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Lower back pain on the right side....
So, I had a radical nephrectomy back in October. I have been experiencing lower back pain on the same side where my kidney was removed. My question is, could it be something to be worried about, or could it be just the change in weather! I know aches and pains are associated with the colder weather and i just wanted to…
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GS Ron's YouTube Video
Those of us who knew and loved Ron can now SEE him up and close. Miss you so much Ron~ Jan http://www.youtube.com/watch?v=4cZGTtyA5OQ
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In Need of Support-Daughter of Cancer patient
Hello, everyone! I am in desperate need of some words of encouragement or a friend to chat to on-line. I found out my father had renal cancer two years ago and had his kidney removed then. However, over the course of the two years his cancer has spread to his lungs and brain. He has tried several medications and radiation,…
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Diagnosed stage 4 just one week ago; very scared and alone.
Came out of the blue. Urinated blood for the first time ever in my life and a long story short; I have a 9cm tumor in my right kidney and 9 metetastic lymph nodes to keep it company. I've started going to Dr Jonathon Harper and Dr Scott Tykodi at the Seattle Cancer Care Alliance, but no treatment plan has started. Harper…
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blood in urine
I was diagnosed on December 1, 2011 with RCC. I had my kidney removed on December 14th. Today I had my yearly visit with my OBGYN and explained that I was feeling pressure around my bladder and lower area. I have a really bad back so that always hurts. Anyway, she did a urine test and there was no infection however, there…
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Waiting on Pathology has been the hardest part!!!
Hey, guys! I had a nephrectomy on Oct 21 2014. Originally it was scheduled to be partial but I had some arterial issues that forced the surgeon to remove the whole left kidney. The march to the surgery was one thing, but now I find myself OBSESSED with waiting for the pathology... the tumor was small (3.9cm) and confined…
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Checking in
Hi everyone. I haven't been back in about six months, since my husband passed away. I intended to stick around and pay the support you all showed me forward, but ended up feeling too overwhelmed to come back. I think about all of you often and was happy to see posts by some of you I remember. And I think I'm ready now to…
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complex renal cyst 11cm in the left kidney
Hi there, I have just know that I have complex renal cyst after doing CT scan. Suffered from low back pain which was vey severe few days ago,fever and slight haematuria, been admitted to the hospital where I did the CT. There is no metastases ,only few local lymph nodes. I am 60 years old. I have very little information…
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chromophobe
Has anyone ever heard of scar tissue in a kidney after a partial? He lost 20%of his kidney to renal cell chromophobe two years ago. Last scan was in May at Cleveland Clinic. All was well. He had pain a few weeks ago and his primary dr.sent him for a ultrasound. He got a call that something was there maybe scar tissue. He…
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It has been one year. UPDATE: One year, all clear!!!
On the one year anniversary of my husband's diagnosis with kidney cancer, he will be attending the service for his childhood friend that passed away after a lengthy battle with cancer. It is all so bittersweet. I am so grateful for the gift of getting to keep my husband, but the scanxiety and fear of the unknown is the…
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Stomach flu and only one kidney
Hi everyone, Has anyone had to deal with this? I'm worried about the hubs, he's come down with a nasty stomach flu courtesy of our 8 year old. It's puke central around here, and I'm doing my best to keep them both healthy but now I'm worried about the one kidney issue. If anyone has any tips while I wait for the doc to…
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Wilms tumor
Hello everyone I want to share my story, even though it just begun. I am 18 years young, I was healphy and fine until this autumn. I had very big pain in my back and after few days I got high fever and sudden lost of body mass. Soon after that I went to family doctor he said it probably just muscle inflammation. I drunk…
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3 time loser
That's what I'm calling myself. But more appropriately, it's more like Cancer Version 3.2. On Monday this week, I was diagnosed with breast cancer, with spread to axilla nodes. That makes 3 cancers, and 1 additional borderline form in 2 years. I'm in shock. But not surprised. I don't know what the treatment plan will be…
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Surgery date and question for those who have had open nephrectomy
I will be having my laporoscopic full nephrectomy on Monday, December 8th. Due to previous abdominal surgeries, they have prepared me for the possibility that if the internal adhesions are too severe, they may have to switch to an open. For anyone who has had an open, did they have to break your rib? While my surgeon said…
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need your help for my RCC
I am a 36-year-old woman, I had a flank pain two months ago which let to an emergency open radical nephrectomy with a very good recovery. then the pathology result showed it was a cystic Eosinophilic renal cell carcinoma, size 10cm and grade II furhman system.other information in pathology test are: 1) the tumor is…
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Sixmonth CT Scan tomorrow
Well, tomorrow I go for a CT. I feel fine, my blood pressure is fine, I have an appetite, why am I worried? Just thought I would vent as this is driving me nuts.
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Sutent & Radiation Therapy
Can a Radiation Therapy treatment administered at the same time with Sutent ?
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Changing from votrient to sutent
Hi, I have had a bad month. I had 3 weeks of vomitting and Diarreha. I ended up in Emergency with an electrolye imbalance and AF was put fluids. My blood test in ED were fine except for electrolyces. Had blood test a week later (fasting) them my liver function went sky high. Had my 3 Monthly CT scan on the 11/6 and…
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IL-2 failed; starting Votrient
After two weeks of IL-2 in March and one week in August 2014 my last two scans have shown some progression so we are not waiting around anymore. Doc prescribed Votrient and the nurse was able to get a month's supply to get me started so I took my first two pills last night. He is tapering my dose up so that week 1 I do…
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Wants to keep it a secret
My boyfriend is 21 years old and has just been diagnosed with stage four kidney cancer. His doctors are impressed with the state of his health however and gave him 2 years to live without treatment which is very uncommon for stage four from what I've been reading. They have prescribed him an 18 hour long laser surgery to…
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Hard day
I'm having a hard day today feel overwhelmed and sad. Still not sleeping at night and there is a hamster wheel going on in my head. was doing good but for some reason I'm really scared again. I really can't wait until this is over. I also have a sore throat so today I think it has spread cause I usually don't get sick.
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May have won the Lottery
Good morning, My name is Charlie and I have been diagnosed with Renal Cell Carcinoma. But the way it unfolded may be the luckiest day of my life! I was recovering from a recent Hernia surgery and took a minute to check and see that my gutters were clear because we had heavy rain coming in. I assended the 12 foot ladder and…
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6 month follow up Ct question
Met with my doctor yesterday for my 6 month post op follow up and to get my first follow up ct results. There were several new spots, very small, that we're not present om last ct. Doc says it could be calcifications or some leakage from a nephron in my kidney. Out original plan was to be seen every 6 months but now he…
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Partial nephreactomy
I had the top half of a double kindey removed in June 2013. My dr follows up with chest x ray and sonogram, blood work every 6 months. He says we should do this for three years. It was stage two and required no further treatment after surgery, per dr. In June of 2014 when I had sonogram and kidney function testing they…
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Have open partial and sooooooo scared
Like a lot of people one this forum my mass was found accidentally. I was passing a kidney stone and it was discovered on the ct. As you all have been through this you can imagine my surprise and shock when I found out. I am scheduled for partial on dec 1st. My mass was 3.8cm and from what i was told I don't have it…
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Husbands upcoming full nephrectomy
Hi! I'm new, scared, nervous and have lots of questions! My husband (only 43 yrs old) was recently diagnosed with RCC after finding a large mass (13x 12x 12cm) on his right kidney. Surgery is scheduled for this Wednesday. The surgeon is planning on starting laparoscopically knowing there is a possibility of switching to…
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Papillary Renal Cell Carcinoma Type 2 Metastases
All, I wanted to give you an update on my advancing cancer diagnosis, to inquire about possible benefits of any medication suggestions, clinical trials etc. In addition it is my hope that others in my similar condition read about my story and learn how to fight with their own battle against our evil nemesis. 10-20-14: UNC…
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Ct scan and Heart scan/ stress test
Hi all. Good news Phreds test results came back today ok. We don't know how to feel . He still has abdominal pain everyday that gets worse as the day progresses. Glad there is no sign of local recurrence but wish they could figure out why he feels so awful.
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Grade 2, Stage 2, the possibility of mets????
Hi everyone, I'm almost 70 days post opp, my next CT will be November/22. I'm doing my best to emotionally back to normal but haven't been 100% successful yet. I can't think about anything but mets!! Is here anyone who had a grade 2, stage 2 (T2b) Rcc (no mets at the time of surgery)?? I want to know how in reality is…
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Wishing all a Happy Haunting Day ... Early
Have to say that this Halloween is "special" since it's been a helluva year. You see, it's my b.day (yes I am a witch - cackle cackle). And in the year that has nearly pass, I was put on HBP meds, had a stroke in my eye and...had an open partial in March. But even so, I have survived. Nearly back to my normal self - or…