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Alcohol Consumption after Cancer Treatment
Hello, I am a cancer survivor, I had a large tumor on the rear of my tongue and 7 weeks of aggressive radiation and chemo. I just passed my 5 year treatment anniversary and thankfully healthy. Has anyone heard anything about the effects of drinking alcohol after treatment? I'm not a big drinker but I can no longer feel the…
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Are we no longer having a Roll Call?
Didn't see it but may have missed it. Jim K
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Any information about de-escalated adjuvant radiation therapy (DART)
This is a follow-on to an earlier topic that I started, but since this is focused on the de-escalated adjuvant radiation therapy (DART), I thought I would make this a new topic. I was diagnosed with early stage HPV+ cancer on my right tonsil. After conferring with my surgery, chemo and radiation doctors it was recommended…
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Have to get a molar pulled
I am a thirteen-year survivor of nasopharyngeal cancer. Through the years, I have spent thousands on my teeth. I had a molar that had a crown on it. It decided to come loose and fall off. Now I need to have the root pulled out. My dentist has put me on two meds. Pentoxifylline and vitamin E to ward off osteoradionecrosis.…
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Webinar: Head and Neck Cancer Survivors - Managing Function and Quality of Life
The National Coalition for Cancer Survivorship (NCCS) hosted a Cancer Policy and Advocacy Team (CPAT) webinar discussing quality of life for head and neck cancer survivors. The treatment of head and neck cancer (HNC) often involves surgery, radiation, and chemotherapy. This treatment is critical for controlling or curing…
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Shoulder Pain and Dysfunction After Radiation
Remembering that I have had radiation twice, most will not run into this problem. But some will, and as I've not seen a reference to it before, thought I'd talk about this situaton. It has taken me awhile to figure out I had a problem. Beginning soon after my last radiation, I started having mild bilateral shoulder pain. I…
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Asymmetrical fullness of the right lingual tonsil with effacement of the right vallecula
I am sorry in advance for being a pain I am just worried. CT scan showed Asymmetrical fullness of the right lingual tonsil with effacement of the right vallecula. PCP sent me to ENT. ENT says TMJ and reflux. I have had ear, throat and neck pain and swelling on the left side for over 3 months. Occasionally my lymph nodes…
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Just found out yesterday
Of all days to get results of cancer was on April 1st! My Oral Surgeon told me that my biopsy came back with cancer. Keratinizing squamous cell carcinoma on the side of my tongue. About 2 years ago a bump appeared on my tongue and my dentist told me that he thought it might be from HPV so he removed it and biopsied it. It…
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sex after treatment for HPV P16+ cancer - for married & single ex-patients
Are there any restrictions on sex (in a committed hetero relationship) after treatment? Is there any evidence that post-Tx sexual relations can cause a reoccurrence of HPV16+? Also - for patients treated for HPV16+ who are not married & single - were they to have multiple female partners - is there a risk of reoccurrence…
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So the Real Journey Begins Today
After 3 months of questions and testing and waiting, my husband is scheduled for a modified neck dissection this morning. We have to be at the hospital at 5:45 am; of course it is only 3:30 and I am up and dressed and ready to go. Sleep? Oh no. 😟 It’s not than I am scared, I am beyond that now, just couldn’t sleep. A song…
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Dental implants post recovery
It's pretty surprising there are no threads on dental implants in this group. Well, here's my situation. Brief backstory - My cancer treatment, radiation and chemo, was a decade ago and successfully treated the cancer with very few long term side effects. Two teeth were extracted as a precaution prior to treatments with no…
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Taste - Post Treatment
So, I am now 13 days post treatment. Everything seems to be healing well. I think I may be one of the lucky ones, as I have been seeing signs of improvement for about a week now. my concern is with taste. I've had no changes regarding my taste... still taste nothing! I was reading some posts and have become confused as to…
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Using Zinc for Return of Taste?
Hi All Again, I forgot to add in my last post of several days ago that at some point near the end of my husband’s base of tongue SCC treatment (ended 10/24/23) that I was searching on this Board about taste returning. Someone mentioned they took Zinc supplements and it helped them. Scientific I don’t know but we asked his…
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Happy Easter Wishes to All 2025
This year I am wishing everyone a wonderful Easter as best as I can on here.. I had posted this message in a different form, and this site policy caused it to be removed. I cannot tell you the truth, or my post will be removed. For that matter this one may well be also I am not allowed to post XX xx xxxxx, xx xx xxxxx…
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Pneumonia
I managed that thing that makes us all careful of what we eat and drink.. aspiration pneumonia. Apparently I am allergic to doxycycline, as I found out by hitting the floor one to many times! I am ok'ish now, except the sore throat will not go away! I was already dealing with a significantly smaller oesophagus (less than 1…
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Tonsillar cancer scanning
I was treated for Tonsillar cancer stage 1 the fall of 2023 now recently I was diagnosed with stage 4 cancer that was metastatic from tonsil to lungs and bones. I had a scan 3 months after my tonsil cancer treatment and it was clear, my doctor elected to scan me once a year after my first 3 month scan. 10 months in I had…
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Radiation Fallout
Long time member of CSN, but have been absent several years. 10 years ago husband diagnosed with stage 4 nasopharyngeal tumor. Treatment was successful in eliminating the cancer but radiation effects over the last 10 years have piled up. Hearing loss, no longer able to swallow so PEG tube feeding, tracheostomy, balance…
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Cancer of the Ear Canal
I was recently diagnosed with invasive squamous cell carcinoma of the ear canal. I had an initial surgery to remove the visible tumor and to biopsy it (which led to my diagnosis). The first pathology report was inconclusive so they sent it on to experts for their interpretation, which resulted in a diagnoses of SCC. They…
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Extremely Scared - Husband Diagnosed with Throat Cancer
My husband was just diagnosed with squamous cell carcinoma in his throat at the base of his tongue. His ENT sent him for a CT with contrast this morning and the results are a spot 1.5cm in the largest section, no additional areas involved such as bone or muscles around and one lymph node on the same side. No midline…
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Sinonasal Adenocarcinoma
Hey Alll, I have recently completed treatment at MSK for high grade sinonasal adenocarcinoma (non-intestinal type). Looking to connect with others who have this rare cancer, specifically women, but also all. I was 38 at the time of diagnosis, so looking to connect with young adult survivors as well. Any info would be…
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HPV positive
My husband had throat cancer due to HPV 16 stage 4 in 2014 he survived it but recently is having throat and sinus issues as well his taste buds seem to be going again:( … at the time we were told by the doctors that he would be unlikely have a recurrence of the same strain we also had asked if I should be tested and were…
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Good News Received-Recent Scans
Hello, everyone, I just wanted to drop by and post some info on my recent yearly scans. I had 2 CT scans recently, one of the chest (No Contrast) because it is found that many times an H&N cancer will go to the lungs next, so they give me a scan each year as a precaution to watch the area, and I had a CT scan of the soft…
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Husband’s Taste After Radiation/Cisplatin 10/23
I recently posted about a scare we got from my husband’s new dental hygienist who thought he had another swollen lymph node on the opposite side of his neck from where he was diagnosed with left base of tongue and 2 nodes on the left last July 2023 with 7 weeks of radiation and 7 weekly Cisplatin chemos. Saw his Oncologist…
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Radiation or no radiation
I just had my third surgery since May 2017. First surgery was to remove a liason on the floor of my mouth under my tongue. 2nd surgery (June 2018) was to remove my right neck lymph nodes. 3rd surgery (August 2018) was to remove my left neck lymph nodes. CT scan results were the reason for the right removal. Of 27 nodes…
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Throat gets sore from talking too long
Three and a half years after radiation (last radiation 8/30/21) I’m still finding that if I talk too long my throat gets dry, I start coughing and stays sore for hours afterwards. I get CT scans once a year and continue to see my ENT every four months, my last appointment being just 5 days ago. CTs are always clear. Every…
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Neck Burns Poll
Merry Christmas first of all! I don't want to jinx myself here, but I have been doing searches, and I'm having a hard time locating what I am looking for. I'm only really locating when the burns have gotten really bad for some people. What week/s for you did your neck noticeably start to turn red and burn on the outside?…
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Beards--Post Radiation--Guys Weigh In Here
My beard doesn't grow in consistently and evenly like it used to since I had radiation and I am pretty sure others on here have mentioned it so guys weigh in here and let us know did your beard change after radiation? Such as general growth, thickness, patchy growth, etc., or no changes.
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**** Vitale Cancer-Free After 4th Bout With The Disease In Just Over 3 Years
Head & Neck Cancer Defeated Again https://x.com/DickieV/status/1877012081594990846 **** Vitale said he’s cancer-free after his fourth bout with the disease in just over three years. The 85-year-old ESPN college basketball analyst announced Thursday on social media that he got the news after a morning scan. “SANTA CLAUS…
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A new battle
We all know what going thru H&N tx is like- a 2-month battle that drags on as long afterwards. A thought occurred to me with where I'm at now, almost 13-1/2 years since my last Rad session: first there was the battle of going thru treatment, and now there's the battle of dealing with the long term side-effects of C…
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First Bite Syndrome
I am curious if anybody else has experienced this or knows anything about it. Ever since my Extended Radical Neck Dissection surgery in December, I have been experiencing First Bite Syndrome. It involves the first one or two bites of food at every meal, which triggers an intense, almost painful, sensation in the lower back…