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Looking for Doctor in Northern CA
I am looking for a doctor (Surgeon/ENT) in Northern California for a second opinion. I finished my treatment (Chemo and radiation for SCC Base of tongue at the end of August) and my 3 month PET Scan showed an area of activity in my lymph node. Rad Oncologist not concerned and believes it is probably residual inflammation.…
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Back from NC for Christmas
Hi all: Hope everyone had a very Merry Christmas. I got back from NC this afternoon after spending Christmas with Charlie's family. It was a bittersweet one. We had 8 inches of snow on Christmas Day and it turned out to be just me, his parents, his brother Steve and wife Karen and brother Stan. The weather kept the…
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Where's kimmygarland?
Am I just missing her posts? Anybody heard anything from her lately?
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Dale G
I haven't seen anything from Dale G since his post of a few weeks ago - 3 days after chemo and feeling great. I PM'd him and warned him that 3 days is often the calm before the storm and offered a few bits of advice in case the nausea popped back up. I haven't heard back and he hasn't posted anything more on the list. I'm…
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The real question should be is anyone still having oral sex???
I haven't chimed in for a while; I was pretty depressed and trying to get my life back! I tend to stay away from the boards because I'm tired of thinking about cancer. I have probably broke some records I started dating someone back in Nov. I'm 5 1/2 months out of treatment. I eat what i want anything from a sub, pizza, to…
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Really Scared - Beginning of the End?
I'm very worried and scared. Had to make a doctor appointment for my husband today. He's very very weak (because he isn't eating) and he says he has trouble eating because his stomach gets full right away. He's extremely thin (now around 100 lbs - maybe less). He's having a lot of face pain from the shingles he had which…
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How Long To Bounce Back
Hey there, everyone ... So my husband has NPC ... had the concurrent radiation/cistplatin with his last radiation on September 7th. Then about a month later he started the three treatments of cistplatin/5FU ... with the last one being changed to carboplatin/5FU. He finished the last treatment the week before Thanksgiving.…
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Clean
Hey All, Everything is clean and I get my port out in early January. Does it get any better? No more cancer paraphernalia. Steve
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Musings on a Christmas Card
I received a Christmas Card from a very dear friend. Her personal message included the following statements "...2010 really sucked! Here's to a better year for us all!" Somehow, I don't agree. I don't believe this has been the worst year of my life. Diagnosis of Stage 4 BOT SCC with bilateral lymph node mets in January.…
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Mutant Mucous
As disgusting as anything I can imagine... will this oversized, gross mucous ever stop shooting out of my nose? I have never seen anything as big come flying out of my nose when I give it a good blow. Someone could lose an eye!!! As gross as it is, does it ever get better. Im 2 years now post radiation... and still the…
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Second chemo run (Cisplatin + 5-FU) for NPC? is that option?
Hello! everyone, I was stage III and just finished the radiation treatment combined with the chemo (Cisplatin) once a week. Following the NCCN Practice Guidelines, one month later, I will start another chemo run ( I called it 2nd run), it will be: Cisplatin, 80 mg/m2 day 1+ 5-FU, 1000 mg/m2, CI x 4 days; repeat every 4 wk…
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FINAL UPDATE (SHOULD BE)
Hello all. My last Thread was allot of good news followed by some potentially scarry news. I guess I jumped the gun on reporting. I had a Neck CT that also showed the top portion of my lungs. I initislly reported that the Neck Scan was clean. It was then reported back to me that the Radiologist saw 2 spots that did not…
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Sepsis - anyone else have this problem?
I'll ask the basic question and if anyone would like the back story I can fill in the gaps. Has anyone else had sepsis? Where does it come from?
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So their really is a Santa Claus
My wife Connie just got out of the hospital after 8 days. She started out with chronic diarrhea and then progressed to low platelet count. Of course these symtoms started from bad reaction to chemotherapy. The research team that runs the clinical trial that Connie is a patient never even gave her a call to show their…
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Just Merry Christmas
I just wanted to wish every body a Merry Christmas.
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NO CANCER TODAY
My husband and I have declared this a day without cancer. Just for today let's forget about all the bad stuff and enjoy the moment. Best wishes for a Merry Christmas. Skipper
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Mood Swing For the Holidays
I felt for the lady who was losing her dad, posted note not to far from, Year ago I was a whole person, could breath normal, talk normal, eat normal, it all crashed and changed. Most people would say be thank ful, I'm sitting her tonight for what, sad isn't it, i was screwed up by a doctor with bad judgment, can't do…
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Hair loss
Has anyone else lost there hair from cisplating chemo, I am not doing radiation at this time but my hair has been falling out. brad
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Merry Christmas everyone
Just a short note to wish everyone a Merry Christmas and the blessing of good health for you and all your loved ones now and always.
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Cancer and Christmas
I am about to lose my Dad to cancer right here around Christmas. I could write a book on how unfair life is and how much this sucks, but I'll spare you all. I'm sure you can all relate. How do you deal with this, especially during this time of the year? This is miserable. A little history: My Dad is a 64 year-old…
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This Holiday Season
At this time of year I think it is most importance for us to remember those of our friends & family here on CSN still going through there treatment and wishing them as Merry a Christmas as possible. I would like to also remember many of our friends who are no longer with us and there caretakers who must now live alone. I…
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Raw Neck-Posponed Radiation
Hello Everyone, Today I went for my 29 of 33 treatment. Because my neck was litterly red raw flesh, the tech had me see the doctor before hand. He suggested we suspend the treatments until next wednesday. Needless to say I was quite happy as my neck is beyond a mess. He suggested I quit using the prescribed Maiderma cream…
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All I Wanted For Christmas-
-was my two front teeth. Well, I got them back for $350 on the 22nd! Tooth damage being a common H&N side effect, thought I could offer this bit of experience. My two front teeth developed large chips in the bottom-center of each, with a small crack running the now-shorter vertical length of each. What to do? On the 22nd I…
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2nd Bellybutton Club
Well, I became an inductee to the 2nd bellybutton club at 12:45 PST today. I knew it was going to hurt, but Wow! I certainly hope the folks in the waiting room couldn't hear me holler. The receptionist at the desk gave me a funny look as we were leaving, so I think maybe - just maybe - someone might have heard me. I…
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Chemo hiccups
Hi there. Decadron (a steroid) and the 5-HT3 receptor antagonists (Emend, Kytril, Zofran and ramosetron) used for nausea against Cisplatin can cause persistent hiccups. Anyone here have that problem? Yesterday I had them for 3.5 hours before a bit of Maalox finally got rid of them. Got them now and I gotta go to the rad…
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2010 Update
Hi Everyone, Haven't been on in long time. Don't really know why. Last treatment was Aug.19,2009.Was clear last scan and check. Go for CAT scan and check the end of January. Will be 17 mos. Always have fingers crossed. Lost 70 lbs. and have kept it off.Needed to loose it, but not like that!! Went through a bout of…
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Hearing and the Dying
As of a couple of days ago my Dad, who has termial neck cancer, started getting well sedated and basically non-responsive. This had to be done (per instructions from Hospice) to ease his increasing agitation and restlessness, especially at night. He was released from the hospital a little over a week ago (an ER trip and…
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PET and CAT results came today
Hubby Pat has his surgery Oct 1 - radical neck dissection and a complete laryngectomy. Right after his surgery, his doctor told me that if the surgery had been postponed by a week or two, he would have died. The tumor was growing very, very fast. The doc took everything he could see and all the lymph nodes. He said he had…
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Strange side affects question
I'm 12 weeks post radiation treatment and have two minor weird things going on that I wanted to ask you all about. I'm not overly concerned as I'm guessing radiation therapy will cause all sorts of strange little body changes that one will feel for years to come. But anyway, has anyone ever experienced or heard of either…
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Dry Mouth
To those of you suffering from dry mouth and I know many of you on this site are, I would like to offer the following information. I have been using the Biotene products for some time now. I use the toothpaste as well as the Biotene Moisturizing Gel. The toothpaste and the gel do a wonderful job. However as most of you…