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mom had long battle with squamous cell carcinoma now gone and i need to vent and need support
didnt know where to turn to but am having some hard times without my mom best friend. Sadly she died on Aug 18th from Squamous stage 4 cancer at the young age of 58. In Feb 07 she was diagnosed with T2N2CMo stage IV cancer went through extensive radiation she was severly burned after 6 wks of treatments and we had to stop…
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Throat Cancer
My husband is being treated for stage 3T throat cancer. Has had 6 weeks of chemo and 2 weeks of radiation. All was going ok until his food started tasting like metal and then the blisters/sores started. Does anyone know what to offer him to eat that wouldn't taste like metal. He doesn't want the feeding tube but still has…
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How long did you have pain from tonsilectomy?
My husband had his right tonsil removed 10 days ago and the pain is still pretty severe. It seems like he has a good day of lesser pain and then it comes back the next day full force... How long does this healing take, how long were you in pain after surgery? Thanks for any info.
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Mucositis won't go away after treatment
I am writing as my husbands advocate (again and still!). He was diagnosed with scc last Sept and started 7 wks radiation and 3 chemo treatments that finished on 2/22 (yeah!). The dr's insisted on a j-peg before he started which has been a real blessing throughout as he's suffered a huge case of mucositis which the dr's…
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hungry every 3 hrs
I am in my first week of treatment for stage II nasopharynx cancer. The treatment, I believe, is standard (Cisplatin on days 1, 23 and 44) and IMRT radiation 5x week. I was told that it's hard to eat during treatment for various reasons. However, I was not given a peg tube. Although I experienced a lot of nausea in the…
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Squamous Cell carcinoma letter to sam , very agressive ??
We were told when my husband was diagnosed with Squamous cell that it is very agressive , and I would believe that ,I swear to you that every time I looked into his mouth , that the cancer was bigger ..It is not a cancer to fool around with , he had it in Oct 2004 in the nsoft palate , right tonsil and 1 lymph node, 35…
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New here, what questions do I need to ask the doctors?
My husband (46yo) found some lumps in his neck while shaving about a month ago. He had several lymph nodes and his right tonsil removed last Thursday. Was able to do a frozen biopsy of the nodes during surgery which the ENT called squamos cell carcinoma. He believes the origin of the cancer is the tonsil, but we will not…
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I'm a 1 1/2 year survivor.
You guys probably know the story: I went to the doctor with a chronic sore throat, was referred to E.N.T., who referred me to Oncology. They quickly put me on radiation (five days/wk for six weeks) and chemo (I.V., four times over the same six weeks). It had progressed to Stage IV, but they seem to have found and treated…
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TRILOGY MACHINE FOR RAD.
The TrilogyTM System linear accelerator is the latest technology available in radiation treatment for cancer. Trilogy combines the capabilities of other external beam radiation technologies -- including Cyberknife, Tomotherapy, and Novalis -- all in one state-of-the-art machine. The University of Maryland Marlene and…
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How long can lymph nodes keep shrinking after radiation?
My dad had squamous cell carcinoma in his tear duct in fall 2004 and had a radical surgery removing much tissue, including his eye. In Oct. 2008 they found a new tumor in the sinus/palate area above his other eye. One lymph node was also affected. He underwent six weeks of radiation, and he just had his follow up scans.…
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I got one of "those" phone calls you never want
Doctors office called yesterday. She said I have a spot on my thyroid she wants to have biopsied on the 31st. She seems to think "it's nothing" but if that were the case why are we having to look at it? GGGGGGRRRRRRRRRRRRR! Three days away from my 1 year post tx and they pull this crap! Thanks for letting me vent! BILL
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made it thru treatments
I did 6 weeks of once a week chemo Erbitux carboplatin taxol then a 2 week rest Then 7 weeeks of radiation with doubles on friday plus dailey chemo Cisplatin on weeks 1 4 and 7 Drove myelf 60 mile everday didnt have to use peg tube till week 3 of radiation Like i read its worse now that treatment stopped. Darkest before…
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Radiation Side Effects - Fog Head
I am 6 months post radiation to my sinus cavity and lymphs. I still am experiencing some side effects, which I like to call FOG HEAD. Meaning, I sometimes feel like I cant connect my thoughts, my short term memory is awful and I still have dizzy issues. Wondering how other survivors are feeling, how long it took to get…
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Squamous cell cancer/Hope comes from strange places-(thank God for strange places)
I came out here tonight actually to have another little pity party for myself- sit and cry and cry and try to catch any little air that might make it to my right nostril that is closing up fast.. (the left one with the tumor in the sinus cavity is getting lonely.))I went in to a room and there was nobody there. I was about…
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Oncologist wants me to see a veternarian??
Only because I am healthy as a horse!!! I get so excited the first couple of days after another good checkup, sorry for being so bubbly this early in the morning but, WOO HOO!!!!!!!!
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Radiation level? question?
Hello everyone .Was out for some weeks and back hopping all doing well. Got today my last f/l with my rad where he is checking for complete closing of my surgery cavery, just have a 2mm little hole to fill and hpe to start my rad in May 12. I have a question regarding the rad level,,,my rad told me that he will use 70g??…
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What I (we) learned (did) that could help others.
Make as many appointments as you can. I didn't miss an appt. where we saw his radiation doctor nor did I miss a chemo visit. I literally was the tattle tale - of course he didn't like it :-) Ask your own questions and if necessary write things down in between visits to discuss. Sign up for medic alert! Keep track of meds…
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HELP ME READ MY BLOG REACH OUT
AFRAID TO DEATH IN MY NASAL CAVITY (LEFT SIDE) BEHIND MY EYE AND NOW EATING INTO BRAIN TISSUE IM AFRAID OF IT ALL BUT I GOTTA KEEP GOING AND TRY HARD TO FOCUS. THIS SUCKS
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Sinus Drainage
Hello all, Just finished my last of 35 radiation treatments,4Chemo for SCC Left tonsil two days ago.Have spent alot of time reading before posting this but haven't seen anyone else who has the problem of sinuses draining down the throat and no saliva glands to wash it down. Have spent many sleepless nights because of this…
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Nasopharyngeal carcinoma slow or fast growing
My husband is in treatment for stage IV nasopharyngeal carcinoma.We just cannot understand how this happened because he was seeing a local ENT for almost 2 years for sinus issues!How did he not catch this?! So we wonder if this is a slow growing type of cancer or fast and aggressive.Nobody has been able to answer this for…
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Flouride treatment before radiation.
Hello everyone ,since this is the greatest place to learn about cancer ,i will continue to ask my questions since it is the first time with the DX . I hear it is good to start the flouride TX before the rad, i went to my DENTIST and he made a mouth tray and dispense a gel flouride so i can used nightly for 30 minutes…
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metal forks and spoons after Chemo
I had a lady that works in the Pharmacy tell me that a lot of people cannot eat with regular utensils after Chemo because it makes the food taste bad , she said for us to get plastic , so if you notice a real bad taste after chemo, try plastic, I don't know , because my hub has a Peg and does not eat by mouth ..Jo
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Tonsil,Soft Palate, Neck,Tongue, cancers
I had wrote before a few times, but have been quite busy dealing with 2 more cancerous areas that my hubby has developed, some of you may remember that he had to have his tongue removed in October 08 and that resulted in a 48 day stay in the hospital with two more surgeries, the last was December 16th 08., In December on…
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Just had Neck dissection , need a question answered
First of all I wanted to say thank you to soccerfreaks, SASH & Victor for easing my mind about the neck dissection. All went well, they did a right side neck dissection and removed a mass and from what I'm being told , close to 100 nodes. All nodes removed were clean and the mass was dead. The question I have is how long…
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feeding tube for Radiation
I will like some opinion about getting or not a feeding tube before ,during or after my radiation.,That i really need it ???.My cancer was a low grade adenocarcinoma in my small salivary gland and was removed by taking partial of my soft posterior palate were was located hardly visible , i am doing great and the recovery…
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4 weeks After Partial Palectomy of soft palate.
I have been dx w/ low grade adenocarcinoma as i posted before ,in my small salivary gland near my last left molar. Lots of new granulated tissues are surrounding the excision hole, i eat and drink without any trouble and also talk clear, i had couple days of sufering after surgery but it was fine after. I still feel numb…
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low platelet count after carboplatin administration
My husband was diagnosed with head and neck cancer in November of 2008. He has finished the induction chemo and is now in the radiation phase of his treatment. He has taken two carboplatin treatments (apparently a low dose) but has missed it the last two weeks due to low platelet counts. His prognosis is excellent but…
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miracle fruit for taste buds
saw a news blip on tv the other day about something called taste tripping you eat this little friut called a miracle fruit and it makes lemons taste sweet and it makes your taste buds wake up they even mentioned a study for oralcancer people.
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CANCER ON VOCALCORDS
HAD SCOPE DONE JAN 23 AFTER SEVERAL BOUTS OF LOOSING MY VOICE AND EXTREME FATIGUE- BIOPSY SHOWED CELL ON VOCAL CORD- "UNDER FLAP" SO COULD NOT REMOVE IT WITH SURGERY OR LAZER- SAID RADIATION ONLY OPTION- STARTED TREATMENTS ON FEB 12 HAVE WENT THRU 22 AS OF TODAY (WILL DO 33) VERY SORE LUMP IN THROAT AND SKIN EXTREMELY RED…
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would anyone know if there is a place
would anybody know if there is a mailing group for people to help other people who has been there where that person is going through