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social security
I like to bring this up every so often for newer people. Depending on your status with kidney cancer, you may be eligible for social security disability. It has been wonderful for me. I don't miss work but I miss the money.
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cancer and pain, Do mets hurt?
Who? me ramble? Here is my latest. I wish that I had brought this up for input from Ron. Try to follow and add or subtract your 2 cents. Here goes. If you cut your finger, it hurts. Pain receptors get stimulated from the damage. Messages are sent to the brain and we interpret them as us having hurt ourselves. The same…
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I am officially a member.
Hello friends. I am home from the hospital today and officially a member. They were able to do the surgery laparoscopically, however, it took them 7.5 hours - 2 of those hours spent lysing old adhesions. A very tenacious and dedicated surgical team. To say I am sore is an understatement. It turned out the "tumor" on my…
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Metastasis ro the 6th and 8th rib
O had an old sprain in my right ankle years ago......a week ago I was blowing snow and been outside for almost 2 hrs clearing the snow in ny backyard......the cold weather must jave sip in to my ankle and now it's been swollen for a week and couldn't walk......I have metastasis to my ribs and is afraid that this is just…
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Anyone paying out of pocket for Sutent or have a big copay?
Team, Is anyone paying out-of-pocket for Sutent, or have a hefty copay and having financial difficulty? I'm not trying to sell any Sutent or any health plan, so that's not the reason for my question....
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From the US National Library of Medicine
I found this as part of a study done between 1989 and 2008. For those of us who had very small tumors (less than 3 cm), this is extremely hopeful news. Hope this is interesting. Here is a link to the page if you want to read the more in depth article, but below is the quick abstract:…
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Papillary Renal Cancer
I'm new to this forum and I'm wondering how many of you have papillary cancer? I was diagnosed on June 4 of this year and I was surprised to say the very least. I had no symptoms or pain at all. I noticed blood in my urine one morning and went to the walk in clinic to check if I had a UTI. The main reason I even went to…
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Scan Day today....increased from 3 mo to 4 mo...
Today is my scan day: MRI of the abdomen and Chest CT. This is my first (and probably only) 4 month scan. Next, if all goes well, six month scans. It is just about two years from my first post-nephrectomy scans, which showed a solitary met to my lungs. My Onologist, Dr. Hammers has told me that, with the agressiveness of…
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Went to my onc today
Just a small update to my last post from a couple weeks ago. I did indeed go ahead and see the oncologist and I told him what my urologist had told me at my 3 month post-op visit about not needing any further follow up because I was "cured". Also mentioned to the onc how no one had told me about needing, at a minimum,…
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Graduation
I had my 8 week post-op follow up yesterday and I have graduated to yearly visits now. My incisions look great and I have been cleared to go back to normal activities. Follow-up in one year with CT scans with and without contrast, chest xrays, bloodwork. You all know the drill. Since my cancer was so small, he felt that…
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Update: met with surgeon
I met with the surgeon today, and what a great guy he is! je put me at ease and told me he feels I have a 90-95% chance of "cure" through surgery. he is performing a partial nephectomy on Monday!! That was some fast scheduling! once he found out I have three little kids at home, he wanted to make sure I could be home for…
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What does a CT show
I had a clean chest CT last week, so apparently the 4.5 cm tumor on my kidney hadn't spread to my chest. I have, however, noticed for a few weeks now some strange pain below my right nipple as well as a feeling that my mid back is "out." Does anyone know if the chest CT would have shown mets on my spine or ribs? Of course…
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pazopanib side effects?
Hi all, I'd like to hear about side effects of pazopanib. Not just the long list that comes with the drug, but what someone on the list has actually experienced. The oncologist tells you all the bad stuff and it's pretty scary. I have the opportunity to get into a study for Stage III RCC. I've had my right radical…
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Scans coming up
The time has come for my husband's 4 month scans and my stress is kicking in for me. his doc spoke to us about the contrast and said he wasn't expecting bad news given how well he's doing but as many know, physical pains do not necessarily mean no progression but will be trying to stay calm. his surgeon (who did the…
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Surgery Monday morning
Just a quick check in. I will be going in for my surgery Monday morning - 7:30 a.m. I am scared and nervous but ready to put the surgery behind me and move on to recovery. Can anyone tell me how long it took before they received the pathology report? Also, for those with an open procedure, how long did you remain in the…
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Now the seemingly endless wait!
Had the third 3 monthly scan after metastases yesterday. The procedure was somewhat fraught, I have been vomiting for several days now. It seems the very enlarged lymph up in my chest is pressing, not uncomfortably against my gullet. Swallowing is becoming difficult, so the blender and I are now attatched at the hip. Sadly…
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Scared and Seeking Comfort
Hello all, I must say that this is my first post, but I have really been encouraged after reading many of the other posts on this thread. I was just diagnosed with a mass on my kidney this week, and I was told that there is a 95% chance it is cancer. The tumor is 4.5 cm in diameter, and seems at this point to not be…
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12 days post op on Open Partial Nephrectomy
Hi Everyone, I had a partial nephrectomy on 11/6/2014. I had a hysterectomy in 5/2013 and this surgery resulted in an incisional hernia at the umbilicus. I had a CT to confirm and locate the hernia and was told that incidential finding was a 3.0 cm mass on my right kideny, which suspicious for cancer, thus the open…
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CT Results
I had a CT on my chest yesterday to determine whether there were any mets from the kidney tumor discovered last week. I am thrilled to say that my chest CT came back clear! Praise God! Now I just have to get this thing cut out of me and start my road to recovery. Incidentally, my headache, dizziness, and vertigo (those…
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Latest Scan
My latest scan from yesterday revealed progression in the liver with a couple of new lesions. No new growth except the liver. I had hoped my significant partial response with IL-2 would be more durable but now it seems that I will be seeking other treatment options.
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Finally read the report
Well, after 4 days, I finally got to read the report that urologist who has referred me to another urologist in Pittsburgh wrote of my abdominal CT scan. All it said was 4.5cm mass on right kidney with a possible enlarged lymph node, but apparently this node was on the opposite side of my abdomine. Has anyone else had…
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Horrible Headaches
did anyone else develop horrible headaches after learning that they had a mass on your kidney? I am a nervous wreck lately and my headaches are getting worse. i an hoping they are related to the anxiety and stress and not a met
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What’s Coming Down the Pike
There are many new treatments for RCC currently in Clinical Trials around the world. Below is my compilation of what I believe are the most promising treatments that are on the horizon for RCC. Hopefully, these new drugs/treatments will receive FDA approval within the next 1-3 years. Each drug I mention contains snippets…
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Pathology Report
Ok I have finally gotten up the nerve to read my pathology report. I know that the dr gave me the results after my surgery but I swear I was still so out of it that I could not remember anything that he said. It has been on my mide for a while so I finally went and asked for the report. Can you all please tell me what pT3,…
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Cancer Treatment Center of America--Kidney Cancer Treatment
Has anyone had their kidney cancer treated at CTCA in Illinios? I am considering a second opinion from them...the first opinion was through UPMC in Pittsburgh. How is CTCA in terms of kidney cancer treatment? Those that have been there..are you pleased, displeased, etc? I don't mind making the trip if there is truly a…
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Metastasis(RCC) to axillary lymph nodes
Has anyone heard of distant metastasis to Axillary lymph nodes(under armpit) from RCC. From what I've read it's extremely rare.
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Bone,lung,brain mets. Signs & symthoms
Hi everyone What are the signs and symthom of bone/lung/brain mets? How long does it take that the patient can feel it? And how can those pains be described?
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Sad news
I just read on another forum that GS Ron passed away on November 6 from kidney cancer complications. i am shocked and saddened with this news; I had been missing his posts but thou he wanted a cancer break after learning of his cousin's impending death. Ron was so positive and supportive and I thought getting better. if…
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Mystery Stomach Issues?
Hey, I have a random, Sherlock Holmes type investigative question. as I've read a lot of survivors' stories on this forum, I've seen a great deal of members whose cancer was discovered incidentally after stomach problems. I count myself as one of these stories. I had a terrible stomach pain that lasted through the night…
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Speed of tumor growth?
Hi all. I had a clean scan August 18th (no contrast though). I was Stage 3 ccRCC (grade 3) and had my nephrectomy 2 years ago this month. I've been having pain that is pretty non-specific, but it feels like it could be in my ribs on the right side (same side as my surgery) and just above my incision. It's away from the…