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Head and Neck Cancer

Skin problems
Hi, I had radiation treatment on one side for a tumor in my jaw in 2014. I have recently been experiencing burning and discoloration on the radiation side only. My neck actually feels like when I was going thru radiation and appears burned. My skin is losing pigment on that side and getting freckly. The other side of my…
Wishing Everyone A Happy Joyous Blessed Easter
I would like to wish everyone a wonderful Easter as we celebrate life eternal and a Risen Savior Jesus Christ who has conquered death and risen from the grave after three days as he said he would. And because of this, we do not sorrow as others with no hope for we shall be raised also on the day of redemption. Hallelujah!…
How Particle Accelerators Are Used to Cure Cancer - with Simon Jolly
Hello fellow survivors. As a mechanic, I am always interested in what is behind the scenes, and what makes it work. If you are like me or just a person that likes informative videos and seeing amazing things you may be interested in this slightly less than one-hour video presented by Simon Jolly. It is of course about…
ssc, hpv in tonsils on both sides and eblarged lymph node
While the biopsy only showed ssC in 1 the right tonsil and left lymph node my dr warned me it was uncommon and cancer was probably in both, he was right. The biopsy also showed negative for HPV which the Dr also said was unlikely, he was right again. I had the tonsils and lymph nodes on both sides removed 10/10/22 and was…
I.am a 63yoF who just got diagnosed with Stage 2 Laryngeal squamous cell carcinoma
Hi ~ This is my first time here so a little unsure. I was recently diagnosed with vocal cord cancer & am kind of freaked out. I had endo cervical cancer last year & so far so good on that. Chemo & rad. I am so much more afraid this time. I haven’t started rad yet (no chemo this time) but I already can barely be heard…
The C: Section Chronicles - 6 years later
It's been a while. Yes it has been that long. yesterday I had my final ultra sound scan at the bequest of the ENT. It is hard to believe that 6 and a half years ago a lump was discovered on my neck, which started this adventure (as recorded in the Chronicles which I am going to collate into a full document sometime.)…
Reading A Pathology Report And Questions To Ask Your Health Care Team
I was talking with another CSN'er and a question came up about pathology reports and got me digging for more information and in doing some research I came up with a wonderful page of information from cancer.net about pathology reports probably everything you need to know and the questions you should ask your medical team.…
Questions For Your Doctor After Treatment Has Ended
Hello folks, I came across this short guide and I am attaching it here. It gives you an idea of questions to ask your doctor after your cancer treatment has ended. It can be printed out and there is a lined section at the end for you to take notes. Take care, God Bless-Russ
Questions For Your Doctor After Diagnosis
Hello folks, I came across this short guide and I am attaching it here. It gives you an idea of questions to ask your doctor after you get the diagnosis of cancer. It can be printed out and there is a lined section at the end for you to take notes. Take care, God Bless-Russ
Spring Is Starting-Spring Is Close
Once again here in Southeastern PA spring is and has been getting started. I am sure your part of the country varies from this location as per spring happenings Things are not totally bustin' out yet but after a few really warm days things will really get started. Every spring wherever you are at all things are new and new…
Can you remove lymph nodes in neck area without radical dissection?
I just spoke to a friend at work who's husband has hodgkin cancer. She told me had had lymph nodes removed from his neck and he was in and out of the hospital. I have two lymph nodes that may need to be removed, can they remove them without radical dissection? Is this possible?
Fluoride Trays
Just found out yesterday that my Medical Insurance Company has approved 80% of my fluoride tray cost. I was initially told that insurance would not pay for them and my dental insurance did deny them but I tried again and it worked. My dentist had recommended these to be used twice daily to protect my teeth. He said he has…
Vacmedix-A New Platform to Make Cancer and Viral Vaccines
Hello fellow CSN'ers, hoping you are all having the best day possible. I came across this article in my travels and thought it might interest some here on CSN H&N. it appears to be another group and this one I believe is in Britain, that is developing cancer vaccines and working on making immunotherapy better. You folks…
saliva glands can they be transplanted
I had radiation to the head and neck and it fried 1 part of my saliva gland. All I have is the sticky part and it makes eveything hang in my throat. Although I have a feeding tube I cough alot because of that saliva. I found a doctor that can help me swallow food again by reconstructing my throat and removing my voice box…
New Problem: Radiation Recall?
Hello old friends, and new. The good news is that my husband's recent scans are all NED, five years out from treatment for SCC HPV+ cancer of tongue, mets to neck. Some of you will remember that we've had a few scares (episodes of new tongue dysplasia) handled by laser ablation. Happily, the state of his tongue has been…
Radiation side effects 1 1/2 year after treatment.
Good day all . My treatment 1 1/2 years ago was surgery followed by 33 days of radiation and 3 doses of chemo. Of course had the usual side effects....difficulty eating / lack of saliva / loss of taste etc but after 1 1/2 yrs I felt I had largely recovered maybe back to 80% normal. Now though, a new wrinkle and I was…
Biotene products hard to find
For those of us who suffer from dry mouth from our cancer treatments, rely on saliva substitutes . I have been using the Biotene products for over twelve years. Now I can't find it and if I do, retailers are asking high prices for it. I just ordered a new gel product. Hoping this will work. I use it when I go to bed so my…
Have to get a molar pulled
I am a thirteen-year survivor of nasopharyngeal cancer. Through the years, I have spent thousands on my teeth. I had a molar that had a crown on it. It decided to come loose and fall off. Now I need to have the root pulled out. My dentist has put me on two meds. Pentoxifylline and vitamin E to ward off osteoradionecrosis.…
Radiation cause trismus
Hi all I am a 68 year old lady who had surgery this time last year, my ENT surgeon had to stop though as tumor that they think started on my left tonsil cT4 N1 HPV was big and wrapped around my carotid artery. So then underwent 7 weeks of radiation treatments 70 gy and 7 weeks of chemo Cisplatin. So far my scans have shown…
NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
Blood test to detect HPV+ SCC - NavDX
I haven't read a lot of the posts.. however, in the ones that I have read, I haven't seen anything about the NavDX blood test. I just went in for my 9 month post treatment check-up at USC, and my ENT had ordered blood drawn for the NavDX test so that results would be in for my check-up appt. While my initial cancer was in…
Tonsil Cancer
I have been diagnosed with Tonsil cancer and I was just wondering if there is anybody else out there that is dealing with the same type as I
Adenocarcinoma in a branchial cleft cyst
Age 57 Male. Recently had branchial cleft cyst removed. Pathologist found minute trace of adenocarcinoma in interior lining. No sign of abnormal cells in lymph nodes, exterior of cyst or the stump of the cyst. Has anyone had or heard of a similar situation?
Trismus (Lockjaw)
Hi everyone I'm new here and have soooo many questions. A little bit about my situation... Had surgery on May 24, 2012 to remove the tumor on my inner cheek, right neck dissection to remove lymph nodes and skin graft from my right thigh. 30 treatments of radiation and 3 treatments of Cisplatin. (Awful stuff.) My question…
Success of radiation only without any surgery after 2-3 years?
Hello, I have cancer (squamous cell carcinoma) of the larynx on my right vocal cord. I’m about to be treated with radiation. Has this worked for anyone on this forum with this type of cancer? In other words, have you been treated with radiation for this cancer and survived for 2-3 years without having any surgeries? Have…
no treatment throat cancer
My mom (80 yrs old) has been diagnosed with throat cancer and she is insisting on not having any treatment. She says she feels fine now and doesnt want radiation or chemo with all the bad side effects. Anyone know what she would or could go through if she left this type of cancer untreated?
Best hospitals for treatment
As I mentioned a few days ago my dad will be going to wake forest Baptist medical center in north Carolina. Seems from reading several posts that maybe several of you went to Mayo Clinic. Just wanting to get an idea of where some of you received your treatment. I certainly want to go to the BEST facility and doctors. Wake…
Tooth Extraction For H&N Patients Is Always A Major Risk Event
Anyone who has had head and Neck cancer and had radiation treatment in the head and neck area could be at risk for osteoradionecrosis (ORN), or bone death depending on where the radiation fields were and how strong the radiation was. Please be extremely aware of oral and dental care moving forward after treatment. It is…
Help, Has Anyone Had Base of Tongue Reconstruction?
I was diagnosed Feb 2010 with tumor on base of tongue with lymph node involvement: mucoepidermoid carcinoma. In March I had surgery to remove tumor and neck dissection to remove lymph nodes. The cancer had returned to base of my tongue and now I have to surgery to remove the affected area in which they will have to…
Jaw problems after extensive radiation treatment
My brother was diagnosed with Squamous cell carcinoma in 2000. He was treated at Sloan Kettering by means of chemo and radiation,he did not choose to have the radical neck dissection or surgery. The treatments itself was very grueling and very intense at times where he would get radiation treatments three times a day. He…

Head and Neck Cancer

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