Start Votrient Again Tomorrow!

Djinnie
Djinnie Member Posts: 945
edited May 2014 in Kidney Cancer #1

I have just had my weekly liver check, it is recovering at less than a snails pace. It seems pretty clapped out to me, with an outside possibility that it's just thinking about getting better. As there is now a very small margin my Oncologist is starting me on 200mg of Votrient tomorrow. I will continue to have my bloodtests on a weekly basis, as she tells me we will have to be very careful. Comforting!

It is probably just as well I am starting again now though; my cough has started to raise it's ugly head again. I thought I had conquered those tumours! I am hoping the 200mg will be easier for me to deal with, and although a lower dose it will  give me good results, we will know soon enough my scan is next month. I also see the cardiologist next week, along with the opthamologist.  I know my eyes haven't improved, but I am hoping the inflammation and fluid around my heart has now cleared.

My Oncologist has also started me on some awful heavy protein drink. I am becoming a little anorexic looking, I am eating well but just dropping weight like there's no tomorrow, which is a concern, also of course I am losing muscle tone. I started working with weights recently, so we will see how things go. Ugh! I need a holiday!

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Comments

  • NewDay
    NewDay Member Posts: 272
    Exciting!

    DJinnie,

    I know you are excited to get back on treatment.  My liver didn't like Votrient either.  Hopefully,  the lower dose will do the trick for you.

    Good Luck!

    Kathy

  • rainsandpours
    rainsandpours Member Posts: 136
    NewDay said:

    Exciting!

    DJinnie,

    I know you are excited to get back on treatment.  My liver didn't like Votrient either.  Hopefully,  the lower dose will do the trick for you.

    Good Luck!

    Kathy

    Best wishes to you xoxo. 

    Best wishes to you xoxo.  Keep us updated. will check on you often. :)

  • Phredswife
    Phredswife Member Posts: 162
    Hi djinnie. So glad you are

    Hi djinnie. So glad you are getting the dose you wanted and hope this one works. Hope you are feeling better soon and can take that holiday. Hugs Melissa 

  • twinthings
    twinthings Member Posts: 409
    Oh good news!  But, danm that

    Oh good news!  But, danm that liver, huh!  I hate to hear that your cough is returning, it gave you such fits back when it first started.  If anybody needs a holiday, it would be you, my friend.  I'm sending good juju your way and I'm sure this time the, given the lower dose, the meds will do their job without the nasty side effects. 

    Keep your incredible attitude and you will be fine.  This will all seem like just a distant memory in the not so distant future, I just know it!

     

    Sindy

  • Djinnie
    Djinnie Member Posts: 945

    Oh good news!  But, danm that

    Oh good news!  But, danm that liver, huh!  I hate to hear that your cough is returning, it gave you such fits back when it first started.  If anybody needs a holiday, it would be you, my friend.  I'm sending good juju your way and I'm sure this time the, given the lower dose, the meds will do their job without the nasty side effects. 

    Keep your incredible attitude and you will be fine.  This will all seem like just a distant memory in the not so distant future, I just know it!

     

    Sindy

    Keeping Hopeful!

    Thanks a lot guys, I know Angec's Mum is doing well on the 200mg so I hope to follow suit. Maybe not so many side effects this time. I am off to the Doc's now to try and sort out my thyroid, or lack of, the meds have knocked mine out. I have hypothyroidism now and trying to get my levels right is proving a bit iffy, the meds are making me feel out of sorts. This whole thing is becoming like a full time job, lol!

    Djinnie

  • APny
    APny Member Posts: 1,995 Member
    Wishing you the best

    I hope you'll be able to tolerate the lower dose and also get rid of that cough. Good for you for starting with some weights. You'll also feel better after a short session of doing that. Best of luck with the cardiologist and wishing you the best!

  • strongmind
    strongmind Member Posts: 34
    APny said:

    Wishing you the best

    I hope you'll be able to tolerate the lower dose and also get rid of that cough. Good for you for starting with some weights. You'll also feel better after a short session of doing that. Best of luck with the cardiologist and wishing you the best!

    Wishing you all the

    Wishing you all the best..hope this one brings good news!!

  • Djinnie
    Djinnie Member Posts: 945

    Wishing you all the

    Wishing you all the best..hope this one brings good news!!

    Thanks!

    Thanks Strongmind and Apny, I appreciate it:)

     

    Djinnie

  • brea588
    brea588 Member Posts: 240
    Djinnie said:

    Thanks!

    Thanks Strongmind and Apny, I appreciate it:)

     

    Djinnie

    Djinnie

    Sweet Djinnie, allthough i have never met u in person, you seem like the sweetest person ever.  I hope the med works well for you this time with little to no side effects!!!!!.  I will be praying for you and thinking of you.

  • Djinnie
    Djinnie Member Posts: 945
    brea588 said:

    Djinnie

    Sweet Djinnie, allthough i have never met u in person, you seem like the sweetest person ever.  I hope the med works well for you this time with little to no side effects!!!!!.  I will be praying for you and thinking of you.

    That's so kind of you Brea!

    Oh! Brea, that is so kind of you! How are you doing at the moment, how was the result of the scan? I hope your breathing problems have improved; and you have been able to get out and work in the garden. I love to garden too, we have a pretty big area here, I used to go out there at day break and come in after dark. I haven't been able to do a lot for a while now and so I understand your frustration. Mind you right now the weather is too awful, it's close to the end of a May and we still have the heating on. It's ridiculous! 

    We plant a lot of veg and grow a lot of fruit, it's always a tussle between who gets first pickings, us or the wild life. I don't mind them though, I love to see them. We have a couple of Vixens and their cubs on the land at the moment. I am trying to keep them protected from the local French farmers, they hate the Fox, I sometimes think the French are on a mission to eradicate all wild life, they shoot at anything!

    Keep well, enjoy your planting!

     

    Djinnie x

  • foxhd
    foxhd Member Posts: 3,181 Member
    Djinnie said:

    That's so kind of you Brea!

    Oh! Brea, that is so kind of you! How are you doing at the moment, how was the result of the scan? I hope your breathing problems have improved; and you have been able to get out and work in the garden. I love to garden too, we have a pretty big area here, I used to go out there at day break and come in after dark. I haven't been able to do a lot for a while now and so I understand your frustration. Mind you right now the weather is too awful, it's close to the end of a May and we still have the heating on. It's ridiculous! 

    We plant a lot of veg and grow a lot of fruit, it's always a tussle between who gets first pickings, us or the wild life. I don't mind them though, I love to see them. We have a couple of Vixens and their cubs on the land at the moment. I am trying to keep them protected from the local French farmers, they hate the Fox, I sometimes think the French are on a mission to eradicate all wild life, they shoot at anything!

    Keep well, enjoy your planting!

     

    Djinnie x

    this time

    should be the charm, DJ. Correct doseage can be just a guess. And I could have told you that not everyone likes the Fox. But karma is coming from somewhere.

  • GSRon
    GSRon Member Posts: 1,303 Member
    foxhd said:

    this time

    should be the charm, DJ. Correct doseage can be just a guess. And I could have told you that not everyone likes the Fox. But karma is coming from somewhere.

    Dj... hope this works wonders

    Dj... hope this works wonders for you...  I am amazed that Votrient works at all kinds of doses.. and hope and pray it works for you this time..!!   Hang in there..!!

    Ron

  • Djinnie
    Djinnie Member Posts: 945
    GSRon said:

    Dj... hope this works wonders

    Dj... hope this works wonders for you...  I am amazed that Votrient works at all kinds of doses.. and hope and pray it works for you this time..!!   Hang in there..!!

    Ron

    Thanks!

    Thanks Fox and Ronnie, it should be third time lucky, right! 

    Djinnie xx

  • angec
    angec Member Posts: 924 Member
    Djinnie said:

    Keeping Hopeful!

    Thanks a lot guys, I know Angec's Mum is doing well on the 200mg so I hope to follow suit. Maybe not so many side effects this time. I am off to the Doc's now to try and sort out my thyroid, or lack of, the meds have knocked mine out. I have hypothyroidism now and trying to get my levels right is proving a bit iffy, the meds are making me feel out of sorts. This whole thing is becoming like a full time job, lol!

    Djinnie

    Yes, DJ, mom has done very

    Yes, DJ, mom has done very well on that dose, we pray it continues. She tolerates it much better than even the 400. The only issue is that she gets the runs daily and stomach pain when she eats. Her pressure is controlled with meds and all her numbers have been good. I know the same will happen with you. Is your thyroid now Over active? Is that why the weight loss?  Keep your chin up. Praying for you and sending you a BIG, BIG hug!!! Laughing

  • Djinnie
    Djinnie Member Posts: 945
    angec said:

    Yes, DJ, mom has done very

    Yes, DJ, mom has done very well on that dose, we pray it continues. She tolerates it much better than even the 400. The only issue is that she gets the runs daily and stomach pain when she eats. Her pressure is controlled with meds and all her numbers have been good. I know the same will happen with you. Is your thyroid now Over active? Is that why the weight loss?  Keep your chin up. Praying for you and sending you a BIG, BIG hug!!! Laughing

    Votrient!

     

    Oh! thanks Angec, I am certainly glad to be back on the meds; because the lung tumours were getting painful again. They, and the cough will be a good gauge for me to determine progress at this dosage. I have Hypothyroid problems, it is making me nauseous at the moment, I am eating pretty well yet still dropping weight. I have dropped three dress sizes which is a little worrying. I thought it was the spread of cancer but my doctor thinks it's the thyroid. They tell me the Votrient has damaged the gland, but I think that all the scans and use of contrast last year my be the culprits.

    All the best to your Mum Angec:)

     

    Djinnie x

     

  • Hiberniangirl
    Hiberniangirl Member Posts: 19
    Djinnie said:

    Thanks!

    Thanks Fox and Ronnie, it should be third time lucky, right! 

    Djinnie xx

    Good luck with the new

    Good luck with the new treatment Djinnie, thinking of you. Hib

  • Djinnie
    Djinnie Member Posts: 945

    Good luck with the new

    Good luck with the new treatment Djinnie, thinking of you. Hib

    Thanks Hib!

    Thank you Hib, how are you doing now?

     

    Djinnie x

  • APny
    APny Member Posts: 1,995 Member
    Djinnie said:

    Thanks Hib!

    Thank you Hib, how are you doing now?

     

    Djinnie x

    Djinnie, how are you doing

    Djinnie, how are you doing with the lower dosage? Is it easier to handle and is it helping your cough? I hope so!

  • Djinnie
    Djinnie Member Posts: 945
    APny said:

    Djinnie, how are you doing

    Djinnie, how are you doing with the lower dosage? Is it easier to handle and is it helping your cough? I hope so!

    Thanks for caring APny!

    Hi APny,

    So far, apart from the Votrient headache, I seems to be doing much better on the lower dose. I have no pain around the liver so that makes me hopeful. My cough is still hanging in there, but thankfully less aggravating. I have some other strange stuff going on but that is down to my thyroid. I just need to get that sorted then I'll be a happy bunny!

    Thanks for asking, much appreciated:)

     

    Djinnie x

     

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    Djinnie said:

    Thanks for caring APny!

    Hi APny,

    So far, apart from the Votrient headache, I seems to be doing much better on the lower dose. I have no pain around the liver so that makes me hopeful. My cough is still hanging in there, but thankfully less aggravating. I have some other strange stuff going on but that is down to my thyroid. I just need to get that sorted then I'll be a happy bunny!

    Thanks for asking, much appreciated:)

     

    Djinnie x

     

    Sweet lady, please know that

    Sweet lady, please know that I am thinking of you too!

    As you can see, we all care and will walk this journey along side you, if you like us to.

    Sending you hope and healing wishes ~

    Warmly, Jan