Neurologist Nurse called - Low/No Vitamin D in his body.

arndog64
arndog64 Member Posts: 537
in Head and Neck Cancer #1
The nurse called the house yesterday and told my husband he has no vitamin d in his body and he needs to go out and get some and take immediately. Not sure why his vitamin d levels would be low. He gets out of the house everday.

Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
    Blood Work....
    The chemo, rads, meds, etc....all hammer the body.

    I went in to treatment with all of my blood work in normal ranges....perfect health (other than having had cancer, LOL)....

    It took nearly a year for all of my blood work to return to normal again....

    Now I'm just abi-normal mentally...LOL, with a few select others of the Ab-Normal Clan....and you know who you are...


    ....))(....
    ...(ړײ)...
    ...«▓»....
    J..╝╚...G
  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    #3
    Very common problem
    Pale skin. Winter. Not enough sun on sun-covered skin, etc etc. You can read all about it on the internet. Not certain how this relates to ataxia. Did they comment on that?
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #4
    same
    i found out the same about 9 months ago. my vitamin d was nasty low. my numbers were so low i had a huge risk of heart attach and stroke.

    they gave me a script for the first month with extreme 50,000 units per day. then i was told to use d3 over the counter 3000 units per day. what a wonderful help this was for me and slowly continues yet to see some differences.

    personally if it is that low i would call them back to see if they think a script for a month would help get your counts turned around going in the right direction.

    by the way i try to find on the days when the sun is out without clouds to be out in it as many have told me it helps stimulate the vitamin d to activate. not sure this is true but still does not hurt your system

    good luck getting his numbers up quickly.

    john
  • arndog64
    arndog64 Member Posts: 537
    #5
    fisrpotpe said:

    same
    i found out the same about 9 months ago. my vitamin d was nasty low. my numbers were so low i had a huge risk of heart attach and stroke.

    they gave me a script for the first month with extreme 50,000 units per day. then i was told to use d3 over the counter 3000 units per day. what a wonderful help this was for me and slowly continues yet to see some differences.

    personally if it is that low i would call them back to see if they think a script for a month would help get your counts turned around going in the right direction.

    by the way i try to find on the days when the sun is out without clouds to be out in it as many have told me it helps stimulate the vitamin d to activate. not sure this is true but still does not hurt your system

    good luck getting his numbers up quickly.

    john

    Just kinda on the worried
    Just kinda on the worried side. I read low levels of vitamin d can be signs of cancer.
    He is just so skinny, memory loss, neuropathy, Ataxia and his personality has changed some. I guess this is the new normal, but right know my husband is just a shell of his former self. I am not trying to sound ugly, he has even made that reference. I love him with all my heart. Just wish things would get betterfor my man, healthwise. Thanks all for your concern and support. What would I do without you all calming my fears.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #6
    arndog64 said:

    Just kinda on the worried
    Just kinda on the worried side. I read low levels of vitamin d can be signs of cancer.
    He is just so skinny, memory loss, neuropathy, Ataxia and his personality has changed some. I guess this is the new normal, but right know my husband is just a shell of his former self. I am not trying to sound ugly, he has even made that reference. I love him with all my heart. Just wish things would get betterfor my man, healthwise. Thanks all for your concern and support. What would I do without you all calming my fears.

    Takes Time...
    It really does take time to recover..., months and even years for some things.

    He was hit hard, so it stands to reason, it's going to take awhile...some things may not be the same, hopefully many will return.

    JG
  • osmotar
    osmotar Member Posts: 1,006
    #7
    Vitamin D
    I take 3 gummie vitamin D's aday , each one being 1000 IU. My neice checked with her trainer when I started my rad treatments and he recommneded taking the D, he said at 2 would be ok, but 3 would be better.

    Best wishes

    Linda
  • arndog64
    arndog64 Member Posts: 537
    #8
    Skiffin16 said:

    Takes Time...
    It really does take time to recover..., months and even years for some things.

    He was hit hard, so it stands to reason, it's going to take awhile...some things may not be the same, hopefully many will return.

    JG

    You are right!!! Time... I
    You are right!!! Time... I read how people are doing so well and we are 9 months out and he has been just idling on.. I guess we need another good year under our belt.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #9
    arndog64 said:

    You are right!!! Time... I
    You are right!!! Time... I read how people are doing so well and we are 9 months out and he has been just idling on.. I guess we need another good year under our belt.

    Just Sayin....
    I mean time does tend to work in your favorr as for long slow recovery....

    But be as you are with concerns and don't just blow things off either... It's a fine line we walk these days...

    JG
  • hdwchisholm
    hdwchisholm Member Posts: 20
    #10
    arndog64 said:

    You are right!!! Time... I
    You are right!!! Time... I read how people are doing so well and we are 9 months out and he has been just idling on.. I guess we need another good year under our belt.

    time
    I am 8 months from first treatment and 6 1/2 months from last treatment. Still have occasional ringing in ears, lost thoughts from chemo brain [maybe], neuropathy in hands and feet. All of this is getting better from vitamin d to yoga to accupuncture. Sometimes it feels that you have to work hard at concentrating. Sometimes it is frustrating. At times, I forget how to smile and then do something to make a smile. Sometimes I get emotional [like I want to cry] for no apparent reason. When I get down, I listen to Laugh USA or Blue Collar Comedy on my XM Sirius radio. The laughing helps a lot. There are hurdles and ups and downs. Long hugs with my wife help a lot. Keep positive and smile, Homer
  • jim and i
    jim and i Member Posts: 1,788 Member
    #11
    osmotar said:

    Vitamin D
    I take 3 gummie vitamin D's aday , each one being 1000 IU. My neice checked with her trainer when I started my rad treatments and he recommneded taking the D, he said at 2 would be ok, but 3 would be better.

    Best wishes

    Linda

    caution
    Be careful how much D you take because if you take too much it is toxic.
    I would only take what my doctor recommends. not a trainer. Trainers are not medical doctors.

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