The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Swallowing

Hello!  I had part of the back of my tongue removed on July 20. I have started PT/OT for speech/swallowing.  I'm very scared I will never be able to eat or drink liquids.  Anyone have suggestions. I'm also having issues the the supplement. I've tried Nutren 2.0 and now using osmolite 1.5.  Im having trouble maintaining my weight.   I would like feedback on making blenderized food. Thanks

Comments

  • CivilMatt
    CivilMatt CSN Member Posts: 4,727 Member
    swallow this

    Janielynn62,

    I also had my base of  tongue worked on along with a jugular vein dissection to remove a tangled lymph node.  Even though I did drink lots of water and swallow often, the 7 month path I took with my diet had me wondering if normalcy would return or was the life of smoothies more the norm?  My taste, no taste, awful feel ruled the day.  I was constantly trying ALL foods and made a lot of smoothies, but after 7 months it was just like a switch got flipped and I returned to normal eating.

    I di go through speech therapy which included many exercises, including swallowing.  This helped a  lot.

    While life is new normal and ok there are many changes to eating and drinking.  I take two, three or four times longer to eat and drink twice as much if not more than  I used too.

    I would not be scared about your future, barring a major problem you will eat, drink and be merry once again.

    My smoothies were basic, protein powder, berries, bananas, nuts and vegetable oil (for calories). Just ask the H&N forum or Doctor Google.

    Matt