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Ballooning ankles
A couple weeks ago, my Doctor put me on liquid nystatin to get rid of thrush. This morning my ankles are swollen up 2x their normal size....anyone else had this side affect? It's the only new medication I'm on , butttt, I also discovered, even without an epiglottis, ice cream still taste yummy, could I be eating too much…
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Getting Some Sleep with Dry Mouth
I'm at my wits end (and completely exhausted) from dry mouth. I've changed medication--to Evoxac, which I really like--and have tried xylimelts. I have a cold-misting humidifier by my bed. But I still wake up every 1.5 hours with a parched mouth and soon my tongue starts to hurt. Ambien usually helps me fall asleep, but…
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So apparently it's not thrush, I 'm confused
My tongue turned white on Saturday and became very tender, it feels like I have sandpaper in my mouth. I called the on call Dr on Sunday and he said I probably had thrush. He called in some liquid nystatin for me. Nothing about the appearance of my tongue has changed since then. I met with my RO this morning and he said it…
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Radiation for Head and Neck Cancers Often Result in Hypothyroidism
This is some good information to share with you all. My radiation oncologist had told me that I had a 20% chance of having my thyroid destroyed from the radiation treatments. After 2-3 months post treatments, my blood count revealed I did have hypothyroidism and I am now taking 75mcg of levothyroid daily for the rest of my…
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What do you do?
I have no idea if this has been covered or if anyone even cares but I find myself frequently wondering what people do or did for a living. When I first meet someone in person that subject usually comes up very early on in the conversation because people want to find a common ground. Obviously those of us on this forum…
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My voice is cracking and fadeing? Tongue burns / has ulcers?
Hi all. I got the ALL CLEAR on my PET / CT Scan Monday (that was my first scan since completing treatments Janaury 20th 2012) and my ENT scoped me two days later and did the finger down the throat thing ....also reviewed me scans and too said I was all clear ... ...so why in the last week has my voice gotten weaker. It…
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Heading into week 5
I admit it: I didn't post much yesterday because I was moping around a little. I don't do that often, and today in retrospect it feels silly... but I know I need to cut myself some slack and not expect myself to be perfect, right? :-) I'm still aware of the fact that I'm doing well for someone rounding the corner into week…
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Spam ......
I think someone is spamming the forum, promoting there knockoff chinese merchendise qq123456 and linxi Tonsil Dad. Dan.
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Joint Pain from Chemo?
I am almost 6 months out of treatment and occasionally I feel some pain in my ankles and wrists. Anybody has the same experience? Does it go away or does it get worst?
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Tongue cancer recovery
I had cancer on my tongue and had it along with a lymph mode removed followed byn7 weeks of treatment. I have been done with my radiation and chemo treatments for three months now. The treatments took a toll and I have lost 49 lbs from a frame of 188 at the start. My problem is that I cannot get the pain in my mouth to go…
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Happy Happy Mother's Day! and Happy Anniversary to Me!
Today is the two-year anniversary of the completion of my treatment! (Stage 4 T1N2c BOT for you newbies out there) Two amazing wonderful years that I have been able to spend with my two beautiful daughters and my loving husband. If I didn't have another day, it still would have been so totally worth the effort! I am so…
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Hairy Tongue, got any cures?
Help I've got a bad case of; Hairy Tongue. My Doc's last advice was for me to ask my dentist. Does anyone have any advice for me or better yet how to get rid of it? I'm scraping and brushing it but it does not seem to be doing any good.
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Welcome to the party, Thrush!
My tongue started feeling "tingly" yesterday afternoon and when I went to do my now very involved dental hygiene routine last night my tongue was completely white. What the heck!?! I'm only 9 treatments in. I got in touch with the on call doctor where I'm being treated and he's calling in a couple scripts for me. Does this…
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Neck and shoulder problems 9 month after surgery
Hi everyone I have posted on this sight a few times.I can say that there is a lot of good supporting peaple on this sight.I have read many of your post and they have been real helpful. In March 2011 when I was Dianose,a general surgeon removed a lump from the left side of my neck and sent it out for a biospy.The first…
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TEETH BEING EXTRACTED!
hi everybody my name is Matt I'm 29 years old, tomorrow i have to get 20 teeth extracted and a chemo port put in i think this is going to make my treatment a lot harder to deal with and having no teeth will be a big confident and emotional issue for me please give me some words of encouragement the closer it gets the more…
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PEG tube and paper tape allergies
I wanted to post this in case it's helpful for anyone doing a search later who might benefit from this information. Maybe it's worthy of the superthread? :-) I have a wicked paper tape allergy on my thinner skin areas (like inner arms, stomach, etc.) which never really came to light until I got my PEG tube. Sure, I used to…
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So......week three is history....
it's Friday night, and I don't have to go for amifostine or rads tomorrow...whoo hoo!! I'm tired, but other than that, I feel pretty darn good. No sore throat....yet. I'm eating whatever I want to eat...plus backing things up with liquid nutrition. My taste buds started to change today...I remember the actual moment...LOL.…
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NPC NED
I had my 2nd post treatment MRI and PET done last week and the result for both scans are clear! Very happy and wanted to sure the good news with my fellow survivers. Doc changed my MRI schedule from every 4 to 6 months now. From what I read most people get scanned every 3 to 4 months during the first 2 year post treatment.…
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2wks out from radiation.
It's official I'm 2 wks out from my last radiation. Still very difficult. I'll have a good day then a not so good day. I'm not getting no where near the calories I shld be getting and that concerns me. I rarely eat or drink I take advantage of the times that I can eat lately there hasn't been any. Every time I eat or drink…
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Frank10g Passed Away
I am not sure how many of you remember Frank he joined CSN back on January 2010 and had just finished treatment with NPC. He had a second recurring of NPC about 10 months later that went into the ear and was undergoing treatment for it. I am sorry to say his Wife Natalie’s has just informed Scambuster and me that he passed…
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Just curious!!!!
How where you over 7 months out? My husband is over 7 months out. He has not returned to work. I will list his issues below and I am open to any feedback/suggestions. I know it takes a long time to heal. I am just worried he is not progressing much. 1. Weight issues, he weighs 129 - 132 on a good day. If he is having a bad…
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One little thing that I'm patting myself on the back....
Today was weigh in day at radiation, and I gained 3 lbs!! Yes I did...LOL....I've been eating all I want, but in the last few days have supplemented with the tube...and it works! Laralyn, I got my case of Instant Breakfast stuff......the 560 calories per 8 oz...will start using that tomorrow for even more calories. p
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I'm trying really hard here
But I'm wondering if it's time for a feeding tube :* (. I only have one more week of treatment, but then a few weeks of healing and I can barely get down sips of water. Even ensure/boost is brutal....I've even tried it in popsicle form. I'm overweight, so I do have some weight I can stand to lose, but I'm more concerned…
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Clear Pet Scan
All glory to God...I had my full body scan yesterday and will mark year since my diagnosis on May 13 and I got an all clear.I want to thank each one of you for your prayers and the constant support you give to me and everyone here on this site. Just knowing that someone understands how you feel because they have been where…
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mouth tray during radiation
It is an old topic but a good idea. Since there are several of us starting or just started radiation treatment, I think it would be useful. http://csn.cancer.org/node/209200 I will ask my radiation onc whether I could put it on during radiation. See my problem is that I didn't have it put on during simulation and mask…
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I may have to switch Oncologists....
I'm so upset. Before I started treatment, I went to our HR person at work, to see if I could go to the one who gave amifostine. The HR gal talked to both the insurance company and to the Oncologists office manager, came back to me and said it's good to go...so I've been going everyday for 3 weeks for amifostine, and have…
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Feeding Tube?
Hey folks, I know we have a super thread on the feeding tube, and I have read it and hundreds of comments on it since being diagnosed. I think the feeding tube may create more of a problem than a solution based on my circumstance its physical. That said I know some Skiffin and others that did not use a feed tube, and some…
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FEELING REALLY DEPRESSED
hi my name is Matt and i'm getting ready to go through treatment for head and neck cancer HPV positive tonsil cancer stage 4 level A they are proposing chemo and radiation that will be starting here and the next couple of weeks on top of that at 29 years old i have to have my teeth extracted on Monday yes my teeth aren't…
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21 days of fever and finally admitted to the hospital
Well they finally admitted my husband yesterday. He went to see his GP and he did the echo and said regardless of the results he was admitting him into the hospital, saying that he was worried. Symptons as of today: Neck Tenderness Tightnesss of the spinal cord severe fatigue fever up to 102 in the am & pm night sweats The…
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Those little sponges they have in the hospital....
...the ones you soak in water, and then can suck for moisture. Can a person buy those? They sure would come in handy... p