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PEG Tube use and care 101
FIRST AND MOST IMPORTANT, if your Docs want you to have a PEG placed DO IT and do it early on. If you wait until it is critically needed your health and soreness may be an issue. So, put it in with the goal of never using it but the comfort of knowing it is there if you do need it. I have been asked for tips on the use and…
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how long after tx. can you eat again?
My husband is 2 weeks tomorrow post 7 wks rad and 2 rounds of chemo. Had primary at base of tongue very small and one lymph node (the one that enlarged on side of neck and took him to the dr. initially.)He has been using the peg tube solely for about 5 wks. My question is how long is normal for him not to be able to eat or…
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Has anyone had squamous cell of the middle ear?
This is pretty rare and it's been a lonely journey. Hoping to find another survivor to share experiences with.
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This is It !!!!!!!
Hey Everyone, Got my PEG tube Mon. Got my second dose of Erbitux yesterday and had mapping done today. So tomorrow is it. "First round of radiation." Will be getting Amifostine shot before each treatment, so will be taking Benedryll and Compozine an hr. before the shot. Only 33 Rad treatments to go !!!! Wish me luck, I'll…
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Talking and eating
I was diagnosed in Feb. with throat cancer. I underwent 7 weeks of radiation(31 sessions)and 7 chemo sessions once a week. I decided against the feeding tube and have been able to swallow throughout the treatments. I am 7 weeks past my last radiation treatment, the mucous has subsided, I'm less tired and sleeping better…
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PEG Tube 101 Use and Care
For those of you with questions about PEG tubes, you might find a 2008 post helpful. http://csn.cancer.org/node/156880 Cut and paste in your browser or just do a "Search" in the HNC board for "Peg Tube 101". Glad to offer more if needed, but this one is pretty detailed and my typically "verbose" presentation. Get…
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long term effets?
my name is jean and my husband had tonsil cancer in 2003 had radiation 35x cancer free cancer came back in 2005 he could not have any more radiation ended up having a radical neck dissection 13 hour operation and 13 says in the hosptal.Just hit 3 years, still cancer free he is on nutritional drinks and coffee but is…
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New member here -- Father diagnosed with tongue cancer
Hello everyone! I really need some feedback for some peace of mind. I'm actually on here on behalf of my father because he barely knows how to speak English, let alone use a computer. Fourteen years ago he had sinus cancer which they were able to remove with chemotherapy and radiation. Despite of how many times the doctors…
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gastroparesis from cysplatin
My husband just completed 4 rounds of chemotherapy(cysplatin) which was given once a week "intra-arterial" to the base of the tongue tumor site. He got a g-tube placed before the treatments. His whole digestive system seems to have shut down--not wanting to move food along at all. After much uncontrolled vomting, we then…
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scared and waiting to see ENT
I have been having a lump in my throat sensation and some mild throat irritation for a number of weeks. I was tested for strep which was negative and also given antibotics that didn't help. I am now seeing an ENT doctor in 2 weeks. My left tonsil seems alittle inflamed and swollen. I am a 45 yr old female who was a light…
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looking for someone
hi there my dad was just diagnosed with stage 3 colon cancer. i was at a meeting this past thursday at the Arnold Palmer Paviion and was hopeing i could find the person that was singing and playing his guitar i know his name ...i was hoping he comes on this site and i could contact him here...sorry if this doesnt belong…
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Recipes
anyone have any good 'mushy" food recipes? My husband had surgery to remove a tumor from his nasal passage and they removed his upper palate and entire jaw so right now he is on a puree diet and I am running out of things to make. Tonight I made a Turkey, Spinach and Walnut Mousse for him.
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New Diagnosis
I am a 48 yr old male. After many tests it was determined that I have a Branchial Cyst with some abnormal cell growth. I will be meeting with the surgeon in Boston on Thursday to discuss treatment options. I am very scared. What is the surgery like? What is it like to be on radiation and chemotherapy? What is the prognosis…
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Need experience and feedback
I have out of treatment since January 2008 and have been following up at Moffitt Cancer Center since then. In March I had an extra sore place on my tongue and my ENT biopsied it but found no cancer cells. Wednesday of last week, I had my first petscan since I finished treatments and the only place that showed some activity…
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Salivary Gland Cancer - Need Hope
My husband was diagnosed a few months ago with a salivary gland cancer, however, instead of it being in the usual places it appeared in the sinus cavity. He had surgery and the tumor was removed. However 9 weeks later on our honeymoon he was having nose bleeds and difficulty breathing through his nose. Upon our return the…
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What to do after 6 years after treatment
Hello, I am a six year survivor of SCC. At the time of diagnosis I was an elementary school teacher working on a Masters in Psychology. Which I did finish. But the cancer prevented me from practicing. Obviously, I need to use my voice for both of these careers. The bad news is, I had to go on disability because my saliva…
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Getting Started
Hi Everyone, Had my loading dose of Erbitux yesterday. They gave me a small bag of Benedryl first, and it knocked me out for 2hrs. Nothing seemed to bother other than being tired. Today was a full day. Had consult with PEG doc, then got head rest and mask made, and CAT scan for mapping. The PEG doc had set me up for tube…
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Parotid Gland-Acinic cell cancer
I was diagnosed with acinic cell carcinoma of the parotid gland, 7/99. It was removed surgically, but reoccurred 10/00. At that time I had 6 wks of radiation after they took out my parotid gland and the lymphs on the neck. I had learned about a drug that protected the healthy cells from damage by radiation at my local…
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Platlet counts
Hi all again: My husband just got his port out today which we consider another milestone. However, I have a question about platlet counts again. When he saw the oncologist on June 18, the count was 102,000. Today before they took the port out it was 78,000. He has no bleeding problems, and they didn't say anything about…
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Chemotherapy drugs for tongue cancer.
Hi, My Dad was detected with squamous cell carcinoma of the tongue and we got it operated. Unfortunately it had even spread to the lymph nodes on the left side which too were removed. The doctor has said that next line of action after the surgery would be chemotherapy and radiation. I would like to know what kind of drugs…
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GRADUATION .
Hello friends ,today June 30 is been my graduation day ! my last day of radiation after 35 tx. I did very well, never need a peg ,the sores in my mouth was 4 ,painful at times and with some burnning sensation when liquid consume but, i handle it by using the novacaine gel and mind power with god help. Thanks to all ,who in…
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Looking for port for chemo information
My husband has his first chemo treatment this Thursday. He has to make a decision whether he wants a port put in or not. Do most people do this? The oncologist recommended he get one put in so he wouldnt have to be stuck with needles so much. What can you tell me about this port? Is it painful to get put in? Can you shower…
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doing your own IV fluids
i had them leave the needle thing in my injection port and did my own IV fluids the last 2 weeks of radiation and the 2 weeks after they gave me a bunch of supplies to flush it out everytime and they changed it once a week it was a little bit of a inconvenience having it in. But i felt so much better. I dont read about…
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How often are treatments cancelled due to problems with patient's blood count?
Something was screwy with my husband's blood count (sorry I don't know what it was) and his chemo treatment for today was cancelled. He has only had 2 chemo treatments! How could his counts be so affected already? The staff at his oncologist's office were very serious cautioning him to not be around anyone sick, to keep…
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Radiation Treatments - Salivary Glands - IMRT - Ethyrol - Amophostine
Hi, My brother has just finished his first week of 7 weeks of radiation and chemo. He has SCC with unknown primary which has metasized to his lymph nodes. The pet showed some very small hot spots but the camera in his throat, subsequent biopsies and the CAT showed nothing. He was not offered amophostine, but after…
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throat squamous cell cancer
I am getting radiation treatment, had 2 so far, but before treatment, I have to prep with 2 tylenol, nuausea medication. steroid, and bendryal and then 1 hour later, I get injected in the arm, with some medication, I believe it has something to do for salivary glands, but it has been making me sick. Has anyone had this…
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Question about F & A results
We just today had another series of needle biopsies performed at the VA. The pathologist who did the first ones 2 weeks ago said there was no indication of cancer in the 3 samples they took but the ENT didn't trust his info and sent us for another series. Today, the pathologist (another hospital) did 5 biopsies and said…
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Love your sense of humor, Joe!
Joe, I love reading your comments and I always seem to chuckle when I read yours. You are helping all of us more than you know. Keep it up....you are an inspiration! Penny
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Want to wish you luck tomorrow Glenna
Glenna, I just want to wish you luck tomorrow. If I remember right you are getting your first chemo treatment tomorrow....a day before my husband. My prayers are with you and just remember YOU CAN DO IT. Maybe taking a Lorazapam before you go will help. I am sure my husband will have extreme anxiety the morning he goes and…
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teatment of family by cancer centers
As a wife with a husband that has head and neck cancer I found in the treatment center that I was treated like a stranger that had just walked in off the street. Ive been dismissed more times than I can count. Has anyone else been treated like this? HOW LONG DO CRY AND CRY? HE WAS DIAGNOISED 2 MONTHS AGO