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Deportation
Hi all. Just returned from the hospital and feeling pretty upbeat. I had my port removed this morning. It has been a 12 month round trip this week. It was the week before Memorial Day 2009 that my cancer was discovered. Thank-you all for your supprt and input when I needed it. I wish I had found this site before my…
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Blood Counts
My husband was recently diagnosed with stage 3 base of tongue HPV cancer. His course of treatment is 1 day each week chemo (cisplatin and erbutux) and 5 days radiation for 7 weeks. He just finished his 2nd round of chemo. I'm concerned about his blood counts since his white, red and platelet counts went down considerably…
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Big Week for us
Hey everyone, thanks for all the support! This is going to be a big week for me, Monday I have a full bone scan, Tuesday it's to my ENT doc to get scoped again, and the biggy, I think is the CT needle biopsy Thursday of my lower spine, no one wants to commit to a diagnoses yet which of course is normal. No word on the EGD…
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MIBG Study update
I had my MIBG study done on Tuesday and the doctor just called and said that the preliminary results so no uptake in my lung, which is great news! My wife and I are very excited. The doctor said he should have a full report tommorrow, but he does not except it to show anything. The plan going forward to is to have a CT or…
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Soccerfreaks
Has anyone heard anything from Soccerfreaks? I haven't seen any of his posts. Or maybe I have skipped past them, without knowing. He was very helpfull as well:) Cindy
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underactive thyroid sufferers
Got a letter in the mail today from ONCOMAN. It states my last blood test shows my thyroid is uderactive and it's really bumming me out. He sent along a prescription for Synthroid. He also stated in the letter I'll probably be on it for life. Some general questions to anyone on thyroid medication which by the way is a…
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ENT doctor question
How often did any of you see the ENT through treatment? The ENT my dad went to did not impress us during the first visit. The whole time he talked to his nurse and explained very little to us. The only reason I understood anything was because of the research I had done. He never told us that the CT scan looked good or…
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Kidney function and chemo
Can anyone share the experience with cisplatin (spelling) and kidney function. They said my dad's was up 1.4 after his 3rd chemo. They reduced the dose and said they doctor will talk with us about this Friday. Does that mean he will have to stop chemo or change drugs? The one nurse acted like it was a big deal and the…
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Good Checkup
I was at MD Anderson last week for my 18 month checkup and got two thumbs up. Stressful testing, but was able to smile as I walked out the door. YAY ME :)
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Zeolite with dhq
Hi everyone! I hope all are doing well. Or as best as can be;) I'm wondering if anyone knows, or has heard of Zeolite dhq? I googled nutrition and cancer, and this website came up. I did read up on it, but it also could be a hoax. Does anyone know anything about this? Thanks, Cindy
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Trying to move on after treatment
Hi all im new here in october 09 I was diagnosed with nasopharyngeal carcinoma im 31 years old with three children still four and a half months after treatment im still trying to cope I thank God im still alive but it is very hard to deal with what the cancer has left behind my quality of taste is not that good im still on…
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Acupuncture
I have posted on hear before trying to get some information on acupuncture. I like many others on here have fried saliva glands due to radiation. I am now three years and three months post treatment and basically have no saliva other than the thick ropy type. Yes chewing gum, tic-tacs, biotene gel for dry mouth and a…
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just wanted to say hi!!!
Hey, Everyone, I just wanted to say hi and that everyone on this blog is in my prayers! I tend to check here once in while; but I am also trying to to keep a positive outlook and sometimes TOOOO MUCH knowledge can have a negative effect; especially me, I tend to over analyze every little detail!! Well, I a have a week and…
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Trouble finding an oral surgeon that takes medicare
Did anyone on medicare,have issues finding a Dr to take it? We have been put through the ringer today with this. Roger is 20 yr retired Vietnam vet with medicare, "Blue cross, blue shield" and tricare for life and we still could not find a dentist to take him. Since Medicare has to be primary, they did not want to go…
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Another SURVIVOR!
We received the most wonderful news today! Bob had Surgery on Monday on his Tognue and they cut his neck open to remove 2 suspious Masses near his Lung's...They called this afternoon with the Pathology...CANCER FREE!!!! He was Stage 4 Jaw, Tognue, pallett...the Tumor in his Jaw was the size of a Horseshoe...almost 8…
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Nerve Regeneration
Posting on a Saturday night...sad isn't it? I know somewhere in my readings on these boards I saw something about the timing of nerve regeneration after surgery. I think it was around the 2 week mark? Mark is experiencing an increase in pain following several days just taking tylenol extra strength and looking at driving…
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Got firm diagnosis, has anyone had similar diagnosis?
Hi all, This is my 2nd try at writing this, went to preview the 1st one and it deleted it somehow :-( Roger was preliminarilly diagnosed with base of tongue cancer on April 28th. A Dr noted a tumor on base of tongue back in records we obtained from Oct. 2006, but never even told us it was there, so here we are 3.5 years…
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Here we go again
My Dad had a biopsy last week, it came back as cancer again. His radiation treatments just ended in April. Cancer is a monster. We will be going to Charleston Wednesday to find out the details and the treatment plan. He is so weak already. Please keep him in your thoughts and prayers. Thanks and God bless you all.
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Base of tongue cancer associated with Listerine?
Hi all, We have been very puzzled as to how Roger got this cancer. He smoked and drank socially for about 15 years, but stopped completely 41 years ago. From what we read, they are the two main catalysts for this type of cancer. We never really thought about the listerine having alcohol in it, but Roger has had some gum…
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PET scan...again!
Hi everyone!! I know I could probably search back some, but...could anyone help me out with this question? I just got my first PET scan results back. My ENT told me that it was "neither here, nor there". Meaning, he couldn't tell if it showed scarring, or still symptoms of the radiation I had, or cancer cells. He wants me…
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swelling
I've been back to my regular cancer doctors, and have recently noticed that my neck, where i had hard radiation is swelling, not a little but alot, both the doctors have told me this is expected after radiation. Has Anyone else had this happen. I finished radiation January 26th, and I also went to the dentist, thinking…
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Round 3
Well today round 3 of Rad/Chemo starts. Just starting to get used to some of the pain in my eyes and my face feeling like beef jerky...:) I'm worried whats going to hit next sofar 2 days after each treatement things went bad any ideas on what special suprises are around the corner. Really irritating part is even water is…
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Teeth
Glenn had 28 teeth removed yesterday. He came through it really well. Bleeding subsided on cue and currently has only moderate pain. He ate 800 calories in soft food last evening and I had to shoo him back into the house when my son and I were cleaning/mowing the back yard. He just couldn't stop "doing" things. He amazes…
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Clear, Clear, Clear!!!!
Great news for me today everyone, I was told my last CT was negative, what ever had shown up on the previous one was no longer present. That was my 6 month CT, now just one more at the 9 month mark and then she said it would get spaced out from there, 1, then 2 years apart, something like that. THANK YOU THANK YOU THANK…
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Sleep
Nearly 5 months post treatment, 12-30-09, and after getting off meds in February I developed insomnia for the first time. I have been prescribed Lunesta(did not work), Edluar (worked somewhat), Ambien CR (worked somewhat), and now am taking Trazodone. Started Trazodone this week and seems to work the best. I have seen some…
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Bro
My bro is holding up- kinda -....he added some writing to his expressions page, which I thought I'd bring to the discussion table..... "THis may come across as trivial to some here but here it goes. This has been a rough week my body didn't react well to the second round of chemo and rad. Ended up in ER Tues morning b/c my…
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Iffy PET scan
Hi there! Well? Yesterday, I went over my pET scan results with my surgeon. He said he is not sure if it is scarring is shows, or still cancer. It has been 7 months since my last radiation treatment, and he feels I should of been healed faster than it shows. So now I am waiting to be booked for a biopsy. I have an appt.…
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round two
Wow, what can I say the last time I was here was about three years ago answering questions from newbies on what to expect from treatment, recovery ect ect.....Low and behold my Ocologist called me and said they found two hot spot's on my PET scan, one in the back and one in my chest..... funny thing is I was diagnosed with…
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Soccerfreaks
Where are you at Joe?
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Alcohol consumption and tonsil cancer?
Hi friends, My husband was diagnosed with Stage IV squamous cell carcinoma of the tonsil and lymph nodes last year. He has gone through surgery & treatment and has had his first round of post diagnosis/treatment scans a few months ago which thankfully all showed he was "free" of the cancer. One of the "causes" of tonsil…