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Lost My Husband
My sweet husband lost the fight on November 19. He was diagnosed in June 2009 with stage IV Tonsil SCC. We did lots of chemo (five different types) and seven weeks of radiation. It eventually spread to lung, bone, liver. He was the most beautiful man in the world and I will miss him everyday! You all have no idea how much…
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update
Next Wednesday I get a second dilation procedure under general. Although I do not look forward to another sedation, I am hopeful the widening will improve on swallowing and I wont aspirate as much. I have a date for the removal of the g tube - Dec 15 - one week after the second dilation. The tube has been a blessing and a…
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Now Aretha Franklin Now!...
I just read Aretha Franklin has been diagnoised with Panreatic...What else that has been great can be taken away from us, I have never saw so much talent over this year taken from us..This Cancer has to be Beaten, really angers me for the my family and others that have lost someone special they loved...Sorry, But so sad.…
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Tooth extractions
looking for any tidbits on tooth extractions after treatment. This time last year I was just finishing up the neck disection. I had 39 rads and chemo also. I just got my third tooth abcess since finishing treatment. This last one is because of a failed root canal in which the root has broken off the molar. Wish I hadn't…
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Thyroid out at 2 years
Well I made it almost two years to the day but my thyroid has finally given up. Biggest thing I noticed was cold hands but also some fatigue and definitely constipation. (Also look for droopy eyelids, slow reflexes and achy joints and muscles among other things). I have a question for everyone on Synthroid/Levothyroxin. My…
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GOBBLER NECK
I had a Modified Neck Dissection on the Right Side and I have really started to notice this large clump of loose skin to the left of Midline and when I look in the mirror, it looks like my Airway shifts to the left also. Is this my new look forever and ever? Are there any excersises I can do to try to correct this?
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Great News but still confused
Received great news today no chemo or rads! But still no answer why the cancer returned. I think I'm looking for an answer that I'm never going to get! The biopsy came back squamous cell carcinoma in situ. They have me under a every six week watch. I feel very lucky but afraid they are missing something! I have not had any…
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NED after chemo yet still 7 weeks of radiation?
My husband, 28 years old, was diagnosed with stage 4c nasopharyngeal cancer this Sept with distant bone mets. He has just finished his 4 rounds of TPF chemo. The PET scan now is clear, and the doctor says there is no visible cancer, yet she still want to put him on 7 weeks of IMRT. Any of you guys had similar experience?…
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clear PET
I got a PET this week and it came back clear! unbelievable relief. I thank God. I also thank everyone on this board for the info and support. Greg
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One more "You can call me Ned"!
Sweet! This morning I got the word and joined the club, the NED club! Call me survivor. Call me bad-****. I kicked this cancer thing's butt big time! Just over 9 weeks post-treatment and I am pain-free and eating totally normally again. My voice is 50%, but I never could sing to begin with, so that's no big deal. Slight…
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Clean PET / CT Scans
Let me be the latest to offer up test results. My ENT had me in for a check-up and PET / CT Scans of the neck and chest this morning. They all came back clean! She scoped the area as well and said everything had healed up nicely. No evidence of disease (NED). I'm doing the happy dance! Rush
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Daily Aspirin Linked to Steep Drop in Cancer Risk
Interesting read http://news.yahoo.com/s/hsn/20101207/hl_hsn/dailyaspirinlinkedtosteepdropincancerrisk
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bad taste
I had a biopsy done a few weeks ago and ever since I have had a bad taste in my mouth and food just has no real taste to it. Is this permanent or just something that will pass.
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Starting chemo tommorow again
Well the day I have been dredding has finally come, tommorow the long trip to San Francisco and have a pick line installed. Did not have one last time I went through chemo, anyway have not been looking forward to this. I can only hope it will take away the pain I have been experianceing for the last week. No radiation or…
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Need advice on bad cold
Employees at my office have all had a bad cold. Now it appears I am getting it. Right now it is limited to a runny nose and sore throat and slight congestion. The discomfort is centered around the site of my former tonsils. In any event, with no saliva, it is extremely uncomfortable to swallow right now, but I am afraid…
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Vitamix Discount
I posted this on the Pinedog thread but wanted to let everyone know because it's so helpful. Vitamix offers a significant discount ($125) on the purchase of a new blender for medical reasons. They do require a doctors note on letterhead be faxed over to get the discount. You can get all the information from Vitamix as they…
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My first day of radiation
My first day of radiation starts today at 2:00. I am so terrified of being strapped down. I know it is for only a short time and I don't understand why I'm so scared. I'm trying so hard not to cry because I don't want my nose to be stuffed up, I have to wear a mouth piece. I want to get this done and over with and put…
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Stage IV - Not good prognosis
I've been on the lung cancer board but actually I should have been on this board all along. We thought the tumor in my husband's lung was another primary cancer and not mets. He had a biopsy on his left lung which showed it's mets from the head & neck cancer he had been treated for. My husband had his appointment with the…
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Humidifier.
Wow. I got a cool moisture humidifier and I've been using it the last two days. I set it right next to me, right by my bed. That horrible dry tickle that was making my right eye tear is all but gone. I'm coughing way less and I even slept better. It was only about $20 at Walmart.
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Economical Vitamin & Supplement Supplier - iHerb.com
Hi All, Just a note to say I found a very good online Supplier called iHerb.com While I don't necessarily endorse any product or supplier I found they sell most famous and reputable brands and have a very extensive range of prodcts so I found everything I needed. They have a few different brands of the L-Glutamine in…
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LINKS
Finally thought of using HTML Code? CSN H&N LOCATIONS MAP Best, John
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Still NED at six month check! Yay!
I visited with my favorite doctor at Stanford yesterday, for my six-month check. No scans. All he did was palpate, prod, and poke all the way to the base of my tongue, repeatedly, gack! gack! gack! and scope the interior... EEEEEEEEEEEEEEEEEEEEEEEEEE! Oh ya, and he squeezed and manipulated the exterior of my neck till he…
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NECK SCAN BEFORE PET SCAN
I finished treatment on October 20th, and will have a Neck CT I assume with contrast on December 15th. I am then scheduled for my first PET in February. Have most of you all had the same type of scan schedule? I understand waiting for the PET because of the Radiation Treatment to avoid any false positives and wont the Neck…
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In-laws for the holidays and their so-special remarks...
On this Thanksgiving holiday, I am so very grateful for all my friends here and the support which we all give each other. As the old saying goes: "It's a good thing you can choose your friends, because you can't choose your family." In the interests of defusing some tensions before an in-law gets a pumpkin cream pie in the…
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Had an MRI today - Came back NED!!!!!
My insurance company refused a Pet/CT for me. So, my doctor scheduled a brain MRI, and Neck MRI and a chest Ct today. I gotta say. The MRI tube makes the Pet tube seem like a 3 bedroom apt, with wet bar and balcany. It was tiny (though I'm not). Also the brain MRI took 45 mins w/o contrast plus 20 mins with. The Neck was…
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pinedog alternative for feeding tube
Does anyone have the "pinedog" recipe for the feeding tube. His last posting was in 2005 but I could really use the recipe. My sister-in-law has just started her treatments for stage 3 throat cancer and will soon need to use her feeding tube. The family has asked me to help by collecting recipes and alternatives to canned…
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Clean Scope-YIPEEEEEEEEEEEEEEEEEEE
Nice! The scope wasn't as bad as before, for whatever reason. Although the doctor made an odd comment, that I looked "really healthy now, before you looked kind of pathetic." I am guessing he means this as a positive comment? Maybe I SHOULD have bitten him. Stacey
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survivor logo?
I had my submandibular salivary gland remove because i had a lump on it and the biopsy showed i had a mucoepidermoid carcinoma. So now I will be starting radiation next week as a precautionary measure to help ensure it does not return. I have been trying to find some sort of logo , like the pink ribbon for breast cancer,…
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bad biopsy / confused and upset
Well i received my results today and they were not good. Cancer is back...they think they may have remove all of it during the biopsy but not completely sure. They are making arrangements for me to see other doctors. My head is spinning....I cannot believe this. I'm scared and angry! i dont know if i'm ready for this…
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throat cancer
Hello, I'm just new to this. Have an appt with specialist mid July. Going crazy waiting. Just wondering if anybody out there had a persistent sore red throat. Going on about 7 months now, and antibiotics do not help. So we are eliminating all the posibilities. Anyone have that symptom? thanks