and wait for my appointment with the urologist to get here). Here's my story: I'm a 32-year-old woman who had elevated liver enzymes during a physical at the end of last year. My GI sent me for an abdominal ultrasound. My liver was fine (or so the…
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Help understanding the Fuhrman staging!
Need help understanding this staging: Fuhrman grade 2/4. Why is it a 2 AND a 4? What does that mean? Had radical left nephrectomy, tumor in upper pole between the artery/vein so that is why I needed a radical. Limted to kidney Renal cell carcinoma, clear cell type Fuhrman grade 2/4 Lymph-vascular = Not identified Staging:…
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Latest scan
Today I saw the doctor for results of both CT and whole body bone scan - some more slight increase in tumours but L1 lesion is still stable and nothing new in the bones. Oncologist wants the films reviewed by radiologist who did previous scans to confirm measurements as increase by more than 20% (currently measured @…
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New renal cell carcinoma dx
Hey everyone. My renal mass was found incidentally by ct due to other issues. My doctor did not confirm a cancer diagnosis until after I had a left partial nephrectomy for a 2 cm mass. Pathology reports show renal cell carcinoma. This is fever scary to me. I'm a 31 year old healthy mom of two. I'm still in shock really at…
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blood-test-devised-to-detect-solid-cancers
http://www.genengnews.com/gen-news-highlights/blood-test-devised-to-detect-solid-cancers-in-a-clinical-setting/81249714/
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bad day-dancnbear
had severe pain in right arm and had to go to er. xray showed possible met to bone in right arm. Dr. asked me to come over to see xray. went to sit down and chair gave. fell directly on bad arm fracturing it right through the mets area. arm immobilized and given pain pills.question now is it rcc and can arm heal without…
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Yesterday was a bad day!
It is almost 5am here and it has been a sleepless night so far. I had started on Votrient a couple of weeks ago, 800mg. I developed severe pain in the liver and nausea to the point I could not eat. I stopped taking it a couple if days ago in the hope that my new Oncologist would agree to make some changes. The previous…
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Follow up Appointments/ Scans ?
Hi everyone. I had an open partial back on 3/6/2014 and I am slowly getting on with my life. (actually started back at work today) I was looking to get some opinions on follow up scans based on your experiences. My surgeon, seems to think I would be fine with bloodwork and a chest x-ray six months post-surgery, and then…
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2 years survival anniversary
I am frequent visitor to this forum and posted couple of times. On saturday March 22, 2014, my husband has crossed 2 years mark of survival. He was diagnosed with Stage IV RCC ( about 12 cm tumor with mets to lungs) on march 22. We were shattered. He was only 32 years old that time. We had 5 yearls old twins( now they are…
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Go UCONN!
awesome! Just more proof that the odds can be beat despite what others have said and done. If they can do it, then we all can win too.
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National Patient, Survivor, and Caregiver Conference -- MD Anderson, Houston
Admission: Free - Streamed Onlone, YouTube.com Learn about the latest treatments for kidney cancer, clinical trials, and nutrition. Open to patients, survivors, caregivers and family members. https://secure.kidneycancer.org/np/clients/kca/event.jsp?event=3687
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Just got pathology report for wife - Staging question
Hi all - My wife's pathology report (after radical nephrectomy of right kidney) had info in two places that confused me. Can you help me better understand? DIAGNOSIS section says: UCC (2 x 1.8 x 1.5 cm) involving renal pelvicalcyceal system. High grade. Invasive into renal parenchyma. Extensive UCC in-situ involving renal…
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major-mechanism-driving-kidney-cancer-progression
http://chicagopressrelease.com/science-and-health/study-reveals-a-major-mechanism-driving-kidney-cancer-progression
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Tuesday
Nervously I await surgery at 0830 tuesday. Can anyone give me a ball park figure as to how long I will be out? Dr. says surgery should be 3 hours or longer (Da Vinci). Thank you and would appreciate prayers
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phantom parts
After 10 days, I finally got results on a follow-up ct. It took so long because the report had to be ammended to include the impression of a 1.5 cm splenule (previously reported)...the REASON for the f/u ct, in the first place...AND duly noted in my records as being one of two purposes for chest, abd and pelvis scans. The…
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Nephrectomy
I just had my nephrectomy done on tuesday and I spent one day in the hospital and now I am at home. Everything is going well and I am healing fine. I go back to the dr on the 3rd for the path report. I will keep yall posted. Be Blessed
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AACR Conference
Hi All..!! Just a quick note... soon I head to San Diego for this year's American Assoc for Cancer Research conference. I will take notes as much as possible.. hope to learn a bunch and share what I can... Be Well All..!! Ron
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Clinical Trials Question: Did you have to research and bring up the possibility yourself, or was it
Our story: My husband was diagnosed at Stage 4 two years ago. We have been to two large metropolitan teaching hospitals and also local treatment facility. We have seen a total of 5 RCC Oncology Docs. (they keep relocating and getting new jobs). On our very first visit we were told there are 7 drugs and we will go through…
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After the Everolimus trial
I’m another new member here. We keep showing up, don’t we? With a CT scan in January of 2013, I was found to have a large tumor on my right kidney. Shortly thereafter, surgeons removed the right kidney, the tumor, the neighboring adrenal gland and a number of nearby lymph nodes. It was papillary renal cell carcinoma –…
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Doctors, more Doctors, and expensive Doctors wanting to see me....that and sports cars
I had my nephrectomay abou 21 months ago. Yesterday I got a call from the urologist's office (who did the surgery), that he wanted to see me to go over my Path report. Huh? We did that 8 days after surgery. Granted, I have not been to him in a year because I am being followed by a excellent medical oncologist. The…
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2-year followup last week
Hello everyone, I don't sign on alot these days. I had my 2-year followup exam, bnlood tests, and x-ray. Thankfully NED from kidney cancer;-)! I did have a short (hopefully) run in with skin cancer (melanoma) at the beginning of the year. I had gone for a motorcycle ride the week before Thanksgiving last November. Moving…
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NED, But.....
Friday i had my first 6 month follow up/scans since my radical nephrectomy in September (Chromophobe type tumor 17.5 cm)....My scans looked great, cancer free, except now I have a septated cyst on my right ovary and Hemmeroghic (sp?) cyst on my other...Both about 2.5 centimeters. These did not show up on my initial scans…
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Renal Mass Bioposy's increasing....
I found this surprising http://www.news-medical.net/news/20140319/Renal-mass-biopsy-rates-increasing-in-kidney-cancer.aspx
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NED
Had my follow up this morning w the Onc - NED from Pelvis, Abdomen scan w 1/2 contrast - & Chest XRay Next scans September. Thanks for all the support :)
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Sleep Apnea
Hi All..!! OK, this is (for some) an important subject. If you snore badly.. you should get checked out for Sleep Apnea. I will try to make this short... but.. OK, so after my March 2012 aurgery, I was found to have an Arythmia. I also knew I had a sleep issue. Finally I got a referral to a pulmonary Doc and he did the…