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need prayer, support & question answered
Been off board for a while. I live in Nashville and lost my house and car in the recent flood. Wife and beloved Westie were boated to safety but we lost 95% of our material possessions which I remind myself is just "stuff." We have a wonderful place to stay at my daughter's with lots of face time with grandson, a rental…
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recurrent squamous cell
I'm asking if anyone has had the same recurrance that my husband has had. He started with a tumor in his throat in the piriform sinus which is in the back of your voice box and in the opening of your esophugus (mis-spelled). He had 40 radiation treatments (agressive) to his throat which the last treatment was July 10,…
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Recurrent Cancer
My father finished his initial treatment two month ago. Apparently, everything was going well til three weeks ago. The radiotion oncologist noticed a 2 to 3 cemtimeter mass on the same location, which is on the base of the neck. My dad was scheduled for a Pet scan; however, he ended up in the hospital due to an infection…
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The China Study - Book
I was going to wait till I completed reading this book but I am already quite astonished with what I have read so far and have been prompted by some to post the subject. I recently downloaded and watched a movie/doco called 'Healing Cancer from the inside' I found on a site about 'Green Smoothies'. A Dr. Colin CAMPBELL…
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New here
Hi, I've been reading for about 3 weeks. My significant other has been diagnosed with SCC, unknown primary (CT, PET and Panendoscopy). He had a radical neck on 4/26 with two nodes positive, no muscle, nerve or blood vessel involvement. We're in Rochester NY at the Wilmont Cancer Center. I see a couple other newcomers from…
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Post treatment fatigue/Pet Scan
Hi Everyone, thanks for all your help throughout my last six months of treatment for base of tongue SCC with two lymph node involvement. I had 35 rads and 3 cisplatin chemo treatments. I'll be getting the results of my first post treatment PET/CAT scan from last Friday and would appreicate your thoughts on Wednesday the…
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PEG Removal
Got the PEG I've had for over 15-months out this morning. Surgeon who installed was the one who yanked it out, along with little advice: 1) Can eat and drink as I normally would, but in less quantity for a few days. 2) There will be seepage, so keep the hole covered w/gauze, and apply Bacitracin during the gauze changes.…
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Need Advice
My dad has just completed 5 days of rads and his first chemo on Friday. He had no problems with the chemo. However, last week before he started treatment he complained that his legs got very weak, dizzy when standing and at times he seemed like he was in another world. I talked with the chemo nurse and she told me it was…
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Any Sinus Cancer Survivors on network?
Hi, My name is Jess and my bro had surgery about a month ago for a tumor in his sinus. Was looking around through the H&N section for other people who have had this specific type(placement) of cancer. My earlier posting with question brought many wonderful people into my life that have a wealth of information and support…
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IMRT vs standard Radiation questions
Hi All, My husband is healing well from his neck dissection. Nerves are starting to come back one week post surgery. He feels a bit like his skin is crawling. Our next big decision is what type of radiation treatments. Our medical oncologist doesn't feel he needs chemo and has a great radiation oncologist that works with…
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Holding your Head up is a Chore in Itself
I recently had a trach installed almost 2 weeks ago to help heal radiation in my throat. my ears burn, my throat feels like someone left something in there, you talk about phlem, out of the trach, mouth, continues, plus trying to squeeze food down is a chore. I go to the Doctor tomorrow to hear the game game plan, I hope…
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Another big step...
Today is the day my Medi-Port is taken out. I asked my Oncoman last Monday about the time element of keeping it, he informed me that they have no new reason to use it and unless I want to used it for "recreational purposes"....then hey, take it out. It's removed on an out-patient basis, whereas they numb the area....cut a…
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larynx cancer
is there any body out there that has larynx cancer like I do? If you do please let me know so we will not be alone. I know some of the problem we go through and maybe I could help or you could help me. It is a diffucult life that others do not understand, but together we can help each other out. a friend steve
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mouth and throat "sunburn"
Hi. I just joined in. I am so scared for my brother. You can read in my profile the details of his cancer, but in short it was/is in his left upper sinus. Had chemo, surgery, now doing chemo and rad. Has only had one week of post op-rad and chemo. Serious problem with "sunburn" in his mouth and throat. Can barely talk let…
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electrical like shocks when he looks down.
ok... My husband has begun having what he calls electrical shocks going thru his body when he leans his head forward to look down... I think I have seen something on here vefore about this but I can't find it... wondering if there is anything we can do about it.. thanks for your help. Wife
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New member
Hi there I have been lurking for a bit & decided to finally join in. I am seven weeks post radiation & chemotherapy for stage 4 cancer of the tonsil. I must add that I have never felt fatigue quite like this plus all of the other extra's that came along with this illness. I truly enjoy the positive attitude of all of the…
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he's so sick of it all
well, i have to say, the day finally came when Paul has finally said that for him its pointless to tell him any more suggestions of what will help with all of these side effects that just dont seem to get better. He says he will spend no more money on anything as he has a cabinet full of suggestions that have not worked.…
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This looks like a good book...
"After Cancer Treatment, Heal faster, Better, Stronger" by Julie K. Silver, MD, a Johns Hopkins Press Health Book, 2006. The author is a physician, a mother, and a breast cancer survivor. I was able to order my copy from Amazon. Three radiation treatments left to go. Finished my final round of chemo this past week and it…
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OT: Happy Mother's Day
I hope you guys don't mind, but I just wanted to wish all the mommies on the board Happy Mother's Day. Those of you with children have my utmost respect. I don't know how you do it. Especially the ladies that work full time outside the home as well. That's two full time jobs! You are amazing. Thanks for all you do!
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FIRST WEEK OF RADIATION FOR DAD
hi, dad started his first week of radiation this past monday.. monday he had chemo for 3 hours and then followed by radiation... he did have two rounds of the induction chemo in the hospital before this... he is now on his 4th day of radiation, he will get chemo every 21 days.. he is completely wiped out! i feel so…
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Heading to Moffitt
Thank you all for your input on Radiation plans. We met with second radiation oncologist and got a very different plan of action than that of the first doc. This all makes us very confused. I called Moffitt and have an appointment next Friday to get a third opinion. We will go with what Moffitt says. One doc wants to…
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First Chemo
Hi, My dad will have his first Chem Friday morning. It is a 2 hour session with the Cisplatin(?), I think. Could someone tell me what I should expect to happen and how he will be feeling. The doctors said we should not have to worry to much about the blood count issue, is this true. Also, does anyone have any tips for…
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Cannot swallow and losing voice BEFORE treatment ~HELP~ Nasopharyngeal Carcinoma Cancer
Hi, I'm looking for some info for my dad, 67 yr old, that diagnosed with Nasopharyngeal Carcinoma Cancer at stage 3/early 4 back in Oct 2009. He refused to get regular chemo and radiation treatment and now he started losing his voice and cannot swallow anything. Now, even though it seems too late, he decided to get the…
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Mucus Build-Up Solutions
Hello. New guy here. I've been checking out this site for a few days to see if I could learn anything to help with some of the post-treatment issues I'm dealing with. The most important thing I learned is that this is a great resource to get knowledge of how to deal with some these issues "straight from the horse's mouth"…
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Transcript of Online Chat about Cancer/HPV
For those of us having the discussion under the "alcohol" thread and others who want to know more about HPV, here is a link to a transcript of an online chat with a Radiology oncologist about HPV. http://www.oncolink.org/blogs/index.php/2010/01/how-much-do-you-know-about-hpv/ I have not read it yet...but in my downtime…
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A Cry for help- A Cry for Contact !
I am new to this site and new to any kind of "public" forum. Our medical staff have now suggested treatment with Erbitux , Cetuximab Drug. Is there anybody out there who has had this and what and how did you deal with side effects? My wife (mom of 5yr old daughters) has a condition -Fanconi Anemia. This produces malignant…
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Another GREAT source for oral, head and neck cancer
The Oral Cancer Foundation is a great source for information! OCF also operates a forum, specifically for oral head and neck cancer patiets, survivors and care givers. I have personally benefited from all the information they offer on their website: www.oralcancer.org OCF is always looking for volunteer's as well. They are…
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SPOHNC (Support for people with Head and Neck Cancer)
SPOHNC NEEDS YOU! I have been cruising around this website,and they are looking for volunteers. So I am forwarding the info; Below is the link http://www.spohnc.org/nsvn.php Become part of SPOHNC's NATIONAL SURVIVOR VOLUNTEER NETWORK (NSVN) If you are a survivor of oral and head and neck cancer you know the importance of…
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Surgery vs. No Surgery Please Weigh-In
Hello everyone, Mark had his diagnostic endoscopy/biopsy today...and the good news is nothing was found that wasn't expected to be found. The other good news is he is HPV16 and has two very good treatment options: 1. Surgery to remove primary in the left tonsil (robotic - very precise, and less envasive) with lymph nodes…
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has anyone NOT used a peg?
My husband has recently been diagnosed with SCC in left lymph node of his neck. MRI showed a possible primary in his throat. PET scan showed that it is contained to this area. He has had to have four teeth pulled prior to treatment and is scheduled for a neck dissection on Wednesday. His surgeon is supposed to be great at…