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Transcript of Online Chat about Cancer/HPV
For those of us having the discussion under the "alcohol" thread and others who want to know more about HPV, here is a link to a transcript of an online chat with a Radiology oncologist about HPV. http://www.oncolink.org/blogs/index.php/2010/01/how-much-do-you-know-about-hpv/ I have not read it yet...but in my downtime…
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A Cry for help- A Cry for Contact !
I am new to this site and new to any kind of "public" forum. Our medical staff have now suggested treatment with Erbitux , Cetuximab Drug. Is there anybody out there who has had this and what and how did you deal with side effects? My wife (mom of 5yr old daughters) has a condition -Fanconi Anemia. This produces malignant…
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Another GREAT source for oral, head and neck cancer
The Oral Cancer Foundation is a great source for information! OCF also operates a forum, specifically for oral head and neck cancer patiets, survivors and care givers. I have personally benefited from all the information they offer on their website: www.oralcancer.org OCF is always looking for volunteer's as well. They are…
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SPOHNC (Support for people with Head and Neck Cancer)
SPOHNC NEEDS YOU! I have been cruising around this website,and they are looking for volunteers. So I am forwarding the info; Below is the link http://www.spohnc.org/nsvn.php Become part of SPOHNC's NATIONAL SURVIVOR VOLUNTEER NETWORK (NSVN) If you are a survivor of oral and head and neck cancer you know the importance of…
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Surgery vs. No Surgery Please Weigh-In
Hello everyone, Mark had his diagnostic endoscopy/biopsy today...and the good news is nothing was found that wasn't expected to be found. The other good news is he is HPV16 and has two very good treatment options: 1. Surgery to remove primary in the left tonsil (robotic - very precise, and less envasive) with lymph nodes…
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has anyone NOT used a peg?
My husband has recently been diagnosed with SCC in left lymph node of his neck. MRI showed a possible primary in his throat. PET scan showed that it is contained to this area. He has had to have four teeth pulled prior to treatment and is scheduled for a neck dissection on Wednesday. His surgeon is supposed to be great at…
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New to Nasapharyngeal Cancer
My husband is 47 years old and was diagnosed February 5th, 2010 with stage IVa cancer. He has completed 33 rad treatments and 3 doses of cysplatin. His doctor is scheduling him for at least 2 more doses of cysplatin with 5FU. His worst time was 2 weeks after treatment, he had nausea and vomiting. Thank God for the chemo…
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Numoisyn™ Lozenges- Has anyone tried these?
Has anyone ever heard of this? Tried it? Below is the ad copy.. I have tried gum and mints without success at this point. Numoisyn™ Lozenges are formulated to increase salivary secretion by stimulating gustatory (taste) pathways. They contain sorbitol and flavorings to stimulate normal salivation and provide temporary…
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Terminal
My husband was diagnosed with squamous cell carcinoma Stage IV in July. We have gone thru Chemo, radiation, teeth removal, tonsilectomy. All of that still left lymph nodes on both sides and behind the nasal cavity. We were told last week that this is a terminal cancer. The Dr. said he could not remove the cancer. My…
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New, Need Answers, Afraid
Hi everyone and thank you for all of your help. I've been lurking here for about two months and the info. you all provide is so great. We've been going through this pretty much on our own and I'm at a loss at how to handle it all. Any advice would be so appreciated. My dad was diagosed in Oct. 2009 with squamous cell…
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6 Month PET/CT
Hi all. a week ago yesterday I had my 6 month PET. Saw Onco today and everything looks clear. He gave me the OK to have my port removed. Will see surgeon next Thursday and get his take on everything before scheduling port removal. As most of you know who have completed treatment, this has been a rough year. For those of…
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Cataracts
Hi all: About a month ago I told y'all Charlie had developed cataracts probably due to chemo according to the eye doctor. Well, he had his first eye done Monday and we went yesterday for his 1 day post op check and he is 20/20 in that eye. He thinks (and I agree with him) this is nothing short of another miracle.…
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DRY MOUTH
Finished radiation 8 weeks ago to neck. Dry Mouth very bad at night can't sleep more than 1 hour at a time. Many products on the market, nothing working so far. Anyone have a good product ? Just need to sleep
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Please need advice, help, questions about tonsil cancer...feel very alone and scared
I really need advice and guidance from anyone who has or had tonsil cancer. I am 38 year female, never smoked, not HPV positive, and rarely drink...and I am currently 5 months pregnant. I had my left tonsil removed last week after being inflammed and non responsive to antibiotics. Bioposy indicaticated Squamous Cell…
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New here, CT report in Layman's terms
Hi all, it looks like we will be friends for the next few years at least. My husband had a lump on the right side of his neck, complained several times, had a biopsy about a year ago and nothing was found. Had a lung procedure where the Dr put a camera into his lungs 8-10 months ago, nothing was found. Shortly after his 72…
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Erbitux anyone?
Hi, I am a 30 y.o. female with a diagnosis of stage 4, metastic squamous cell carcinoma with occult primary. Although there has been no luck with finding the primary, we are fairly confident that it is most likely head/neck cancer. So far, I have gone through 6 rounds of chemo (cisplatin, taxotere and 5-fu combo) and now…
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Feelin' a bit down post treatment ?
Just a 'Flash Back' from when I was trying to climb out of the dark times in the first few weeks post treatment. Firstly, just know you will overcome the feelings that 'you will never get over it', fatigue, mucous, no taste, can hardly eat, and all the other things you are dealing with, it just takes time for you body to…
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Caregiver in need of help
My boyfriend has been diagnosed with head and neck cancer. Is in week 3 of chemo and radiation. He has a PEG tube but refuses to use it and I can not get him to use the ENSURE drinks or even Instant breakfast shakes. He now has fungus in mouth and is very sore. He gets rads Mon-Fri and Chemo every Mon for a total of 7…
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PET scan
Hi everyone!! I haven't wrote in to the didcussion board for quite sometime. I hope everyone are feeling healthy and enjoying life! I seem to be feeling very well. I say I "seem" to be, because I am, and I just had my first PET scan. I am 6 months out of radiation treatment. I get my results back early this week. So it's…
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Dehydration Question
My dad is not scheduled to start treatment until Tuesday, however yesterday and today is has not been feeling very good. He claims that he is dizzy and his legs feel weak and hurt. I asked him how much water is he drinking and he told me one bottle a day, plus a couple small cups of tea. Do you think that this could be…
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Food Channel
I thought I'd throw this out here.... When I was going through the worst of the concurrent chemo/radiation and my taste was shot, not to mention my throat tore up so badly. All I could think of was food at times, LOL. I could smell it, still get the little tingles behind the ears that you get when you smell something tart…
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Stage IV Head and Neck Cancer
I was 42 years old. I had a sore throat and went to a General Practitioner for antibiotics. He told me to go to UPMC Ear Nose & Throat Hospital that day. I had seen a surgeon 2 hours later and he was 99% sure it was cancer but wanted a biopsy to confirm it. I had Stage IV Head and Neck Cancer, Squamous Cell Carcinoma, that…
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Any advice?
Hello everyone, In the last few months I have been diagnosed with melanoma, I have had two surgeries and now I'm cancer free which is excellent , but now I'm getting ready to start high dose interferon for 4 weeks and after that I've got 5 weeks of on sight radiation and then 11 months of low dose interferon. I'm scared to…
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NPC, Neck Cramps, Dysphagia, Botox Nightmare, Aspiration Pneumonia
Hello everyone... I've not been here in quite some time, but want to share an experience in the hopes that the information might be helpful...and in fact SAVE a life... My brother Troy, age 43, with recurrent Nasopharyngeal Cancer going on 6 years now, has had alot of problems. He is down to 150 lbs. on his 6'2 frame. On…
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A Little Hope
Well we got back from the u of chicago tonight and wile there was no promises made there was a glimmer of hope.After reveiwing all of Burts medical records and speaking with us the doctor said that they might beable to do surgery and do some radiation again.We told him that his ent had said no more surgery or radiation…
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anyone else have an unknown primary?
Hi all, Doc just called to say that biopsy taken of suspected primary is not cancer. I am not sure if it is good news or bad news! The good news was that of all the lymph nodes taken only one was positive for cancer. Has anyone else had an occult primary? What was the protocol for you?...more questions. Thanks, Jen
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Mucoepidermal carcinoma - mandible (low grade)
When this whole thing started, I was going to have surgery - that's it. Remove part of my mandible - cancer gone. It's been 4 months now. I've had 2 surgeries, 8 radiation treatments and 1 chemo treatment. I have a total of 7 weeks for radiation and 2 more doses of chemo. The cancer was bigger than the surgeon (or anyone…
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Newly diagnosed...need advice.
Hello everyone, My partner of 6 years was diagnosed yesterday with metastatic squamous cell carcinoma, suspected origin left tonsil. It was the lump in his neck that was biopsied, so I am assuming that is the lymph node and malignant cells are present there. So we are looking at Stage 4. At best 3, although we have not…
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Surgery tomorrow
Thank you John, for your positive outlook! We believe in positive energy as well..and prayer. Tried to post a reply to you but don't think it went before the computer burped. We are fishing fans as well. Hubby owns a fishing lure company. :) Hoping he can still get out some during all of this. Surgery to remove lymph nodes…
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Fatty Patty (aka pattyanny) where are you???
Hi Patty, I've been thinking about you nonstop since yesterday morning. Please post as soon as you can to let us all know how you are. Hoping to do another Happy Dance today. I went to sleep early last night so I would have plenty of energy to dance all day ;-) Stay strong my friend and remember He is always there for you.…