Medullary Thyroid Cancer

jpharris
jpharris Member Posts: 2
edited March 2014 in Head and Neck Cancer #1
Does anyone have experience with medullary thyroid cancer?

Comments

  • MAKINGIT
    MAKINGIT Member Posts: 2
    #2
    jpharris,

    I have had experience with medullary thyroid cancer at the age of 38. Almost 3 years ago In Dec 2000 I have my thyroid removed and the cancer was under the left lobe. Then also in Dec 2000 I had a second surgery called bilateral lymp node dissection. I am doing ok so far. I went go for a Cat Scan every 3 months.

    Good Luck,

    Making It
  • jwierks
    jwierks Member Posts: 2
    #3
    MAKINGIT said:

    jpharris,

    I have had experience with medullary thyroid cancer at the age of 38. Almost 3 years ago In Dec 2000 I have my thyroid removed and the cancer was under the left lobe. Then also in Dec 2000 I had a second surgery called bilateral lymp node dissection. I am doing ok so far. I went go for a Cat Scan every 3 months.

    Good Luck,

    Making It

    I was diagnosed with medullary thyroid cancer in sept 2002.Would like to share experiences.contact me at [email protected]
  • dgiles
    dgiles Member Posts: 2
    #4
    jwierks said:

    I was diagnosed with medullary thyroid cancer in sept 2002.Would like to share experiences.contact me at [email protected]

    I was diagnosed with MTC in January 2003. Would also like to share experiences. [email protected]
  • dgiles
    dgiles Member Posts: 2
    #5
    I was diagnosed with MTC in Jan. 2003. What would you like to discuss? I'm new to the Network.
  • Bugnana
    Bugnana Member Posts: 2
    #6
    Medullary Diagnosis
    Hi, I was diag. with MTC 1986, now have the fun hunt of locating tumors in other areas. Calcitonin is 1000+, Cea is 21.5. Been gradually climbing and now seems to have marked a faster growth pattern. If you want to connect feel free to email [email protected].

    Good Luck,
    Mary
  • tom55
    tom55 Member Posts: 10
    #7
    Bugnana said:

    Medullary Diagnosis
    Hi, I was diag. with MTC 1986, now have the fun hunt of locating tumors in other areas. Calcitonin is 1000+, Cea is 21.5. Been gradually climbing and now seems to have marked a faster growth pattern. If you want to connect feel free to email [email protected].

    Good Luck,
    Mary

    MTC
    Hi Mary, I'm in the same boat as you. Was diagnosed in 7/06 w/ sporadic. Things were very stable after surgery and radiation but things changed in 7/08. Calcitonin is now quickly on the rise and I can't wait for the suprises my next scan and blood work will show. Next onc appt is this Wed.
    The thing with MTC is everyones different and no one can really tell you what to expect. I guess we'll just have to enjoy the ride. Good luck to you as well. - Tom

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