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Copy of Mikes most recent post- please read- it is in the thread Chefdaddy update- Am reposting if a
remove from friends list Posts: 137 Joined: Dec 2009 April 27, 2010 - 8:56pm Hello my incredibly Hello my incredibly wonderful friends. My brother brought his laptop up to the hospital in between his college classes so that I could say hi to you all. Thank you for calling me, it breathed life into my depressed mind and…
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Update on Tim - PET Scan
Hi everyone Tim had his first PET scan a couple of weeks ago, the cancer moved to his bones and lungs. Five spots on his bones and two in his lungs. He goes in today for a bone biopsy. The doctor said they could not do the lung because the spots are too small and they could damage the lung instead of getting a sample. He…
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Skiffin & Staceya
Yes, I feel just like Gravey did when he posted...."I forgot I had cancer today..." The weather was perfect, and ocean breeze blew all those worries away! I plan on more days like that one. Thanks for the compliment guys! Love & Prayers, Fatty Patty
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Trying to find order adn direction.
Hello Over the last 12 years wife had base of tonge scc , asophogectomy + gastric pull up fro squ scc, and in the last 5 months has had a lobectomy and 2 partial larenpharingial surgeries to remove Squamus C carci. As she suffers from Fanconi Anemia, (a condition known to give rise to tumors)which "unfortunatley" has…
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Getting started...Next line of questions?
Mark and I met with NCI Cancer Center Head and Neck doc today. 99.9% sure the primary is in the tonsil. Very good odds 80-90%. Sugery first: 3 installments: endoscopy on Monday to get tonsil biopsy and get a good look at other stuff. Tonsil removed robotically on Friday, and then 10 days later the lymph nodes in the neck…
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Dealing with this since November
I am a 50 year old female who was diagnosed with scc-unknown primary. Found a lump on my left side of neck. Primary doc first thought lymphoma. Refered to hemotolagist. Ruled out after cat scan, Refered to surgeon to have lumps taken out.Needle biopsy came back with results of scc. After scope, diagnosed unknown primary,…
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How long does it take
My dad was diagnosed the first of March with tongue cancer. He has not started treatment yet. He has talked with the Chemo and rad doctors. This Tuesday will be 2 weeks since they did the first planning session for rad. The nurse and doctor assured us that it normally takes this long to get started. I am assuming that he…
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So sick
I have been so sick from the Chemo, carboplatin. I have lost almost 20 pounds, the thought of eating makes me sick. I have a PEG tube so almost all of my food intake has been through the tube. 4 more weeks to go, how long does it take to get the chemo out of you system. My tongue is so sore I can hardley talk. Just whining…
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Week delay
Just an update. Everything for Mark is pushed back a week. A mix-up regarding Motrin. He has had it too recently to do the endoscopy/biopsy. Rescheduled for next Monday and then hopefully the Robotic sugery for his tonsil that Friday. Does a week make a difference in terms of cell growth and migration?
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Need Your Input For Caregiver
I have been browsing this discussion board for a few weeks now. I usually go to the Breast Cancer Board, as I am going through treatment for that. But my boyfriend was dx 2/10 wit throat cancer. He is T2/N2/M0/ Stage IV. He has been watching me, and being so supportive through my journey. But I am thinking he expects that…
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ent
Hi all: I forgot to ask yesterday when I posted the good report from hubby's onc. The last time he saw the ent was in Nov. 2008 when he was diagnosed. The onc. told him yesterday he likes for his patients to check back with the ent because he likes for them to do a follow up and we have now completed one year since…
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Not good news
It has been a wile since I have been on here so I will give a quick update on Burt.Since he had not been able to swallow anything at all his ent ordered a video swallow test.Had test on april 5th and they had to stop it after first try cause he could not swallow the pudding.Went to get results from ent on the 15th.He said…
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PET scan and Xanax
Hi all, in a recent discussion I had posted that on my next PET scan that I was just going to skip the xanax as I didn't feel enough anxiety to warrant taking it. My 6 month PET was yesterday afternoon and at the scan the 2 tech's were asking me the 100 questions before we got started and when they got to the xanax…
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12 Days
Hi Everybody, I have been following along with all of the posts but not writing much and I apologize for that. I am still typing challenged (2 finger typist), and it just takes me a long time to type everything I want to say. With that being said, almost all of the posts here are gloomy and doomy. We must not let the…
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Still fighting the good fight
Hi, All; Been a while since I've posted. As you may recall, I started an eight-week treatment regime on March 15 for Base of Tongue SCC, with mets to lymph nodes on both sides. So far, I've done five of my eight weeks of radiation and two of my three cisplatin chemo treatments. On Monday, they temporarily stopped my…
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Making a wise decision
Hi. My dad was diagnosis with tongue cancer stage three and is metastic down to the neck. My father went through chemo and radiation. His last radiation treatment was Feb 15. 2010. The Dr believed that the treatment actually worked. Unfortunately, two month later, they discover a new firm mass in the same location. I asked…
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Can anyone help me?
I am 34 years old I got nasopharygenal carcinoma when I was only 18 years old!! I have been through alot in the past 16 years. The best part of life are my 2 kids... any way to make this short I have been in and out of the hospital for the past 16 years with complications due to the HARSH radiation treatments.... I havent…
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Results
Hi Everyone! Herb had his CT and PET scans moved up, and we got the results yesterday. The Dr. says all is clear ....except a spot on his tongue. He doesnt think it is cancer though, he believes it is a radiation ulcer. Has anyone else had anything like this???? I am afraid to do the Snoopy Dance just yet, as everything…
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Hondo ?
Hondo I figured since you work outside a lot you might be able to answer this best. I was told now that I have finished treatment that I will have to be careful out in the sun. Especially those areas radiated. How do you go about that? If you were told the same thing. My wife & I are getting the highsest spf we can find,…
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I forgot I had Cancer today........
I really struggled since my last Rad on December 17th, nausea and sickness, fatigue, all the eating issues, sensitive tongue, blah blah blah. Today, I went to the beach, I have been feeling better as of late, and today, as I sat in my beach chair on Tybee Island in Savannah,Ga, I was drinking a beer, and I actually had a…
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cisplatin vs erbitux for treatment
i am newly diagnosed stage 4 r and l vocal cords and r glottic area. i am starting radiation jan 5th and chemo jan 11th. dr. will be using cisplatin and erbitux has not been mentioned. i was wondering if anyone has any thoughts on this i am female 54yrs. and in otherwise good health
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Platlets
Hi everyone: Haven't been on in a while but just wanted to share the good news that hubby's platelets have finally made it to 143,000 which his oncologist considers 140,000 and above to be normal. Praise the Lord! Everything else checked out good too. He's lost a little bit but the doc just told him to drink 3 ensures/day…
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Nasopharyngeal cancer (on behalf of my father)
Cancer is so new to me and my family. First off, I'm on here because my family and I don't know where to turn and what to do. My father speaks very little English so he relies on us (his children) to help. The day before Christmas, it was offical, my father was diagnosed with cancer (nasopharyngeal cancer). At first, my…
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You all have been so helpful!
Hi, In Jan this year my 48 yr old (non-smoking) sister was diagnosed with tonsil cancer. It had spread to lymph nodes, base of tongue, into adipose(fat)tissue, and a tumor around her juglar vein and muscle in the same area. (We discovered all this additional cancer from surgery). Upon diagnosis, it was suggested she go to…
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Need to do the Happy Dance!
Hi all! Yes, once again I am asking for support. On Monday I have my 6 month PET scan, and am getting VERY anxious. I know I have been healed by His stripes, yet anticipation really stinks! I am going to do the PET, then go for the Gemini/MRI scan. I am so happy for all the good news that has been posted on this site. I…
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Hyperbaric Treatment Success
I completed my hyperbaric treatments yesterday. I had my follow up (2 weeks) with my oral surgeon today. My surgery is healing great. You may recall I had 30 hyperbaric treatments prior to my surgery and 10 afterwards. It appears the treatments were very successful in restoring circulation to the damaged bone and tissue. I…
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Acupuncture to help with salivation etc?
Does anyone remember the conversation about acupuncture for increasing salivation, etc? It seems that there was a reference made to an article? Can any acupuncturist do this, or is special training required?? Thanks All! stacey
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more advice
My dad has always been a big sleeper, sometimes to much. I am worried the once the treatment starts that all he will want to do is sleep. The doctors really push that he needs to stay active. After he sleeps all day his mouth is really sore from drying out while sleeping. Any suggestions? I know his sleeping is not because…
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divorce
How many people do you know that go through a separation or divorce during this? My husband is jealous of my older daughter caring for me. He doesn't want to do it. He has mental issues already and I had to have him leave because he was starting to scare me and the kids. Now he is hospitalized for another suicide attempt.…
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preparation for radiation
What recommendations would you make for someone before they start radiation treatments? I am already loosing some weight (okay-that's not such a bad thing right now). But I worry about the mouth and throat sores and difficulty eating that I read about. I know sugar is something to avoid. I feel weak at times now and I want…