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Scans coming up
The time has come for my husband's 4 month scans and my stress is kicking in for me. his doc spoke to us about the contrast and said he wasn't expecting bad news given how well he's doing but as many know, physical pains do not necessarily mean no progression but will be trying to stay calm. his surgeon (who did the…
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Surgery Monday morning
Just a quick check in. I will be going in for my surgery Monday morning - 7:30 a.m. I am scared and nervous but ready to put the surgery behind me and move on to recovery. Can anyone tell me how long it took before they received the pathology report? Also, for those with an open procedure, how long did you remain in the…
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Now the seemingly endless wait!
Had the third 3 monthly scan after metastases yesterday. The procedure was somewhat fraught, I have been vomiting for several days now. It seems the very enlarged lymph up in my chest is pressing, not uncomfortably against my gullet. Swallowing is becoming difficult, so the blender and I are now attatched at the hip. Sadly…
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Scared and Seeking Comfort
Hello all, I must say that this is my first post, but I have really been encouraged after reading many of the other posts on this thread. I was just diagnosed with a mass on my kidney this week, and I was told that there is a 95% chance it is cancer. The tumor is 4.5 cm in diameter, and seems at this point to not be…
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12 days post op on Open Partial Nephrectomy
Hi Everyone, I had a partial nephrectomy on 11/6/2014. I had a hysterectomy in 5/2013 and this surgery resulted in an incisional hernia at the umbilicus. I had a CT to confirm and locate the hernia and was told that incidential finding was a 3.0 cm mass on my right kideny, which suspicious for cancer, thus the open…
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CT Results
I had a CT on my chest yesterday to determine whether there were any mets from the kidney tumor discovered last week. I am thrilled to say that my chest CT came back clear! Praise God! Now I just have to get this thing cut out of me and start my road to recovery. Incidentally, my headache, dizziness, and vertigo (those…
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Latest Scan
My latest scan from yesterday revealed progression in the liver with a couple of new lesions. No new growth except the liver. I had hoped my significant partial response with IL-2 would be more durable but now it seems that I will be seeking other treatment options.
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Finally read the report
Well, after 4 days, I finally got to read the report that urologist who has referred me to another urologist in Pittsburgh wrote of my abdominal CT scan. All it said was 4.5cm mass on right kidney with a possible enlarged lymph node, but apparently this node was on the opposite side of my abdomine. Has anyone else had…
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Horrible Headaches
did anyone else develop horrible headaches after learning that they had a mass on your kidney? I am a nervous wreck lately and my headaches are getting worse. i an hoping they are related to the anxiety and stress and not a met
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What’s Coming Down the Pike
There are many new treatments for RCC currently in Clinical Trials around the world. Below is my compilation of what I believe are the most promising treatments that are on the horizon for RCC. Hopefully, these new drugs/treatments will receive FDA approval within the next 1-3 years. Each drug I mention contains snippets…
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Pathology Report
Ok I have finally gotten up the nerve to read my pathology report. I know that the dr gave me the results after my surgery but I swear I was still so out of it that I could not remember anything that he said. It has been on my mide for a while so I finally went and asked for the report. Can you all please tell me what pT3,…
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Cancer Treatment Center of America--Kidney Cancer Treatment
Has anyone had their kidney cancer treated at CTCA in Illinios? I am considering a second opinion from them...the first opinion was through UPMC in Pittsburgh. How is CTCA in terms of kidney cancer treatment? Those that have been there..are you pleased, displeased, etc? I don't mind making the trip if there is truly a…
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Metastasis(RCC) to axillary lymph nodes
Has anyone heard of distant metastasis to Axillary lymph nodes(under armpit) from RCC. From what I've read it's extremely rare.
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Bone,lung,brain mets. Signs & symthoms
Hi everyone What are the signs and symthom of bone/lung/brain mets? How long does it take that the patient can feel it? And how can those pains be described?
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Sad news
I just read on another forum that GS Ron passed away on November 6 from kidney cancer complications. i am shocked and saddened with this news; I had been missing his posts but thou he wanted a cancer break after learning of his cousin's impending death. Ron was so positive and supportive and I thought getting better. if…
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Mystery Stomach Issues?
Hey, I have a random, Sherlock Holmes type investigative question. as I've read a lot of survivors' stories on this forum, I've seen a great deal of members whose cancer was discovered incidentally after stomach problems. I count myself as one of these stories. I had a terrible stomach pain that lasted through the night…
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Speed of tumor growth?
Hi all. I had a clean scan August 18th (no contrast though). I was Stage 3 ccRCC (grade 3) and had my nephrectomy 2 years ago this month. I've been having pain that is pretty non-specific, but it feels like it could be in my ribs on the right side (same side as my surgery) and just above my incision. It's away from the…
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Risks while waiting
first of all, thank you to all who responded to my previous threads. I don't know how I would be handling this without this community. to recap, I have a 4.5cm mass on my right kidney and have an appt to have the chest CT on Tuesday...praying it hasn't spread....praying very very hard! Anyway, my meeting with the surge on…
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AGS-003 personalized immunotherapy
Has anyone ever heard of AGS-003( a piece of your own tumour is used and RNA extracted)personalized immunotherapy or been involved with a clinical trial using this. Has there been good success with this? My father will be starting this trial in the next few months.
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Wishing all a very very happy Thanksgiving!
May you eat too much, relax too long, watch too much football/tv, enjoy you family too much...In other words: Enjoy too much life and love! I am truly thankful for all of you and your support these past few months. Hugs and extra piece of pie from Ann Arbor. Laurie Oh and PLEASE drive carefully! Tonight is THE BIGGEST bar…
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The Need for Constant Vigilance...
Hi, all. I've spent only a few weeks here on this forum. But I must be open and honest about a couple things that have struck me early here. After my pathology report came in, my doctor was very positive and a little dismissive of the future possibilities of RCC coming back into my life. (I've talked about the path report,…
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Nervous
Was reading so much positive stuff that I should of stopped while I was ahead. I was hoping and reading about great recoveries but now I'm reading not to believe what Dr say about it being clear and infections. Now I don't want the surgery
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Being NED feels great
I'm here to happily report my first abdomen/pelvis/chest CT with/without contrast three months post surgery which is now on the desk and I can't stop looking at it with a big smile. Friday is my birthday and this is the best birthday gift I've ever received. My loving husband and I are planning for a short trip to…
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Creatinine levels
is there a relationship between advanced kidney cancer and creatinine levels? I realize creatinine levels typically measure kidney function
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recurrence question
Hello everyone firstly have a lovely thanksgiving to all friends. I found out from my gp that my 3 months scan results show that my lung mets are shrinking and that there is recurrence in the right kidney bed (9.8 cm tumour &kidney removed 22may 2014) I have been on pazopanib since 6 September, so this was my first scan…
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member participation
Just a vent. I've been here 3 years now. I came here like most of us do. I had questions. Needed answers. Once I got them I didn't abandon this site. I shared my experience and progress with those that helped me out. And those newer than me who I was able to help. My testing, biopsies, surgery, information on clinical…
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Question
Hi all. I have a call into my doctor and am waiting to hear back, but I had a question wondering if anyone had a similar experience. I am roughly 7 weeks post a robotic radical nephrectomy. I do not know if the adrenal gland was taken out too. There was no menion of it on the pathology report and honestly, I never asked my…
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Slow healing
Hi all! I had surgery 9/25/14 to remove my right kidney due to cancer. All cancer was contained in the kidney and I am now cancer free! YAY! I still have a tiny hole in my incision that keeps leaking. Im having a CT today to see if we can figure out why. Has anyone else had this problem? Thank you!
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increased blood urea nitrogen (BUN) in recent blood test
In my recent blood test (three months post surgery) BUN is 25 (6 to 20 is considered normal) and creatinine is 1 ( 0.6 to 1.1 is considered normal). I took this test in the morning after almost 12 hours of fasting, I had also drank just one glass of water since the night before. six months ago(three months before the…
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Happy to be NED!
November 13, 2014 was one year since my brain surgery. I received the results of my CT Scan and my MRI today and I am NED!! I have been battling since August of 2011, have been in ICU twice, have had right kidney removed, bottom portion of right lung removed, and a tumor from my brain removed. It does not really matter…