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First PET scheduled
Heard from the onco today and he said I'll have my first post-treatment PET scan "around" June 24. I'm a little nervous, but we'll deal with the outcome appropriately when we know it. Best, Mick
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Can I Introduce Myself?
Hi. My name is Mick and I just came across this site. I completed treatment for cancer of the tonsil and neck one year ago. Things seem to be going well although my last scan indicated the possibility of a 4mm nodule on my lung. My Oncologist does not believe it is that but instead a temporary collapse of the lung which is…
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Marinol pills
Hi everyone Thinking of talking to the doctor about Marinol pills. Has anyone tried these? Thinking it would help Tim's nausea and maybe increase his appetite. The fews stories I've read on line say it didn't help with the nausea. Thanks - Cathy
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neck feels tight
hi everyone happy holiday I have a couple of questions right where my throat is it is very tight there IT is hard to bend my head back all the way when I try it feels tight and when I try to take my meds bending the head back it is hard getting them down that way has anyone else had that problem and if so will it go away…
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New Member needing help
Hi all, I am not sure if I am in the right area or not. I have a mass of undisclosed origin on the base of my tongue going into my tonsils. I have had five surgeries with a trache placed in the first surgery to keep my airway open. I have had both positive and negative biopsies and feel like I am on a roller coaster of…
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Marine/Irishgypsie/Skiffin: Thank you for service.
To Marine and Irish Gypsie, Skiffin and all the men and women who have served in the armed forces: You sign up to do battle and fight for our country and all its freedoms. Then you fight a war on the most intimate front...the enemy: cancer. Just know I appreciate your service to our country and how that protects each and…
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Husband first check in with ENT tomorrow
Hi all: Hubby has first check in with his ENT since he finished chemo/radiation last year. He's been seeing the rad. onc. and the reg. onc. each every three months since June 2009. There's is no reason to believe anything's going on as his checkins have been good and his CT scan last June and PET scan last Sept. were both…
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Chefdaddy New Up-date on Mike 5-30-10
Hi everyone I just got off the phone with Chefdaddy, he is in the hospital having problems with a blood disorder. He is not doing very well so please keep him and his children in your prayers and your thoughts. He has had a very hard time going through treatment and is only 11 days post, radiation burns to the skin on his…
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LIVING HELL!
Well I have four more weeks to go. The outside looks good so far not too red. The inside that's a different story mucositis, sores on tongue and back of mouth. The pain is the worst when the mouth drys out. That is the torcher part the dry mouth hurts like hell! THIS IS LIVING HELL! I'm getting PEG tube in on Wed. I'm…
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update
Hi Folks. Went to the speech pathologist today who got mad at the ENT for not recognizing that I have an upper respiratory infection that has been adding to the secretions in the throat which makes swallowing more difficult than it needs to be. Other than that she's pretty happy that I'll be eating in a few weeks. Sleep is…
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You OK, Sweetblood?
Everything OK with you? Haven't seen you around in a while. --Jim in Delaware
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Treatment plan finally
After a million appointments and much preparation Glenn is getting ready to begin treatment. They've decided on IMRT/Tomo bilateral neck and Carbo/Taxol x3. He was TxN2bMo. He's been to the dentist and had all teeth removed, PEG inserted last Wednesday. He'll start on Monday, 6/7. He's looking forward to Radiation…
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Wonderful news
Hi Everyone, My dad had a checkup with the chemo doctor yesterday and got the best news. His doctor told him that it is nothing short of a mircle how much his tumor his disappeared at only half way through treatment. All of the swelling has gone down in his face and the doctor could not believe that this was the same…
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Had my first laryngoscopy today..........scared.....doctor says looks like cancer
Hello..I have never posted before but have been looking on this site since my doctor said I had a nasopharyngeal mass and one in my voicebox (right arytenoid mass it said). I don't ask enough questions at the doctors office. I had my laryngoscopy today and the doctor said the nasopharyngeal mass was a cyst but that the…
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my dad
I am hoping someone can help direct me & my mom in a direction. My dad was diag w/cancer just a couple of days ago. Its mainly in his throat & tonsils. We are doing a PET scan to see exactly where & how much there is. My dad is 64 was laid off from his job just a day or two before we found out. Also, they do not have…
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bone loss in jaw question
My husband has been told that he has bone loss around one of his teeth and it probably will have to come out. The dentist told him because his blood counts were back to normal there shouldn't be an issue with this. I have read many comments on here about special procedure. .. hyperberic stuff, etc. is what the dentist is…
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Scan
Hey everyone, Had a pet scan today. Only 6 1/2 wks. out. Tech said he didn't see anything to be worried about, but hes no doc. Wish me luck!! Steve
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pic of husband!
That's him! back to hunting! it's not all good ... but the good is out weighing the bad!
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Deportation
Hi all. Just returned from the hospital and feeling pretty upbeat. I had my port removed this morning. It has been a 12 month round trip this week. It was the week before Memorial Day 2009 that my cancer was discovered. Thank-you all for your supprt and input when I needed it. I wish I had found this site before my…
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Blood Counts
My husband was recently diagnosed with stage 3 base of tongue HPV cancer. His course of treatment is 1 day each week chemo (cisplatin and erbutux) and 5 days radiation for 7 weeks. He just finished his 2nd round of chemo. I'm concerned about his blood counts since his white, red and platelet counts went down considerably…
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Big Week for us
Hey everyone, thanks for all the support! This is going to be a big week for me, Monday I have a full bone scan, Tuesday it's to my ENT doc to get scoped again, and the biggy, I think is the CT needle biopsy Thursday of my lower spine, no one wants to commit to a diagnoses yet which of course is normal. No word on the EGD…
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MIBG Study update
I had my MIBG study done on Tuesday and the doctor just called and said that the preliminary results so no uptake in my lung, which is great news! My wife and I are very excited. The doctor said he should have a full report tommorrow, but he does not except it to show anything. The plan going forward to is to have a CT or…
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Soccerfreaks
Has anyone heard anything from Soccerfreaks? I haven't seen any of his posts. Or maybe I have skipped past them, without knowing. He was very helpfull as well:) Cindy
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underactive thyroid sufferers
Got a letter in the mail today from ONCOMAN. It states my last blood test shows my thyroid is uderactive and it's really bumming me out. He sent along a prescription for Synthroid. He also stated in the letter I'll probably be on it for life. Some general questions to anyone on thyroid medication which by the way is a…
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ENT doctor question
How often did any of you see the ENT through treatment? The ENT my dad went to did not impress us during the first visit. The whole time he talked to his nurse and explained very little to us. The only reason I understood anything was because of the research I had done. He never told us that the CT scan looked good or…
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Kidney function and chemo
Can anyone share the experience with cisplatin (spelling) and kidney function. They said my dad's was up 1.4 after his 3rd chemo. They reduced the dose and said they doctor will talk with us about this Friday. Does that mean he will have to stop chemo or change drugs? The one nurse acted like it was a big deal and the…
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Good Checkup
I was at MD Anderson last week for my 18 month checkup and got two thumbs up. Stressful testing, but was able to smile as I walked out the door. YAY ME :)
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Zeolite with dhq
Hi everyone! I hope all are doing well. Or as best as can be;) I'm wondering if anyone knows, or has heard of Zeolite dhq? I googled nutrition and cancer, and this website came up. I did read up on it, but it also could be a hoax. Does anyone know anything about this? Thanks, Cindy
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Trying to move on after treatment
Hi all im new here in october 09 I was diagnosed with nasopharyngeal carcinoma im 31 years old with three children still four and a half months after treatment im still trying to cope I thank God im still alive but it is very hard to deal with what the cancer has left behind my quality of taste is not that good im still on…
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Acupuncture
I have posted on hear before trying to get some information on acupuncture. I like many others on here have fried saliva glands due to radiation. I am now three years and three months post treatment and basically have no saliva other than the thick ropy type. Yes chewing gum, tic-tacs, biotene gel for dry mouth and a…