Papillary Renal Cell Carcinoma Type 2 Metastases
I wanted to give you an update on my advancing cancer diagnosis, to inquire about possible benefits of any medication suggestions, clinical trials etc. In addition it is my hope that others in my similar condition read about my story and learn how to fight with their own battle against our evil nemesis.
10-20-14: UNC Chapel Hill Cancer Center
My cancer pRCC Type 2 has spread to my liver where I have multiple "new" lesions since my last CT scan in June of 2014. The new lesions are 7.2cm x 4.5cm in the 5th segment right lobe, 5.1cm x 4.5cm in segment 4B right lobe, 2.1cm x 1.8cm in segment 2 and 4.4cm x 1.7cm subscapular implant abuts right lobe.
I have new masses in the Right Renal Fossa 6.3cm X 3.6cm, 2.9cm x 2.8cm and other smaller less.
Lymph Nodes Mets:
Multiple Retrocrural and retrocaval lymph nodes largest being 2.1cm x 1.8cm, Para-Aortic Lymph Node 1.8cm, left Para Midline Mesenteric 1.6cm and left abdominal Mesenteric Implant 2.2cm x 2.1cm.
Since there are no surgical remedies at this point a "whole body" approach to medical management has been advised. It has been advised that I visit (currently set for appointment on October 30 at 7:30 am) with the Dana Farber Cancer Institute in Boston, MA. I have met with these folks prior and my Doctor is Toni Choueiri a leading RCC specialist and the chair of lead Oncologist on the clinical trial. I have no current info on the trial, but expect a call shortly from the clinical group at Dana Farber to discuss and outline the study.
I have read that some success has been found with Enverolimus after failure of Sunitinib and Sorafenib.
Any suggestions about the following would be much, much, very, very appreciated.
1. does anyone with pRCC have any experience with any of my mets?
2. Can anyone advise on possible drugs that I should prepare for or investigate for pRCC?
3. Any idea on suggestions of clinical trials, etc?
4. please feel free to give any thoughts you may have or reach out to me directly with a message of what you would suggest, etc.
I am here to fight, I am praying daily, I am so very thankful for every day and look to soldier through this fight I have in front of me.
Thanks again for being super in all phases of humanity!
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