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Kidney Cancer

Hopefully, Just A Short Break From Votrient!
I had my first full MOT at the Cancer Clinic this mornng, It was a 2 1/2 hour appointment. Unfortunately my liver enzymes are out of wack, I have reached level three in toxicity. Anyway! I have to come off the Votrient for one week, then get retested. If there is little change I will be retested each week until I come up…
Extreme Fatigue attacks under Sutent
Anyone else have a few days of extreme fatigue attacks during breaks in Sutent? I have been having them for months. I consulted with my oncs today and they have a theory I wanted to share with any other Sutent users who might have had the same problem. I may have been causing the attacks myself by stopping the blood…
14 months post op...now feeling some discomfort
Had a partial done 14 months ago. My first scan at 6 months post op was clear. About 2 months ago I started feeling some discomfort on my left side (where my partial was done). Not really pain, but definitely some new sensation that feels like it's not on the surface where the scar is, but rather deeper. Is that common to…
Votrient working
I wanted to share the good news that my latest scans show shrinkage in most turmors so the Votrient was working. Unfortunately, he had to take me off of it a week and a half ago because my liver enzymes were too high. He wants to wait until they come back down and then try me on a lower dose. It has also affected my…
Rib removal (Not talking about BBQ)
Has anyone else that had an open surgery had a rib removed? My 11th rib had a good portion of it removed during my surgery to allow better access to the kidney (I had a partial) My surgeon told me in advance that he might have to take all or part of it out based on how easily he could reach things. My understanding of…
Remembering 8 years ago
This the anniversary of the "Cancer news." On 4/27/06, I had gone to my new PC for the annual check, which is required for any medication renewal. As an afterthought, I mentioned the periodic (every couple months) epicosedes of nausea and sometimes vomiting I'd been experiencing since the previous fall. There always seemed…
hoping for a fix
Hey y'all! I've been so busy lately...what with seeing Cher in Cleveland, and all. Yep, Cher. She was AMAZING! I saw Bruce Springsteen two weeks before Cher and Billy Joel two weeks before "The Boss". I'm hoping to be down and out for the next 2-3 months...literally speaking, so I'm doing all I can, while I can. Tomorrow…
Are there any runners?
Had a right partial 3/3 and have just started training for summer races and tris. again. Just wondering if anyone is as well.
ipilimumab and nivolumab Trial Updates
As many of you know about 1 month ago I fractured my right arm and had to have a rod placed through what was at the time an un-diagnosed met of my RCC. The fracture went right through the area and well a 3-4 week period of pre and post surgery complications/testing with extreme pain was had. Not much fun at all. The good…
Getting a little frustrated
I started having an intermittant cough over the past few weeks that has been slowly increasing in frequency. Last week I started getting some chest pain associated with it so I went to my PCP to check up on it. He listened to me breathe and had a chest x-ray taken which came back clear. So he diagnosed me with bronchitis…
Scanxiety May 2014: or where is it?
Scans are tomorrow: CT of the chest and MRI of the abs and pelivis. For the first time, this is not the center of life right now...I will miss a few hours of work, and probably go back. I have no reason to suspect anything other than NED. I expect NED. Emotionally, for the first time, I am not treating this as a big…
Update + Going for Anti PDL1 Trial
Hello Everyone! My dad has been seeing Dr. Sznol at Yale. My Dads scans last week showed "moderate" growth on many of his lung mets, but no new lesions on any other organs including on the brain MRI. I take this as relatively good news. This was after an 8 week period of no treatment, awaiting a trial. Two oncologists gave…
paper gowns
I am nearing the 1 year mark...already! It was May 1st, 2013, that I was admitted to the hospital with the stomach flu. I didn't know it at the time, but, I also had kidney cancer. Little did I know, very soon, I'd be rocking a paper gown for a second time that month, to have my cancerous kidney removed. This picture was…
PET scan good report
My results at the oncologist were way better than expected. I have been on Sutent only two rounds of treatment, and the lung mets I did have are smaller.. and there are no new ones. The fatigue, nausea and intestinal upsets have been epic so with this good result I get to begin the 37.5 two weeks on, one week off. Oh…
Rumers
I ran into an old friend this weekend. He asked me how I was doing in such a way that he obviously knew that I have been sick. I clarified that I had kidney cancer, nephrectomy, and various treatments. He was a little surprised. He said that he was told that I had had a liver transplant due to alchoholism! WTF? How does…
delayed postoperative hemorraghe after partial nephrectomy
Hi Everyone, I´m new here and have alot of questions. My husband Daniel was diagnosed with Stage 1Grade 2 RCC in February. After almost two months of agonising wait he had a partial nephrectomy on April 13th to remove the 3,5 cm tumor. No mets, no lymph node involvement. Everything went very well and he was released 12…
Everolimus update
Hi all haven't posted for a while. Further CT last week (4weeks after previous one) again showed some small increase in size of most mets (pancreas, spleen, liver) which would normally mean that I would be booted from the Meteor trial but there is a component which allows study doctor to make a call to continue on drug if…
Just want to say, "hello" and thank you
Even though have a good support system at home - I have never felt as alone as I have since finding out in January that I had a 5 cm growth and it was cancer. Had it removed by an open partial in early March and returned to work last month. But even with people saying they udnerstand... I don't think they really can. "Oh…
Prayers, please!
Dave was admitted to the hospital on Sunday, May 4th, for extreme kidney pain and a low grade fever. He just finished round 3 of Sutent with no positive results...meaning, the tumor on his kidney grew a bit and there wasn't enough significant change in size of other growth to believe the sutent worked. tge first night of…
Just wanted to say "Hi"
I haven't posted in a long time - but I have been lurking. Sad to see so many new people and sad to see so many leave. But glad to know there is a place to go full of caring people when you need it! It's time for my 1 year follow up scans. I know my tumor ended up not being cancer after all, but I am scared. And I don't…
Discomfort in area of removed kidney
Hello all, My name is Chris and I am new to the discussion boards. In June of 2013 I had a radical nephrectomy for my right kidey. Examination of the removed kidney indicated pT1a G3 RCC. Six months after surgery I began to feel a range of sensations from dull aches to sharp pains in the region of my lower rib cage to…
Worried about my mom - Update
Update - I had gotten my mom an appointment with her family doctor because she wasn't feeling well and I wasn't sure where to start. She had her labwork done after lunch and before we could get to her appointment he sent us to the ER (because he isn't a practicing physician at the hospital her oncologist is at). Her…
My Votrient arrives on Monday....
So I guess I will start my new journey in the adventures of Kidney cancer! This is my first cancer drug and I am praying for my body to play nice and let Votrient do its thing for a long time with much success. I need to find the bedtime routine so I can sleep through the nausea if there is any. I also found out why the…
Two years since diagnosis....and currently NED
It was the early hours of May 1, 2012 when I heard those dreaded words, "There is a mass on your kidney and you have to deal with it". Once I looked at the stats, that did not scare me...I would take care of it and be ok. At my six month scans, the identification of a mass on my lung...probably a met...scared be. A lot.…
1st Urology appointment tomorrow
Hi everyone, I have my appointment tomorrow morning and I am terrified of what they are going to tell me is on my CT scan. How do you get past the fear of that word - cancer. The two week wait for this appointment has been pure torture. I have been looking at my children and trying not to burst into tears. What will happen…
2.2 cm "nodule" on R Kidney, lower left Flank pain
I am new to this board and hoping for some support (I'm scared senseless right now). I am a 34 y/o who went to the ER in January with abdominal pain and lower flank pain. I had an US done and xrays of my abdomen and was referred to a OBGYN to have cysts and polyps on my ovaries and uterus checked out. I had exploratory…
Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
Conflicting tests on liver mets
Hi everyone-- This is my first post, and I was hoping to tap into some of your collective wisdom. A little over six months ago I had a radical nephrectomy and now I have some conflicting evidence about whether I have progressed to stage IV. My CT scan at six months showed spots on my liver and my docs were convinced that…
Had My Brain Scan Today!
Had my very first brain scan today, fortunately there were some indications of brain activity, albeit small . More importantly there were no mets, so two good scans under my belt at last, I'm right chuffed:) Djinnie
Caregiver to a stage IV Renal Cell Carcinoma Cancer Patient
Greetings friends, On December 31, 2013, my husband was diagnosed with stage IV Renal Cell Carcinoma. We are devestated beyond belief. My question is: As his caregiver, can you provide me with suggestions on how to help him? Aside from handling all the logistics...medical insurance, appointments, research, meds, and of…

Kidney Cancer

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