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NavDx test
I am aware of for a lot of people NavDx test is a great help but unfortunately my husband has not been lucky enough to be one of them. He got diagnosed with HPV+ T2N1M0 squamous cell carcinoma(SCC) on his left tonsil in June 2023. He went through surgeries, 33 sessions of radiation plus 6 sessions of low dose cisplatin. He…
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TORS larynx surgery
I am a 74 yera old female. I was originally diagnosed in September 2023 with squamous cell carcinoma HPV positive +16 and had 6 cisplatin chemo treatments and 35 radiation treatments that ended on November 22, 2023. My CT scan in February, 2024 was good as was my pet scan in May, 2024. In August, 2024 my pet scan showed…
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Throat Cancer Advice From A Survivor-How to Swallow Liquids Without Choking or Coughing Aspiration
Do you cough and choke every time you try to swallow liquids? So did I! Here are a couple of tips to prevent it. Aspirating liquids into your lungs is dangerous, especially as we get older. Here is a simple way to prevent aspirating liquid into your lungs when drinking liquids, especially thin liquids like water. Take…
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Styes on eyelids
Any evidence of styes being a late effect of radiation for head and neck cancer? I completed my chemo and radiation in October 2020. I have trouble with dry mouth, but have been doing well. For the last several months I've had recurring styes on my eyes. Sometime upper lid and sometimes lower lids on both eyes. Just…
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Radiation for tongue cancer
My dad will be doing radiation for his tongue cancer and he and my mom are scared out of their mind. My mom is terribly afraid that my dad won't be able to eat anything at all, is this true? They are going to put in a feeding tube so he will be able to get nourishment but he still needs to be using his tongue so he won't…
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Joe Tippen Cancer Story-Recently Shared With Me-For Your Consideration
Joe Tippen's personal story of battling cancer. He was given 3 months to live. His story is certainly different let's say but when your life is in the balance that changes things. I am just going to leave a link to his blog covering the whole story and my friends you can draw your own conclusions. It is a worthwhile read.…
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Hello
IS anybody there?? Or is this another waste of time?
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cold hands, shaky right hand and tingling pain
Hello folks, I am a 15 year survivor of Stage 2 nasopharyngeal cancer diagnosed at age 40. I had concurrent cisplatin chemo along with 30 radiation course back in 2009. Still in remission thankfully. One issue, however, that's bothering me the most and getting worse year over year is cold intolerance, especially in the…
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Looking for psychologist or therapist Nashville Tn area
my wife has finished surgery, radiation and chemotherapy for jaw cancer. I am trying to find a counselor in my area who has experience with cancer survivors. Any recommendations would be greatly appreciated. Spring Hill, Columbia, Franklin Tennessee area
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taste buds after radiation
My radiation treatments were over last tuesday. Does anyone know how long it generally lakes to get tasts buds back? This id my first time on here.
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Liquid Biopsy in H&N Cancer: From Diagnosis to Survivorship: Dr C.Holsinger, MD, Head & Neck Surger
Hello everyone I think you will find this interesting. It is either similar to or including the NavDx test concept that has been discussed on here before. Stanford Otolaryngology — Head & Neck Surgery Liquid Biopsy in H&N Cancer: From Diagnosis to Survivorship: Dr C.Holsinger, MD, Head & Neck Surgery Take Care, God Bless…
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Glial Dysregulation and Cognitive Impairment Following Cancer Therapies
STANFORD UNIVERSITY by Michelle Monje, MD, PhD Take Care, God Bless Russ
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Signs of Recurrence and How to Monitor: Beth Beadle, MD, Radiation Oncology
A presentation from————- Stanford Otolaryngology-Head & Neck Surgery Signs of Recurrence and How to Monitor: Beth Beadle, MD, Radiation Oncology Take Care, God Bless NEGU (Never Ever Give Up) Russ
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When You Think Of Head & Neck Cancer Recovery, Think Of The Sloth
H&N Cancer Recovery is the Sloth of recovery. It's not the Jaguar of recovery it's the Sloth Sloths have an extremely low metabolic rate, which means they move at a languid, sluggish pace through the trees. On average, sloths travel 41 yards per day—less than half the length of a football field! And that is exactly what…
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Cancer journeys
Reading someone else's post (don't ask for names, my chemo brain sucks) about how everyone's journey is different, that is true. I didn't get sick, not once. Was I lucky or were my Drs that good? I'd go with 50/50 Cancer, if you don't have it, you've heard about it, or you know someone who has it. Heard about it. If, like…
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Endocrine disorders in Rhabdomyosarcoma patients
Hi! I am a childhood cancer survivor who was diagnosed at 4 months old. I am now in my 20s and have recently been diagnosed with Hashimoto’s disorder, which is an extreme type of hypothyroidism. I am messaging here to ask if anyone else has experienced this same path of diagnosis, as I know endocrine disorders are…
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Hearing Loss: How to Navigate This Side Effect of Cancer Treatments
Video covering hearing loss or compromised hearing after H&N treatment. Cancer treatments, such as chemotherapy, radiation therapy, and certain medications, can sometimes lead to hearing loss or other auditory complications. In this video, we will explore the causes, symptoms, and management strategies for hearing loss…
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How long have you survived
I think this would encouraging for new and old members to read how long you have survived H&N c (cannot give it a capital) I am a 5 month survivor of Right tonsil c, with 1 lymph node involvement T1N1M0 Cheers Jen xxxxx
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free flap reconstruction of gums
Just wondering if anyone else has had free flap reconstruction in mouth. It doesn't seem to be too common and I really would love to discuss with someone who has been through this.
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Unveiling the Mystery of Cancer Staging
In this video, we delve into the often confusing world of cancer staging and reveal the secrets behind how it is determined. Understanding cancer staging is crucial for making informed treatment decisions and assessing prognosis. Join us as we simplify this complex topic and shed light on the key factors that influence the…
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Labor Day Celebrating America's Workers & Summer's Last Hurrah
Hello to everyone here on CSN H&N group, all members and visitors alike. I would just briefly like to wish everyone a wonderful Labor Day holiday no matter where you are may you have a wonderful day. My Oh My it's hard to believe we are near summers end already the time goes so fast and we need to cherish the moments. I am…
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Maxillary Sinus Cancer
I'm looking for someone who has or had maxillary sinus cancer. I work at a hospital and a patient of mine is looking for someone who he can share his experience with. We have had difficulty finding someone that has been through what he is going through right now. He could really use the emotional support and the feeling…
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The Role of Nutrition in Accelerating Cancer Recovery
In this video, we're going to discuss how nutrition can help you recover from your treatments faster! By following a nutritious diet and supplementing with the right nutrients, you can help your body bounce back faster and cancer can be a thing of the past. If you're looking for information on how to recover from cancer,…
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No Symptoms to STAGE 4 CANCER! - Michael | Head and Neck Cancer | The Patient Story
A friend has recently made me aware of this video knowing of my situation with H&N cancer and thought it would be of interest to me. Well, I think it is a very good video and the fellow speaks from experience and from the heart and is very detailed and open about his whole cancer process and recovery speaking about the…
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"Baroreflex" Failure" A Rare Late Effect Of Radiation Treatment
I came across this article written by a Gentleman on another forum about late-term post-radiation effects which can give you a condition where your blood pressure swings wildly from high to low or low to high without notice. There is no cure but some control can be realized with meds. I just wanted to let the group know…
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It feels just like I'm going through radiation again...Help!
I was treated for cancer of the voice box almost 5 years ago and have done fine up until this fall. I've been to my ENT and Radiologist and then down to Florida for a month's vacation. My symptons have gotten worse each week, and I am so happy to be home again. I'm going for a Pet Scan and to see my Radiologist on…
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ssc, hpv in tonsils on both sides and eblarged lymph node
While the biopsy only showed ssC in 1 the right tonsil and left lymph node my dr warned me it was uncommon and cancer was probably in both, he was right. The biopsy also showed negative for HPV which the Dr also said was unlikely, he was right again. I had the tonsils and lymph nodes on both sides removed 10/10/22 and was…
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Cancer And The Regular Guy- My Top 10 Cancer Treatment Recovery Tips
In this video, he will be discussing His Top 10 Essential Tips for recovering from cancer treatment. Whether you are currently undergoing treatment or have recently completed it, these tips will help you navigate the recovery process and promote healing. From managing side effects to incorporating healthy habits into your…
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Tube feeding supplies.
I have some tube feedings (unopened) and a few supplies welcome to a good home. I have maybe 7 liters of Jevity and 9 1/2 cases of individuals Isosource 1.5 and maybe 60 large syringes.
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The Untold Truth About Mental Health and Cancer
Welcome to our latest video where we delve into the complex and often overlooked relationship between mental health and cancer. Many individuals facing a cancer diagnosis also experience emotional and psychological challenges, which can affect their overall well-being and treatment outcomes. In this video, we explore the…