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Speech Pathologist in Los Angeles
Hello, I underwent laryngectomy about 7 years ago in New York. The hospital I used to visit is now closed there, and the prescription issued by them has expired. Currently I'm in Los Angeles and am looking for a speech pathologist who could examine me and provide a new prescription. Any help would be greatly appreciated.…
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growth on vocal cord
I would like to share information -(pre-op/post op) regarding my up-coming surgery to remove a growth on my vocal cord. Is there anyone on this forum who has had this surgery? My doctor assures me it is quite common, and that I will have a sore throat for about a week, that's all..but he has to give me a general anesthetic…
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HAVE OROPHARYNGEAL CANCER, DESPERATELY NEED HELP AND ADVICE
i have an ENT doc here, but no oncologist. i have Medicare Parts A,B and D. i have a case worker, however, i am confused about who she actually represents. i will find this out tomorrow. i am in severe pain and it is getting more painful and difficult to eat. i started drinking Ensure and high calorie smoothies. I am…
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Where is Hawvet?
Haven't seen any postings from Hawvet since December.Hope everything is okay.Are you going to do the roll call this month and when.Don't get on everyday but don't want to miss it.Blessings to all who are fighting their personal battle.Stay strong and keep the faith....Betty
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Throat cancer
I was diagnosed with throat cancer in 2000. At first, it was believed it was benign then, after surgery, tests showed it was malignant. It was in a rare position, in the back of the throat by the tonsils. I was told most with this type of cancer only live about five years. I'm still here!
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Medullary Thyroid Cancer
Does anyone have experience with medullary thyroid cancer?
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Christmas
I would like to wish everyone on this site a very Happy Healthy holiday and New year.My prayer for all of us is that those who are still in treatment will recover comp-letely and those of us who are finished that the cancer will not return.I have been blessed thus far.As some of you know it has been 5 1/2 years for me with…
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Need direction - where to go next - is it cancer again?
I am a 50 year old female that was diagnosed with NSCLC Stage3B in Feb '06. I had surgery to remove right upper lobe, had chemo, recurrence in hilar lymph node and several other nodes 9 months later. I started on Tarceva in Nov.'06 and after about 7 months I have no sign of lung cancer. I was however diagnosed with bladder…
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bisphosphonates and dental work
I, a 12 year cancer survivor, was taking Actonel or Fosamax for osteopenia when a crown broke off a tooth. My dentist was able to clean the tooth stub and glue the crown back on. Then 4 years later it broke off again. (I stopped Fosamax last year when I heard about the risk of jawbone necrosis.) My dentist was able to glue…
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Lack of saliva
Has anyone found anything that helps ease the dry mouth problem after radiation? I am 18 months past my operation and about 16 months past the radiation treatment for BOT cancer. My saliva glands are about 25%. Salagen was a bust. I keep trying to find something to keep my mouth moist and have been unsuccessful. My best…
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Ethyol/amifostine
Has anyone out there taken Ethyol (amifostine)? If so, I would be interested in hearing "the good, the bad, and the ugly" about your experience with it!
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How was everyones Turkey day?
Mine was great this year I could both smell AND TASTE the food! WOO HOO! Hope all is well with every one! BILL
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BHMLabs - Please don't SPAM
You may have a great product but please don't append a message to every thread about your product. Maybe create 1 topic with some useful information about your product and leave it at that. I have flagged your posts as offensive. nuff said!
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Survey
Hey everyone, my name is Paul Hogan and I am currently a psychology student at the California State University in Fresno. I am currently conducting research on the life outlooks of cancer survivors. If you could spare 10 minutes of your time to take a survey, I would greatly appreciate it. I myself am a past cancer…
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Stage vi cancer WHY?
as some know mom died with stage iv laryngeal sqaumous cell carcinoma cancer T2N2cMo im just wondering why it is that some have a good outsome then others with the stage iv. yes i do know that is varies and is different for each perosn as treatments varies but was just a little curious. i like to learn as much as i can…
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adenoid cystic carcinoma
I was just wondering if anyone had any advice about thistype of cancer. My father was diagnosed a month ago with it, had surgery to remove the tumor(6mm). They know have to do radiation to get the rest, but he's hestitant about radiation. Thanks for any help and good luck to everyone
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Halloween
I am not, lately, known as a social person. Since the tongue and neck thing, in particular, I have tried, and I think at first I did a good job with it, but eventually, and with the things that followed, I sort of closed up a bit. There is always eating involved, principally, and that is, or can be, awkward for me. For a…
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healing and pain management
hi, it's me again. i know this is a rare cancer and there aren't very many active members here. since my dad was diagnosed, i have been researching on the web, trying to find out everything i can about it. since i joined, i've been reading through the threads here and reading profiles and blogs. i know my dad is worried…
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tiredness
It has been about 4 weeks since I finished my radiation for vocal cord cancer. I felt fine all through the radation, up until I was just about done with radation, then all the sudden it seemed to hit me. I am just so tired and not alot of energy. I am still taking the pain med for the ithching in my throat, but I can go…
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squamous cell carcinoma of the oral tongue
I am interested to know about post operation recovery after this surgery ( squamous cell carcinoma of the oral tongue). My dad went through this surgery and still feel some burining sensation in his tongue which was reconstructed through plastic surgery. He is still having diffcult swallowing food. Food seems to stick in…
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foods: I noticed more than one person is having difficulty with eating after treatment for mouth can
After treatment (radio and chemo) for mouth cancer, I have a combination of dry mouth and "ropy" saliva and have trouble swallowing. What foods have other people found easy to swallow under similar conditions? Most starchy foods like bread, cookies, cake, rice pudding, etc. turn into a nasty mass of library paste in my…
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Hello
Just found this site and am a cancer survivor myself and am doing great. Support is always welcome. I will have to figure out how to use my home page and connect with others in discussion. This is great.
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plaque from radiation
I read the article in the IAL News recently concerning the plaque build up in the carative arteries from radiation treatments. The article was right on. I recieved radiation in 1960 at age six for cancer of the larynx, rhabdomiosarcoma. I had been cancer free and problem free until four years ago I suddenly lost my lower…
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Gas Card
Hey all. I was wondering if you knew how I could get a gas card. I heard in the past that Exxon and Shell give gas cards out to help Cancer patients. If you have any info plz let me know. Orangeblossom965@yahoo.com Thanks
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Laryngeal Cancer/Artificial voice prosthesis
Anybody got first hand experience? I've got trouble keeping a seal for over 1/2 day. The seals aren't large enough for my stoma area and allow air to gradually escape. Any suggestions?
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SPERM BANK
Somebody did a sperm bank after quimo??????. We couldn't do it before so I called the clinic and we need to go a give them a sample , so the can analyze it and see if the sperm is healthy. Do we have chances???? or is too late????? HELP ME PLEASE!!!!!! My husband got radiation on the brain and the chest and got 6 cycles of…
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Hypercholesterolemia after Treatment
Prior to radiation and chemo, my lipid profile was normal, 6 months after finishing radiation on Dec 2007 my lipid profile was still normal. Now, 17 months later, my lipid profile is totally abnormal and the test was repeated and still came out abnormal. I have been with a very healthy diet since I was able to eat again…
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what now? getting off the feeding tube.
My boyfriend was diagnosed with throat cancer in Sept. He had three chemos and 40 radiation treatments. The cancer is gone (Thank God!!) but what now? His taste is back (for the most part)but he can't swallow. His salivary glands are shot so his mouth is always dry and foamy. He aspirates when he tries to drink or eat.…
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Personality changes after treatment
I'm new to this so... as the wife of a two time cancer survivor, I have noticed great personality changes in my husband after 6 months of intense treatment; radiation and chemo/ stage 4A. We are all adjusting to living with cancer again, but I was wondering if anyone else experienced great personality changes in themselves…
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Return of Bilateral carotid body tumor
I haven't been on the site in a very long time. I am looking for someone who may have some additional information for me. I have had surgery twice (left and right) for carotid body tumors. I have a tumor again that is on the left side. I carry the SDHD gene so I knew this was a strong possibility. I also have a tumor near…