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Hyperbaric Therapy
I have just had the ok to start this treament next week, to clean and build new cells to my larnyx and voice box where i was given radiation, if anyone has every had this procedure, please feel free to post, tell me of your expereince and if it was a positive diretion for you. This is my last hope. Thanks, I'm hoping for a…
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Low Blood Count Question
My dad was not able to take his chemo this Friday, because his blood count was 64 and the doctor said it needed to be at least 74. Is this something to really worry about. The nurses sais it is normal after 4 rounds and he just needed to get some exercise. Did this happen to any of you and should I be worried. he has 3…
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Erbitux anyone?
We have decided to use the radiation therapy, but now we need to decide by tomorrow whether or not to use Erbitux. Anyone have any experience with it? what about having to stay out of sunlight during and after treatment? We are aware of the 2% heart attack during injection, and the acne rash any other complications? Thank…
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treatment started - what to expect next?
Hi everyone, It has been a little while since I posted. I am a teacher and the last weeks of school have left me crazy busy between work and home. My husband started his radiation treatments this week. (One week down, seven to go!) He has not really had any side effects yet. His docs gave him a rinse to start using several…
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eppstein barr virus
hi everyone today is one of thoose days that I cant shake the cancer thoughts you know what scares me the most is that my ent said my npc started with eppstein barr virus has anyone had there's start from that and I was told that its something that I will always have it goes dormant and can flare up again my fear is when…
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boosting immune system
Hi all I have a question what is good as far as vitamin's and other things that is good for boosting the immune system and what kind of excercise would some of you recommend to start off with thank you and God bless
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Sorry took me all day to post........good news so far!!
I am sorry it took all day to post.....I was a "mess" this morning when I went to the doctor but figured it was nerves. My doctor confirmed the one of course was a cyst. The second the doctor said came back as "lymphoid and follicular lymphoid hyperplasia"...It continues to say the "specimen is being forwarded to a…
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Shoulder Muscles after treatment
I had a lymph node removed on the left side and 37 rad treatments ( last treatment Feb 9 2010)for cancer at the base of the tongue. Getting back some salvia, taste, eating a little better. The problem is my left shoulder now feels like I have BADLY pulled a muscle. If I try to use the mucles a certain way it pains me very…
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Nutritious Drink
This may help those people out there who cannot swallow most or any foods yet. It's 1 scoop of protien powder, a handfull of strawberries. 1 banana, a handfull of blueberries AND...1 can of Vanilla Ensure. It is sooooo good!!! And good for you!! :D Cindy
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Tonsillectomy Complications
Hi all, I had a left neck dissection and tonsillectomy about 5 weeks ago. My recovery has gone well for the most part and I'm very thankful. The last couple of days though I have noticed an acid like build up in the back of my throat where my tonsils were. It kinda feels like there's vomit in the back of my throat ( gross…
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Unknown primary site
My husband was diagnosed stage 4 HNSCC. Left neck disection Surgery on April 30 , 2010 removed 22 lymph nodes 3 were positive. Unknown primary but the doctors are recommending full radiation 60 grays on right side and 70 grays on left side, 5 days a week for 6 weeks. Also, recommended Cisplatin 3 times OR Erbitux weekly.…
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Good New's!
Hello everyone! I had my post two month checkup with my oncologist & ear nose & throat specialist on tuesday. He went & took a look with scope down my nose & he could not see any trace of my tumor etc. Needless to say I am relieved. I decided there is nothing I can do about it anyway & said alot of prayers hoping for the…
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Hubby's ENT check in A-OK!
Hi all: Just wanted to let y'all know Charlie's ENT check-in went great! He scoped him and said all that was there was scar tissue! I am so relieved and so grateful. Thanks for all the prayers and encouragement. He said to check back in with him in 6 months and also gave him a prescription for Wellbutrin to try to help…
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Tomorrow is my day...........wanted to say "thank you" to everyone
Tomorrow morning I go in for the results of biopsy.....(laryngoscopy). I will not lie to you-I am a nervous wreck. I have no idea how you do this...you all have so much strength. The waiting has been a roller coaster of emotions....and a nightmare. You have all "helped" me in your own ways-from trying to "calm" me-to…
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Update on my dad
Last week we were told that the SCC is still there and is now in my dad's brain. The doctor said it is inoperable because of the location and because he has already had a rough go of it. They also said it can't be cured. I don't want to believe that. The 4 and a half hour drive home was so hard. We go back to Charleston…
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Quick Question
Hi everyone My dad wanted me to ask a quick quesiton. He is curious why sometimes his rad treatment takes longer then others. When he asked the tech they told him at times they need to takes films or recap. He is fascinated by the machine and wanted to know in more detail what they are doing. So, I told him I would post…
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Osteoporosis following radiation
I'm a 3 year throat/lymph gland cancer survivor. This fall, after rapidly increasing pain and decreasing joint mobility over the past year, I was given a bone scan, the results being severe osteoporosis. The numbers read like the skeleton of a 90+ year old woman. I'm 50, and have been very physically active my entire life.…
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First PET scheduled
Heard from the onco today and he said I'll have my first post-treatment PET scan "around" June 24. I'm a little nervous, but we'll deal with the outcome appropriately when we know it. Best, Mick
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Can I Introduce Myself?
Hi. My name is Mick and I just came across this site. I completed treatment for cancer of the tonsil and neck one year ago. Things seem to be going well although my last scan indicated the possibility of a 4mm nodule on my lung. My Oncologist does not believe it is that but instead a temporary collapse of the lung which is…
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Marinol pills
Hi everyone Thinking of talking to the doctor about Marinol pills. Has anyone tried these? Thinking it would help Tim's nausea and maybe increase his appetite. The fews stories I've read on line say it didn't help with the nausea. Thanks - Cathy
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neck feels tight
hi everyone happy holiday I have a couple of questions right where my throat is it is very tight there IT is hard to bend my head back all the way when I try it feels tight and when I try to take my meds bending the head back it is hard getting them down that way has anyone else had that problem and if so will it go away…
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New Member needing help
Hi all, I am not sure if I am in the right area or not. I have a mass of undisclosed origin on the base of my tongue going into my tonsils. I have had five surgeries with a trache placed in the first surgery to keep my airway open. I have had both positive and negative biopsies and feel like I am on a roller coaster of…
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Marine/Irishgypsie/Skiffin: Thank you for service.
To Marine and Irish Gypsie, Skiffin and all the men and women who have served in the armed forces: You sign up to do battle and fight for our country and all its freedoms. Then you fight a war on the most intimate front...the enemy: cancer. Just know I appreciate your service to our country and how that protects each and…
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Husband first check in with ENT tomorrow
Hi all: Hubby has first check in with his ENT since he finished chemo/radiation last year. He's been seeing the rad. onc. and the reg. onc. each every three months since June 2009. There's is no reason to believe anything's going on as his checkins have been good and his CT scan last June and PET scan last Sept. were both…
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Chefdaddy New Up-date on Mike 5-30-10
Hi everyone I just got off the phone with Chefdaddy, he is in the hospital having problems with a blood disorder. He is not doing very well so please keep him and his children in your prayers and your thoughts. He has had a very hard time going through treatment and is only 11 days post, radiation burns to the skin on his…
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LIVING HELL!
Well I have four more weeks to go. The outside looks good so far not too red. The inside that's a different story mucositis, sores on tongue and back of mouth. The pain is the worst when the mouth drys out. That is the torcher part the dry mouth hurts like hell! THIS IS LIVING HELL! I'm getting PEG tube in on Wed. I'm…
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update
Hi Folks. Went to the speech pathologist today who got mad at the ENT for not recognizing that I have an upper respiratory infection that has been adding to the secretions in the throat which makes swallowing more difficult than it needs to be. Other than that she's pretty happy that I'll be eating in a few weeks. Sleep is…
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You OK, Sweetblood?
Everything OK with you? Haven't seen you around in a while. --Jim in Delaware
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Treatment plan finally
After a million appointments and much preparation Glenn is getting ready to begin treatment. They've decided on IMRT/Tomo bilateral neck and Carbo/Taxol x3. He was TxN2bMo. He's been to the dentist and had all teeth removed, PEG inserted last Wednesday. He'll start on Monday, 6/7. He's looking forward to Radiation…
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Wonderful news
Hi Everyone, My dad had a checkup with the chemo doctor yesterday and got the best news. His doctor told him that it is nothing short of a mircle how much his tumor his disappeared at only half way through treatment. All of the swelling has gone down in his face and the doctor could not believe that this was the same…