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DRY MOUTH
Finished radiation 8 weeks ago to neck. Dry Mouth very bad at night can't sleep more than 1 hour at a time. Many products on the market, nothing working so far. Anyone have a good product ? Just need to sleep
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Please need advice, help, questions about tonsil cancer...feel very alone and scared
I really need advice and guidance from anyone who has or had tonsil cancer. I am 38 year female, never smoked, not HPV positive, and rarely drink...and I am currently 5 months pregnant. I had my left tonsil removed last week after being inflammed and non responsive to antibiotics. Bioposy indicaticated Squamous Cell…
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New here, CT report in Layman's terms
Hi all, it looks like we will be friends for the next few years at least. My husband had a lump on the right side of his neck, complained several times, had a biopsy about a year ago and nothing was found. Had a lung procedure where the Dr put a camera into his lungs 8-10 months ago, nothing was found. Shortly after his 72…
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Erbitux anyone?
Hi, I am a 30 y.o. female with a diagnosis of stage 4, metastic squamous cell carcinoma with occult primary. Although there has been no luck with finding the primary, we are fairly confident that it is most likely head/neck cancer. So far, I have gone through 6 rounds of chemo (cisplatin, taxotere and 5-fu combo) and now…
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Feelin' a bit down post treatment ?
Just a 'Flash Back' from when I was trying to climb out of the dark times in the first few weeks post treatment. Firstly, just know you will overcome the feelings that 'you will never get over it', fatigue, mucous, no taste, can hardly eat, and all the other things you are dealing with, it just takes time for you body to…
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Caregiver in need of help
My boyfriend has been diagnosed with head and neck cancer. Is in week 3 of chemo and radiation. He has a PEG tube but refuses to use it and I can not get him to use the ENSURE drinks or even Instant breakfast shakes. He now has fungus in mouth and is very sore. He gets rads Mon-Fri and Chemo every Mon for a total of 7…
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PET scan
Hi everyone!! I haven't wrote in to the didcussion board for quite sometime. I hope everyone are feeling healthy and enjoying life! I seem to be feeling very well. I say I "seem" to be, because I am, and I just had my first PET scan. I am 6 months out of radiation treatment. I get my results back early this week. So it's…
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Dehydration Question
My dad is not scheduled to start treatment until Tuesday, however yesterday and today is has not been feeling very good. He claims that he is dizzy and his legs feel weak and hurt. I asked him how much water is he drinking and he told me one bottle a day, plus a couple small cups of tea. Do you think that this could be…
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Food Channel
I thought I'd throw this out here.... When I was going through the worst of the concurrent chemo/radiation and my taste was shot, not to mention my throat tore up so badly. All I could think of was food at times, LOL. I could smell it, still get the little tingles behind the ears that you get when you smell something tart…
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Stage IV Head and Neck Cancer
I was 42 years old. I had a sore throat and went to a General Practitioner for antibiotics. He told me to go to UPMC Ear Nose & Throat Hospital that day. I had seen a surgeon 2 hours later and he was 99% sure it was cancer but wanted a biopsy to confirm it. I had Stage IV Head and Neck Cancer, Squamous Cell Carcinoma, that…
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Any advice?
Hello everyone, In the last few months I have been diagnosed with melanoma, I have had two surgeries and now I'm cancer free which is excellent , but now I'm getting ready to start high dose interferon for 4 weeks and after that I've got 5 weeks of on sight radiation and then 11 months of low dose interferon. I'm scared to…
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NPC, Neck Cramps, Dysphagia, Botox Nightmare, Aspiration Pneumonia
Hello everyone... I've not been here in quite some time, but want to share an experience in the hopes that the information might be helpful...and in fact SAVE a life... My brother Troy, age 43, with recurrent Nasopharyngeal Cancer going on 6 years now, has had alot of problems. He is down to 150 lbs. on his 6'2 frame. On…
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A Little Hope
Well we got back from the u of chicago tonight and wile there was no promises made there was a glimmer of hope.After reveiwing all of Burts medical records and speaking with us the doctor said that they might beable to do surgery and do some radiation again.We told him that his ent had said no more surgery or radiation…
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anyone else have an unknown primary?
Hi all, Doc just called to say that biopsy taken of suspected primary is not cancer. I am not sure if it is good news or bad news! The good news was that of all the lymph nodes taken only one was positive for cancer. Has anyone else had an occult primary? What was the protocol for you?...more questions. Thanks, Jen
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Mucoepidermal carcinoma - mandible (low grade)
When this whole thing started, I was going to have surgery - that's it. Remove part of my mandible - cancer gone. It's been 4 months now. I've had 2 surgeries, 8 radiation treatments and 1 chemo treatment. I have a total of 7 weeks for radiation and 2 more doses of chemo. The cancer was bigger than the surgeon (or anyone…
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Newly diagnosed...need advice.
Hello everyone, My partner of 6 years was diagnosed yesterday with metastatic squamous cell carcinoma, suspected origin left tonsil. It was the lump in his neck that was biopsied, so I am assuming that is the lymph node and malignant cells are present there. So we are looking at Stage 4. At best 3, although we have not…
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Surgery tomorrow
Thank you John, for your positive outlook! We believe in positive energy as well..and prayer. Tried to post a reply to you but don't think it went before the computer burped. We are fishing fans as well. Hubby owns a fishing lure company. :) Hoping he can still get out some during all of this. Surgery to remove lymph nodes…
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Fatty Patty (aka pattyanny) where are you???
Hi Patty, I've been thinking about you nonstop since yesterday morning. Please post as soon as you can to let us all know how you are. Hoping to do another Happy Dance today. I went to sleep early last night so I would have plenty of energy to dance all day ;-) Stay strong my friend and remember He is always there for you.…
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Copy of Mikes most recent post- please read- it is in the thread Chefdaddy update- Am reposting if a
remove from friends list Posts: 137 Joined: Dec 2009 April 27, 2010 - 8:56pm Hello my incredibly Hello my incredibly wonderful friends. My brother brought his laptop up to the hospital in between his college classes so that I could say hi to you all. Thank you for calling me, it breathed life into my depressed mind and…
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Update on Tim - PET Scan
Hi everyone Tim had his first PET scan a couple of weeks ago, the cancer moved to his bones and lungs. Five spots on his bones and two in his lungs. He goes in today for a bone biopsy. The doctor said they could not do the lung because the spots are too small and they could damage the lung instead of getting a sample. He…
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Skiffin & Staceya
Yes, I feel just like Gravey did when he posted...."I forgot I had cancer today..." The weather was perfect, and ocean breeze blew all those worries away! I plan on more days like that one. Thanks for the compliment guys! Love & Prayers, Fatty Patty
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Trying to find order adn direction.
Hello Over the last 12 years wife had base of tonge scc , asophogectomy + gastric pull up fro squ scc, and in the last 5 months has had a lobectomy and 2 partial larenpharingial surgeries to remove Squamus C carci. As she suffers from Fanconi Anemia, (a condition known to give rise to tumors)which "unfortunatley" has…
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Getting started...Next line of questions?
Mark and I met with NCI Cancer Center Head and Neck doc today. 99.9% sure the primary is in the tonsil. Very good odds 80-90%. Sugery first: 3 installments: endoscopy on Monday to get tonsil biopsy and get a good look at other stuff. Tonsil removed robotically on Friday, and then 10 days later the lymph nodes in the neck…
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Dealing with this since November
I am a 50 year old female who was diagnosed with scc-unknown primary. Found a lump on my left side of neck. Primary doc first thought lymphoma. Refered to hemotolagist. Ruled out after cat scan, Refered to surgeon to have lumps taken out.Needle biopsy came back with results of scc. After scope, diagnosed unknown primary,…
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How long does it take
My dad was diagnosed the first of March with tongue cancer. He has not started treatment yet. He has talked with the Chemo and rad doctors. This Tuesday will be 2 weeks since they did the first planning session for rad. The nurse and doctor assured us that it normally takes this long to get started. I am assuming that he…
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So sick
I have been so sick from the Chemo, carboplatin. I have lost almost 20 pounds, the thought of eating makes me sick. I have a PEG tube so almost all of my food intake has been through the tube. 4 more weeks to go, how long does it take to get the chemo out of you system. My tongue is so sore I can hardley talk. Just whining…
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Week delay
Just an update. Everything for Mark is pushed back a week. A mix-up regarding Motrin. He has had it too recently to do the endoscopy/biopsy. Rescheduled for next Monday and then hopefully the Robotic sugery for his tonsil that Friday. Does a week make a difference in terms of cell growth and migration?
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Need Your Input For Caregiver
I have been browsing this discussion board for a few weeks now. I usually go to the Breast Cancer Board, as I am going through treatment for that. But my boyfriend was dx 2/10 wit throat cancer. He is T2/N2/M0/ Stage IV. He has been watching me, and being so supportive through my journey. But I am thinking he expects that…
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ent
Hi all: I forgot to ask yesterday when I posted the good report from hubby's onc. The last time he saw the ent was in Nov. 2008 when he was diagnosed. The onc. told him yesterday he likes for his patients to check back with the ent because he likes for them to do a follow up and we have now completed one year since…
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Not good news
It has been a wile since I have been on here so I will give a quick update on Burt.Since he had not been able to swallow anything at all his ent ordered a video swallow test.Had test on april 5th and they had to stop it after first try cause he could not swallow the pudding.Went to get results from ent on the 15th.He said…