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Chemo and feeding tubes
Hi I was wondering how long it takes to get chemo. My dad is going to do the chemo once a week with radiation. On the day they do the chemo does he then do the radiation later that day. Also, how long did the sickness from the chemo last days or the entire time. Did everyone lose their hair. These are things that he has…
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Something Good to Eat
I thought this was something that many of you would find helpful. My favorite thing to make for my dad was pie. With his mouth being sore the crust was to hard for him to eat. I have started making him homemade custard pies without the crust. They bake perfect and come out in perfect slices. Since custard pies have a lot…
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chronic ear infection and hyperbaric?
I am 1 year post rad for parotid cancer, and have had problems with an ear infection for the past 5 months (the ear was in the radiated field) Have taken countless antibiotics, which are becoming fairly ineffective. Also have a perforated ear drum which is not healing. Just wondering if anyone thinks hyperbaric might be…
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nothing new really
Hi all. I am still waiting for positive change to happen now +11 days post treatment. Mucus is still public enemy #1 and mouth sores still keep me awake at night (along with the mucus). I'm telling the Dr next week that I want my mouth issues to be reevaluated because I'm not happy with where I am. If I need to be doing…
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radiation for head and neck cancer
I just had surgery for oral cancer. The cancer was under my lower front teeth. This was #4. I had wanted to have my remaining teeth pulled but was advised not to because I have a neurotic jaw. I got that because of having two years of intravenous Zometa. followed by Boniva. I was put on antibiotics to help with the pain,…
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Sweating in the head while eating
Hi all, I am 3 months post radiation and chemo for NPC. My taste buds haven't fully returned yet. When I eat my head is sweating profusely, especially if the food has a little taste that is too strong for me (sour, spicy). This condition happens even during cold days. Anyone has similar experience? Thanks, Frank
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Modified Citrus Pectin
MODIFIED CITRUS PECTIN Hi All, I had forgotten about this supplement till recently and started to take a dose a day. I was prescribed this not long after I had started treatment but found I could not take it due to the pain but It is fine now that I am over the post Tx burning. Curious if anyone else has been using it or…
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"Going to the chapel and we're gonna get married"
This is an old blog entry of mine, from back in 2009, and I bring it to this board because it speaks, perhaps to some of the issues we face: (Dixie Cups reference) I used the above musical reference because I wallked down the aisle with my wife this afternoon and evening. In fact, I walked down aisle after aisle after…
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Has Anyone Heard From
Mike ( Chefdaddy) or Mick I know they were finishing up but haven't seen them in a while hoping all is well with them Dave
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Teeth after radiation and many years...
Hello, 13 years ago I survived Squamous Cell Carcinoma originating from my nasopharynx. I received a lot of regional radiation and now have a few front teeth left and struggle eating on a day to day basis. I am only 27 and have many more years of tearing food apart ahead of me. I was seen by a oral prosthetic Dr. and after…
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Callin Mike ?
Mike Where are You & how are you doing? I started a new thread as the other was getting lenghty. Hope all is well Dave
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How Much Care Needed
Hi, I know I have asked the question already, but I would like some more input. My dad will soon be starting his treatment for IV base tongue cancer. I work 2-10 at night and am worried about being able to care for him. My mom is home and able to do some things, but can not drive. I am trying to plan if I will need to be…
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soft tissue swelling in neck
well...I'm back... I read these posts every day and usually my concerns are addressed without me posting. But this one I need some imput on. My husband has finished his treatments, had a follow-up scan and scope and there are no signs of cancer. Funny when they tell you you have cancer it hits you like a brick wall...when…
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Last rad day. What happens? Machine breaks. No Joke.
Good Friday has been horrible. This was the day when I was to BE DONE with all the rads, which would complete my treatment altogether. But I may need to wait until Monday. I'm tired 'cause of chemo, so I'm going for a nap. Best, Mick
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Plasmacytoma - post radiation question
I was diagnosed with Plasmacytoma in my maxillary sinus region (after treating for over 4 months for sinus infection!)and am just one month post radiation (25 treatments). My face and mouth/tongue seem to be healing and on the road to recovery (still tastebud & soreness in my mouth) - but just last Friday my left eye…
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My throat is tight and hard to breath
Seems I have been waking up to take my hydroodones, to a sore throat, thick phlem, difficult to breath in the morning to eat my breakfast? I have to drink cold water to get everything going. last radiation and chemo was January 25, raspy voice still, still working through all of this, which makes it harder as well to keep…
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Tampa Bay Grouper ~ Off Topic
I know this is a bit off topic, but it's something I like to do. Since I share most everything else with you guys and gals, I thought I'd share something on the positive side. I like to fish in my spare time and being sick last year, I didn't get to do it much. April 1st in Tampa Bay (and the Gulf) opens the grouper season…
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Soreness and cramping in neck almost a year after surgery/radiation
In January of last year, at age 20, I was diagnosed with a mucoepidermoid carcinoma of the salivary gland. I had one surgery removing just the gland then a second scraping the area where the gland was and removing all the lymph nodes on the right side of my neck. I had radiation without incident - with the exception of…
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Tube out soon!!!!
I got the OK from my ENT on my Friday visit to get my tube removed. They want to keep the port in for a while until I get some more clear scans under my belt, but I go Monday to the surgeon to set up getting my tube out. WOO HOO!! My last radiation treatment was on December 17th, to give you guys some time frame. Love you…
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Chef Trek
I apologize it took me so long to get a new thread started. I had looked all over the site for the "new thread" button and it was right in front of me the whole time. I'm blaming starvation and pain! lol Thank you everyone for your support and prayers. Mike
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thanks for info
Hi every one My name is Denny, this is my first time to post.I want to say thank you all for all the info and support on this site.It has help me alot, I dont fill alone in my battel to victory .For you are all in the same fight.
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Skull base surgery -Retropharyngeal Node
Has anyone had any experience with Retropharyngeal Node resection? It's between the sinus cavity, ear and eye. I've developed this nasty little tumor and it's encroaching my carotid artery. I was dx with Medullary thyroid cancer 3 1/2 years ago. I've had 4 surgeries including a trache and 2 rounds of radiation, 1 external…
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FOR PUMAKITTY
Just found out I just found out my dad has IV tongue cancer. Is has spread to one lympe node in his neck. The Dr. said he would need radiation and Chemo. I think it will start around April 12th. I have found reading the posts very helpful. March 30, 2010 - 5:11pm stage IV Hi Puma, Glad to see you found your way here. There…
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Looking for Coupe
Coupe I have not seen you post in a while, how are you doing please let us know if you are well. Hondo
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Eating and coping with recovery
Hi, My name Is Mary Ann. I just had my 4th surgery for oral cancer. It has been 7 years since the last tumor, and I guess I really thought I would never have to do this again. My story is long and and I won't bore you with the details. I just would like some suggestions about eating. Also being seen in public. I will look…
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Personal record keeping
I hope that those of you that are going through treatment are keeping daily logs/records of you progression down this hellacious road. We keep at home daily records of weight....temperature.....blood pressure....bowel movements (Y/N)....plus any notations on number of regurgitations, hours slept, and introductions of new…
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feelings of neck constriction 9 months post RT
Hi all, I had RT to the parotid salivary gland area and down one side of my neck, just off centre so that it didn't incude the windpipe. For the last month I have had the feeling in my neck, like someone has a hold of my windpipe and is squeezing it. It is not restricting my breathing or swallowing, but is uncomfortable.…
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Status Update & Question about oral pain
Hey everyone, I have got my first clean 3 month PET/CT scan a week or so ago, the doc said he saw some pixalized spot on one of my lungs, but didnt seem to be too concerned with it and said in his op. it just looked inflammatory, like I had a bronchial infection or something, which, I did have one that I got from my…
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re: Update
Hi Everyone....its me Sandy. I did get good results from my CT Scans last week. Yeppie!! I had not been able to log on because we had problems with our internet here at home. My doctor said that my CT scan looked stable and he is going to repeat the scans again in June. He said that if there is any significant change nor…
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Has anyone else had these problems?
Hello everyone! I am new to this sight. I thought I had posted something last night, but cant find it on here anywhere. If I am repeating myself, I apologize. My husband was diagnosed with SCC stage IV in April of '09. Needless to say, this year has been hell. I was reading alot of your posts and no one seems to have gone…