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update and thank you
Thank you ittybitty and sassyque and everybody for your thoughts and prayers and the time you put in here. I have had 3 chemo seesions so far and they are not too bad. I think the steroids i take the night before (dexamethasone)and the anti nausea med zofran are working good. The acne rash from the erbitux has been bad and…
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For Bill
Good that you have a sense of humor because to go thru all that you have you need it.You sound like a great person and I am so glad I found this site on the web.Till now I had no one to talk to about this because unless you have been thru it you don't really know.They had no hope fpr me at all,so I feel that God has other…
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2nd PET Scan
Just wanted to let everyone know that my 2nd PET scan was negative! Yay!!!!
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Answer to Joe and Bill
I did not have surgery.If I would have they would have removed my tongue and voicebox.At that time I told them I would rather die than live that way.I only had radiation and chemo.I then went to what they call bracheytherapy(hope I spelled it right) for 2 treatments for 5 days.They shoot radiation beads directly into the…
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Cancer of the tongue
Hi all I'm a survivor of this cancer by the grace of God.It's 5 years since I went thru my hell.Anyone out there with this type of cancer?
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No Operation untill June 30th
Hi all my op was cancelled due to a good case of what flu I don't know. I do know that I hated having it cancelled because this stuff can be bad and travel else where when you are coughing and blowing your nose none stop. Well they gave me an azeptomiacian and a steroid shot because my throat was spasmiming or closing and…
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Ham vs. Bacon problem
I am 15 months post tx and still can not taste ham but can taste bacon. Has this or anything like it happened to anyone else??? BILL
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Full-time work
I have been finished with treatments - chemo & radiation since January 08. I have been working on-call (when I want to). I would like to work full-time again but would like feedback from others on how you are doing working full-time since treatments.
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Financial Assistance specifically for Child Care
I was first diagnosed when pregnant with my first child. For quite some time I have been fortune enough to have my parents staying at my house with my husband and I to help take care of my son. Unfortunately, they are unable to permanently stay living in my house and must move home now. Can you tell me if any one knows of…
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Adenoid Cystic Carcinoma
Does anyone have any information on adenoid cystic carcenoma when it occurs in the ear?
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first chemo didnt feel anything
actually worried they didnt give me anything. Tommorrow is my second chemo (every thursday) I started getting a little rash from the erbitux yesterday. I have to eat a bunch of steroids tonight 5 pills of 4mg dexamethasone. Last week was my supposed loading dose. Boy did those steroids made me hungry i ate the night before…
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questions for nasopharyngeal patients
Hello, my dad was diagnosed with nasopharyngeal and finished chemo and radiation last May. It's almost a year and he still feels really tired and have a hard time eating. He refuses to eat anthing other than porridge and I'm afraid he's not getting the nutrients he need. Any suggestions and is it normal to still have such…
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Need Advice please
I am 40 year old male diagnosed stage 3 base of tongue cancer in January. I was treated by 42 radiation treatments in 30 days and two full weeks of chemo. Sysplatin followed by 5FU. (sp?) Week 1 & 4... Judging by many of the emails I've read I am doing OK and most of my complaints are typical. I am actually ahead of the…
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Hi hope everyone is well Operation on June 20,2008
Well I just got back from Seattle. They are wanting to do a double neck disection, do something to my nose, remove all glands in my neck,scrape my mandible to make sure no cancer is there remove my tonsils. Guess what I went from a stage 4 to early stage.Lots of Prayers answered.In the MRI here I had a 7cm by 8cm and…
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Neo Nasopharynx after treatment
My husband had thirty radiations treatments with around the clock chemo. He finished these in Dec. The scan shows the tumor has shrunk about half and he is due another scan next week. he has a feeding tube and will hardly eat anything as he said it tastes so bad and his mouth is always dry. He also has congestive heart…
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doris using the site
Hi sis this little cat is not wanting to eat and it is hard to keep him alive. this site will help you with understanding my cancer you will be able to ask questions and the people here will always answer. I love ya bunches. click on any of the sites you have acess to everyone on line. On the side is where you can view my…
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anybody get induction chemo
they want to give me 8-9 neeks of taxol/carboplatinum/erbitux then 8 weeks of chemo and radiation with i think just taxol and erbitux. then 4 weeks rest and then surgery I think because im stage 4 with a 3 cm tonsil and a huge 7 cm lymphnode
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heres what my medical onc prescribed
He hasnt got my pet scan results but his suggested method is 6-8 weeks of carboplatinum/taxol/erbitox then 2 weeks rest then 8 weeks of radiation plus carbo/ taxol then 4 weeks rest then surgery but i am being treated for tuberculous so the might have to switch the chemo to TPF taxotere/platinum/5fu because with the first…
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chat
Hi, I would love to chat with others on yahoo that have gone through vocal cord cancer or something similiar. If anyone would like to chat with me let me know, Charlene My yahoo id is jimsgirll1990 on yahoo messanger
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Neck/Back Pain
Following a neck disection 6 months ago I still have significant neck and upper back pain from tight if not locked muscles. I have tried acupuncture and massage with little or no help--Any Ideas??
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support group
How can I find a support group in my area for throat/neck cancer survivors so I can get some emotional support for the collateral damage I deal with?
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itchy throat
I just finished radaiation for vocal cord cancer about 10 days ago. I have such a itchy scratchy throat that I have to keep coughing . It drives me crazy. Is this normal? The pain medication helps with the pain and a little bit with the itchiness. I felt good all through the radiation, until the end and now I am tired and…
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Grandmother has Stage IV Esophageal Cancer
My grandmother has stage IV esophageal cancer. She is 69 years young. I am worried because the doctors want to start a low dosage of chemo and radiation therapy. The cancer has metastized and is now in most parts of her body including her spinal column. I need some information about laetrile and where I can purchase it…
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what to ask anestisiologist(sp?) Verced?
someone wrote a post about twilite med they called verced any other tips or info i got to meet with them for tests befor my peg and port operation Thank you Victor Brown
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teeth pulled during chemo?
im having trouble getting oral surgeon insurance problems. Im due to get 6-8 weeks chemo before radiation. Ive got to get oral surgeon to take all my teeth out. Surgical oncologist told me i can wait and get it done during my chemo, my doctors arent very nice but ive been misdiagnosed for 7 months and have a lemon sized…
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what kind of peg and port?
getting it done next week i read about balloon type and another type dont know about port types. I dont ever get to see or talk to my doctors so when i get a minute or two i have to be prepared my surgical oncologist is the one putting it in. And if you want to know how meesed up my docs are the secretary called me this…
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Neck Dissection
My husband had a bilateral neck dissection (after being treated w/ chemo & radiation for base of tongue sqaumous cell carcinoma)a couple weeks ago. His major problems now are: a lot of severe tightness in the neck (feels like a "choke collar"), pins and needles feeling in the chest, back of head, ears & pain in these areas…
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teeth removed/peg tube/mediport/ can it be done at same time?
can the oral surgeon and the surgeon whos putting in my peg tube and mediport work together so i only have to be knocked out once? Thank you Victor Brown
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Tongue problems post radiation
My husband finished radiation/chemo tx for throat cancer 8 weeks ago. All is healing except the tongue! Still vey painful, has a funny-looking coating on top and sides, feels burning sensation when he eats. He is discouraged as he wants his PEG tube out! He can drink the Ensure and other fluids, but is worried about the…
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Who puts in peg tube?
I think i saw a post somewhere were someone wrote. Dont let radiation assistant of somethhing like that. Get a gastro surgeon or something like that do it. Thank you Victor