Hello to my fellow NPC cancer survivors

CherriBlossom
CherriBlossom Member Posts: 44 Member
in Head and Neck Cancer #1
I have seen quite a few posts from survivors that were diagnosed with NPC last year. I am just curious to know how's everybody doing so far since I was diagnosed with stage IV last summer also. My first post treatment PET and MRI are clear, hope all of you are getting the same result!

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  • CherriBlossom
    CherriBlossom Member Posts: 44 Member
    #2
    Hello to my fellow NPC cancer survivors
    I have seen quite a few posts from survivors that were diagnosed with NPC last year. I am just curious to know how's everybody doing so far since I was diagnosed with stage IV last summer also. My first post treatment PET and MRI are clear, hope all of you are getting the same result!
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #3
    CherriBlossom said:

    Hello to my fellow NPC cancer survivors
    I have seen quite a few posts from survivors that were diagnosed with NPC last year. I am just curious to know how's everybody doing so far since I was diagnosed with stage IV last summer also. My first post treatment PET and MRI are clear, hope all of you are getting the same result!

    NPC
    My last rad was in early-April 09, so my 3-year PS/CT is about to happen. All have come back clean so far, and do think there's a reasonable chance this next one will too!

    kcass
  • Hondo
    Hondo Member Posts: 6,636 Member
    #4
    CherriBlossom said:

    Hello to my fellow NPC cancer survivors
    I have seen quite a few posts from survivors that were diagnosed with NPC last year. I am just curious to know how's everybody doing so far since I was diagnosed with stage IV last summer also. My first post treatment PET and MRI are clear, hope all of you are getting the same result!

    Hi Blossom
    I make my 10 years from the first treatment in 2002. Hard to believe its been that long and I am still here and doing well.

    All the best to you my friend
    Hondo
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #5
    CherriBlossom said:

    Hello to my fellow NPC cancer survivors
    I have seen quite a few posts from survivors that were diagnosed with NPC last year. I am just curious to know how's everybody doing so far since I was diagnosed with stage IV last summer also. My first post treatment PET and MRI are clear, hope all of you are getting the same result!

    Clear
    congrats on clear and making it one year that is nice.

    i do continue to be clear of that nasty stuff.

    keep the great news coming

    john
  • aprilshower55
    aprilshower55 Member Posts: 31
    #6
    hello, scans are clean
    cherriblossom
    thanks for your information on xylimelts. new on this csn not sure how all this works. sorry if repeating information. i was diagnosed jun 2011. my pet.ct and mri came back
    clean. only show sinusitis. my nasal always congested do you this problem? will let you
    know once i tried xylimelts my results. happy for all with your results.
  • CherriBlossom
    CherriBlossom Member Posts: 44 Member
    #7
    aprilshower55 said:

    hello, scans are clean
    cherriblossom
    thanks for your information on xylimelts. new on this csn not sure how all this works. sorry if repeating information. i was diagnosed jun 2011. my pet.ct and mri came back
    clean. only show sinusitis. my nasal always congested do you this problem? will let you
    know once i tried xylimelts my results. happy for all with your results.

    I was diagnosed about the
    I was diagnosed about the same time as you, what was your stage? I never had any nasal congestion problem post treatment but I do have runny noise when I go out especially when it is cold. I hope things will get back to normal or close to normal soon.
  • aprilshower55
    aprilshower55 Member Posts: 31
    #8
    CherriBlossom said:

    I was diagnosed about the
    I was diagnosed about the same time as you, what was your stage? I never had any nasal congestion problem post treatment but I do have runny noise when I go out especially when it is cold. I hope things will get back to normal or close to normal soon.

    stage 3 npc
    cherriblossom,
    what other post treatment problems do you have now? my ent says because of rad treatment my nasal area is dry and easily have sinus infections but i too have running nose with mucus. when i sleep i get nasal congestion. how is your eating? are you almost eating like you used to? i find i have no appetite and most food is hard to swallow. i take the short cut just drinking my ensure plus to get my calories. i hope things will get back to normal.

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