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Our Blog
I have kept a blog of our journey through this process for our friends and family and decided to share it with y'all, just in case it might help you get through another day. our site is: summharleygolfer.blogspot.com God Bless!
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PET Scan results-HELP
Happy New Year Everyone! My husband got the results from his first PET scan yesterday and they said he has something on his Lung that they need to biopsy. My sister is an RN and said it could be anything but of course we are scared and worried. I am praying that it is just scar tissue from his pneumonia back in '05. Has…
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PEGS for the Pudgy?
Hi all - got my PEG placed 12-24-2009. Experienced more pain than I'd anticipated - surgeon later explained (in a very kind fashion) that more tissue experiences trauma when you have a thicker wall to penetrate (straight-speak: fat people have more pain). OK, I can accept that. At 5'7" and just over 200 lbs, I'm fat. Have…
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Very Confused
I been dealing with some symptoms for awhile know. So here is the exact story 1/20/05 – Had a open sore on left lateral side of tongue removed and biopsied and came back negative 4/15/05 – Growth on the posterior left side tongue removed and biopsied and came back negative **somewhere between 4/15/05 and 5/5/05 shortly…
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other cancer forums?
Hi everyone. What other cancer forums do people visit? Is there a list posted here somewhere? Warmly, Mick
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What are the symptoms of this cancer???
I am just curious to know what kinds of symptoms you all had with head and neck cancer. My wife is the one I am worried about. She had breast cancer dx. 1995. She is now having pain when she turns her neck to one side and feels a heavy sensation below the right neck. She scoffs it off as "wear and tear" and is hesitant to…
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re: Advice needed on healing
I am 44 years old and was diagnosed with Acinic Cell Carcinoma back in September. I underwent a parotidectomy on September 15th. Because the cancer was aggressive and had traveled into the lympth node within the parotid gland, my doctor said that radiation was necessary. I am happy to say that I finished radiation…
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Results of Platlet Test
Hi Everyone: Hope y'all had a Merry Christmas. My husband Charlie got the results of his test on platlets. Seems they are coated with some sort of protein and doc says not to worry and that it's very possible they've been like this all his life! If they drop down in the sixties again, he would give him something to take…
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Chondrosarcomaa
Hi, I've been diagnosed with a chondrosarcoma which is located at the bottom of my right vocal cord. I'm scheduled for surgery at University of Michigan Hospital on 1/19/10. It's been definitely a life changing diagnosis. I'm an Inside Sales Rep for a Steel company and love my job and customers and if they do a total…
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Radiation Treatment
I have written a couple of posts, but have had no replies so far :( My husband was diagnosed with mec 11/05/09. He had a partial maxillectomy on 12/21/09. His pathology report just came back that cancer was not in the bone, but was in the nerves. They are discussing whether or not radiation is worth the side effects at…
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Spicy Foods, etc.
Hello Everyone, My husband had stage IV tonsil cancer on the right side. He is 12 weeks out of treatment and doing awesome. We have our first PET on Thursday. My question is, he can't eat anything with pepper, mustard, ketchup as it just burns the inside of his mouth. Mostly around his lips. Can anyone tell me how long…
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More PET News
Hi all, just got home from my appt. with the surgeon. He had a copy of my PET report and the scans. On the phone, the Oncologist had said that they looked "normal". The report actually showed some uptake at the old cancer site on the base of my tongue and in the tonsil on that side. Surgeon was a little irritated I think…
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looking for lymphedema therapist Chicago area?
Hi everyone. Posting on the outside chance that someone in the Chicagoland area has used a lymphedema massage therapist in the greater chicagoland area with good results and could provide a recommendation. I got a script from the oncoman for it but my hospital dosen't have one. Perhaps someone knows a hospital that does or…
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Radiation therapy
I'm new to this today. My husband has base tounge cancer. Its stage two and he's in his second week of radiation. He's doing well and only now starting to need softer foods. He refused a feeding tube. He's 42 and healthy otherwise so the doctor agreed to no feeding tube. If he loses more then 20 lbs though he has to have…
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PET "Normal"
Hi all, just an update to what I have found out so far regarding my PET scan of last week. Don't see the Oncologist until 1/15 so wasn't really keen on waiting that long to find out. I called his office this morning to inquire and although they don't normally give test results over the phone he agreed that waiting over the…
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Thank you, You all amaze me!
Thanks again for all your advice and comments, I can't believe how this blog has calmed me down and reassured me that I can and will get through this ok. It's all because of your knowledge and caring attitudes on here that is helping me and others through. Sash you are so right when you say they are the experts, but I…
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Coughing and dry throat
Has this happened to anyone else. It has been exactly 8 weeks since I have finished treatment, my feeding tube is out, and I am eating fairly well. I am slowly gaining weight. I have always (since after treatment)have lots of phlem and a very dry cough through the middle of the night. It seemed to have lessened, to the…
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sore throat when dry
any one experiense dry throat pain on swallowing Im 4 weeks bast 34 rad treatments it is a sharp pain when I eat or drink it appears ok
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Black Hairy Tongue
Went to the dentist for my usual 6 month checkup and my hygenist (the person who discovered my swollen lymoh node 6 months ago) said that I have "hairy black tongue". (Dark colored bacteria growing on the surface of my tongue) She said it was not uncommon for someone suffering with dry mouth from radiation treatment and…
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PEG Removal advice please
HI all, I plan to get my PEG removed next week and wanted to hear from those who have had theirs done re: what to expect in the pain side, recovery time, stitches etc. I am in my 8th week out from completing treatment which was 7 weeks of RT (70 Hits) and Once a week Erbitux. Have had the tube in since week 3 of treatment…
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Blog of the journey
I have created a blog for those just starting out or getting ready to start on radiation treatment for head/neck cancer. I started the site to keep family and friends informed but also to educate others as to what the procedure is like etc. More for information for others with this same disease than me personally. There…
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adenod cystic carcinoma of parotid
I have been fighting cancer since 2005. I have gone through 3 surgeries, 3 different rounds of radiation, 14 weeks each and 5 days of Cyber Knife. I can't have anymore radiation, so now I am on a Study drug, which I have been on since March of 09. The Dr's say my test show I am stable. My cancer started in the Parotid…
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Update
First I would like to say how happy I am to hear that Mikes (landranger25) Petscan came back normal. That really gave me a boost. Mike you have a great compfort to here. Christmas was great felt good and had whole family over and with the twins truly a christmas to remember. Well thought thursday was my last rad. #33 but…
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MERRY CHRISTMAS EVERYONE
Merry Christmas Everyone and Blessings on you all as you celebrate Christmas or whatever your religion observes at this time of year. There have been many struggles and many rewards for everyone on our website. My prayer and wish for you all is that this special time of the year is meaningful to you no matter what stage of…
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Vals tonsil Cancer (update)
Hello all I would like to thank everyone who has helped me with advice for this cancer. I had my appointment the other day with my ENT. He brought all the info from my biopsies,MRI, and quadroscopy together to discuss what comes next.. Yep the appointment started with " We are going to have to make you very, very sick to…
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STILL FEELS LIKE THERE'S A GOLF BALL IN MY THROAT!
My cancer began on my right tonsil. It spread to one lymph node on the right side of my neck. I finished treatment 5 weeks ago; 6 chemos and 39 radiations in the neck area. I also have a peg tube for feeding. Before radiation, every morning, I was given a shot of Ethyol (sp?) which is supposed to protect the salivary…
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Had a swallow test..what to expect now
Hi All, My husband finished radiation and chemo on November 10, 2009. He has been unable to eat or drink anything since 10/10/2009. He had a swallow test done today and the results were that when he swallows it is heading down his windpipe. The therapist recommended 2 swallowing exercises and on 1/5/2010 he will have…
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Looking for Kurt (doitforoj)
Not sure if this is the way we do this but I sure would like to hear from Kurt (doitforoj) Kurt, I sure would like to hear how you are doing. I know by now you are are deep into your treatment and not feeling well but want to you to know I think about you and your family often. Keep grinding and hang in there. Mike
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Platlet Counts
Hi All: My husband Charlie, saw his oncologist on Thursday - good report; sees no evidence of cancer. Praise the Lord! He's seeing both the rad onc. and reg. onc. every three months now. His blood work was great except his platelets are at 65,000. They've flucuated between 108,00 to now 65,000 from June to now. But in…
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Just Updating
Again...can't thank everyone enough for the advise, support and prayers. Past few days have all been the same. Sleep 2 hours...get up pee...do my mouth rinsing...go back to sleep. LOL pain is about a 5 but constant. Gets annoying but just think about how bad it could be if not for everyone on here. I think of every…