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Pneumonia
I managed that thing that makes us all careful of what we eat and drink.. aspiration pneumonia. Apparently I am allergic to doxycycline, as I found out by hitting the floor one to many times! I am ok'ish now, except the sore throat will not go away! I was already dealing with a significantly smaller oesophagus (less than 1…
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Vagal Nerve Damage from Radiation
Hi folks - it's been a long time. My husband had tonsil cancer over a decade ago and got the full chemo and rad treatment. I was active here for a while, but after a few years, I saw that others could provide any info I could, and it was hard to relive the bad days. Now, I'm learning about something that might be new to…
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Tonsillar cancer scanning
I was treated for Tonsillar cancer stage 1 the fall of 2023 now recently I was diagnosed with stage 4 cancer that was metastatic from tonsil to lungs and bones. I had a scan 3 months after my tonsil cancer treatment and it was clear, my doctor elected to scan me once a year after my first 3 month scan. 10 months in I had…
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Radiation Fallout
Long time member of CSN, but have been absent several years. 10 years ago husband diagnosed with stage 4 nasopharyngeal tumor. Treatment was successful in eliminating the cancer but radiation effects over the last 10 years have piled up. Hearing loss, no longer able to swallow so PEG tube feeding, tracheostomy, balance…
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Cancer of the Ear Canal
I was recently diagnosed with invasive squamous cell carcinoma of the ear canal. I had an initial surgery to remove the visible tumor and to biopsy it (which led to my diagnosis). The first pathology report was inconclusive so they sent it on to experts for their interpretation, which resulted in a diagnoses of SCC. They…
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Extremely Scared - Husband Diagnosed with Throat Cancer
My husband was just diagnosed with squamous cell carcinoma in his throat at the base of his tongue. His ENT sent him for a CT with contrast this morning and the results are a spot 1.5cm in the largest section, no additional areas involved such as bone or muscles around and one lymph node on the same side. No midline…
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Sinonasal Adenocarcinoma
Hey Alll, I have recently completed treatment at MSK for high grade sinonasal adenocarcinoma (non-intestinal type). Looking to connect with others who have this rare cancer, specifically women, but also all. I was 38 at the time of diagnosis, so looking to connect with young adult survivors as well. Any info would be…
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HPV positive
My husband had throat cancer due to HPV 16 stage 4 in 2014 he survived it but recently is having throat and sinus issues as well his taste buds seem to be going again:( … at the time we were told by the doctors that he would be unlikely have a recurrence of the same strain we also had asked if I should be tested and were…
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Good News Received-Recent Scans
Hello, everyone, I just wanted to drop by and post some info on my recent yearly scans. I had 2 CT scans recently, one of the chest (No Contrast) because it is found that many times an H&N cancer will go to the lungs next, so they give me a scan each year as a precaution to watch the area, and I had a CT scan of the soft…
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Husband’s Taste After Radiation/Cisplatin 10/23
I recently posted about a scare we got from my husband’s new dental hygienist who thought he had another swollen lymph node on the opposite side of his neck from where he was diagnosed with left base of tongue and 2 nodes on the left last July 2023 with 7 weeks of radiation and 7 weekly Cisplatin chemos. Saw his Oncologist…
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Radiation or no radiation
I just had my third surgery since May 2017. First surgery was to remove a liason on the floor of my mouth under my tongue. 2nd surgery (June 2018) was to remove my right neck lymph nodes. 3rd surgery (August 2018) was to remove my left neck lymph nodes. CT scan results were the reason for the right removal. Of 27 nodes…
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Throat gets sore from talking too long
Three and a half years after radiation (last radiation 8/30/21) I’m still finding that if I talk too long my throat gets dry, I start coughing and stays sore for hours afterwards. I get CT scans once a year and continue to see my ENT every four months, my last appointment being just 5 days ago. CTs are always clear. Every…
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Neck Burns Poll
Merry Christmas first of all! I don't want to jinx myself here, but I have been doing searches, and I'm having a hard time locating what I am looking for. I'm only really locating when the burns have gotten really bad for some people. What week/s for you did your neck noticeably start to turn red and burn on the outside?…
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Beards--Post Radiation--Guys Weigh In Here
My beard doesn't grow in consistently and evenly like it used to since I had radiation and I am pretty sure others on here have mentioned it so guys weigh in here and let us know did your beard change after radiation? Such as general growth, thickness, patchy growth, etc., or no changes.
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**** Vitale Cancer-Free After 4th Bout With The Disease In Just Over 3 Years
Head & Neck Cancer Defeated Again https://x.com/DickieV/status/1877012081594990846 **** Vitale said he’s cancer-free after his fourth bout with the disease in just over three years. The 85-year-old ESPN college basketball analyst announced Thursday on social media that he got the news after a morning scan. “SANTA CLAUS…
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A new battle
We all know what going thru H&N tx is like- a 2-month battle that drags on as long afterwards. A thought occurred to me with where I'm at now, almost 13-1/2 years since my last Rad session: first there was the battle of going thru treatment, and now there's the battle of dealing with the long term side-effects of C…
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First Bite Syndrome
I am curious if anybody else has experienced this or knows anything about it. Ever since my Extended Radical Neck Dissection surgery in December, I have been experiencing First Bite Syndrome. It involves the first one or two bites of food at every meal, which triggers an intense, almost painful, sensation in the lower back…
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Question About New Neck Lymph Node After Radiation/Chemo in 9/2023
Hi Russ and All, Only because I tend to be a little more pragmatic and intuitive instead of initially panicking, here I am again. My husband was diagnosed with Stage 1 base of tongue cancer (HPV+) in July 2023 (so a little over a year ago). He had 7 weeks of radiation to his left base of tongue and left 2 affected lymph…
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And so my Journey Begins . . .
My journey is about to begin so I figured I'd set it down and tell it as it goes. As it goes I will update and try to answer any questions. Symptoms: In June 2022 I had my yearly physical and my blood work came back as good so no indications of anything. Felt great. Started August with a sore throat and a full left sinus.…
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Ivermectin
Hi I'm in Northern Ireland and trying to find dosage for Ivermectin and Fenbendazole. Can anyone please point me in the right direction?
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NEED GUIDANCE AND SUPPORT
I am reaching out to you because I am a recent patient of P16. My radiologist stated my condition is worse than most. He expressed the average level of lymph nodes with P16 cancer infected if 5 to 8. I had 22 lymph nodes with cancer. This means my radiation treatment was 3x (according to them) more inserted = more precise…
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LARYNX CANCER
I am on Radiation Treatment for my Larynex Cancer .I took 11 treament and 22 more to go. I have great pain for swolling which was not before. Pain is unbarble.Doctor says you have to bare it.No medicaton prescribed. Is anybody have remady to deal with this throt pain .Even I feel difficulty in swolling water too!
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Happy Happy New Year Belated And Wishing Everyone A Happy And Wonderful 2025
Hello everyone and I would like to wish everyone a wonderful New Year members and visitors alike on this forum. I am obviously a day late and a dollar short on this one but I am hoping to get a little Grace on this one. I was busy with a few things and the day slipped past me. I apologize. But the old saying is "Better…
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Wishing Everyone A Blessed And Joyous Christmas 2024 And Great Hope For Tomorrow
Hello and Blessings to all on CSN and especially to our group in the H&N section Please feel free to leave your own well wishes and Christmas Blessings here, all are welcome. We are all in the same club here so cheers to everyone. Christmas time is one of the highlights of the year. It’s a time of gathering with family and…
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Orpheangeal Cancer due to HPV Virus
I have been in remission since July 2023. Cancer free do far. I am so worried about the Cancer coming back. Is there anyone out there had this Cancer? Did it come back?
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Learn About The Treatment Options Available To You-Sharing This From Local Support Group
Hello everyone. These Head and Neck Cancer handouts were given at our local cancer center support group. I would like to share it because I think it may be helpful. If you find the print a bit small you can increase the size of the print in your browser, I know with Firefox Browser if you push "ctrl +" on your keyboard it…
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SCC of the tongue.Almost finished with radiation.
Hello. This is my first time reaching out. I am 54 and was diagnosed with SCC of the tongue in mid August of this year. On September 9th, I had the pleasure of enduring a 12 hour surgery to remove about half of the left side of my tongue, removal of 34 lymph nodes, and reconstruction with a flap twice (first did not have…
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Tinnitus due to chemotherapy (cisplatin) and radiation to cure NPC
I had radiation and chemotherapy (Drug:cisplatin) in 2021 to treat my nasopharyngeal carcinoma. My treatment ended in Aug 2021. I had side effects that came with the treatment and had handle them well. However, recently (early Aug 2022), one year after the treatment, i suddenly develop tinnitus and it’s effecting me very…
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Has anyone had HPV+ TORS surgery without follow-up radiation?
I was diagnosed with early stage HPV+ cancer on my right tonsil. After conferring with my surgery, chemo and radiation doctors it was recommended to have TORS surgery. The surgery went well, and fortunately the lymph nodes that were removed tested negative. But now the radiation doctor is recommending 5 weeks of "clean up"…
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Follow up of stage 4a laryngeal cancer
hi! I am new to this site . I have a question regarding follow up care. My husband has stage 4A Supraglottic cancer. We had first 3 month appt with pet scan and scope yesterday and all looks good. At first the oncologist said fu care would be ct and scope every three months for a while . Then we saw ent and he said scope…