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Apparently I have a bigger problem =/
I have been to 2 different docs now and confirmed that I have tongue and throat cancer...Gets better and better! This time the surgery is going to remove my whole tongue, and I must have chemo...Im going to take my chances and have the chemo first to see what kinda butt kicking that can lay down on this stuff before I have…
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Chefdaddy. (Mike)
I texted Mike today and he got back to me. He said,"tell everyone hi, and I miss them." He's really not up to posting but he does think of everyone. Please keep him in your prayers and or send good thoughts his way. He has several scans, and has appts with oral surgeon and pretty serious issues with his jaw bone, sinus…
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Truth serumn in Chemo?
Do you find yourself more to the point about stuff. "Lets cut to the chase attitude". Compelled to just blurt out truths? My Italian wife has for decades been making this spagetti sauce that was, "OK" but I always thought, "jar" tasted better. Recently one day while making a grocery list I just blurted out that I thought…
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Any Food ideas ?
Am 4 weeks into treatment for SCC, BOT, HPV+, 3 treatments of Cisplatin 3 weeks apart with 35 IMRT treatments. Right now I have no problem eating/swallowing but pretty much everything tastes absolutley horrible!! Would greatly appreciate any ideas/help on any food(s) that are at least somewhat palettable. So far have only…
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A little help on diagnosis please
I am obviously head and neck with tumor at base of tongue and two lymph nodes involved. Here is their little cryptic code: T2N2cM0 So I read that as T2: tumor is a stage (or is it size) 2 out of 4. N2c: both side lymph nodes involved, but what is the c M0: no metastasis Do I have it right? They say I am stage IVa - how…
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Meal Replacement Drinks/ Bodybuilding supplements
I have a plan for nutrition. I have been doing protein shakes for years (56 years old) from my weight-lifting. I will start my treatment 33 rad and 3 separate chemo on 2/2. I will use water, Whey protein (Pro Complex) mixed with a MRP called The Ultimate Meal (a powder that gives you all nutrients you can use. ) Actuall,…
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A smile and a hello from a not so newcomer =)
Hello everyone My name is Kelly i'm 31 years old and I have just discovered I am again facing the old friend named cancer...I say that because honestly It did make me a stronger person for the 5 years that I was cancer free...So I consider this a couple of bumps in my lifes road and will take them slowly and dodge what I…
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If Chemo leaves no cancer detected, why do radiation?
My wife Connie just finished 2 rounds of induction chemotherapy. She was suppose to do 3 rounds but due to many side effects after the 2nd round and a month long stay in the hospital, her chemo oncologist told her she would not be doing anymore chemo. When she was in the hospital her chemo doctor ordered a CT Scan and the…
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Wife wants to bail!
I've been diagnosed with squamous cell carsinoma of my throat, tongue and lymph node area on my left side. Treatment is to begin shortly but my wife does not want to stay with me for it. She says I have been selfish to her our whole relationship ( 40 years), including infidelity, which to some degree is true; so, now she…
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newly HPV-16 cancer patient needing advice
I am a 56 year old male. I have been diagnosed with HPV-16 cancer. I had a lump removed from my neck (attached to lymph-node) and now I am seeing the doctor for the treatment prescription (radiation and chemo.) I will be getting my treatment at the VCU Massey center in Richmond, VA. Does anyone have any experience with the…
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Finished Radiation Treatment for Tongue Cancer
I just wanted to write to say I finished my radiation treatment on Wednesday. I am feeling the effects a lot more now, but I am trying to stay positive. I posted here last month about my fears about radiation and how I was contemplating on stopping treatment. I want to thank all of you again for your advice, kind words and…
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I need advice for simulation & for radiation
1.My wife is going on monday 24 for simulation, as its called here, for Radiation. That includes measuremnts etc for her mask i assume. Is there anything we should do/ask/tell/request? 2. She will have Radiation for Hypopharynx cancer.SHe will have neck and throat Rad down to the aaesophagus. I would really like to have a…
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thyroid cystic lesion
I underwent my fifth CT scan post treatment yesterday and got the results today. I have some lung spots and those have remained unchanged now for over a year. The latest chink in the armour though is a "partially cystic lesion" 7X17mm of the thyroid. The report classifies it as stable and on comparison to last report…
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Checking In
Hi all: Basketcase checking in here! Hope all is well. My best friend in coming down tomorrow morning and we're going to NC for a few days. Today is 5 months since Charlie passed away. As I said earlier, I've been more emotional since Christmas but I feel that is to be expected. And also, I told y'all about the life ins.…
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trouble swallowing
Hi everyone, I have a quick question. My dad is 7 monthes out of treatment and at times still has trouble with food getting stuck in his throat. He also still has some of the mucus issues. At times he says his throat feels swollen in the morning and then better by evening. Most of the time his trouble is when he first gets…
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High blood sugar
Can anyone shed any light on this? A bit of background. Before cancer I had packed on the weight by eating/drinking too much and exercising too little. (Little did I know that excess weight would soon be a good thing!) I weighed over 190 pounds when I should have been more like 160. After I had my first of three rounds of…
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How long till my hubby gets feeling better
My husband just finished treatment for SCC BOT with 2 nodes on each side of neck. He had 7 weeks of cisplatin and 35 radiation treatments. He has lost 40# and will only use Ensure in his peg tube. He thinks adding anything else will either make him throw up or plug up his tube. I have read on here that some of you have…
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Cancer Wars 3-Return Of The Carcinoma
I had surgery scheduled for the 21st, but they moved up the date and I had it today. I'm sitting here sore and a bit foggy, but I wanted to let you all know what happened. The small lump I found in my neck by my cheekbone turned out to be malignant and was the same type of cancer as the original that attacked my Parotid…
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Moffit Center .. Florida .. Anyone been there ???
Any information about experience .. Good or Bad, Please help. Thank You, Strength and Courage, Vicki Sam
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Looking for advice
I just saw my doctor and now know I have squamous cell cancer that has metastasized to lymph nodes on both sides of my neck, but thankfully has not gone anywhere else. Surgery tomorrow to confirm that the primary is at the base of my tongue. But nothing is going to be cut out. Some questions: Doc says 6 weeks of daily…
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MD Anderson Tomorrow
Hi Everyone Appointment at MD Anderson tomorrow to see another new ENT about this Mastoid Infection I have been fighting for the passed 7 months, just hope I can finally get some help with it this time. I have been having a lot of side affects and not sure if it is from the Radiation treatment or from the infection. Most…
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High blood sugar
Can anyone shed any light on this? A bit of background. Before cancer I had packed on the weight by eating/drinking too much and exercising too little. (Little did I know that excess weight would soon be a good thing!) I weighed over 190 pounds when I should have been more like 160. After I had my first of three rounds of…
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Being Brave and sporting the short do'
Sooo I've been wearing wigs a while, but I decided to be brave and start wearing the short hair to work. What do y'all think? I kind of feel funny, and my boss keeps calling me Ellen, which I think Ellen is pretty.. but he doesn't seem like it's supposed to be a compliment LOL..
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Nothing to do with Cancer
I had a UTI a couple weeks back, had an allergic reaction to macrobid antibiotic ended up in ER. They did a ct and said they felt it was kidney infection. Finished a stronger antibiotic a little over a week ago. Ever since then I am having pain in my lower back and it runs down both thighs to my knees, if I set on the john…
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Finished with Radiation!
Finished with Radiation! Last tuesday was my last day. It still really hurts to eat, it feels like my tongue is ripping apart, especially when I yawn. Horrible, but soon it will be better! Looking forward to pain free days. Visited with my oncologist at UCSF have to see him every two months for now, PET scan in four months…
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33 MISSING FROM ROLL CALL.
The list below shows those who had enrolled and had not checked back in. We do pray that they are still with us and wish them the best as we all continue with our lives. We hope that they will check back in this year, 2011. Bughunter, Tennessee, Stage IV tonsilar, last treated 03/28/2007, Home St: Michigan, enrolled August…
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New Here
I have been reading the discussion boards since Nov. when my husband was first diagnosed with SCC to tongue with tumors on both sides of his neck. It has been so helpful to read all of the posts and have found answers to most all of my questions but I now have one that I havent seen yet. My Hubby has had 7 Chemo treatments…
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Aches, Pains & Concerns ~ Which MD to Call
It seems this comes up a lot...and I know that I've had these same concerns and questions. At what point (and if the concerns are going on in an area that was treated), do you feel comfortable seeing your GM or PCP? I know that I have had, and still continue to have various aches, pains & concerns with swollen glands, an…
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Lymph nodes taken out and swelling happens.Possibly for life.
Hi I am new at this site and am looking for someone who is experiencing the same as I am. Feb.8,2010 I had 25 lymph nodes taken out of the left side of my neck. I then had 30 days radiation. That took care of my saliva gland on that side. Also affected the bones under my teeth. So not to get cavities or have extractions I…
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shoulder and neck pains after all cancer treatments are done
Hi Guys back of last april I had surgery done to remove one lymph node on the right side of the neck and the surgery was done by my ENT doctor and now after the cancer treatments are done I am having major pains in the right side shoulder and my neck hurts. My question is what doctor should I ask about this pain should I…