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20 Months and NED

Jimbo55
Jimbo55 CSN Member Posts: 590
in Head and Neck Cancer #1
Had a PET/CT scan today and the results are in...NED. That makes 20 months from the end of treatment and I feel fine. Cheers.

Jimbo
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Comments

  • fisrpotpe
    fisrpotpe CSN Member Posts: 1,349 Member
    #2
    you time
    congrats! time for you to dance dance.

    john
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  • arndog64
    arndog64 CSN Member Posts: 537
    #3
    fisrpotpe said:

    you time
    congrats! time for you to dance dance.

    john

    Congrats to you.. I love
    Congrats to you.. I love hearing NED..
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  • CLRRN
    CLRRN CSN Member Posts: 127
    #4
    Yiiippppeeee
    Happy Dance....Happy Dance.....congrats on the great news.
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  • jim and i
    jim and i CSN Member Posts: 1,788 Member
    #5
    Hurray
    Praising God for great results.

    Debbie
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  • luv4lacrosse
    luv4lacrosse CSN Member Posts: 1,410 Member
    #6
    GREAT NEWS JIM
    What a way to start a Monday.

    Very happy for you.

    Mike
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  • Irishgypsie
    Irishgypsie CSN Member Posts: 333
    #7
    luv4lacrosse said:

    GREAT NEWS JIM
    What a way to start a Monday.

    Very happy for you.

    Mike

    :)
    Good News!!!!!!!!!!!!!!

    Charles
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  • Skiffin16
    Skiffin16 CSN Member Posts: 8,305 Member
    #8
    I Feel Fine....
    I'm in love with her and I feel fine

    Congrats,
    John
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  • adventurebob
    adventurebob CSN Member Posts: 691 Member
    #9
    !!!!!
    Congratulations Jimbo! Great news to read today. Thanks for spreading your happiness around.

    AB
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  • Sue22
    Sue22 CSN Member Posts: 99
    #10
    adventurebob said:

    !!!!!
    Congratulations Jimbo! Great news to read today. Thanks for spreading your happiness around.

    AB

    New
    Super.........congratulations. Awesome news. Sue
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  • Jimbo55
    Jimbo55 CSN Member Posts: 590
    #11
    Skiffin16 said:

    I Feel Fine....
    I'm in love with her and I feel fine

    Congrats,
    John

    Ding ding ding ding ding, we
    Ding ding ding ding ding, we have a winner! Yes John, exactly the song that was in my head when I wrote that. Cheers.

    Jimbo
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  • tommyodavey
    tommyodavey CSN Member Posts: 729 Member
    #12
    Sue22 said:

    New
    Super.........congratulations. Awesome news. Sue

    NED
    With all that we experience here it is so great to hear the good news. The more NED's we see the more faith we get for ourselves.

    Congrats,

    Tommy
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  • BrianKrashpad
    BrianKrashpad CSN Member Posts: 188
    #13
    Congrats!
    Bosstastic!
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  • phrannie51
    phrannie51 CSN Member Posts: 4,716
    #14
    The perfect day!!
    ...and I think you had it today :)...congratulations!

    p
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  • Mikemetz
    Mikemetz CSN Member Posts: 465 Member
    #15
    Congrats, and a question about the NED clock
    Congrats on your 20-month NED scans--ALWAYS good news to hear on this site. I have my next scan coming up in April, which raises a question that my docs have not been clear to answer. When does the NED "clock" start? At first I went by my first NED scan date, but my onc doc says he considers it to be the date when treatments started (and presuming NED scans since then). Because of a false positive on my very first post-treatment scan, it was several months after treatment started before I got my first conclusive NED scan results. So, in my head I'm a bit less than 2.5 years NED, but my doc calls it three years (rads and chemo started in March 2009). I know that what really matters is that I'm NED on my latest scan, but my wife and I like to acknowledge and celebrate these kinds of anniversaries in our lives, and it would be nice to do that with some better accuracy.
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  • Jimbo55
    Jimbo55 CSN Member Posts: 590
    #16
    Mikemetz said:

    Congrats, and a question about the NED clock
    Congrats on your 20-month NED scans--ALWAYS good news to hear on this site. I have my next scan coming up in April, which raises a question that my docs have not been clear to answer. When does the NED "clock" start? At first I went by my first NED scan date, but my onc doc says he considers it to be the date when treatments started (and presuming NED scans since then). Because of a false positive on my very first post-treatment scan, it was several months after treatment started before I got my first conclusive NED scan results. So, in my head I'm a bit less than 2.5 years NED, but my doc calls it three years (rads and chemo started in March 2009). I know that what really matters is that I'm NED on my latest scan, but my wife and I like to acknowledge and celebrate these kinds of anniversaries in our lives, and it would be nice to do that with some better accuracy.

    NED Clock
    Mike,

    I'm in the same boat as you, false positives on my first 2 scans. I consider the day I was walking on sunshine after hearing the NED pronouncement the very first time to be my NED anniversary. Cheers.

    Jimbo
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  • sonyk728
    sonyk728 CSN Member Posts: 124
    #17
    So Happy for you Jimbo!
    'nuff said!
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  • Tonsil Dad
    Tonsil Dad CSN Member Posts: 488
    #18
    sonyk728 said:

    So Happy for you Jimbo!
    'nuff said!

    MANY MORE!!!!!!
    Congratulations Jimbo,
    Always makes good posting when we hear - NED-
    May many more NED's come your way in the future.

    God Bless,
    Tonsil Dad.

    Dan.
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  • shoeloy
    shoeloy CSN Member Posts: 70
    #19
    NED
    NED is always good....congrats.
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  • Mikemetz
    Mikemetz CSN Member Posts: 465 Member
    #20
    Jimbo55 said:

    NED Clock
    Mike,

    I'm in the same boat as you, false positives on my first 2 scans. I consider the day I was walking on sunshine after hearing the NED pronouncement the very first time to be my NED anniversary. Cheers.

    Jimbo

    Conservative NED clock, too
    Jimbo,

    Like you, I use the more conservative NED anniversary as the day I got my first truly clean scan result. That takes me longer to get to the "magic" 5-year date than my doc uses, but that's OK--I want to be as confident as I can when that day arrives. I know that there is no guarantee at five years, either, but there is no use in falsely hurrying that date to come around.
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  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #21
    Hi Jimbo
    This maybe a little late but I will do the dance for you anyway my firend.

    Thanks for the good news, God bless you my friend
    Hondo
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