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alternative treatment
does anyone know about alternative treatment instead of radiation.
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Urgent! need answers? Anyone had Esophageal Dilation
Hello everyone my name is Mark I'm a 7 year nasopharnex stage 4 squamous cell carcinoma Cancer Survior. In 2006 I started having swallowing problems, food stuck and not going down constant coughing increasing dysphagia. M epiglottis doesn't close over. These problems are due to radiation treatment which caused a lot of…
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Dead Jaw
I have Osteoradionecrosis of the Jaw. I have a section of my left mandible that is dead bone from radiation. The Drs have pulled most of my teeth & want to remove that section of bone & replace with the small leg-bone in the calf. Has anyone had this post-radiation side effect and gone through this operation? Am told it is…
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Holidays, Not Eating Yet, Depression
I just wanted to ask some questions to any of you who are ahead of me. I'm now 5 mos post radiation for tonsillar cancer. I am still on my feeding tube and my saliva is still not flowing normally. I find myself getting very depressed because I cannot eat like I used to and the Holidays make my depression even worse. I…
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Tongue Cancer
My father was treated for Squamous Cell Carcinoma of Anterior Tongue with Radio, Chemo and Brachy therapy. However, the cancer has recurred and extends to the base of the tongue touching the epiglottis. The size is 5*4*3cms. A couple of doctors say nothing is possible and we have to just treat the symptoms but the main…
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Chemo related fatigue
I was diagnosed with Squamous Cell Carcinoma 2.5 years ago. Since then, I have had 7 surgeries, 8 chemo cycles, 35 radiation treatments, and 3 recurrences all in my throat and neck areas. It's been tough. My last chemo was 2 months ago. My last surgery was 1 month ago. I will begin chemo again the Monday after…
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through with treatments
My husband had stage 4 base of tongue cancer. They did not operate. He had 45 radiation treatments and 6 chemo treatments. They gave him taxotere and carboplatin. He lost some of his hair, lost his voice, couldn't swallow anything. before treatments started he had a chemport and feeding tube put in. He has been on the…
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Post Treatment Nutrition
Hello, my Mom has just completed chemo and radiation for throat/tonsil cancer. She had her feeding tube removed two weeks ago; she is still having trouble eating and is losing weight rapidly. She can eat soups, warm cereals, smoothies, etc. I am looking for any tips/ideas/etc. to boost her caloric and nutritional intake…
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throat sores/thrush
I am about 8 weeks post radiation (30 treatments) and starting about 2 weeks post treatment, started getting red and white patches on the back of my throat. I was prescribed the standard diflucan. It worked great for the first five days but then things leveled out and when I finished the meds, things got worse. The doc…
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Slow Recovery
I feel like I've hit a plateau in my recovery from tonsil cancer. I am almost 3 1/2 months post rad/chemo treatments. I can sip water and eat light soups, but still need the peg tube for adequate nutrition. My problem is that my throat and esophagus hurt quite a bit when I swallow and my saliva is still a little thick. Can…
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Need suggestions on eating
I am about to finish week 4 of 7 IMRT for left tonsil cancer. Have done 4 of 7 once a week low-dose Cisplatin too. Taste is for the most part gone. Plus, general taste in my mouth is metallic and very yucky. My question, I still have 3 weeks to go.........any suggestions on foods, drinks or whatever that may have…
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Left Tonsil Cancer
Hello, I am a newbie just looking for some support. There are lots of great posts and some good advice here! Anyway, I was diagnosed with left tonsillar cancer in April '07. Stage 2 with 2 lymph nodes involved. I did not have surgery to remove anything because the docs felt they could get rid of it with 35 consecutive…
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waiting on a diagnosis
hello all, i havent been diagnosed yet but im fearing it and i was wondering if any of you had these same symptoms before diagnosis. i am a 24 year old female and am a smoker. for the past 6 weeks i have had horrible pain in my left tonsil when i swallow and the pain sometimes goes into my ears been to the docs 4 times…
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thick saliva and eating
I am almost five months postop for a total neck resection that also cut my vocal cord and the nerves on the left side of my throat. I had two previous surgeries for tongue cancer and have only half a tongue. I am almost 8 weeks post radiation for a tumor that had grown around my carotid. I never had a feeding tube, get my…
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Esophageal Cancer
Thanks to our dedicated Bill, the Esophageal Cancer message boards are back. If you are looking for information on EC please go there and send your messages to fellow EC patients and care givers. Way to go, Bill!!
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Hand-Foot Syndrome
Hi - I have thyroid cancer that has metastasized. I am currently in a clinical trial using Sunitinib (Sutent). I am suffering from hand-foot syndrome (only on my feet at the moment) and I wondered if anyone had any hints for dealing with it. John
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When do you start counting
When do you start counting when you find out you have cancer. Is it from the day to are told or from the day all of your procedures are completed.
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I have tonsil cancer
I had tonsil cancer, stage 4a. I had a lump on the left side of neck. It was squamous cell cancer. Had radiation and chemo. Radiation scarring caused a problem with eating. I still have a feeding tube, also had a dissection on the left side of neck. I will know in three weeks after another larynscopy, this time through my…
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www.TheSurvivorMovie.com
Got this from TereB but had to share. Most of you may have already seen it but if not it is definately worth a couple of minutes. God Bless...stay well..........JK
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Neck dissection pain
Has anyone experienced pain and stiffness in shoulders after bilateral neck dissection? My husband's surgery was nine weeks ago. He has had severe neck tightness (like a noose or tight collar) and shoulder pain which is worse on the left side. He does physical therapy for range of motion in his shoulders. About a week ago…
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Peg tube
I have a Peg tube for two years. Ratiation scarred my esophagus. Had the Peg replaced 2 times. First time was becaused it was getting clogged, and the second time was because if fell out. I had to go to the emergency room.
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amifostine injections
i am starting radiation in 1 week and would like some feed back from people who have used amifostine to help with slaivary glands
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Pirfenidone for radiation fibrosis
Has anyone heard of or been in a trial study for Pirfenidone in the treatment of radiation fibrosis? My husband has SEVERE fibrosis of the neck, shoulder, chest, now involving the vascular, (blood flow). His treatment for nasopharyngeal cancer ended in July 2003. He had heavy radiation, and not all people have fibrosis…
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NASAL RECONSTRUCTION
Hello my husbando has undergone through to nasal operations and he doesn´t look well. He needs a third operation and I need to find one of the best in nasal reconstruction. Can somebody help me? please email me at vale20042005@hotmail.com
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Wasn't a branch cleft cyst, primary was in tonsil, metast to lymph nodes in neck.
HEY SOCCERFREAKS & VINNY59....Finally have a plan. Found SCC in the left tonsil, laryngoscopy and endoscopy otherwise clear. Removed left tonsil and both adenoids. Could not get all the SCC at tonsil base but say it is easily treated in place. Called it Stage IV because it had already metast to lymph glands associated with…
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Scans
After reading a number of recent posts here, I have some advice for all of us who are survivors of head/neck cancer. I submit it humbly. I had surg in oct of '05 for head/neck, wherein they replaced half of my tongue with part of my arm, along with some nerves from that same area. Basically, they cut the lower part of my…
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aveolar rhabdomyosarcom
I was just recentyl diagnosed with what is an uncommon type of cancer. One which most is commonly found in children. I would love to know anything you can tell me about this or similar cancers. Frankly it's a little daunting to feel like a guinea pig because of the rarity of the problem.
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financial assistance
does anyone know about getting financial assistance so i can continue dr. appt.I lost my job due to cut backs and cannot afford all the testing they do. last seen doc 10/2006. I have squamous cell carsinova. went through 7weeks of radical rad.onrside of neck but now need to see doc. but cannot afford it any help would be…
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Trying to Eat Again - Any Advice Requested from those who have been there
Here is a message my husband who is in recovery posted on another board. I am helping him by trying to get more replies: Hi folks, > > I'm having trouble eating other than through my stomach tube. My > radiation/chemo ended April 18th for my Stage 3 basal tongue cancer, > and the cancer is gone, at least for the time…
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Base of Tongue Cancer - Recovery ?
I was diagnosed with base of tongue cancer - stage IV - in May '07. I had radical neck dissection surgery and both tonsils and tonsil bed(s) removed and a small portion of the base of my tongue. I had 22 lymph nodes removed from the left side of my neck - none were cancerous. I am undergoing 33 radiation treatments -…