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Head and Neck Cancer

A cautionary tale on post-treatment - thyroid
It has now been six years since I was a regular on this forum. I came because I was Stage 3 HPV16 SCC on my tonsil. I did 35 IMRT and 5 carbo. For the last +5 years I have been clear, NED, and no longer see any Oncs. Taste returned, most saliva has returned, I now have to fight to keep weight off. This summer I was doing…
Robotic surgery versus radiation outcomes
Interesting article about treatment option outcomes. I did not have surgery and was glad I didn't. This is a comparision on survival and symptoms after each treatment. https://www.curetoday.com/view/similar-survival-shown-with-radiation-versus-robotic-surgery-in-hnc
Problems with teeth after radiation
I was just wondering if anyone could comment on their experiences with teeth issues after radiation. Has anyone been lucky enough NOT to have any teeth problems? If you have had problems, what kind were they? Any experiences with HBO and ORN? I still have all my teeth but will need some dental work soon and am concerned…
Oral Complications of Radiation Therapy to the H&N Patient - Dr. James Hamilton
Here is a video for your perusal of Dr. Hamilton discussing and explaining the complications of radiation therapy. He covers quite the gamut of effects and complications. Very informative and well presented it is good to hear a presentation that affects us H&N folks by a professional from a professional perspective...Take…
"I Happened On This Today And Thought Someone Might Be Interested In The Information And Videos."
I happened on this today and thought someone might be interested in the information and videos. Here is a short clip of his experience. Notice his sense of humor. https://odysee.com/@FrontlineCovid19CriticalCareAlliance:c/cancer-practical-solutions-paul-mann-FLCCC-2024:1…
OSA (Obstructive Sleep Apnea)- Then and Now
A presentation of Sleep Apnea. Otolaryngology-Head & Neck Surgery at Stanford Medicine and Stanford School of Medicine. Take Care, God Bless Russ
This is all new to us
My husband was just diagnosed with Squamous cell carcinoma of the throat. It's advanced and widespread around his larynx. The doctors had to perform surgery on him, they put in a trach, that was 2 weeks ago, Thursday the 5th. He came home on Thursday the 12th. And now the oral surgeon is talking about removing the benign…
concerned I have sinus/nasal cancer. opinions suggestions?
Hello about 2 months ago I had an odd feeling, like the start of a cold in my left sinus area and a burning sensation( like a hot poker) in the left sinus the area behind my nose. dr.examined me, said sinuses were extermely swollen. he gave me a course of antibiotics, a week later I went back not much better.. another…
Otology For The Head And Neck Cancer Patient
Mar 26, 2024 STANFORD UNIVERSITY by Lindsay Moore, MD This is a very informative talk on the hearing issues that can arise with head & neck cancer treatment. It is about Otology. What is the definition of Otology? See below… Otology is a branch of medicine that studies normal and pathological anatomy and physiology of the…
Husband’s Taste After Radiation/Cisplatin 10/23
I recently posted about a scare we got from my husband’s new dental hygienist who thought he had another swollen lymph node on the opposite side of his neck from where he was diagnosed with left base of tongue and 2 nodes on the left last July 2023 with 7 weeks of radiation and 7 weekly Cisplatin chemos. Saw his Oncologist…
Kidney function - terrified (again)
hi everyone. First off, I so appreciate your support over the past year as my husband’s diagnosis and treatment. He received fantastic report from his first pet scan after treatment at the end of June. Since then, he has steadily improved with his energy, taste and finally the pain when swallowing is subsiding.…
NavDx test
I am aware of for a lot of people NavDx test is a great help but unfortunately my husband has not been lucky enough to be one of them. He got diagnosed with HPV+ T2N1M0 squamous cell carcinoma(SCC) on his left tonsil in June 2023. He went through surgeries, 33 sessions of radiation plus 6 sessions of low dose cisplatin. He…
TORS larynx surgery
I am a 74 yera old female. I was originally diagnosed in September 2023 with squamous cell carcinoma HPV positive +16 and had 6 cisplatin chemo treatments and 35 radiation treatments that ended on November 22, 2023. My CT scan in February, 2024 was good as was my pet scan in May, 2024. In August, 2024 my pet scan showed…
Throat Cancer Advice From A Survivor-How to Swallow Liquids Without Choking or Coughing Aspiration
Do you cough and choke every time you try to swallow liquids? So did I! Here are a couple of tips to prevent it. Aspirating liquids into your lungs is dangerous, especially as we get older. Here is a simple way to prevent aspirating liquid into your lungs when drinking liquids, especially thin liquids like water. Take…
Styes on eyelids
Any evidence of styes being a late effect of radiation for head and neck cancer? I completed my chemo and radiation in October 2020. I have trouble with dry mouth, but have been doing well. For the last several months I've had recurring styes on my eyes. Sometime upper lid and sometimes lower lids on both eyes. Just…
Radiation for tongue cancer
My dad will be doing radiation for his tongue cancer and he and my mom are scared out of their mind. My mom is terribly afraid that my dad won't be able to eat anything at all, is this true? They are going to put in a feeding tube so he will be able to get nourishment but he still needs to be using his tongue so he won't…
Joe Tippen Cancer Story-Recently Shared With Me-For Your Consideration
Joe Tippen's personal story of battling cancer. He was given 3 months to live. His story is certainly different let's say but when your life is in the balance that changes things. I am just going to leave a link to his blog covering the whole story and my friends you can draw your own conclusions. It is a worthwhile read.…
Hello
IS anybody there?? Or is this another waste of time?
cold hands, shaky right hand and tingling pain
Hello folks, I am a 15 year survivor of Stage 2 nasopharyngeal cancer diagnosed at age 40. I had concurrent cisplatin chemo along with 30 radiation course back in 2009. Still in remission thankfully. One issue, however, that's bothering me the most and getting worse year over year is cold intolerance, especially in the…
Looking for psychologist or therapist Nashville Tn area
my wife has finished surgery, radiation and chemotherapy for jaw cancer. I am trying to find a counselor in my area who has experience with cancer survivors. Any recommendations would be greatly appreciated. Spring Hill, Columbia, Franklin Tennessee area
taste buds after radiation
My radiation treatments were over last tuesday. Does anyone know how long it generally lakes to get tasts buds back? This id my first time on here.
Liquid Biopsy in H&N Cancer: From Diagnosis to Survivorship: Dr C.Holsinger, MD, Head & Neck Surger
Hello everyone I think you will find this interesting. It is either similar to or including the NavDx test concept that has been discussed on here before. Stanford Otolaryngology — Head & Neck Surgery Liquid Biopsy in H&N Cancer: From Diagnosis to Survivorship: Dr C.Holsinger, MD, Head & Neck Surgery Take Care, God Bless…
Glial Dysregulation and Cognitive Impairment Following Cancer Therapies
STANFORD UNIVERSITY by Michelle Monje, MD, PhD Take Care, God Bless Russ
Signs of Recurrence and How to Monitor: Beth Beadle, MD, Radiation Oncology
A presentation from————- Stanford Otolaryngology-Head & Neck Surgery Signs of Recurrence and How to Monitor: Beth Beadle, MD, Radiation Oncology Take Care, God Bless NEGU (Never Ever Give Up) Russ
When You Think Of Head & Neck Cancer Recovery, Think Of The Sloth
H&N Cancer Recovery is the Sloth of recovery. It's not the Jaguar of recovery it's the Sloth Sloths have an extremely low metabolic rate, which means they move at a languid, sluggish pace through the trees. On average, sloths travel 41 yards per day—less than half the length of a football field! And that is exactly what…
Cancer journeys
Reading someone else's post (don't ask for names, my chemo brain sucks) about how everyone's journey is different, that is true. I didn't get sick, not once. Was I lucky or were my Drs that good? I'd go with 50/50 Cancer, if you don't have it, you've heard about it, or you know someone who has it. Heard about it. If, like…
Endocrine disorders in Rhabdomyosarcoma patients
Hi! I am a childhood cancer survivor who was diagnosed at 4 months old. I am now in my 20s and have recently been diagnosed with Hashimoto’s disorder, which is an extreme type of hypothyroidism. I am messaging here to ask if anyone else has experienced this same path of diagnosis, as I know endocrine disorders are…
Hearing Loss: How to Navigate This Side Effect of Cancer Treatments
Video covering hearing loss or compromised hearing after H&N treatment. Cancer treatments, such as chemotherapy, radiation therapy, and certain medications, can sometimes lead to hearing loss or other auditory complications. In this video, we will explore the causes, symptoms, and management strategies for hearing loss…
How long have you survived
I think this would encouraging for new and old members to read how long you have survived H&N c (cannot give it a capital) I am a 5 month survivor of Right tonsil c, with 1 lymph node involvement T1N1M0 Cheers Jen xxxxx
free flap reconstruction of gums
Just wondering if anyone else has had free flap reconstruction in mouth. It doesn't seem to be too common and I really would love to discuss with someone who has been through this.

Head and Neck Cancer

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