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Difficulty swallowing---Needing Prayer
My mother(46 years old) is a 6 year stage 4 tonsil cancer survivor(as of may). After surgery to remove tonsils, 22 treatments of radiation, and 2 different concurrent chemotherapies, she was given the thumbs up for no cancer. However, she had been severely burnt from the inside out with sores from her lips down her…
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Sorry Guys
To all my new family, As promised I would update as soon as the results were in...I do have another tumor. This one appears to go from the left tonsil into the soft palette. The ENT wanted it to be that the spot showing on the PET was hot from my rads but no such luck. The radiologist confirm another mass and when scoped,…
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How / When to tell my mom?
Sorry for the length of my post or any spelling errors. I am new here and wanted advise on telling my mom that I have tonsil cancer. I am a 40 year old, single,non smoker, rarely drink just diagnosed with Tonsil cancer with right neck metastasis. I received the initial call from my ENT on July 8,2010 after a ultrasound…
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Cancer free states/areas
Thank you Skiffin16 for creating that map with our locations. Has anyone else noticed the considerable lack of individuals posting from the Rocky Mountain states or the Great Plans area? The gap is very noticeable on John’s map. I realize that these states are probably less populated, but it would appear that there should…
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PET scan or no PET Scan
Question regarding PET scan. So far my doctors have not scheduled me for a PET scan. Should I be requesting one? Initial testing by my ENT for initial disgnosis was ultrasound of neck, CT scan, needle biopsy, which showed Squamos Cell Carcinoma in my right neck lymph nodes. Then he refered me to MD Anderson. He ordered a…
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Two Different Cancers
Hi Everyone My Name is Judy I recently discussed my newly diagnosed Kidney Cancer which I was led to believe was Renal Cell Carcinoma with neck lymph node metastasis.Following further discussions with my Oncologist I have now found out that the tumour in my lymph node appears to be a different type of cancer as it was…
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Tinnitus Drug On Horizon
Hi Everyone, I live in the central valley of California. My last trip to my ENT I told him about my tinnitus, and he suggested I was a candidate for a trial being done on a new tinnitus drug treatment. I can't apply until September, but I will try and get into the trial. The drug is already being prescribed in Germany, and…
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Better days!
Hey peeps! Sorry haven't posted in a while; I have been reading but didn't really have much to say! I was really inspired by the caregiver posts; but being single I didn't really feel like I had much to add! Anyway, I am on week 6; haven't used feeding tube since last Friday. I am eating but it's slow process and have to…
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Tripping Over My Tongue
Hi all. Pam here - almost 5 months post tx for base of tongue. I got my PEG out and throat dilated a couple of weeks ago. I've noticed very recently that I sometimes have difficulty speaking again (haven't had this problem for at least 3 months). Not total inability to be coherent, just like having a harder time getting my…
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P E T Scan
Had my first P E T Scan after having surgery and 33 radiation treatments for pitirod gland cancer and the P E T came out clean .It was well worth the hard times of enduring the 33 Radiation treatments
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squemous cell carsonoma
I was diagnosed withSCC and am presently ending my third week of treatment...I am presently having a constant buzzing in my ears, which I believe is from the chemo..I have this now for two weeks and am due for my second dose of chemo on Monday..I was wondering if anyone else has experienced this...I am scheduled for a…
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New Article! New England Journal of Medicine!
Hey, I also wanted to share that there is a new article from the New England journal of medicine from July 1, 2010. It talks about HPV+16 tumors and Survival stats for those of you who are interested. N Engl J med 2010; 363:24-35
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NEW BUT LATE UPDATE
Good morning all!! I am finally home recovering from my surgeries. Yes, surgeries with an S. Nothing comes easy. My original plan was to have one surgery on Monday August 9th to extract the oral cancer and then the neck dissection. While driving home from work on Friday the 7th, my mouth filled with blood, and this…
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PET Scan due Wednesday
Hi everyone, looks like another PET scan is due this Wednesday at MD Anderson in Houston. My local doctors are a little concerned as I been have a lot of pain the head and neck again and they can seam to find the problem. As you know all my passed PET scans for the last 5 years came back dirty, but showing no new growth.…
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First news update
Hi to all, I had my scans this morning and will know the results tomorrow. But the big news is...my PEG is gone..YIPPEE. Of course mine went like everyone else's with my doctor saying take a deep breath and he yanked and I howled. Then I cried because it was gone. The doctor told me to stay on the Boost and Ensure because…
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Post NPC Questions
As I am in recovery phase, even though I have two chemo sessions to go Aug 9 and Aug 30, I have some questions about what to expect in the future. Finished my 40 rads about 6-7weeks ago. Port I have a port surgically inserted into the upper left portion of my chest just below my collar bone / shoulder socket. I heard and…
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Needle Biospy not performed in 2005 (lump in 2006 was cancer)
Question concerning something that has been really nagging at me ever since my brother Michael's diagnois. He had a lump in his neck and went to ENT in Sav, GA sometime in 2005. He told me he thought it might be ear, tonsil, or tooth related (he did not have the best teeth even prior to rad treatment). At that visit the…
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Trying to enjoy my garden
It has been tough with only about 20% taste to enjoy my garden this year, I am trying but alot of the flavors that I usually love are not coming through. I finally have my weight stable and am going to try to get my Peg tube removed tommorow at the ENT visit. Wish me luck, this whole eating thing is a pain in the butt for…
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Drinking Ensure
Without having the full taste and from the very start, I never did like the taste of Ensure. I could tolerate Boost a little better. I am drinking vanilla Ensure because the VA has them, but not Boost. For veterans who need Ensure and under VA care, check with them since it is a prescription item. With advice from the food…
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New Update
Hi all, I met with the ENT yesterday and had my PET repeated this morning. The ENT has said that he did not like seeing the new mess on the CT in my nodes, left tonsil and soft palate. He agreed that the PET did need to be repeated. But he also said he didn't feel that my tumor(on the BOT) would shrink much more. Said it…
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Soft Tissue Necrosis!
Hey went for check up Monday and today! Saw ENT on Monday and Radiation Doc today. I was concerned about irritation on Right side where I got most of the radiation in mouth. The ENT said it was just healing still from Radiation treatment; that everything was healing good. Radiation team said I had a tiny amount of bone…
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Three month PET scan results.
I went over my three month pet scan results with the doctors today, some hot spots still showing up. The conclusion was that in the last two months since my last pet scan the hot spot has shrunk by half, so it is half the size it was. I also had some biopsies done 6 weeks ago in that area and they came back as cancer free.…
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Reluctant to Post
Yes I’ve been reluctant to post on this forum lately. I am now 1 week post treatment and after 4-5 rough days I am already feeling better. And I didn’t have it very rough to begin with. My treatment has been a walk in the park in comparison to what most everyone else has gone through. When I read the problems Debbie is…
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12 day out of treatment
Glenn is doing really well. The first week was pretty rough and very typical of what others have gone through. He had lots of pain, weakness, mucus, lack of sleep.... He even had two days of not being able to swallow even water without chocking. I worried at that point but the head nurse on his team called me and kind of…
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Care Giver Recognition Week - Per Kimba's Post
I wanted to let you all see my care giver since Kimba had such a great post and response. I changed my profile photo, this photo is of my lovely wife and care giver ~ Shelley....I know that it wasn't easy. Believe it or not, LOL, I can be quite the Butt-Hole when I'm irritated and don't feel well. Something that we all go…
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feet swellingwith pain
Hi all I have pain and tingling and numbness I had in my feet is now turning into swlleing of hand and feet is with stiffness in bones my doc said is radiation damage have any of you go through this or have heard of it and will it go away?
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Caring4Dad: You deserve your own thread.
Caring4Dad, (Michelle) I am sorry to hear about your dad and sorry that you have had a need to find this site...but find it you did...and it is an amazing place to get information, care, support and even warmth and laughter. It is place where others get what is going on for you and your father and it is open 24/7. I am…
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Finished lymph node removal
Hi Everyone, I've caught up on posts and wish everyone the best. I've mainly been watching my favorite commercials this last week recuperating from neck dissection of the left side. Everything went smooth, but I want to quickly give a few specifics for those of you contemplating post treatment surgery to remove some of…
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Another NED
Hi everyone, Just left the ENT and he scoped me and said everything looked perfect and I don't have to see him or get any more scans until December. A pretty good start to the day I must admit. Best to all, Steve
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Post treament depression
Hi Everyone-my husband finished 7 weeks of chemo/rad on June 10th for BOT stage III SCC HPV+. He says that this is harder than going through the treatment, at least treatment had an end date. He is still not eating or drinking-even water irritates his mouth/tongue which is still very raw. He (we) thought that he would at…