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DONE!
As of this morning, I am DONE with 38 radiation treatments and three rounds of cisplatin! I never believed that this day would come. It was a long hard path to climb. Couldn't have done it without all the advice, reassurance and support from the folks on this board. Thank you all for being here. gratefully, Deb
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great news
I went to the doctor yesterday and got the pathology results from my surgery. He was very surprised but said the remaining mass that they removed showed a benign tumor and not the olfactory neuroblastoma. He said they would be getting my original slides from my first surgery that showed the malignant tissue and discussing…
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Update on Tim
Hi Everyone Been a while. So, Tim was able to speak to the Chief of Oncology at Dana Farber Cancer Institute, Dr. P, he recommended a different second course than the one Tim's oncologist, Dr. R, wanted to go with. Dr. P spoke to Dr. R and she agreed to run his suggested treatment instead. Tim's cancer has spread to his…
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Pet Scan results
I hope this isn't posting twice but I didn't see the first one post up. The doctor called me this morning on my way to work, had to pull over, he said the pet scan did not show anything suspious and looked good. He said that there was some iregularities in the neck area but said it is most likely from the surgery and…
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phlem medication at drugstore
Somebody mention a over the counter drug to help dry up mucus, can you please give me the name again. Thanks Dennis
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Product called "Thick It"
The chemo nurse told my dad about a product called "Thick IT" to add to his water to help him with swallowing. It has been wonderful for him. It is available at CVS, and Walgreens. I found it next to the Boost and Ensure products. He adds about 3 tablspoons to two cups of water. You can make it thicker if you like. It has…
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Our heads are spinning
Glenn and I met with his treatment team last Wednesday from 1pm to 430pm. We left there totally unable to process any more information. He is TxN2M0 (unknown primary). Chemo is on the table but he's squarely in the middle of the algorythm that helps Drs. determine a treatment plan. His nodes were cystic making it difficult…
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Update on my dad
I just wanted to give everyone an update on my dad. He has just completed two weeks of treatment and is doing great. Once we got over the issue of dehydration things started to improve. He has not had any problems so far with chemo and the side effects from the rads have been tough but not horrible yet. Also, did any of…
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WISH ME LUCK<GOT MY SECOND CT AT 8:30 am today
Hey guys, just looking for some more prayers and well wishes today, Im going for my second CT, the 3 month PET/CT was clear but they said they saw some pixelation on one of my lungs, which is why Im having the CT today, to verify that it is nothing. They never, with all the testing I had before, said anything about a lung…
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Possible Assistance with cost of Ensure
The American Cancer Society just told me about and organization that might help with the cost of Ensure. Their website is www.pparx.org and phone 1-888-477-2669. I just printed out an application and plan on sending it in. It appears to be finacial based.
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scared and confused in Rochester :(!!!
Hello, Unfortunately I'm a new winner for the head and neck cancer lottery. I'm only 38 years old (too young for this crap in my opinion! Non-smoker moderate weekend drinker. Yes it was HPV + so I assume that was the culprit! :( Was dx Mar 29th with IVA SCC Tonsil primary with 1 Right lymph node involvement. T2N2M0. Had…
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HELP!!
Just got off the phone with my bro. They ended up giving him IV fluids and Zofran (after he threw up)...is having appt this a.m. with Chemo doc. Said he couldn't brush teeth because gums were all torn up....I told him that one of you had posted about using baking soda and water, he was going to go try it. He is ready to…
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prayers please
I am having my first follow-up PET scan tomorrow. Please pray that everything turns out OK Thank you and god bless all of you.
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Hiya Sweetblood.......
Hiya Sweet....Just wanted to tell you how wonderful your new pic is!!! God Bless!!! Jess
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hurry up and wait
Saw my oncologist yesterday, to discuss Pet Scan hot spots.Three of the five spots are not able to be biopsied, because they are to close to major blood vessles. The only one they can get to ,is in my lower spine. They are also doing a full bone scan Monday, and a upper GI. She still believes that this should be orginating…
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Radical Necks: Give it to me straight!
Mark has completed all 3 of his surgeries. The final one, resulted in a radical neck dissection. I know it has been discussed in many threads; but I want to know so I can inform Mark of the realities of living with a radical neck. The obvious is he is alive and the cancer is out. He also had the nerve to the shoulder…
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ORDER PLEASE!!
Reading Skiffin's response to the "blood count" string has prompted me to open this post. 1. Can you or anyone else give me some ideas as how i should organize my filing system which in itself is supposed to be organised,right? THIS would transform my life. I have a hard copy binder/file/ simply because everything is…
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Swollen eyes.....?
Hi everyone, my bro went to ER today and as of this moment (10:30 ish EST) is still there. He has the sunburn that comes from the radiation. I know I posted about this kinda before, but was wondering about any advise for alleaviating his pain/swelling in that particular area. He would have posted himself except that he can…
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update
Hi everyone. My life is busy with school (finishing my MA, trying to graduate in three weeks!) and my computer died, so I have not been very active on the public boards. In addition with our friends not doing so well (hang in there Mike!) I have not wanted to clutter this space with my less critical recovery woes. Thrush,…
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Need info....
My mother has not been diagnosed with cancer yet, but we are trying to get her into MD Anderson in Houston without any luck. She was told by her specialist that she needed to go to MD Anderson immediately. That was 2 months ago. My parents do not have insurance. We filled out the paper's for assistance and now they will…
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Laryngeal cancer question
My husband has end stage laryngeal cancer. Trach tube put in September to help with breathing. Well now the breathing is getting more difficult and he's taking hydrocodone for pain. There is a lesion/tumor behind the trach plate that has grown in the last month. This lesion bleeds on occasion, is tender and painful. When…
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Constipation
Can anyone have any suggestions to help with constipation issues? My husband is taking 3 anti-nausea drugs plus colace, senakot and mirilax and is still constipated. He's drinking as much liquid as he can but is going days without a bowel movement. Any help would be appreciated. I don't know how he(we)will get through 4…
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Has anyone heard from Mick
Haven't seen a post from Mick in awhile. Just wondering how he is doing Dave
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PICC line
My dad is getting a PICC line tomorrow. He has had A LOT of problems with infection. He has been taking antibiotics off and on since his surgery. He has been given a shot of antibiotics for the past two days. Now they are going to give it through the PICC line for the next 10 days. If anyone can share their experience with…
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D- in computing
embarrassingly cyber challenged. how do I do my profile? keep it simple! thanks vince
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PET Results
I finished radiation about 10 weeks ago for a malignant paraganglioma in the right side of my neck, it had also spread to 4 lymphs. I just had my first follow up PET scan and it showed two 6mm nodules on my right lung. They did a chest CT to make sure the spot were really there and sure enough they showed up on the CT…
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Zofran
My dad was given samples of an anti-nausea medicine after his first chemo on Friday. I was something that started with an A. He took on everyday after chemo for three days. It worked and he was never sick. Now the prescription he has for this time is Zofran. Has anyone used this and how did it work. The directions say to…
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Dry Mouth can't sleep
Dry Mouth from neck radiation. Stoppers 4 works ok better than Oasis. My doctor just gave me Evoxa. Need to take it for a year. Has anyone tried Evoxac ? Having very hard time sleeping.
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on my local Miami news station tonight
http://www.wsvn.com/news/articles/local/MI87124/ decent news on research being done in my own backyard. news on tumor growth, or non-growth rather.....thought I would post. Kathy
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Neck Radiation done.
I finished seven weeks of radiation with six carboplaten treatments, I am the sickest I have ever been in my life. The problem is I still have some esophagus rads left with no chemo this week but an oral chemo twice a day for five day the week after. I pray that chemo does not make me sick, anyway how long before I start…