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Second chemo run (Cisplatin + 5-FU) for NPC? is that option?
Hello! everyone, I was stage III and just finished the radiation treatment combined with the chemo (Cisplatin) once a week. Following the NCCN Practice Guidelines, one month later, I will start another chemo run ( I called it 2nd run), it will be: Cisplatin, 80 mg/m2 day 1+ 5-FU, 1000 mg/m2, CI x 4 days; repeat every 4 wk…
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FINAL UPDATE (SHOULD BE)
Hello all. My last Thread was allot of good news followed by some potentially scarry news. I guess I jumped the gun on reporting. I had a Neck CT that also showed the top portion of my lungs. I initislly reported that the Neck Scan was clean. It was then reported back to me that the Radiologist saw 2 spots that did not…
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Sepsis - anyone else have this problem?
I'll ask the basic question and if anyone would like the back story I can fill in the gaps. Has anyone else had sepsis? Where does it come from?
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So their really is a Santa Claus
My wife Connie just got out of the hospital after 8 days. She started out with chronic diarrhea and then progressed to low platelet count. Of course these symtoms started from bad reaction to chemotherapy. The research team that runs the clinical trial that Connie is a patient never even gave her a call to show their…
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Just Merry Christmas
I just wanted to wish every body a Merry Christmas.
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NO CANCER TODAY
My husband and I have declared this a day without cancer. Just for today let's forget about all the bad stuff and enjoy the moment. Best wishes for a Merry Christmas. Skipper
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Mood Swing For the Holidays
I felt for the lady who was losing her dad, posted note not to far from, Year ago I was a whole person, could breath normal, talk normal, eat normal, it all crashed and changed. Most people would say be thank ful, I'm sitting her tonight for what, sad isn't it, i was screwed up by a doctor with bad judgment, can't do…
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Hair loss
Has anyone else lost there hair from cisplating chemo, I am not doing radiation at this time but my hair has been falling out. brad
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Merry Christmas everyone
Just a short note to wish everyone a Merry Christmas and the blessing of good health for you and all your loved ones now and always.
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Cancer and Christmas
I am about to lose my Dad to cancer right here around Christmas. I could write a book on how unfair life is and how much this sucks, but I'll spare you all. I'm sure you can all relate. How do you deal with this, especially during this time of the year? This is miserable. A little history: My Dad is a 64 year-old…
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This Holiday Season
At this time of year I think it is most importance for us to remember those of our friends & family here on CSN still going through there treatment and wishing them as Merry a Christmas as possible. I would like to also remember many of our friends who are no longer with us and there caretakers who must now live alone. I…
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Raw Neck-Posponed Radiation
Hello Everyone, Today I went for my 29 of 33 treatment. Because my neck was litterly red raw flesh, the tech had me see the doctor before hand. He suggested we suspend the treatments until next wednesday. Needless to say I was quite happy as my neck is beyond a mess. He suggested I quit using the prescribed Maiderma cream…
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All I Wanted For Christmas-
-was my two front teeth. Well, I got them back for $350 on the 22nd! Tooth damage being a common H&N side effect, thought I could offer this bit of experience. My two front teeth developed large chips in the bottom-center of each, with a small crack running the now-shorter vertical length of each. What to do? On the 22nd I…
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2nd Bellybutton Club
Well, I became an inductee to the 2nd bellybutton club at 12:45 PST today. I knew it was going to hurt, but Wow! I certainly hope the folks in the waiting room couldn't hear me holler. The receptionist at the desk gave me a funny look as we were leaving, so I think maybe - just maybe - someone might have heard me. I…
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Chemo hiccups
Hi there. Decadron (a steroid) and the 5-HT3 receptor antagonists (Emend, Kytril, Zofran and ramosetron) used for nausea against Cisplatin can cause persistent hiccups. Anyone here have that problem? Yesterday I had them for 3.5 hours before a bit of Maalox finally got rid of them. Got them now and I gotta go to the rad…
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2010 Update
Hi Everyone, Haven't been on in long time. Don't really know why. Last treatment was Aug.19,2009.Was clear last scan and check. Go for CAT scan and check the end of January. Will be 17 mos. Always have fingers crossed. Lost 70 lbs. and have kept it off.Needed to loose it, but not like that!! Went through a bout of…
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Hearing and the Dying
As of a couple of days ago my Dad, who has termial neck cancer, started getting well sedated and basically non-responsive. This had to be done (per instructions from Hospice) to ease his increasing agitation and restlessness, especially at night. He was released from the hospital a little over a week ago (an ER trip and…
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PET and CAT results came today
Hubby Pat has his surgery Oct 1 - radical neck dissection and a complete laryngectomy. Right after his surgery, his doctor told me that if the surgery had been postponed by a week or two, he would have died. The tumor was growing very, very fast. The doc took everything he could see and all the lymph nodes. He said he had…
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Strange side affects question
I'm 12 weeks post radiation treatment and have two minor weird things going on that I wanted to ask you all about. I'm not overly concerned as I'm guessing radiation therapy will cause all sorts of strange little body changes that one will feel for years to come. But anyway, has anyone ever experienced or heard of either…
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Dry Mouth
To those of you suffering from dry mouth and I know many of you on this site are, I would like to offer the following information. I have been using the Biotene products for some time now. I use the toothpaste as well as the Biotene Moisturizing Gel. The toothpaste and the gel do a wonderful job. However as most of you…
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Thick, Foam Saliva
I am 2 years out from stage 4 throat. Does anyone have any suggestions? I currently spit it out all day, into pill bottles. My students and my boyfriend accept it as part of my life. Now, He's my ex-boyfriend, after giving me the Pre-Christmas "dump". I can't even imagine going out on a first date, or even attracting a…
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1 week left!
Only 1 more week left of rads to go and then I'm done with treatment! I've decided not to do the 6th round of Cisplatin as doc can't say for sure if it will be of any benefit but it will definitely make me sick. And I'll most likely only do 33 rads vs. 35 and be all done by Christmas. Again, doc can't say for sure that 35…
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Is my husband going to be able to eat again?
Hi, everyone - I don't post here very much (only once before), but I read, read, read. The knowledge and support I've gotten has given such relief. Thank you all for that. My husband just had robotic surgery in his throat and on his tongue last week. They removed 2/3 of the base of his tongue, and a lot of cancer/damage to…
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One year ago
Last year on December 18 I got the news that I was now part of the "you have cancer" club. As clubs go, you all are a pretty nice bunch...and extremely helpful. I am lucky to have found this board, if unlucky to have joined the club. Well, last Saturday I marked my new birthday by going to Disneyland with the extended…
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Coughed up chunks of cancer
The second day of chemo last week I coughed up two white chunks about 1/2" long with vains running though them. I had seen some pictures of cancer on google before I started this treatment and it looked like the pictures. I asked my Oncologiest about it and he agreed it was cancer. Must have been in my throught and became…
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Synthoid ~ Update
LOL, you put the jinx on my good fortune.....just kidding, I knew it was coming soon. Went to have the port flushed and also visit the ENT for my routine scope, poke and probe. Everything is looking good there, nothing out of the norm, all systems go, EEEEEEEE. But as you all know, my ENT is my lead MD. He has been…
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Neuropathy - Hands & Feet
Hi all! I've missed you all so much! I just saw the doc today and all is clear, had a PET scan the other week and that came back clear. Whew...I'm eating like I never had cancer or went through treatment, adding a bit more water to help chew and swallow but for the most part I think I'm at my new "normal". During my…
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Head Pain MRI completed today 12-20-10
Hi Everyone, I am amazed this passed week how the pain level has gone down in my head and now a bonus. I thought I was going to die a few days ago when some very thick mucus started forming in my mouth, so thick I could not swallow or wash it down, we could not figure out what was going on. The Eustachian tube that has…
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swallow test today
Had my second swallow test today and was able to swallow some water with very little aspiration. When i had my first test a few weeks ago i wasn't able to swallow anything. Since my first test i have been doing the Shaker exercise and maybe it is helping. I wasn't able to swallow the pudding they gave me today and told me…
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Caught a Cold
First cold I caught since my cancer, I was taken the new advil congestion and chest cough syrup to break up any mucus, using only the half of my throat, it was a really weak and raspy cough, now has gotten more pronouced and turned sore, I got 2 hours of sleep last night, I was afraid my airwave would close and I would…