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NPC NED

CherriBlossom
CherriBlossom CSN Member Posts: 44 Member
in Head and Neck Cancer #1
I had my 2nd post treatment MRI and PET done last week and the result for both scans are clear! Very happy and wanted to sure the good news with my fellow survivers. Doc changed my MRI schedule from every 4 to 6 months now. From what I read most people get scanned every 3 to 4 months during the first 2 year post treatment. should I demand more scans?
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Comments

  • Mrs. Sarge
    Mrs. Sarge CSN Member Posts: 206 Member
    #2
    Great News!!
    So happy for you, Cherrie!!! It's a cloud that hangs over us all I guess forever, sometimes greater than others, but always there....NED is wonderful!!!!!!
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  • fisrpotpe
    fisrpotpe CSN Member Posts: 1,349 Member
    #3
    Great
    Congrats on getting wonderful results! Time to celebrate

    john
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  • Tonsil Dad
    Tonsil Dad CSN Member Posts: 488
    #4
    fisrpotpe said:

    Great
    Congrats on getting wonderful results! Time to celebrate

    john

    Congrats!!!!
    On your NED, as I've said on this board many times before...they are the best
    three letters we all love to hear.
    May you have a lifetime filled with NED.

    God Bless
    Tonsil Dad,

    Dan.
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  • Skiffin16
    Skiffin16 CSN Member Posts: 8,305 Member
    #5
    Congrats...
    I wouldn't worry so much concerning scan frequency... If you have a good ENT, more than likely he's going to want to scope you every eight weeks or so the first year.

    My Chemo MD scheduled CT's every 3-4 months the first year or so (and an annual PET). Then moving it out to a CT at six months, then a PET at six months...two scans a year starting year two.

    Best,
    John
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  • ooo
    ooo CSN Member Posts: 105
    #6
    :)

    :)
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  • Pam M
    Pam M CSN Member Posts: 2,196
    #7
    More Great News!
    Here's to nothing but clean scans from now on!
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  • Laralyn
    Laralyn CSN Member Posts: 532
    #8
    Pam M said:

    More Great News!
    Here's to nothing but clean scans from now on!

    Great news!
    Congratulations!
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  • aluo1271
    aluo1271 CSN Member Posts: 25
    #9
    Great News, Congratulations!
    I take it as confidence from the doctor. If you really are concerned about scan interval too long, why not bring it up and discuss with your doctor? I am sure he/she has good reasons.
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  • Greg53
    Greg53 CSN Member Posts: 849
    #10
    aluo1271 said:

    Great News, Congratulations!
    I take it as confidence from the doctor. If you really are concerned about scan interval too long, why not bring it up and discuss with your doctor? I am sure he/she has good reasons.

    Congrats!!
    Great to hear good news! Enjoy !!
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  • phrannie51
    phrannie51 CSN Member Posts: 4,716
    #11
    aluo1271 said:

    Great News, Congratulations!
    I take it as confidence from the doctor. If you really are concerned about scan interval too long, why not bring it up and discuss with your doctor? I am sure he/she has good reasons.

    Yeeeeaaaaahhhh!!!
    Are there any finer words?? Congratulations and many more :-)!!

    p
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  • Kent Cass
    Kent Cass CSN Member Posts: 1,898 Member
    #12
    Scans
    Congratulations- another NPC success.

    Not sure about the 3-4 month thing for the first two years. My first PS/CT was at 3-months to establish baseline, then 8 months later, and after that it's only been one/year. And, I've never had an MRI. At my suggestion, I do now get CTs at 6-months, between the yearly PS/CT. Would think the 3-4 month frequency is a bit extreme if your scans are coming back clean and without anything suspicious.

    kcass
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  • NeoTheron91
    NeoTheron91 CSN Member Posts: 75
    #13
    Great news
    ......... N E D ......

    Great news for all of us whoever got NED.

    Cheers,
    Neo
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  • Tim6003
    Tim6003 CSN Member Posts: 1,514 Member
    #14
    NeoTheron91 said:

    Great news
    ......... N E D ......

    Great news for all of us whoever got NED.

    Cheers,
    Neo

    GREAT NEWS
    Congrats ...I ma very happy for you and many more to come!!!!!

    Tim
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  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #15
    Hi Cherri
    I am very happy for you and the NED report on your NPC, keep on doing what you are doing. After my first treatment I did not get a PET scanned for the first year, not sure why, I think the doctor forget. After that I had MRI’s & PET every 6 months. I hope that helps.

    God bless
    Hondo
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