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Parotid Tumor - What the heck are "Basal Cells"?
Just got the call from my surgeon's nurse that my biopsy was positive for malignancy two hours ago. Just found this site about 15 minutes ago. I have a 1.5 cm tumor on my Parotid gland. I have a Parotidectomy and Neck Dissection set for three weeks. (I can hardly wait. Yay!) All I know so far from what the nurse said on…
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Brain fog anyone?
Hi! I have been reading here since my 3rd of 35 rads. on tonsil cancer. I finished on Sept.3rd 2010. Thank you all for being here!! It is wonderful to know that there are people who relate to the pain, swallowing,spit,weight issues etc. Family, friends and Drs. can care and be helpful, but they truly don't 'know'. Which…
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My Year Is Almost Up
I am approaching my full year out of rads and chemo the 28th of this month, I wanted to let everyone know how cancer changed my life, physical and mentally, i wish we could meet, but i know we never will, but I kept on this board when things got tough for me and you all listened, as of today I still weigh in around 150,…
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NO C !!!!!!!!
Hi again to all, First, let me thank you all for your well wishes and prayers for my wife. Just got the pathology results and NO CANCER! She told me what they said it was but I don't remember anything she said after no c. Again thank you all so much! Best, Steve
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In the middle of the storm
Thanks to whoever is reading this. Any words on the subjects are appreciated. Olfactory Neuroblastoma diagnosed June 2010 after sinus surgery, sent to Dana Farber, 2nd surgery to remove more cancer Aug 20, 2010, healing now and waiting for Proton Radiation starting Oct 5, 2010. I have a few questions and I am looking for…
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I Lost My Husband Today
The battle is over and the beast thinks it won. No way. It took my husband's body today but it will never take his spirit or mine. Paul crossed over late this afternoon peacefully at the hospice center. His decline was so rapid it seemed like it was in the blink of an eye. We had such a great Christmas. A good memory. His…
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Prayer Request - UPDATE!!!
Hello again.... Big scan coming up tomorrow and results hopefully on Wednesday. I have finished four rounds of chemo and this will determine how well it's working.... And determine next steps. The doctors have talked to me about more of the same chemo, a clinical trial, or surgery and radiation. Maybe even sending away a…
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Found out friday
after getting new drs. that i have no evidence of diease. Just want you all to know I couldnt have done it without you, Thank You! Don
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Roller Coaster and Questions
Sorry I have not posted for a few days. I had surgery yesterday to remove the lump in my neck and my tonsils. The last few weeks have been blurry at best. My original biopsy was done Dec. 5, 2010 and the pathologic diagnosis was SCC (A typical squamous) and further testing should be done. I requested a 2nd opinion and had…
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New guy
Hello everyone, I'm Jason and this is my first time visiting this site. I'm a late bloomer here, seeing as I'm about 16 months post-treatment. I was diagnosed with squaumous cell tongue cancer in April of 2009 and finished my treatments (surgery, radiation, and chemo) in August of 2009. I am happy to say that I am now…
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Finished treatment
Yesterday was cause for celebration. Buzz received his last chemo and radiation treatments yesterday!!!!! It has been nearly 4 months although it seems like 6. When we started, I wondered if we could get through the treatment but reading posts on this forum gave me the confidence to soldier on. Buzz is 100% tube fed so the…
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rmkbrad?
Has anyone heard from Brad lately? He was having it rough last post and I've been wondering how he's doing. I sent a PM and haven't heard back. Bob
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Thryoid question, not what you would expect!
Does anyone have some experience after treatment with my situtation. I was diagnosed with stage 3 right tonsil, with lymp node involvment SCC. Had tonsils and 4 lymp nodes removed august 26, 2010. 2 of 4 nodes confirmed scc. FInished 33 rad treatments on November 10. Saw ENT 2 weeks after completion, and basically he said…
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klebsiella pneumoniae
David has this bacteria in his mouth, instead of thrush which we have been told it was for months now. This bacteria is normally found in the digestive tract, not the mouth? Chemo doc didn't understand or have any answers for us other than, brush and clean mouth better, said it is in the same family as ecoli? Has anyone…
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Amazing folks on this board!
You guys are ALL amazing folks. The support I have received from you all since diagnosis and throughout treatment was what sustained me. I could NOT have done this without you. And, I must say, the advice given below, to MWELLSG who was just diagnosed, is the best I have read so far. Keep up the good work, everyone! We…
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Tongue Cancer Patient / Saying Hello
Hello everyone! I (like many others I'm sure), found this website / forum while doing some research on my somewhat recent cancer diagnosis and treatment. I figured I would join and share my story, also to try and connect with other individuals that have or may be going through the same or a similar experience to mine.…
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HPV and throat cancer
I've tried to research this subject to get some answers with no luck. My hubby (Buzz) was diagnosed with BOT cancer in August. In 2001 he had R tonsil cancer with 2 nodes involved. He had a radical neck dissection on the right and tonsillectomy. This new cancer is a "new primary". Buzz is a non-smoker. The tumor was not…
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poor ventilation => npc
I am a one-year survivor of NPC (T2-N0-M0) cancer. I received concurrent radiation & chemo (Cisplatin) in May-June 09. About 3 months back (near my one year anniversary) I started to have nasal allergy type symptoms that I used to have for many years before cancer diagnosis and that had gotton worse toward the end when the…
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18 Month Check Up
The doctor was very pleased with my progress. He wants me to come back in 6 months. He says that will be about it for appointments (he looks so happy to see me). I still have some side effects but feel very blessed with the new normal. I have been out cross country skiing, out with our friends and working on my house. I…
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gastritis
Hi all, I am a 43 yr old 1.5 year Stage-2 NPC survivor. Had IMRT radiation + chemo. I started having acid reflux symptoms right around when my treatment started 1.5 yrs ago. I was put on Nexium and then Prilosec and they worked fine for a year or so. About 5 months back I started having acid reflux, heartburn, gas,…
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nerve block
Just came from the pain management specialist. Jim's pain has been uncontrolled using duragesic patches, hydrocodone and, recently, neurontin. The doctor wants to perform a superficial plexus nerve block. This follows his treatment for a hypopharyngeal tumor. Anyone have any experience with this?
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Feeding tube scare
Late Saturday night, I brought Ken his final meds for the evening in the syringe. He pulled up his shirt and went to get the end of the tube pulled up. When he pulls it up, I see this brown, rubber piece. For a moment, I thought it was a rubber band for your hair and I was wondering how that got mixed up under his shirt.…
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Okay, I'm really scared again.
Well, I joyously posted on here back in November that my PET/CT scan was clean after surgery/rads for Parotid salivary gland cancer. Today, I met with my surgeon for a check up. I mentioned that I had been having some neck pain and I found a small lump around my jaw line. This made me a bit nervous. My surgeon said he…
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ROLL CALL, January 2010
My apologies for not being on the board as often. We started this in August 2008. The purpose was to account for those who volunteered to be on Roll Call. Every six months, they were supposed to check in. You can just log in and state your presence. Update your status if there is a change. The below are the last status of…
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"Button" style Peg vs regular peg tube
Hubby, Buzz, is scheduled to have his peg changed on the 17th. His last radiation is January 10. He is 100% tube fed and it will take time (based on all of the posts) to return to normal eating. Would the button-style peg be better than the traditional one? Would like feedback from those of you who have or have had the…
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Clean is a wonderful word
I am completely petrified when the date of my appointment approaches then become eerily calm as I sit in the exam room. The doctors seem to be awe of their work. I know that I am incredibly blessed. I attribute the strength that I feel to the wonderful people on this site. I realize that the cancer can return. However, I…
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Thrush
David has this crap again! Has anyone else had thrush constantly since treatments finished? I know David's salavia glands in his mouth are gone andthat is probably the cause, just wondered if any of you has had a constant case of thrush. His just keeps coming back...?
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APPETITE
I am slowly able to eat more things by mouth, but find that my ability to eat allot in one sitting is just not there. Last night for dinner I was hungry and made myself a cheese omelet, but was only able to eat half of it and got full. I am still taking in 80-90% of my calories via my feeding tube, but I can take 900 ML of…
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I want to apologize
Hello to all, I want to apologize to you guys and gals for not showing continuous suport on this board. I just finish my treatments yesterday. The treatments really draged me in to this darkness I can't shake. My emotions are all over the board. I am putting my wife through hell and it's not fair to her. I am hoping with…
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Still Running the Race into 2011
As 2010 comes to an end and before us is a brand New Year 2011 I would like to encourage those of you who are still running the race and looking forward to the finish line. It is my hopes, my prayers and my wishes that each of you will find peace and healing as you continue through your treatments. Remember Cancer does…