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Head and Neck Cancer

Good Article on Depression!!!
I was was never suicidal; but did and still do battle depression. I thought this article on the oral cancer foundation web-site was interesting!! http://oralcancernews.org/wp/suicide-rates-among-oral-cancer-patients-on-the-rise/ Charles
Ditto 1 or Ditto 2
Just checking up on ya'll.....I may have missed a post but I haven't seen ya'll on the boards, please let us know how you're doing.
has anyone had more than 70% of your tongue removed and reconstructed?
Hi, has anyone had more than 70% of your tongue removed and reconstructed? My hubby is going for the surgery very soon. A huge portion of his tongue will be removed and reconstructed. We were told speech will be badly affected and taste bud gone forever as well as swallowing problem. however, there will be speech and…
Sun, sun screen..large hat suggestion?
I have finished 8 radiations and skin is okay so far. I do know that sun is not good for skin right now as it is going thru radtiation. Was wondering if okay to go out wiht lot fo sun screen put on every 2 hours? Also any suggestions for one of those really large hats? Thanks, Sam
The truck finally stopped backing up over me!
Sorry I've been absent for a couple days. I ended up being hospitalized Sunday evening, and just got out yesterday. I went in when I threw up on Sunday and it was mostly blood. They kept me for four nights to try to stop the nausea and get some control over the pain. It seems like my body decided to hold all of the side…
Good book for us
with HNC by a Dr. who contracted it himself. This tells his journey, the highs and the lows and where he is now. I told my rad onc about it and hopefully he reads it but its so informative for all of us. I got it for my Nook for $8.99. It's certainly worth it. I don't know how long it's been published so you might can get…
100 cans(4 cs) Jevity 1.5 nutrition supplement free
i have 2 cs Jevity,and perhaps 1 extra cs of Osmolite to someone who can use it..Osmolite only if my oral intake doesnt relapse..but looks good to discontinue my PEG soon..let me know if you can use it..glennreid@charter.net
Nasopharynx Cancer and Diet
Hello everyone! I'm new here. I have NPC and found this forum through google. I'm hoping to connect with others who have NPC. I was diagnosed about 7.5 years ago when I was 18. I am an Asian female born in Canada and grew up in Canada. The disease has spread from my nasal cavity to the lymph nodes in my neck and eventually…
Shocked
Hello everybody. Was admitted to the hospital for upper body pains last night, I did have a quad bypass 4 years ago and knew something was wrong. My EKG was not normal so I am waiting to see what tests they will run tomorrow, I know of a stress test. But then came the shattering news after they did a cat scan, a tumor…
Peg tube infection
Andy and I are suspicious that he has an infection. Some redness, some puss. Blister, and a low grade fever. Anybody have these symptoms? Seeing a gastro doc on Friday. Scared about removal, as well!! Thanks for input, Robin
Biopsy today
We got a call late yesterday from the radiation department saying the oncologist scheduled a biopsy. I am not sure why since he said Jim coudn't have surgery or chemo. The Onco;ogist is on vacation until the 31st so Jim went and had it done. Maybe it will show something else, one can hope. Debbie
Mucoepidermoid Carcinoma
I was recently diagnosed w/ MEC. I literally found out on friday. I have had the tumor in my mouth for nearly two years. I didn't think anything of it until my dentist told me to get it biopsied. I plan on getting treatment at the Huntsman clinic in Salt Lake City, Ut by the head and neck oncology department. I am very…
Taste!!
I know I've touched on this subject before but did anybodys taste come and go? . I'm 5 weeks post rads and still have no saliva but my taste is weird!!! I could start to taste little bits of food on the tip of the tongue and when it went in the mouth the taste had gone, now all the taste has gone completly gone not even at…
How to protect neck disection scar during radiation
I did not even start radiation, just had the dry run with mask and my neck disection scar isd already seems a bit row. I think it is caused by touch or mask plastic over it. Is there a way to protect it during radiation? Maybe put a gauze or something? Thanks, Sam
No Diagnosis - But Surgery?
I am so glad I found this forum. Here is my story so far... On 28th I notice a large dome-shaped lump in the back of my mouth. Maybe the size of the tip of your thumb. It's basically the same color as the rest of mouth. So on May 1st I visited the ENT. He looked in my mouth, felt my lump and ordered a CT scan - which I did…
Finally getting started
Hi everybody the swelling from having my 23 teeth extracted is finally going down so hopefully tomorrow i'll be getting my mask made which will be a step in the right direction finally i can throw a punch against the devil and then the fight will be on any suggestions on the mask would be great.thank you
It's been a while
My husband, Andy, is still fighting the beast. He was in a clinical trial that worked for six cycles but then the response ended. He had a chemo vacation and is now on a new chemo regimen for six weeks. Then, we'll see if there's response. If not, on to the next game plan. More tools in the toolbox! Meanwhile I will…
follow up on Arndog's husband
Well my husband no loger has a fever, he went for a follow up with the infectious disease doctor last Wednesday and the doc was ready to take him off his meds until he told the doctor that he is still suffering from severe joint pain and fatigue. The doc looked a little concerned and said he should be better by now. So, he…
I'm searching and searching for the link
to the Magic Broth in the SuperThread.....but can't find it. Anybody? John? p
End of week number 4....
rads and amifostine......phew! That brings me over half way....YEAH!! Taste has taken a dramatic downturn...not that things taste bad, like metal or salty....just blah...but I'm still eating what I want, and haven't lost any weight. Second chemo is under my belt, and only 3 more weeks of rads... Now I'm waiting to hear…
Newbie Needs Guidance On Posting to Group
I was diagnosed with Sqaumous Cell Carcinoma (SCC), Base of Tongue (BOT) cancer in late 2009. I would very much like to tell my story in hopes of finding others who have experienced what I have gone through and am going through. I have two goals in being here, one it to tell my story in the hopes that it may help others…
Tap Out
I have not posted in a while due to a lot of reasons. Needless to say, I have been battling 'the beast' tooth and nail. Well, today, I officially 'tapped out'. I am no longer treating the cancer and I am going to try and enjoy as much as I can. No, I didn't just quit. I fought long and hard, but the Doc's just found about…
Letter from my doc
Dear Jenny. Just a short note to let you know that your recent ct scan shows no evidence of recurrent disease or new problems. This is a very encouraging result and I look forward to seeing you again in six months time. With warm regards. My doc. How friggin awesome is that?
An Introduction I Wish I Didn't Have To Make :o)
Hi guys. I recently went to the ENT about a gland on the right side of my neck that did not respond to antibiotics. Ended up having a diagnostic tonsillectomy last Wednesday. I won the prize... squamous cell carcinoma. It's kind of generic for now but I won't know more until my PET scan this week. The CT scan indicated…
To my base of tongue cancer pals
I was as most know by now diagnosed with BOT, but I had the swelling of the tongue and voice change, (not in my head / a fact) before even getting my 1st treatment which was chemo last week. Still weeks from rads when I expected tongue and thoart issues. My question is did any other BOT have issues before treatment /…
Just got back from the ENT......
Scope shows that the tumor has shrunk 75% :O! Those were the only words I was wanting to hear during today's appointment... p
Just diagnosed with SCC on tongue.
Hello, My name is Bob and I am a 37 yr old male. I have had a history of seizures and during these episodes I occasionally chewed/bit through my tongue. Needless to say there was a build up of scar tissue and over the past 3/4 years I would bite it while eating, talking etc. Anyway, about two weeks ago there was an…
6 month PET scan all great except
Right pterygoid muscles and inferior strap muscles I figure thats because they picked up the radioactive sugar solution because of late parts of my neck have been tender and sore when I lay down I am putting the pick up down to the pain.I am also putting the pain down to weakened muscles from Rad damage but not winging am…
Ch ch ch changes?
Hi all - I'm fine, but wondering . . . Have any of you taken any steps "back" after treatment? What kind, and when? About three months ago, I started having a more "tender" throat, and more sensitivity while eating. I finished rads two years ago. My docs weren't interested - I look and test fine. I had gotten to where I…
Parched
I'm so thirsty! Just want to down a gallon of ice cold water! But everything hurts and water burns. How do I get past this? Ideas?

Head and Neck Cancer

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