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6 month follow up Ct question
Met with my doctor yesterday for my 6 month post op follow up and to get my first follow up ct results. There were several new spots, very small, that we're not present om last ct. Doc says it could be calcifications or some leakage from a nephron in my kidney. Out original plan was to be seen every 6 months but now he…
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Partial nephreactomy
I had the top half of a double kindey removed in June 2013. My dr follows up with chest x ray and sonogram, blood work every 6 months. He says we should do this for three years. It was stage two and required no further treatment after surgery, per dr. In June of 2014 when I had sonogram and kidney function testing they…
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Have open partial and sooooooo scared
Like a lot of people one this forum my mass was found accidentally. I was passing a kidney stone and it was discovered on the ct. As you all have been through this you can imagine my surprise and shock when I found out. I am scheduled for partial on dec 1st. My mass was 3.8cm and from what i was told I don't have it…
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Husbands upcoming full nephrectomy
Hi! I'm new, scared, nervous and have lots of questions! My husband (only 43 yrs old) was recently diagnosed with RCC after finding a large mass (13x 12x 12cm) on his right kidney. Surgery is scheduled for this Wednesday. The surgeon is planning on starting laparoscopically knowing there is a possibility of switching to…
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Papillary Renal Cell Carcinoma Type 2 Metastases
All, I wanted to give you an update on my advancing cancer diagnosis, to inquire about possible benefits of any medication suggestions, clinical trials etc. In addition it is my hope that others in my similar condition read about my story and learn how to fight with their own battle against our evil nemesis. 10-20-14: UNC…
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Ct scan and Heart scan/ stress test
Hi all. Good news Phreds test results came back today ok. We don't know how to feel . He still has abdominal pain everyday that gets worse as the day progresses. Glad there is no sign of local recurrence but wish they could figure out why he feels so awful.
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Grade 2, Stage 2, the possibility of mets????
Hi everyone, I'm almost 70 days post opp, my next CT will be November/22. I'm doing my best to emotionally back to normal but haven't been 100% successful yet. I can't think about anything but mets!! Is here anyone who had a grade 2, stage 2 (T2b) Rcc (no mets at the time of surgery)?? I want to know how in reality is…
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Wishing all a Happy Haunting Day ... Early
Have to say that this Halloween is "special" since it's been a helluva year. You see, it's my b.day (yes I am a witch - cackle cackle). And in the year that has nearly pass, I was put on HBP meds, had a stroke in my eye and...had an open partial in March. But even so, I have survived. Nearly back to my normal self - or…
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Why not ask?
Hello every one, been awhile since I've been here but because life is back to normal and all is well I do have a question, I'm almost three months post opp and I've noticed a small been size feeling under my skin by the largest incision site I'll go to doctor later in November for girly reasons but I'm just curious.thought…
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hello all
Happy Halloween every one. Just checking in. I'm doing great and life has been moving on. Pray every one is well... God bless you all.X
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Checking back in.... MRI results are great
It has been awhile since I checked in here, and I wanted to pass along the good news... The third MRI brain scan has been released to me, and in my words, there is nothing new in my brain... come December 24, it will be one year since the brain surgery to remove the met there. Since I got my first ever Harley ride in late…
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Cyberknife
I decided to start a new post. I am on my second week of Afinitor, and overall feeling a lot better. Right now I am to meet a new doctor. He will set up the Cyberknife treatments. Don't let the name fool you, there is no knife or cutting. This is a special type of radiation treatment. I may have up to 5 treatments.…
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How did you find about metastasis after the surgery?
Hello I had an emergency radical nephrectomy after they diagnosed a 10cm rcc in my right kidney. The tumor was confined to the kidney and no metastasis was shown in CT, chest x ray, surgery and pathology result. Also nothing to worry about in an ultrasound one month ago. (no lung and bone CT yet) my next abdomilan and…
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update from all my tests
First time I have posted in awhile as I have been waiting and doing all my scans. On kidney they done Ultrasound only as I had already had abd ct 2 months earlier and everything looked ok. Had EGD scope of stomach and on biopsies came back on path report that there was cell changes from last year. Doc only said will have…
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google-developing-pill-detect-cancer
http://www.wired.com/2014/10/google-developing-pill-detect-cancer-diseases/
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Are metastasis and recurrence different?
I was diagnosed with RCC (T2B) with no metastasis and had a radical nephrectomy two months ago, now my questions are: 1) Is there a difference between metastasis and recurrence or are they the same? 2) With your own experience in my case (10 cm, confined to the kidney, cystic Eosinophilic rcc, grade II, no metastasis) how…
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CT Scan Results - What do you think?
I know every three months I bother you all with my scan results and what you think my doc will say. The reason is because you all have been right every time! I would like to know your opinion to see what I am up against. For the few remaining spots, everything was the same as last month - unchanged - no growth except in…
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Radical Nephrectomy October 2,2014
I had a radical nephrectomy on October 2, 2014. Now i know its only been a week, and yes ive asked my doctor these questions. But i would like to know from others who have actually experienced this. Is the swelling and pressure around incision normal and how long does it last? I do feel numbness as well. Just dont know…
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Weight loss and improved creatinine level
Up until recently, my husband's levels were 1.5 which was exacty what they were post neprectomy. Kept measuring that way. Today, after 30 pounds of weight loss (due to intense cardio and some moderate weight lifting, and eating appropriately) the decreased to 1.3. I'm not sure if the weight loss is related, but if you are…
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Any suggestions on how to drink more water when you are tired of it?
I am about 3 1/2 weeks post operative where I had my left kidney removed. Before I found out about my kidney cancer I drank ice tea and coke's. Now of course those are a huge no-no and I have been drinking water and juice. I am at a point where I really do not want water even though I know that is best. Any suggestions on…
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Recent CT scan shows 5.2 cm mass on right kidney
Hello everyone. I have an appointment with the Urologist next Tuesday to begin the work up process, diagnosis process on a 5.2 cm mass. Some background: Had a disc fusion about 5 weeks ago, recovered and went back to work part time. Boss was sick when I went back so when I developed body aches, chills, and a fever of 101…
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Bloating/gas pain 5 weeks post open nephrectomy
I was able to manage the constipation and had a good bowel movements the last 2 days.......but this morning after a good poop my stomach hurts similar to having a gas pain or being bloated.........Constipation and bloating are 2 different thing right? The problem is after this morning I couldn't drink or eat again anymore…
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CT Scan results
Hello all, I just want to report that I got an "all clear" result from my scan. Very happy news. The lesion on my liver was stable. I was stage 3 grade 2 when I had my 13 cm tumor removed via nephrectomy last December. The doctor said he wants to start monitoring me by ultrasound now. I argued a bit with him (I know that…
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It's Official
It was clear cell. Stage T1a. Furman grade 2. Margins are clear. I'm 2 weeks post a radical nephrectomy and feeling great. Back to work light duty on Monday. I'm one lucky gal. Scans in a year. One more post op appointment in 6 weeks. This whole thing has been crazy. Time to move forward.
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University of Michigan or west Michigan area
Does anyone see a RCC oncologist at University of Michigan or somewhere in west Michigan? Thanks Cindy
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CT results now what?
I have been a snowbird for the last 3 years and found out I had cancer while in Florida. I had a partial robotic nephrectomy in March while still in Florida. We aren't going to Florida this winter so I had my 6 month scan done here in Michigan and got the written results today. The results show 6 less then 5mm nonspecific…
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Sutent to Afinitor?
diagnosed with stage 4 RCC. Started with sutent and after 2 rounds ct was done and kidney tumor stayed the same and mets in t11 and t12 remained the same but tumor in t4 grew slightly. Doc now starting afinitor? Any thoughts???
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Trial Update
Well had my 12 week scan and got bad news. New site is present which puts me out of the trial. It is a node in the chest and is about 2 cm in size. The other 2 nodes that had shrunk have grown back to their original size. The thyroid is still smaller then when I started as are whatwas found on my right lung. Someo fthe…
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Scan done, news not good.
I received the results of my bone scan yesterday and the news wasn't good. Along with the hip bone met that I was aware of they also found two ribs and the femur invloved also. It sounds like this will preclude any surgery to the tumor in my kidney or the removal of the hip met. The doctor I spoke to at UCLA where I am…
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3weeks post surgery
hi all its been a few weeks since I posted. Feeling good although my incision areas are very painful is that normal have others experienceEd this as well.? I have lost 11 lbs since my surgery. Not complaining was trying to lose some weight